OOIR: Observatory of International Research

Papers

(The median citation count of AJIDD-American Journal on Intellectual and Developmental Disabilities is 1. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2022-08-01 to 2026-08-01.)

Article	Citations
NIH Toolbox Cognition Battery Feasibility in Individuals With Williams Syndrome	41
Clinical Relevance of NIH Toolbox Cognition Battery Developmental Change in Intellectual and Developmental Disabilities: Associations with Verbal Reasoning	37
CDKL5 Deficiency Disorder: Some Lessons Learned 20 Years After the First Description	34
Examining the Relationship Among Parental Stress, Knowledge, and Family Empowerment for Latinx Parents of Children With Intellectual and Developmental Disabilities	26
Wearable Biosensors in Youth With Autism With High Behavioral Acuity: Supportive Practices, Acceptability, and the Importance of Nonverbal Signs of Assent to Research Participation	20
Reducing Depressive Symptoms Among Latina Mothers of Autistic Children: A Randomized Controlled Trial	15
Résumés en Français	14
Résumés en Français	13
Relationships Between Bioecological Factors and Expectations for Community Living and Participation Outcomes Among Individuals With Intellectual Disability and Families: A Scoping Review	13
Evaluation of a Modified Corsi Task to Assess Visuospatial Short-Term Memory in Young Children With Down Syndrome	11
Diffusion of the Shared Citizenship Paradigm: Strategies and Next Steps	11
Child and Family Predictors for Mastery Motivation in Children With Developmental Delays	11
Improving Social and Play Outcomes for Students With Significant Disabilities During Recess	10
Medication Management in Adults With Intellectual and Developmental Disabilities: Psychiatric Pharmacists in Primary Care	10
The Role of Journal Editors in Implementing Equity-Focused Research	8
Impact of the Great Recession on Adults With Autism and Their Mothers	8
Characterizing Automatically Maintained Self-Injury With the Aberrant Behavior Checklist	8
Effects of Stepped Cognitive Behavioral Therapy on Child Depressive and Externalizing Symptoms in Autistic Children With Anxiety	8
Youth With Intellectual Disability and Family Perceptions of Individualized Education Program Meeting Participation During Secondary Education	8
Parent-Reported Indicators of Depression in Non- and Minimally Speaking Adults With Autism	7
A Transdiagnostic Comparison of Mindfulness and Parenting Stress in Mothers of Children With Autism, Developmental Delay, and Fragile X Syndrome	7
Diagnostic Overshadowing of Psychological Disorders in People With Intellectual Disability: A Systematic Review	7
Examining Choice and Control for People With IDD Over Time	7
Résumés en Français	6
Perceived Quality of Life in Adults with Mild to Moderate Intellectual Disability and Early-Stage Dementia in Chile	6

Proxy Responses in Research on COVID-19 Among People With Intellectual and Developmental Disabilities	6
Resúmenes al Español	6
Toward Equity in Research on Intellectual and Developmental Disabilities	6
Resúmenes al Español	6
Challenges in Using Parent-Reported Bed and Wake Times for Actigraphy Scoring in Rett-Related Syndromes	5
Fragile X Syndrome in Adulthood: A Study of Electronic Health Records	5
The Effects of Discrete Trial and Natural Environment Teaching on Adaptive Behavior in Toddlers With Autism Spectrum Disorder	5
Examining Phenotypic Differences in Gaze Avoidance Between Autism Spectrum Disorder and Fragile X Syndrome	5
Résumés en Français	5
The Key Role of Gestures in Spatial Tasks for Students With Intellectual Disability	5
The Power of Partnerships to Identify and Address Mental Health Concerns Experienced by Adults With Intellectual and Developmental Disabilities	4
Impact of Educational Placement on the Goal Attainment Outcomes of K–6 Students With Complex Needs Across Academic and Social-Behavioral-Communication Domains	4
Neurodevelopmental Outcomes of Pediatric Cardiac Extracorporeal Membrane Oxygenation Survivors With Central Cannulation	4
A Preliminary Investigation of Using Contingency Space Analyses During Repeated Psychotropic Medication Regimen Changes for Challenging Behavior	4
The Executive Function Account of Repetitive Behavior: Evidence From Rubinstein-Taybi Syndrome	4
Résumés en Français	4
Resúmenes al Español	4
Family Perspectives on the Complexities of Pursuing Integrated Employment for Adults With Intellectual and Developmental Disabilities	4
Validation of the Observer-Reported Communication Ability (ORCA) Measure for Individuals With Angelman Syndrome	4
Bone Mineral Density Screening in People With Epilepsy and Intellectual Disability	3
Expressive Language Sample Concordance With ADOS-2 Scores: Autism, Down Syndrome, Fragile X Syndrome	3
Validity Data for the Developmental Profile-4 in Individuals With Profound Intellectual and Multiple Disabilities and Developmental Epileptic Encephalopathies	3
Modified Cued Recall Test for the Diagnosis of Alzheimer's Disease in a Greek Sample of Adults With Down Syndrome: A Preliminary Study	3
Resúmenes al Español	3
Social Anxiety in Neurodevelopmental Disorders: The Case of Fragile X Syndrome	3
The Work Ahead for Intellectual and Developmental Disabilities Research	3
Genetic Subtypes of Phelan-McDermid Syndrome Exhibit Similar Rates of Change Despite Differences in Level of Impairment in Developmental Constructs	3
The Role of Parent Advocacy in Autistic Youths’ Self-Determination	3
Resúmenes al Español	3
Resilience in Families of Autistic Children and Children With Intellectual Disability During the COVID-19 Pandemic	3
Resúmenes al Español	3
Résumés en Français	3
Psychotropic Medication and Psychosocial Service Use Among Transition Age Youth With Autism Spectrum Disorder	3
New Psychometric Evidence for the Brazilian Version of the Diagnostic Adaptive Behavior Scale	3
The Equity Agenda in Intellectual and Developmental Disabilities Research	3
Understanding Natural Supports in Diverse Adults With Intellectual and Developmental Disabilities Across Life Domains	3
Resúmenes al Español	3
Resúmenes al Español	3
Résumés en Français	2
Measuring the Association of Race, Neighborhood Segregation, and Healthcare Use Among People With Intellectual and Developmental Disabilities	2
Scientists Can Do Better Including Those With Intellectual Disability in Clinical Trials	2
Confirming the Tripartite Factor Structure of the Diagnostic Adaptive Behavior Scale	2
Résumés en Français	2
Factors Associated With Readmission and Mortality of Hospitalized Individuals With Intellectual and Developmental Disabilities in Four U.S. States	2
Systematic Review of Intervention Programs Designed to Improve the Socioemotional Skills of Children and Adolescents With Prader-Willi Syndrome	2
Resúmenes al Español	2
Modeling the Latent Factor Structure of the “EXcEEDS” (EX ecutive function E arly E	2
Functional Limitations Reported Among U.S. Adults With Intellectual Disability Participating in Special Olympics: A Comparative Analysis to the General Population	2
Confronting Epistemic Injustice and Inequity in IDD Research: The Value of Theorizing Beyond Dominant Culture’s Perspective	2
The French Version of the DABS: Adaptation Process and Preliminary Field Test	1

Measurement Invariance in Intellectual and Developmental Disability Research	1
Characterizing Populations Based on Proximity to a Fragile X Syndrome Specialty Clinic	1
Résumés en Français	1
Résumés en Français	1
Mindfulness as a Potential Moderator Between Child Behavior Problems and Maternal Well-Being	1
Physical Restraints in People With Intellectual Disability: A Scoping Review	1
Family Caregivers’ Attitudes and Perspectives About the Sexual and Reproductive Health of Women With Intellectual and Developmental Disabilities: An Online Survey	1
Résumés en Français	1
On Terms: What's in a Name? Intellectual Disability and “Condition,” “Disorder,” “Syndrome,” “Disease,” and “Disability”	1
Postschool Goal Expectations for Youth With Intellectual and Developmental Disabilities	1
Attitudes, Assumptions, and Beliefs of Obstetric Care Clinicians Regarding Perinatal Care of Women With Intellectual and Developmental Disabilities	1
Using a Delphi Process to Update the Nisonger Child Behavior Rating Form	1
Increasing Access to Early Diagnosis and Assessment of Autism Via Biomarker-Based Measurements of Social Visual Engagement	1
Caring for Adults With Significant Levels of Intellectual Disability in Outpatient Settings: Results of a National Survey of Physicians	1
Résumés en Français	1
The Mediatory Role of Executive Functioning on the Association Between Sleep and Both Everyday Memory and ADHD Symptoms in Children and Youth With Down Syndrome	1
Comparing Indicators of Advocacy Ability and Service Access Between Latino and White Families of Transition-Aged Youth With Autism	1
Examining Differences in Hospitalization Among Adults With and Without Intellectual and Developmental Disabilities	1
Unique Pain Responses in Different Etiological Subgroups of Intellectual and Developmental Disabilities	1