OOIR: Observatory of International Research

Papers

(The median citation count of AJIDD-American Journal on Intellectual and Developmental Disabilities is 1. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2022-05-01 to 2026-05-01.)

Article	Citations
NIH Toolbox Cognition Battery Feasibility in Individuals With Williams Syndrome	36
CDKL5 Deficiency Disorder: Some Lessons Learned 20 Years After the First Description	33
Wearable Biosensors in Youth With Autism With High Behavioral Acuity: Supportive Practices, Acceptability, and the Importance of Nonverbal Signs of Assent to Research Participation	30
Résumés en Français	22
Evaluation of a Modified Corsi Task to Assess Visuospatial Short-Term Memory in Young Children With Down Syndrome	19
Résumés en Français	15
Relationships Between Bioecological Factors and Expectations for Community Living and Participation Outcomes Among Individuals With Intellectual Disability and Families: A Scoping Review	12
Reducing Depressive Symptoms Among Latina Mothers of Autistic Children: A Randomized Controlled Trial	11
Examining the Relationship Among Parental Stress, Knowledge, and Family Empowerment for Latinx Parents of Children With Intellectual and Developmental Disabilities	10
Medication Management in Adults With Intellectual and Developmental Disabilities: Psychiatric Pharmacists in Primary Care	10
Child and Family Predictors for Mastery Motivation in Children With Developmental Delays	10
Characterizing Automatically Maintained Self-Injury With the Aberrant Behavior Checklist	9
Examining Choice and Control for People With IDD Over Time	9
Effects of Stepped Cognitive Behavioral Therapy on Child Depressive and Externalizing Symptoms in Autistic Children With Anxiety	9
Diffusion of the Shared Citizenship Paradigm: Strategies and Next Steps	8
The Role of Journal Editors in Implementing Equity-Focused Research	8
Impact of the Great Recession on Adults With Autism and Their Mothers	8
Youth With Intellectual Disability and Family Perceptions of Individualized Education Program Meeting Participation During Secondary Education	8
Resúmenes al Español	7
Improving Social and Play Outcomes for Students With Significant Disabilities During Recess	7
Diagnostic Overshadowing of Psychological Disorders in People With Intellectual Disability: A Systematic Review	7
Parent-Reported Indicators of Depression in Non- and Minimally Speaking Adults With Autism	6
A Transdiagnostic Comparison of Mindfulness and Parenting Stress in Mothers of Children With Autism, Developmental Delay, and Fragile X Syndrome	6
Résumés en Français	6
Resúmenes al Español	6

Toward Equity in Research on Intellectual and Developmental Disabilities	6
Challenges in Using Parent-Reported Bed and Wake Times for Actigraphy Scoring in Rett-Related Syndromes	5
Résumés en Français	5
Examining Phenotypic Differences in Gaze Avoidance Between Autism Spectrum Disorder and Fragile X Syndrome	5
Proxy Responses in Research on COVID-19 Among People With Intellectual and Developmental Disabilities	5
Fragile X Syndrome in Adulthood: A Study of Electronic Health Records	5
The Effects of Discrete Trial and Natural Environment Teaching on Adaptive Behavior in Toddlers With Autism Spectrum Disorder	5
Family Perspectives on the Complexities of Pursuing Integrated Employment for Adults With Intellectual and Developmental Disabilities	4
Résumés en Français	4
Resúmenes al Español	4
Neurodevelopmental Outcomes of Pediatric Cardiac Extracorporeal Membrane Oxygenation Survivors With Central Cannulation	4
The Executive Function Account of Repetitive Behavior: Evidence From Rubinstein-Taybi Syndrome	4
The Key Role of Gestures in Spatial Tasks for Students With Intellectual Disability	4
Résumés en Français	4
Impact of Educational Placement on the Goal Attainment Outcomes of K–6 Students With Complex Needs Across Academic and Social-Behavioral-Communication Domains	4
A Systematic Review of Maintenance Measurement in Early Childhood Autism Spectrum Disorder Research	3
Psychotropic Medication and Psychosocial Service Use Among Transition Age Youth With Autism Spectrum Disorder	3
Genetic Subtypes of Phelan-McDermid Syndrome Exhibit Similar Rates of Change Despite Differences in Level of Impairment in Developmental Constructs	3
The Role of Parent Advocacy in Autistic Youths’ Self-Determination	3
Modified Cued Recall Test for the Diagnosis of Alzheimer's Disease in a Greek Sample of Adults With Down Syndrome: A Preliminary Study	3
Résumés en Français	3
A Preliminary Investigation of Using Contingency Space Analyses During Repeated Psychotropic Medication Regimen Changes for Challenging Behavior	3
The Work Ahead for Intellectual and Developmental Disabilities Research	3
Expressive Language Sample Concordance With ADOS-2 Scores: Autism, Down Syndrome, Fragile X Syndrome	3
Resúmenes al Español	3
New Psychometric Evidence for the Brazilian Version of the Diagnostic Adaptive Behavior Scale	3
Validation of the Observer-Reported Communication Ability (ORCA) Measure for Individuals With Angelman Syndrome	3
Bone Mineral Density Screening in People With Epilepsy and Intellectual Disability	3
The Power of Partnerships to Identify and Address Mental Health Concerns Experienced by Adults With Intellectual and Developmental Disabilities	3
Resilience in Families of Autistic Children and Children With Intellectual Disability During the COVID-19 Pandemic	3
The Equity Agenda in Intellectual and Developmental Disabilities Research	3
Resúmenes al Español	2
Social Anxiety in Neurodevelopmental Disorders: The Case of Fragile X Syndrome	2
Measurement Invariance in Intellectual and Developmental Disability Research	2
Résumés en Français	2
Understanding Natural Supports in Diverse Adults With Intellectual and Developmental Disabilities Across Life Domains	2
Resúmenes al Español	2
Confronting Epistemic Injustice and Inequity in IDD Research: The Value of Theorizing Beyond Dominant Culture’s Perspective	2
Modeling the Latent Factor Structure of the “EXcEEDS” (EX ecutive function E arly E	2
Resúmenes al Español	2
Resúmenes al Español	2
Resúmenes al Español	2
Scientists Can Do Better Including Those With Intellectual Disability in Clinical Trials	2
Résumés en Français	2
Systematic Review of Intervention Programs Designed to Improve the Socioemotional Skills of Children and Adolescents With Prader-Willi Syndrome	2
Résumés en Français	1
Family Caregivers’ Attitudes and Perspectives About the Sexual and Reproductive Health of Women With Intellectual and Developmental Disabilities: An Online Survey	1
On Terms: What's in a Name? Intellectual Disability and “Condition,” “Disorder,” “Syndrome,” “Disease,” and “Disability”	1
Résumés en Français	1
Résumés en Français	1

Mindfulness as a Potential Moderator Between Child Behavior Problems and Maternal Well-Being	1
Resúmenes al Español	1
Using a Delphi Process to Update the Nisonger Child Behavior Rating Form	1
Increasing Access to Early Diagnosis and Assessment of Autism Via Biomarker-Based Measurements of Social Visual Engagement	1
Caring for Adults With Significant Levels of Intellectual Disability in Outpatient Settings: Results of a National Survey of Physicians	1
Measuring the Association of Race, Neighborhood Segregation, and Healthcare Use Among People With Intellectual and Developmental Disabilities	1
Comparing Indicators of Advocacy Ability and Service Access Between Latino and White Families of Transition-Aged Youth With Autism	1
Anxiety Self-Report in Autistic Adolescents With Intellectual Disability: Predictors of Parent-Youth Agreement	1
A Call-In for Allyship and Anti-Ableism in Intellectual Disability Research	1
The Effects of Health Insurance Coverage on Workforce Engagement of Family Caregivers of Children With Intellectual Disability and Autism	1
Postschool Goal Expectations for Youth With Intellectual and Developmental Disabilities	1
The Mediatory Role of Executive Functioning on the Association Between Sleep and Both Everyday Memory and ADHD Symptoms in Children and Youth With Down Syndrome	1
Résumés en Français	1
The French Version of the DABS: Adaptation Process and Preliminary Field Test	1
Attitudes, Assumptions, and Beliefs of Obstetric Care Clinicians Regarding Perinatal Care of Women With Intellectual and Developmental Disabilities	1
Chronic Health Conditions Among Adults With Intellectual and Developmental Disabilities in a State Medicaid System	1
Unique Pain Responses in Different Etiological Subgroups of Intellectual and Developmental Disabilities	1