OOIR: Observatory of International Research

Papers

(The TQCC of Intellectual and Developmental Disabilities is 3. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-11-01 to 2024-11-01.)

Article	Citations
Family Role in the Development of Self-Determination for Youth With Intellectual and Developmental Disabilities: A Scoping Review	18
FACES: An Advocacy Intervention for African American Parents of Children With Autism	18
Ongoing Transformation in the Field of Intellectual and Developmental Disabilities: Taking Action for Future Progress	16
Incentives, Wages, and Retention Among Direct Support Professionals: National Core Indicators Staff Stability Survey	15
Curricular Philosophies Reflected in Individualized Education Program Goals for Students With Complex Support Needs	15
Direct Support Professionals' Perspectives on Workplace Support: Underappreciated, Overworked, Stressed Out, and Stretched Thin	13
Job Interview and Vocational Outcomes Among Transition-Age Youth Receiving Special Education Pre-Employment Transition Services	13
Racial and Ethnic Disparities in Perceived Barriers to Health Care Among U.S. Adults With Intellectual and Developmental Disabilities	11
Community Supports and COVID-19: Self-Determination in a Pandemic	11
Are Researchers Addressing Cancer Treatment and Survivorship Among People With Intellectual and Developmental Disabilities in the U.S.? A Scoping Review	11
Self-Determination Assessment in Adults With and Without Intellectual Disability	11
The Impact of Home and Community Based Settings (HCBS) Final Settings Rule Outcomes on Health and Safety	10
Goal Attainment Scaling: A Framework for Research and Practice in the Intellectual and Developmental Disabilities Field	10
Presidential Address, 2022—Dismantling Systemic Barriers: Re-Envisioning Equity and Inclusion	8
Medicaid Home- and Community-Based Services Waivers for People With Intellectual and Developmental Disabilities	8
Quality of Life Outcome and Support Disparities Among People With More Severe Impairments	8
College-Based Transition Services' Impact on Self-Determination for Youth With Intellectual and Developmental Disabilities	7
Professional Responsibility in the Field of Intellectual and Developmental Disabilities: Its Definition, Application, and Impacts	7
The Right to Science: Centering People With Intellectual Disability in the Process and Outcomes of Science	7
Development, Implementation, and Evaluation of an Advance Care Planning Program for Professionals in Palliative Care of People With Intellectual Disability	7
Training Healthcare Professionals to Work With People With Intellectual and Developmental Disabilities	7
Transition Planning: Knowledge and Preferences of Latinx Families of Youth With Intellectual and Developmental Disabilities	7
Effects of a Community-Based Familiarization Intervention on Independent Performance of Resistance-Training Exercise Tasks by Adults With Intellectual Disability	7
The IDD Paradigm of Shared Citizenship: Its Operationalization, Application, Evaluation, and Shaping for the Future	6
Effect of Online Palliative Care Training on Knowledge and Self-Efficacy of Direct Care Workers	6

Barriers to Service Access for Immigrant Families of Children With Developmental Disabilities: A Scoping Review	6
Advance Care Planning for Individuals With Intellectual and Developmental Disabilities: A State-by-State Content Analysis of Person-Centered Service Plans	5
Presidential Address, 2020—Using Technology to Deliver Services and Supports in Homes, Neighborhoods, and Communities: Evidence and Promise	5
Inclusive Entrepreneurship and Motivation Among People With Intellectual Disability: “Why They Act”	5
The Benefits of Active, Person-Centered Job Placement: Results From Service Providers Undergoing Organizational Transformation Away From Sheltered Employment	4
Lessons Learned From Research Collaboration Among People With and Without Developmental Disabilities	4
Preliminary Results of an Interdisciplinary Behavioral Program to Improve Access to Preventative Dental Care for Adults With Intellectual and Developmental Disabilities	4
Psychometric Properties of Self-Determination Inventory: Student Report Among Chinese Students With and Without Intellectual and Developmental Disabilities	4
Development of a Dutch Training/Education Program for a Healthy Lifestyle of People With Intellectual Disability	4
Blurring the Boundaries: Reflections From Early Career Faculty During the COVID-19 Era	4
Effects of a Justice-Based Partnership Between Employees and Families in Creating Services and Supports to Enhance Quality of Life Outcomes	4
Mental Health Concerns in Individuals With Developmental Disabilities: Improving Mental Health Literacy Trainings for Caregivers	4
The Role of Information and Knowledge in COVID-19 Vaccination Among People With Intellectual and Developmental Disabilities and Their Families	4
The Community of Practice for Supporting Families of Persons With Intellectual and Developmental Disabilities	4
Is the Intellectual Functioning Component of AAIDD's 12th Manual Satisficing?	4
A Pilot Study of a Future Planning Program for Siblings of People With Intellectual and Developmental Disabilities	4
Evidence-Based Early Home Visiting for Mothers and Parents With Intellectual Disability: Home Visitor Perceptions and Practices	3
Compound Caregiving: Toward a Research Agenda	3
Scaling Up a Peer-Mediated Program Statewide: Lessons Learned Through Peer to Peer	3
The Impact of Continuity and Security on Quality of Life	3
Prevalence of Secondary Traumatic Stress Among Direct Support Professionals in Intellectual and Developmental Disabilities Field	3
Alignment of Supplementary Aids and Services With Student Needs and Placement	3
Friendships Through Inclusive Postsecondary Education Programs: Perspectives of Current and Former Students With Intellectual and Developmental Disabilities	3
Examining Whether Student Participation in School-Sponsored Extracurricular Activities Is Represented in IEPs	3
Formal and Informal Supports for Women With Intellectual and Developmental Disabilities During Pregnancy	3
Direct Support Professionals: Stress and Resiliency Amidst the COVID-19 Pandemic	3
Hospitalizations Among Children and Youth With Autism in the United States: Frequency, Characteristics, and Costs	3
Participation and Companions for Socially Inclusive Community Activities by U.S. Adults With Intellectual and Developmental Disabilities	3
Recruiting the Voices of Persons With Intellectual and Developmental Disabilities in Policy Development: Priorities for Health Equity Data	3
Uplifts, Respite, Stress, and Marital Quality for Parents Raising Children With Down Syndrome or Autism	3
Exploring Patterns of Advocacy and Well-Being of Parents of Children With Intellectual and Developmental Disabilities	3
Exploring Caregiver Perceptions of Post-High School Employment Experiences Among Young Adults With Down Syndrome	3
Functional Literacy Intervention for Postsecondary Students With Intellectual and Developmental Disabilities: A Pilot Study	3
Assessing Alignment Between Intellectual and Developmental Disability Service Providers and Trauma-Informed Care: An Exploratory Study	3