OOIR: Observatory of International Research

Papers

(The median citation count of Intellectual and Developmental Disabilities is 0. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-11-01 to 2024-11-01.)

Article	Citations
Family Role in the Development of Self-Determination for Youth With Intellectual and Developmental Disabilities: A Scoping Review	18
FACES: An Advocacy Intervention for African American Parents of Children With Autism	18
Ongoing Transformation in the Field of Intellectual and Developmental Disabilities: Taking Action for Future Progress	16
Incentives, Wages, and Retention Among Direct Support Professionals: National Core Indicators Staff Stability Survey	15
Curricular Philosophies Reflected in Individualized Education Program Goals for Students With Complex Support Needs	15
Direct Support Professionals' Perspectives on Workplace Support: Underappreciated, Overworked, Stressed Out, and Stretched Thin	13
Job Interview and Vocational Outcomes Among Transition-Age Youth Receiving Special Education Pre-Employment Transition Services	13
Racial and Ethnic Disparities in Perceived Barriers to Health Care Among U.S. Adults With Intellectual and Developmental Disabilities	11
Community Supports and COVID-19: Self-Determination in a Pandemic	11
Are Researchers Addressing Cancer Treatment and Survivorship Among People With Intellectual and Developmental Disabilities in the U.S.? A Scoping Review	11
Self-Determination Assessment in Adults With and Without Intellectual Disability	11
The Impact of Home and Community Based Settings (HCBS) Final Settings Rule Outcomes on Health and Safety	10
Goal Attainment Scaling: A Framework for Research and Practice in the Intellectual and Developmental Disabilities Field	10
Presidential Address, 2022—Dismantling Systemic Barriers: Re-Envisioning Equity and Inclusion	8
Medicaid Home- and Community-Based Services Waivers for People With Intellectual and Developmental Disabilities	8
Quality of Life Outcome and Support Disparities Among People With More Severe Impairments	8
College-Based Transition Services' Impact on Self-Determination for Youth With Intellectual and Developmental Disabilities	7
Professional Responsibility in the Field of Intellectual and Developmental Disabilities: Its Definition, Application, and Impacts	7
The Right to Science: Centering People With Intellectual Disability in the Process and Outcomes of Science	7
Development, Implementation, and Evaluation of an Advance Care Planning Program for Professionals in Palliative Care of People With Intellectual Disability	7
Training Healthcare Professionals to Work With People With Intellectual and Developmental Disabilities	7
Transition Planning: Knowledge and Preferences of Latinx Families of Youth With Intellectual and Developmental Disabilities	7
Effects of a Community-Based Familiarization Intervention on Independent Performance of Resistance-Training Exercise Tasks by Adults With Intellectual Disability	7
The IDD Paradigm of Shared Citizenship: Its Operationalization, Application, Evaluation, and Shaping for the Future	6
Effect of Online Palliative Care Training on Knowledge and Self-Efficacy of Direct Care Workers	6

Barriers to Service Access for Immigrant Families of Children With Developmental Disabilities: A Scoping Review	6
Advance Care Planning for Individuals With Intellectual and Developmental Disabilities: A State-by-State Content Analysis of Person-Centered Service Plans	5
Presidential Address, 2020—Using Technology to Deliver Services and Supports in Homes, Neighborhoods, and Communities: Evidence and Promise	5
Inclusive Entrepreneurship and Motivation Among People With Intellectual Disability: “Why They Act”	5
Is the Intellectual Functioning Component of AAIDD's 12th Manual Satisficing?	4
A Pilot Study of a Future Planning Program for Siblings of People With Intellectual and Developmental Disabilities	4
The Benefits of Active, Person-Centered Job Placement: Results From Service Providers Undergoing Organizational Transformation Away From Sheltered Employment	4
Lessons Learned From Research Collaboration Among People With and Without Developmental Disabilities	4
Preliminary Results of an Interdisciplinary Behavioral Program to Improve Access to Preventative Dental Care for Adults With Intellectual and Developmental Disabilities	4
Psychometric Properties of Self-Determination Inventory: Student Report Among Chinese Students With and Without Intellectual and Developmental Disabilities	4
Development of a Dutch Training/Education Program for a Healthy Lifestyle of People With Intellectual Disability	4
Blurring the Boundaries: Reflections From Early Career Faculty During the COVID-19 Era	4
Effects of a Justice-Based Partnership Between Employees and Families in Creating Services and Supports to Enhance Quality of Life Outcomes	4
Mental Health Concerns in Individuals With Developmental Disabilities: Improving Mental Health Literacy Trainings for Caregivers	4
The Role of Information and Knowledge in COVID-19 Vaccination Among People With Intellectual and Developmental Disabilities and Their Families	4
The Community of Practice for Supporting Families of Persons With Intellectual and Developmental Disabilities	4
Evidence-Based Early Home Visiting for Mothers and Parents With Intellectual Disability: Home Visitor Perceptions and Practices	3
Compound Caregiving: Toward a Research Agenda	3
Scaling Up a Peer-Mediated Program Statewide: Lessons Learned Through Peer to Peer	3
The Impact of Continuity and Security on Quality of Life	3
Prevalence of Secondary Traumatic Stress Among Direct Support Professionals in Intellectual and Developmental Disabilities Field	3
Alignment of Supplementary Aids and Services With Student Needs and Placement	3
Friendships Through Inclusive Postsecondary Education Programs: Perspectives of Current and Former Students With Intellectual and Developmental Disabilities	3
Examining Whether Student Participation in School-Sponsored Extracurricular Activities Is Represented in IEPs	3
Formal and Informal Supports for Women With Intellectual and Developmental Disabilities During Pregnancy	3
Direct Support Professionals: Stress and Resiliency Amidst the COVID-19 Pandemic	3
Hospitalizations Among Children and Youth With Autism in the United States: Frequency, Characteristics, and Costs	3
Participation and Companions for Socially Inclusive Community Activities by U.S. Adults With Intellectual and Developmental Disabilities	3
Recruiting the Voices of Persons With Intellectual and Developmental Disabilities in Policy Development: Priorities for Health Equity Data	3
Uplifts, Respite, Stress, and Marital Quality for Parents Raising Children With Down Syndrome or Autism	3
Exploring Patterns of Advocacy and Well-Being of Parents of Children With Intellectual and Developmental Disabilities	3
Exploring Caregiver Perceptions of Post-High School Employment Experiences Among Young Adults With Down Syndrome	3
Functional Literacy Intervention for Postsecondary Students With Intellectual and Developmental Disabilities: A Pilot Study	3
Assessing Alignment Between Intellectual and Developmental Disability Service Providers and Trauma-Informed Care: An Exploratory Study	3
The Participation of Secondary Students With Severe Disabilities in School Clubs	2
The Continuum of Support for Building Intimacy Knowledge in College for Students With Intellectual Disability	2
Community Capacity to Provide Mental/Behavioral Health Services for People With IDD Transitioning From State-Operated Developmental Centers	2
Policy Implications, Eligibility, and Demographic Characteristics of People With Intellectual Disability Who Access Self-Directed Funding in the United States	2
Student Confidence in Providing Healthcare to Adults With Intellectual Disability: Implications for Health Profession Curricula	2
An Examination of Support Needs, Supports, and Outcomes for People With Intellectual and Developmental Disabilities	2
Parental Perceptions of Service Access for Transition-Aged Youth With Autism During COVID-19	2
It's Never Too Late: Debunking Myths About Communication and Adults With Severe Disabilities	2
National Dementia Capable Care Training: A Model Implementation and Evaluation	2
Special Issue Introduction: Addressing Healthcare Inequities in Intellectual Disability and Developmental Disabilities	2
Organizational Supports to Promote the Community Integration of People With Dual Diagnosis	2
Using Video Modeling Plus a System of Least Prompts to Teach People With Intellectual Disability to Participate in Faith Communities	2
Supporting Employment Consultants to Implement Supported and Customized Employment	2
Promoting Resilience in Direct Support Professionals of Adults With Intellectual and Developmental Disabilities: A Qualitative Descriptive Study	2
Managed Care and Value-Based Payment: The Relationship Between Quality of Life Outcomes and Emergency Room Utilization	2
To Connect and Educate: Why Families Engage in Family-Professional Partnership Training Experiences	1

Employment Trends in Rhode Island From 2011 to 2017 for Adults With Intellectual Disability and Developmental Disabilities	1
Understanding the Impacts of COVID Policy Changes on Access to Needed Supports for Families With Children Receiving Medicaid HCBS Waiver Services	1
Teaching Earthquake Preparedness Skills to Students With Developmental Disabilities: A Preliminary Evaluation	1
Short-Term Changes of Frailty in Prematurely Aging Adults With Intellectual Disability	1
Social Positioning to Increase Communication of Adults With Extensive Support Needs	1
“More Than a Paycheck”: Parent Perspectives on Meaningful Work for Individuals With Intellectual and Developmental Disabilities	1
Inclusion in an Interdisciplinary Leadership Training Program: Perspectives From Self-Advocates	1
Pre- and Post-COVID-19 Outcomes for Israelis With Intellectual and Developmental Disabilities in the Community	1
Toward Freedom and Dignity: Comments on the Occasion of the Publication of the 12th Edition of the AAIDD Definition and Classification Manual	1
Examining Association Between Reported High Cholesterol and Risk Factors in Adults With Intellectual and Developmental Disabilities (IDD): A Five-Year Follow-Up	1
Intermediate Care Facilities for Individuals With Intellectual Disabilities: Does Ownership Type Affect Quality of Care?	1
Pushing the Integrated Employment Agenda: Employment Systems Partners and the High-Performing States Model	1
A Tale of Two Adaptations of a Special Education Advocacy Program	1
Effects of Customized Employment on the Independence of Youth With Intellectual and Developmental Disabilities	1
Seeking Out Social Learning: Online Self-Education in Parents of Children With Intellectual and Developmental Disabilities	1
Views of Speech-Language Pathologists on Telepractice for Children Who Use Augmentative and Alternative Communication	1
Stakeholder Perspectives on Interprofessional Primary Care for Adults With Intellectual and Developmental Disabilities in Ontario, Canada	1
Reading Lessons Planning With Students With Intellectual and Developmental Disabilities in Mind: Needs-Based Assessment Proposal	1
Applicants to a Special Education Advocacy Training Program: “Insiders” in the Disability Advocacy World	1
Planting the Seeds of Collaboration: A Pilot for School/Clinic Partnerships During Pediatric Clerkship	1
Résumés en Français	0
Comparing Perspectives Between Different Agency Structures and Support Models	0
Résumés en Français	0
Resúmenes al Español	0
Resúmenes al Español	0
Résumés en Français	0
Family Resilience Affecting Well-Being of Families With a Child With Profound Intellectual and Multiple Disabilities	0
NCLB Alternate Assessment Policies and Postschool Employment Outcomes for Individuals With Significant Cognitive Disabilities	0
The Direct Support Workforce: An Examination of Direct Support Professionals and Frontline Supervisors During COVID-19	0
Self-Advocate and Family Member Experiences With Supported Decision Making	0
Resúmenes al Español	0
Instructional Content and Self-Determination in Individualized Education Program Annual Goals for Students With Extensive Support Needs	0
Resúmenes al Español	0
Future Goal Aspirations of Students With Extensive Support Needs: Findings From NLTS 2012	0
Reflections on How What We Say, Do, and Acknowledge as Intellectual and Developmental Disability Researchers Matters	0
Criminal Justice and People With Intellectual and Developmental Disabilities	0
Résumés en Français	0
Résumés en Français	0
Resúmenes al Español	0
A Research Agenda to Support Families of People With Intellectual and Developmental Disabilities With Intersectional Identities	0
Résumés en Français	0
Résumés en Français	0
Factors Mediating the Link Between Socioeconomic Status and Academic Outcomes of Children With Intellectual Disability	0
Résumés en Français	0
The Relationship Between Choice and Injuries of People With Intellectual and Developmental Disabilities	0
Individualizing Instruction for Students With Intellectual and Developmental Disabilities in China: Teachers’ Perceptions and Practices	0
Introduction to This Special Issue of IDD	0
Factors Influencing Parents' Decisions to Create a Business for Their Adult Child With Intellectual Disability	0
Virtual Community Conversations as Catalysts for Improving Transitions for Youth With Intellectual and Developmental Disabilities	0
Resúmenes al Español	0
Developing and Evaluating the Fidelity and Understandability of Plain Language Summaries of Position Statements	0
Presidential Address: The Next Generation Workforce, A Call to Action	0
Résumés en Français	0
Leisure Participation Opportunities for Adults With Intellectual Disability With Moderate Levels of Impairment Residing in Community Apartments	0
Resúmenes al Español	0
Presidential Address, 2023—Setting New Norms for Integrated and Competitive Employment: Challenges, Opportunities, Strategies	0
Resúmenes al Español	0
Resúmenes al Español	0
Service Use Patterns by Children With Down Syndrome in a Canadian Region	0
Employment Interventions for People With Intellectual and Developmental Disabilities: A Delphi Study of Stakeholder Perspectives	0
Résumés en Français	0
Resúmenes al Español	0
Résumés en Français	0
Capturing Staff Perspectives on Quality Interaction With Clients With Intellectual Disability: A Diary Study	0
Résumés en Français	0
Factors That Influence the Tenure of Direct Support Professionals in New York State Provider Agencies	0
Matching Level of Clinical Support to Patient Risk When Caring for Children With Behavioral Challenges	0
Résumés en Français	0
Résumés en Français	0
Direct Support Professionals: Diversity, Disparities, and Deepening Crisis	0
Resúmenes al Español	0
College Students With Intellectual and Developmental Disabilities’ Experiences, Conception, and Development of Emotional Wellness	0
Who Is Leading the Field in 2020?: AAIDD Students and Early Career Professionals	0
Résumés en Français	0
Résumés en Français	0
Direct Support Professionals and COVID-19 Vaccination: A Comparison of Vaccinated Early Adopters and In-Betweeners	0
Implementation and Challenge of Supported Employment for People With Disabilities in China	0
Using the Independent Monitoring for Quality Program to Examine Longitudinal Outcomes for People With Intellectual and Developmental Disabilities	0
Resúmenes al Español	0
Outcomes for Adults With Intellectual and Developmental Disabilities Receiving Long-Term Services and Supports: A Systematic Review of the Literature	0

Understanding Characteristics and Predictors of Admission From the Emergency Department for Patients With Intellectual Disability	0
Effect of a Nurses’ Training Program on Early Detection of Egyptian Children With Developmental Disabilities in Assiut Governorate	0
Résumés en Français	0
Empowering Healthcare Professionals: Exploring Experiences Leading a Violence Prevention Course for Adults With Intellectual Disability	0
Resúmenes al Español	0
Resúmenes al Español	0
Erratum	0
Exploring the Involvement of Autistic Youth in Decision Making About Services	0
Resúmenes al Español	0
Resúmenes al Español	0
Résumés en Français	0
Value-Based Payments: Intellectual and Developmental Disabilities Quality Indicators Associated With Billing Expenditures	0
Resúmenes al Español	0
Resúmenes al Español	0
A Community-Health System Intervention to Improve the Primary Healthcare of Adults With Down Syndrome Through Electronic Consultations	0
Medical Student Choices Regarding Ventilator Allocation for People With Disabilities	0
Research About Us, With Us: An Inclusive Research Case Study	0
“I Know How to Get Around Your ‘No’”: A Follow-Up of the FACES Psychoeducational Intervention	0
Resúmenes al Español	0
Feasibility and Acceptability of Spanish-Language Parenting Interventions for Young Children With Developmental Delays	0
Résumés en Français	0
Direct Support Professionals and COVID-19 Vaccination: A Comparison of Vaccinated and Unvaccinated Direct Support Professionals	0
Résumés en Français	0
The State of Employment for People With IDD: Implications for Practice, Policy, and Equity	0
Résumés en Français	0
Resúmenes al Español	0
Understanding the Effectiveness and Feasibility of a Family Navigator Program for Parents of Children With Autism	0
Resúmenes al Español	0
Housing and Long-Term Services and Supports for People With Intellectual or Developmental Disabilities From Racially and Culturally Minoritized Communities	0
Résumés en Français	0
An Equity-Based Research Agenda to Promote Social Inclusion and Belonging for People With IDD	0
Résumés en Français	0
Resúmenes al Español	0
Resúmenes al Español	0
Financial Planning Among Parents of Children With Intellectual and Developmental Disabilities	0
Résumés en Français	0
Preliminary Reliability and Validity of the Self-Determination Inventory: Student Report French Translation	0
Healthy Nutrition for Adults With Intellectual Disability: Piloting a Mobile Health Application and Self-Management Intervention	0
Resúmenes al Español	0