OOIR: Observatory of International Research

Papers

(The median citation count of Journal of Policy and Practice in Intellectual Disabilities is 1. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-07-01 to 2024-07-01.)

Article	Citations
Digital inclusion and participation of people with intellectual disabilities during COVID‐19: A rapid review and international bricolage	66
Same Progress for All? Inclusive Education, the United Nations Convention on the Rights of Persons With Disabilities and Students With Intellectual Disability in European Countries	42
The mental health and well‐being of adults with intellectual disability during the COVID‐19 pandemic: A narrative review	36
The Experiences of Carers of Adults With Intellectual Disabilities During the First COVID‐19 Lockdown Period	23
Preventing, mitigating, and managing future pandemics for people with an intellectual and developmental disability ‐ Learnings from COVID‐19: A scoping review	21
Remote Support for Adults with Intellectual Disability During COVID‐19: From a Caregiver's Perspective	20
State of the Field: The Need for Self‐Report Measures of Health and Quality of Life for People With Intellectual and Developmental Disabilities	17
The Divide Between Inclusive Education Policy and Practice in Australia and the Way Forward	16
Preliminary Findings From a Nationwide, Multicenter Mental Health Service for Adults and Older Adolescents With Autism Spectrum Disorder and ID	15
Applying the CRPD to People With Intellectual and Developmental Disability With Behaviors of Concern During COVID‐19	12
Supporting the needs of people with intellectual and developmental disabilities 1 year into the COVID‐19 pandemic: An international, mixed methods study of nurses' perspectives	12
Implications of COVID‐19 Regulations for People With Visual and Intellectual Disabilities: Lessons to Learn From Visiting Restrictions	11
Culturally adapting a parent psychoeducational intervention for Chinese immigrant families of young children with autism spectrum disorder	11
Needs of Direct Support Professionals to Support People With Intellectual Disabilities in Leading a Healthy Lifestyle	11
What Constitutes Good Quality End‐of‐Life Care? Perspectives of People With Intellectual Disabilities and Their Families	10
Parents taking action adapted to parents of Black autistic children: Pilot results	10
Key learnings from COVID‐19 to sustain quality of life for families of individuals with IDD	10
Analyzing Roles, Barriers, and Supports of Co‐researchers in Inclusive Research	9
Inclusive Education in Asia: Insights From Some Country Case Studies	9
COVID‐19: Evolving challenges and opportunities for residential and vocational intellectual disability service providers	8
Predictors of the Attitudes of Preservice Teachers Toward Teaching Students With Down Syndrome in Regular Schools in Ghana	7
Housing Design and Modifications for Individuals With Intellectual and Developmental Disabilities and Complex Behavioral Needs: Scoping Review	7
Using the quality of life framework to operationalize and assess the CRPD articles and the Sustainable Development Goals	7
Emerging from the shadows: Digital stories of self‐advocates with intellectual disabilities	7
Online training for parents of children with developmental disabilities in a low‐resource community: A pilot feasibility study	7

Examining the Impact of Personal Factors on Scores on the Self‐Determination Inventory: Adult Report in Adults with Disabilities	7
Determining Frailty in People With Intellectual Disabilities in the COVID‐19 Pandemic	6
‘In the beginning it was difficult but things got easier’: Service use experiences of family members of people with disability from Iraqi and Syrian refugee backgrounds	6
Cultural and Linguistic Diversity Among Children and Families Referred for Diagnostic Evaluation of Developmental Delay and Disability: Implications for Service Delivery	6
Examining the Effectiveness of a Legislative Advocacy Program for Parents of Individuals With Intellectual and Developmental Disabilities	5
Some observations on remote delivery of eye‐movement desensitisation and reprocessing to people with intellectual disabilities	5
Using a self‐guided app to provide communication strategies for caregivers of young children with developmental disorders: A pilot investigation	5
The Elusive Inclusive University: What Does This Look Like for Students With Intellectual Disability? An Irish Perspective	5
The Use of Restrictive Measures in Community Services for People With Intellectual Disabilities in Sweden	5
Changes in Living Conditions of People with ID: A Follow‐Up after 16 Years	5
Geographical Networks in the Divergence of Australian Positive Behavior Support Policy	5
Stigma Toward Persons with Intellectual Disability in South America: A Narrative Review	4
Right to Information for People with Intellectual Disability in Australian Mental Health Policy	4
A study of caregiver support services: Perspectives of family caregivers of persons with intellectual disabilities in Singapore	4
Recruitment and work arrangements for employees with intellectual disability in competitive employment	4
From Plot Twists, Progress, and the Persistence of Segregated Education: The Continuing Struggle for Inclusive Education in Relation to Students With Intellectual Disabilities	4
Gender and the Premature Deaths of People with Intellectual Disabilities: An International Expert Consultation	4
Healthcare of Persons With Complex Developmental Disabilities From Three European Experiences: France, Italy, and Norway	4
Inclusive Education Definitions and Practices: Exploring Perspectives of Education Professionals in Mexico City	4
The Quality of Life Supports Model as a major component in applying the quality of life paradigm	4
Connecting locally: An examination of the role of service providers in supporting the social inclusion of adults with intellectual disabilities in their neighbourhoods	3
Perceived stress moderates the relationship between family support and family quality of life among parents of children living with intellectual and developmental disabilities	3
Documenting the advocacy experiences among eight Latina mothers of children with intellectual and developmental disabilities	3
Implementation of remote support services: Pre‐COVID‐19	3
Adapting parent‐focused interventions for diverse caregivers of children with intellectual and developmental disabilities: Lessons learned during global crises	3
What Are the Experiences of People with Neurodevelopmental Disorders Receiving Outpatient Mental Health Services in Singapore?	3
A Survey of Befriending Services for People With Intellectual Disabilities in the United Kingdom	3
Siblings of children with intellectual and developmental disabilities: Quality of life perceptions from Catalonia	3
Speech and language therapy services for people with Down syndrome: The disparity between research and practice	3
Experiences of Reciprocal Caring Among Adults With an Intellectual Disability Caring for an Older Family Member	3
Ethics framework and recommendations to support capabilities of people with intellectual and developmental disabilities during pandemics	3
What are the priorities for health data for adults with intellectual and developmental disabilities? It varies by whom you ask	2
Does family quality of life get better as the years go by? A comparative mixed‐methods study between early years and school‐aged children with disability in Australia	2
Training Professionals to Facilitate Future Planning for Aging Caregivers: Exploratory Results From a Multistate Intervention	2
Chronicity of Challenging Behaviors in Persons with Severe/Profound Intellectual Disabilities Who Received Active Treatment During a 20‐Year Period	2
Health care for people with intellectual disability in Spain	2
Research and training priorities of staff supporting individuals with intellectual disabilities with or without autism	2
Integrated Emotion‐Oriented Care for Older People With ID: Defining and Understanding Intervention Components of a Person‐Centered Approach	2
Mexican–American caregivers' perceptions of a culturally adapted transition planning program for youth with autism	2
Reasons for collaborating in inclusive research projects: The perspectives of researchers with experiential knowledge, academic researchers and principal investigators	2
Self‐determination and quality of life of people with intellectual and developmental disabilities: Past, present, and future of close research paths	2
The content validity of the Behavioural Appraisal Scales in people with profound intellectual and multiple disabilities: A Delphi study	2
What Promotes Transfer of Staff Training Related to Challenging Behavior Displayed by Adults With Intellectual Disabilities?	2
Sibling Participation in Service Planning Meetings for Their Brothers and Sisters With Intellectual and Developmental Disabilities in the United States	2
How do Fathers With ID Experience Their Children Being Removed from Their Care Through the English Court System?	1
Intellectual disability healthcare in Australia: Progress, challenges, and future directions	1
Nursing staff and nursing managers' experiences of using the interRAI ID instrument in assessing the service needs of persons with intellectual disabilities in housing services	1
The role of microboards in enhancing quality of life for children with intellectual disability and their families	1
Neighbourhood deprivation and access to early intervention and support for families of children with intellectual and developmental disabilities	1
COVID‐19 pandemic experiences of group home residents with intellectual disabilities: Findings from inclusive, qualitative interviews with self‐advocates in Massachusetts	1

Pain and distress in people with severe or profound ID in Victoria, Australia: Utility of behavioural assessment tools	1
As far as possible: The relationship between public awareness, social distance, and stigma towards people with intellectual disability	1
The influence of context on the conceptualization, measurement, and application of the concept of quality of life	1
A national census of forensic in‐patients with intellectual disability and five‐year follow‐up	1
Personal emergency response systems and people with intellectual and developmental disabilities in the United States	1
How Mothers of Adults With Profound Intellectual Disabilities Experience Their Everyday Life? A Qualitative Retrospective Study From Poland	1
Spirituality, disability, and quality of life	1
Expressions of a humanistic orientation among service providers supporting adults with intellectual and developmental disabilities	1
Ten‐year impact of a Down syndrome pediatric clinic	1
Designing genetic studies for people with intellectual disabilities: Practical lessons from a pilot study	1
Issue Information	1
Understanding quality of life of persons with profound intellectual and multiple disabilities	1
	1
Using the consensus group method to select the best screening tools for autism and intellectual disability for use with Nigerian adolescents	1
Parents helping a child with disability learn at home during COVID‐19: Experiences from Slovenia and Canada	1
What teachers know about teaching reading to students with developmental disabilities: A survey of special educators	1
Healthcare for people with intellectual disabilities in the Netherlands	1
Multilevel Governance and the Implementation of Inclusion Policy for Older Adults With Intellectual and Developmental Disabilities in Canada	1
Remote monitoring support services for people with intellectual and developmental disabilities	1