OOIR: Observatory of International Research

Papers

(The median citation count of Journal of Policy and Practice in Intellectual Disabilities is 1. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-05-01 to 2024-05-01.)

Article	Citations
Digital inclusion and participation of people with intellectual disabilities during COVID‐19: A rapid review and international bricolage	59
Guidance for the Treatment and Management of COVID‐19 Among People with Intellectual Disabilities	56
Same Progress for All? Inclusive Education, the United Nations Convention on the Rights of Persons With Disabilities and Students With Intellectual Disability in European Countries	37
The mental health and well‐being of adults with intellectual disability during the COVID‐19 pandemic: A narrative review	31
The Experiences of Carers of Adults With Intellectual Disabilities During the First COVID‐19 Lockdown Period	23
Preventing, mitigating, and managing future pandemics for people with an intellectual and developmental disability ‐ Learnings from COVID‐19: A scoping review	20
Remote Support for Adults with Intellectual Disability During COVID‐19: From a Caregiver's Perspective	19
Trauma‐Specific Treatment for Individuals With Intellectual and Developmental Disabilities: A Review of the Literature From 2008 to 2018	17
State of the Field: The Need for Self‐Report Measures of Health and Quality of Life for People With Intellectual and Developmental Disabilities	16
Preliminary Findings From a Nationwide, Multicenter Mental Health Service for Adults and Older Adolescents With Autism Spectrum Disorder and ID	14
The Divide Between Inclusive Education Policy and Practice in Australia and the Way Forward	13
Redefining Self‐Advocacy: A Practice Theory‐Based Approach	12
Applying the CRPD to People With Intellectual and Developmental Disability With Behaviors of Concern During COVID‐19	12
Needs of Direct Support Professionals to Support People With Intellectual Disabilities in Leading a Healthy Lifestyle	11
Implications of COVID‐19 Regulations for People With Visual and Intellectual Disabilities: Lessons to Learn From Visiting Restrictions	11
Supporting the needs of people with intellectual and developmental disabilities 1 year into the COVID‐19 pandemic: An international, mixed methods study of nurses' perspectives	10
Contingent Electric Shock as a Treatment for Challenging Behavior for People With Intellectual and Developmental Disabilities: Support for the IASSIDD Policy Statement Opposing Its Use	10
Creating Inclusive Health Systems for People With Intellectual Disabilities: An International Study	10
Culturally adapting a parent psychoeducational intervention for Chinese immigrant families of young children with autism spectrum disorder	10
What Constitutes Good Quality End‐of‐Life Care? Perspectives of People With Intellectual Disabilities and Their Families	10
Key learnings from COVID‐19 to sustain quality of life for families of individuals with IDD	9
Patterns of mortality among adults with intellectual and developmental disabilities in the Canadian province of Manitoba	9
Inclusive Education in Asia: Insights From Some Country Case Studies	9
Parents taking action adapted to parents of Black autistic children: Pilot results	9
Analyzing Roles, Barriers, and Supports of Co‐researchers in Inclusive Research	8

Predictors of the Attitudes of Preservice Teachers Toward Teaching Students With Down Syndrome in Regular Schools in Ghana	7
Emerging from the shadows: Digital stories of self‐advocates with intellectual disabilities	7
COVID‐19: Evolving challenges and opportunities for residential and vocational intellectual disability service providers	7
Online training for parents of children with developmental disabilities in a low‐resource community: A pilot feasibility study	7
Housing Design and Modifications for Individuals With Intellectual and Developmental Disabilities and Complex Behavioral Needs: Scoping Review	7
Examining the Impact of Personal Factors on Scores on the Self‐Determination Inventory: Adult Report in Adults with Disabilities	6
‘In the beginning it was difficult but things got easier’: Service use experiences of family members of people with disability from Iraqi and Syrian refugee backgrounds	6
Determining Frailty in People With Intellectual Disabilities in the COVID‐19 Pandemic	6
Using a self‐guided app to provide communication strategies for caregivers of young children with developmental disorders: A pilot investigation	5
Examining the Effectiveness of a Legislative Advocacy Program for Parents of Individuals With Intellectual and Developmental Disabilities	5
Using the quality of life framework to operationalize and assess the CRPD articles and the Sustainable Development Goals	5
Cultural and Linguistic Diversity Among Children and Families Referred for Diagnostic Evaluation of Developmental Delay and Disability: Implications for Service Delivery	5
Developing Special Education Advocates: What Changes during an Advocacy Training Program?	5
The Use of Restrictive Measures in Community Services for People With Intellectual Disabilities in Sweden	5
Changes in Living Conditions of People with ID: A Follow‐Up after 16 Years	5
The Elusive Inclusive University: What Does This Look Like for Students With Intellectual Disability? An Irish Perspective	5
Right to Information for People with Intellectual Disability in Australian Mental Health Policy	4
Some observations on remote delivery of eye‐movement desensitisation and reprocessing to people with intellectual disabilities	4
From Plot Twists, Progress, and the Persistence of Segregated Education: The Continuing Struggle for Inclusive Education in Relation to Students With Intellectual Disabilities	4
Healthcare of Persons With Complex Developmental Disabilities From Three European Experiences: France, Italy, and Norway	4
Geographical Networks in the Divergence of Australian Positive Behavior Support Policy	4
Stigma Toward Persons with Intellectual Disability in South America: A Narrative Review	4
Adapting parent‐focused interventions for diverse caregivers of children with intellectual and developmental disabilities: Lessons learned during global crises	3
Gender and the Premature Deaths of People with Intellectual Disabilities: An International Expert Consultation	3
A study of caregiver support services: Perspectives of family caregivers of persons with intellectual disabilities in Singapore	3
Ethics framework and recommendations to support capabilities of people with intellectual and developmental disabilities during pandemics	3
Connecting locally: An examination of the role of service providers in supporting the social inclusion of adults with intellectual disabilities in their neighbourhoods	3
What Are the Experiences of People with Neurodevelopmental Disorders Receiving Outpatient Mental Health Services in Singapore?	3
The Quality of Life Supports Model as a major component in applying the quality of life paradigm	3
A Survey of Befriending Services for People With Intellectual Disabilities in the United Kingdom	3
Implementation of remote support services: Pre‐COVID‐19	3
Experiences of Reciprocal Caring Among Adults With an Intellectual Disability Caring for an Older Family Member	3
Inclusive Education Definitions and Practices: Exploring Perspectives of Education Professionals in Mexico City	3
Recruitment and work arrangements for employees with intellectual disability in competitive employment	3
Research and training priorities of staff supporting individuals with intellectual disabilities with or without autism	2
Integrated Emotion‐Oriented Care for Older People With ID: Defining and Understanding Intervention Components of a Person‐Centered Approach	2
Speech and language therapy services for people with Down syndrome: The disparity between research and practice	2
Chronicity of Challenging Behaviors in Persons with Severe/Profound Intellectual Disabilities Who Received Active Treatment During a 20‐Year Period	2
The content validity of the Behavioural Appraisal Scales in people with profound intellectual and multiple disabilities: A Delphi study	2
Perceived stress moderates the relationship between family support and family quality of life among parents of children living with intellectual and developmental disabilities	2
Reasons for collaborating in inclusive research projects: The perspectives of researchers with experiential knowledge, academic researchers and principal investigators	2
Health care for people with intellectual disability in Spain	2
What are the priorities for health data for adults with intellectual and developmental disabilities? It varies by whom you ask	2
Self‐determination and quality of life of people with intellectual and developmental disabilities: Past, present, and future of close research paths	2
Training Professionals to Facilitate Future Planning for Aging Caregivers: Exploratory Results From a Multistate Intervention	2
Documenting the advocacy experiences among eight Latina mothers of children with intellectual and developmental disabilities	2
What Promotes Transfer of Staff Training Related to Challenging Behavior Displayed by Adults With Intellectual Disabilities?	1
	1
Remote monitoring support services for people with intellectual and developmental disabilities	1
Nursing staff and nursing managers' experiences of using the interRAI ID instrument in assessing the service needs of persons with intellectual disabilities in housing services	1

Pain and distress in people with severe or profound ID in Victoria, Australia: Utility of behavioural assessment tools	1
The role of microboards in enhancing quality of life for children with intellectual disability and their families	1
Expressions of a humanistic orientation among service providers supporting adults with intellectual and developmental disabilities	1
Professionals' Perspectives on Partnering with Families of Individuals with ID	1
A national census of forensic in‐patients with intellectual disability and five‐year follow‐up	1
COVID‐19 pandemic experiences of group home residents with intellectual disabilities: Findings from inclusive, qualitative interviews with self‐advocates in Massachusetts	1
Personal emergency response systems and people with intellectual and developmental disabilities in the United States	1
Designing genetic studies for people with intellectual disabilities: Practical lessons from a pilot study	1
Does family quality of life get better as the years go by? A comparative mixed‐methods study between early years and school‐aged children with disability in Australia	1
Issue Information	1
Spirituality, disability, and quality of life	1
What teachers know about teaching reading to students with developmental disabilities: A survey of special educators	1
Sibling Participation in Service Planning Meetings for Their Brothers and Sisters With Intellectual and Developmental Disabilities in the United States	1
How do Fathers With ID Experience Their Children Being Removed from Their Care Through the English Court System?	1
Ten‐year impact of a Down syndrome pediatric clinic	1
Using the consensus group method to select the best screening tools for autism and intellectual disability for use with Nigerian adolescents	1
Multilevel Governance and the Implementation of Inclusion Policy for Older Adults With Intellectual and Developmental Disabilities in Canada	1
Siblings of children with intellectual and developmental disabilities: Quality of life perceptions from Catalonia	1
Parents helping a child with disability learn at home during COVID‐19: Experiences from Slovenia and Canada	1
Mexican–American caregivers' perceptions of a culturally adapted transition planning program for youth with autism	1
Understanding quality of life of persons with profound intellectual and multiple disabilities	1