OOIR: Observatory of International Research

Papers

(The median citation count of Journal of Policy and Practice in Intellectual Disabilities is 1. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-11-01 to 2024-11-01.)

Article	Citations
Digital inclusion and participation of people with intellectual disabilities during COVID‐19: A rapid review and international bricolage	74
Same Progress for All? Inclusive Education, the United Nations Convention on the Rights of Persons With Disabilities and Students With Intellectual Disability in European Countries	47
The mental health and well‐being of adults with intellectual disability during theCOVID‐19 pandemic: A narrative review	39
The Experiences of Carers of Adults With Intellectual Disabilities During the First COVID‐19 Lockdown Period	25
Preventing, mitigating, and managing future pandemics for people with an intellectual and developmental disability ‐ Learnings from COVID‐19: A scoping review	23
Remote Support for Adults with Intellectual Disability During COVID‐19: From a Caregiver's Perspective	21
State of the Field: The Need for Self‐Report Measures of Health and Quality of Life for People With Intellectual and Developmental Disabilities	17
The Divide Between Inclusive Education Policy and Practice in Australia and the Way Forward	17
Preliminary Findings From a Nationwide, Multicenter Mental Health Service for Adults and Older Adolescents With Autism Spectrum Disorder and ID	16
Supporting the needs of people with intellectual and developmental disabilities 1 year into the COVID‐19 pandemic: An international, mixed methods study of nurses' perspectives	13
Needs of Direct Support Professionals to Support People With Intellectual Disabilities in Leading a Healthy Lifestyle	12
Applying the CRPD to People With Intellectual and Developmental Disability With Behaviors of Concern During COVID‐19	12
Implications of COVID‐19 Regulations for People With Visual and Intellectual Disabilities: Lessons to Learn From Visiting Restrictions	11
Culturally adapting a parent psychoeducational intervention for Chinese immigrant families of young children with autism spectrum disorder	11
Inclusive Education in Asia: Insights From Some Country Case Studies	11
Parents taking action adapted to parents of Black autistic children: Pilot results	10
Key learnings from COVID‐19 to sustain quality of life for families of individuals with IDD	10
Housing Design and Modifications for Individuals With Intellectual and Developmental Disabilities and Complex Behavioral Needs: Scoping Review	10
What Constitutes Good Quality End‐of‐Life Care? Perspectives of People With Intellectual Disabilities and Their Families	10
Using the quality of life framework to operationalize and assess the CRPD articles and the Sustainable Development Goals	9
Online training for parents of children with developmental disabilities in a low‐resource community: A pilot feasibility study	8
COVID‐19: Evolving challenges and opportunities for residential and vocational intellectual disability service providers	8
Emerging from the shadows: Digital stories of self‐advocates with intellectual disabilities	7
Determining Frailty in People With Intellectual Disabilities in the COVID‐19 Pandemic	7
Predictors of the Attitudes of Preservice Teachers Toward Teaching Students With Down Syndrome in Regular Schools in Ghana	7

Using a self‐guided app to provide communication strategies for caregivers of young children with developmental disorders: A pilot investigation	6
A study of caregiver support services: Perspectives of family caregivers of persons with intellectual disabilities in Singapore	6
‘In the beginning it was difficult but things got easier’: Service use experiences of family members of people with disability from Iraqi and Syrian refugee backgrounds	6
Cultural and Linguistic Diversity Among Children and Families Referred for Diagnostic Evaluation of Developmental Delay and Disability: Implications for Service Delivery	6
The Elusive Inclusive University: What Does This Look Like for Students With Intellectual Disability? An Irish Perspective	6
Examining the Effectiveness of a Legislative Advocacy Program for Parents of Individuals With Intellectual and Developmental Disabilities	6
Some observations on remote delivery of eye‐movement desensitisation and reprocessing to people with intellectual disabilities	6
Recruitment and work arrangements for employees with intellectual disability in competitive employment	5
Geographical Networks in the Divergence of Australian Positive Behavior Support Policy	5
From Plot Twists, Progress, and the Persistence of Segregated Education: The Continuing Struggle for Inclusive Education in Relation to Students With Intellectual Disabilities	5
The Use of Restrictive Measures in Community Services for People With Intellectual Disabilities in Sweden	5
Right to Information for People with Intellectual Disability in Australian Mental Health Policy	4
Healthcare of Persons With Complex Developmental Disabilities From Three European Experiences: France, Italy, and Norway	4
Documenting the advocacy experiences among eight Latina mothers of children with intellectual and developmental disabilities	4
The Quality of Life Supports Model as a major component in applying the quality of life paradigm	4
Implementation of remote support services: Pre‐COVID‐19	3
What are the priorities for health data for adults with intellectual and developmental disabilities? It varies by whom you ask	3
Perceived stress moderates the relationship between family support and family quality of life among parents of children living with intellectual and developmental disabilities	3
Best practices in evaluating work integration social enterprises for persons with intellectual disabilities: A scoping review	3
Connecting locally: An examination of the role of service providers in supporting the social inclusion of adults with intellectual disabilities in their neighbourhoods	3
Adapting parent‐focused interventions for diverse caregivers of children with intellectual and developmental disabilities: Lessons learned during global crises	3
What Are the Experiences of People with Neurodevelopmental Disorders Receiving Outpatient Mental Health Services in Singapore?	3
A Survey of Befriending Services for People With Intellectual Disabilities in the United Kingdom	3
Siblings of children with intellectual and developmental disabilities: Quality of life perceptions from Catalonia	3
Speech and language therapy services for people with Down syndrome: The disparity between research and practice	3
Experiences of Reciprocal Caring Among Adults With an Intellectual Disability Caring for an Older Family Member	3
Ethics framework and recommendations to support capabilities of people with intellectual and developmental disabilities during pandemics	3
Personal emergency response systems and people with intellectual and developmental disabilities in the United States	2
Integrated Emotion‐Oriented Care for Older People With ID: Defining and Understanding Intervention Components of a Person‐Centered Approach	2
Spirituality, disability, and quality of life	2
Mexican–American caregivers' perceptions of a culturally adapted transition planning program for youth with autism	2
Remote monitoring support services for people with intellectual and developmental disabilities	2
Research and training priorities of staff supporting individuals with intellectual disabilities with or without autism	2
Self‐determination and quality of life of people with intellectual and developmental disabilities: Past, present, and future of close research paths	2
What Promotes Transfer of Staff Training Related to Challenging Behavior Displayed by Adults With Intellectual Disabilities?	2
Reasons for collaborating in inclusive research projects: The perspectives of researchers with experiential knowledge, academic researchers and principal investigators	2
Augmentative and alternative communication continuing education programs for multidisciplinary teams—Does it make a difference?	2
‘Say hi to the lady on the television’: A review of clinic presentations and comparison of telepsychiatry and in‐person mental health assessments for people with intellectual disability in rural New S	2
Does family quality of life get better as the years go by? A comparative mixed‐methods study between early years and school‐aged children with disability in Australia	2
The content validity of the Behavioural Appraisal Scales in people with profound intellectual and multiple disabilities: A Delphi study	2
Chronicity of Challenging Behaviors in Persons with Severe/Profound Intellectual Disabilities Who Received Active Treatment During a 20‐Year Period	2
Expressions of a humanistic orientation among service providers supporting adults with intellectual and developmental disabilities	2
Health care for people with intellectual disability in Spain	2
Using the consensus group method to select the best screening tools for autism and intellectual disability for use with Nigerian adolescents	1
How Mothers of Adults With Profound Intellectual Disabilities Experience Their Everyday Life? A Qualitative Retrospective Study From Poland	1
Neighbourhood deprivation and access to early intervention and support for families of children with intellectual and developmental disabilities	1
The development of a trauma informed care framework for residential services for adults with an intellectual disability: Implications for policy and practice	1
Understanding quality of life of persons with profound intellectual and multiple disabilities	1
Healthcare for people with intellectual disabilities in the Netherlands	1
The humanistic perspective as “a lighthouse” for the perception of QOL/FQOL and its application	1

Ten‐year impact of a Down syndrome pediatric clinic	1
Issue Information	1
Intellectual disability healthcare in Australia: Progress, challenges, and future directions	1
Parents helping a child with disability learn at home during COVID‐19: Experiences from Slovenia and Canada	1
What teachers know about teaching reading to students with developmental disabilities: A survey of special educators	1
The influence of context on the conceptualization, measurement, and application of the concept of quality of life	1
Physical activity and physical and mental health in middle‐aged adults with Down syndrome	1
How do Fathers With ID Experience Their Children Being Removed from Their Care Through the English Court System?	1
Pain and distress in people with severe or profound ID in Victoria, Australia: Utility of behavioural assessment tools	1
Norwegian perspectives on health care for people with intellectual and developmental disabilities	1
Designing genetic studies for people with intellectual disabilities: Practical lessons from a pilot study	1
Nursing staff and nursing managers' experiences of using the interRAI ID instrument in assessing the service needs of persons with intellectual disabilities in housing services	1
Healthcare provision for Swedish persons with intellectual and developmental disabilities	1
The role of microboards in enhancing quality of life for children with intellectual disability and their families	1
Policy on sexual abuse: A survey study amongst managers of care facilities for individuals with intellectual disability in the Netherlands	1
Mental age and intellectual disability: Psychologists' perspectives on the use of the term ‘mental age’ as it relates to adults with an intellectual disability	1
COVID‐19 pandemic experiences of group home residents with intellectual disabilities: Findings from inclusive, qualitative interviews with self‐advocates in Massachusetts	1
A national census of forensic in‐patients with intellectual disability and five‐year follow‐up	1
Multilevel Governance and the Implementation of Inclusion Policy for Older Adults With Intellectual and Developmental Disabilities in Canada	1
As far as possible: The relationship between public awareness, social distance, and stigma towards people with intellectual disability	1