OOIR: Observatory of International Research

Papers

(The median citation count of Journal of Empirical Research on Human Research Ethics is 1. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-03-01 to 2024-03-01.)

Article	Citations
A New Era of Indigenous Research: Community-based Indigenous Research Ethics Protocols in Canada	31
Self-Interested and Altruistic Motivations in Volunteering for Clinical Trials: A More Complex Relationship	18
Towards a Research Agenda for Promoting Responsible Research Practices	18
The Challenges of Big Data for Research Ethics Committees: A Qualitative Swiss Study	15
Boundaries Between Research Ethics and Ethical Research Use in Artificial Intelligence Health Research	14
Indigenous Research Ethics Requirements: An Examination of Six Tribal Institutional Review Board Applications and Processes in the United States	14
Research Integrity Among PhD Students at the Faculty of Medicine: A Comparison of Three Scandinavian Universities	12
Comparison of Video, App, and Standard Consent Processes on Decision-Making for Biospecimen Research: A Randomized Controlled Trial	12
Ethical and Methodological Considerations for Evaluating Participant Views on Alzheimer’s and Dementia Research	11
Working Through Ethics Review of Big Data Research Projects: An Investigation into the Experiences of Swiss and American Researchers	10
Social Researchers’ Approaches to Research Ethics During the COVID-19 Pandemic: An Exploratory Study	9
Communities and Clinical Trials: A Case Study from the RTS,S Malaria Vaccine Trials in Eastern Africa	9
Informed Consent for Online Research—Is Anybody Reading?: Assessing Comprehension and Individual Differences in Readings of Digital Consent Forms	9
Measuring social desirability bias: Do the full and short versions of the Marlowe-Crowne Social Desirability scale matter?	9
Navigating Ethical Issues in Photovoice: Balancing the Principles of Community-Based Participatory Research Ethics with Institutional Review Board Requirements	8
Informed Consent for Mobile Phone Health Surveys in Colombia: A Qualitative Study	8
“I Wouldn’t Trust the Parents To ‘Do No Harm’ To a Queer Kid”: Rethinking Parental Permission Requirements for Youth Participation in Social Science Research	7
Defining and Handling Research Misconduct: A Comparison Between Chinese and European Institutional Policies	7
Understanding the Use of Optimal Formatting and Plain Language When Presenting Key Information in Clinical Trials	7
An Analysis of Retracted Articles with Authors or Co-authors from the African Region: Possible Implications for Training and Awareness Raising	7
‘As Long as It's Used for Beneficial Things’: An Investigation of non-Māori, Māori and Young People's Perceptions Regarding the Research use of the Aotearoa New Zealand Integrated Data Infrastructure	6
Participants’ Preferences and Reasons for Wanting Feedback of Individual Genetic Research Results From an HIV-TB Genomic Study: A Case Study From Botswana	6
Citizens, Research Ethics Committee Members and Researchers’ Attitude Toward Information and Consent for the Secondary Use of Health Data: Implications for Research Within Learning Health Systems	6
Combatting neo-Colonialism in Health Research: What can Aboriginal Health Research Ethics and Global Health Research Ethics Teach Each Other?	6
Biobank Participants’ Attitudes Toward Data Sharing and Privacy: The Role of Trust in Reducing Perceived Risks	5

Survey on the Research Misconduct and Questionable Research Practices of Medical Students, PhD Students, and Supervisors at the Zagreb School of Medicine in Croatia	5
“No Country Bureaucratised its way to Excellence”: A Content Analysis of Comments on a Petition to Streamline Australian Research Ethics and Governance Processes	5
“It’s Almost as if Stakeholder Engagement is the Annoying ‘Have-to-do'…”: Can Ethics Review Help Address the “3 Ts” of Tokenism, Toxicity, and Tailoring in Stakeholder Engagement?	5
How do Research Ethics Committee Members Respond to Hypothetical Studies with Children? Results from the MESSI Study	5
Developing Quality and Efficiency of Institutional Review Board Review Under a Human Research Protection Program at a Leading Hospital in Central Southern China: A Descriptive Analysis of the First Th	5
The Ethical Implications of Using Social Media to Engage and Retain Justice-Involved Youth in Behavioral Health Research	4
Implementing a Review Process to Facilitate and Prioritize COVID-19 Research: Staying One Step Ahead of the Pandemic	4
Understanding Constraints and Enablers of Turnaround Time for Ethics Review: The Case of Institutional Review Boards in Tanzania	4
Skin in the Game: Personal Accountability and Journal Peer Review	4
Faculty Members’ Perceptions and Attitudes Towards Anti-Plagiarism Detection Tools: Applying the Theory of Planned Behavior	4
“Normally I Try and Capture a Moment, and With This I Had to Create a Moment”: Implications of Anonymous Photography Protocols in Photovoice Research with People Who Inject Drugs	4
Ethical Reflections on the Conduct of HIV Research with Community Members: A Case Study	4
Assessing the Quality and Performance of Institutional Review Boards: Levels of Initial Reviews	4
Research Integrity Attitudes and Behaviors are Difficult to alter: Results from a ten Year Follow-up Study in Norway	4
Communicating With Diverse Patients About Participating in a Biobank: A Randomized Multisite Study Comparing Electronic and Face-to-Face Informed Consent Processes	4
A Scenario-Based Methodology for Analyzing the Ethical, Legal, and Social Issues in Genomic Data Sharing	4
Examining the Risks of Engaging in Population-based Surveys on Violence: Follow-up Study of the Individual Deprivation Measure in South Africa	3
Human Research Ethics Committee Experiences and Views About Children’s Participation in Research: Results From the MESSI Study	3
Assessment of the Operational Characteristics of Research Ethics Committees in Ghana	3
Vulnerability, Agency, and the Research Encounter: Family Members' Experiences and Perceptions of Participating in an Observational Clinical Study in Kenya	3
Equitable Design and Use of Digital Surveillance Technologies During COVID-19: Norms and Concerns	3
International Regulatory Standards for the Qualitative Measurement of Deep Brain Stimulation in Clinical Research	3
COVID-19 Survey Participation and Wellbeing: A Survey Experiment	3
Perceived Social Influences on Women's Decisions to use Medications not Studied in Pregnancy. A Qualitative Ethical Analysis of Preexposure Prophylaxis Implementation Research in Kenya	3
Emotional Consequences of Participating in Research: How Does a History of Non-Suicidal Self-Injury and Trauma Exposure Affect Participants’ Experiences?	3
Vulnerability and Resilience in Sensitive Research: The Case of the Quantitative Researcher	3
Cultural Values and Beliefs of Selected Local Communities in Botswana: Implications for Human Subject Research Ethics Practice	3
Stakeholder Perspectives on Returning Nonactionable Apolipoprotein L1 (APOL1) Genetic Results to African American Research Participants	3
No Correlation Between Ethical Judgment in Trolley Dilemmas and Vaccine Scenarios for Nurse Specialist Students	2
Researcher Knowledge, Attitudes, and Communication Practices for Genomic Data Sharing	2
A Survey to Determine the Capacity Development Needs of Research Ethics Committee Administrators in South Africa	2
Documentary Assessment of the Abilities of Kyrgyzstan's Research Ethics Committees During Public Health Emergency and Non-Emergency Situations	2
Post Graduate Students’ Experiences with Research Ethics: A South African Perspective	2
“Like a Sheriff in a Small Town”: Status, Roles, and Challenges of Ethics Committees in Academic Colleges of Education	2
Research Site Anonymity in Context	2
Research Ethics Consultation in Nursing Studies	2
Preliminary Evidence for an Association between Journal Submission Requirements and Reproducibility of Published Findings: A Pilot Study	2
A Course for Teaching and Learning About the Responsible Conduct of Research	2
Informing Informed Consent for HIV Research	2
Protecting the Vulnerable and Including the Under-Represented: IRB Practices and Attitudes	2
What are Important Ways of Sharing Power in Health Research Priority Setting? Perspectives From People With Lived Experience and Members of the Public	2
A Systematic Literature Review of Ethical Challenges Related to Medical and Public Health Data Sharing in China	2
Stakeholders’ Perspectives regarding Participation in Neuromodulation-Based Dementia Intervention Research	2
Improving the Quality and Performance of Institutional Review Boards in the U.S.A. Through Performance Measurements	2
Comparing Payments Between Sociobehavioral and Biomedical Studies in a Large Research University in Southern California	2
Understanding of Critical Elements of Informed Consent in Genomic Research: A Case of a Paediatric HIV-TB Research Project in Uganda	2
Providing Public Engagement Training to Build Connections Between the Community and Research Ethics Professionals: A Pilot Project	2
Reactions to Laboratory-Based Trauma Research in a Sample of Incarcerated Women	2
Ethical Considerations for Discrete Choice Experiments with Caregivers	2
Attitudes of Mothers Regarding Willingness to Enroll Their Children in Research	2

Framing a Consent Form to Improve Consent Understanding and Determine How This Affects Willingness to Participate in HIV Cure Research: An Experimental Survey Study	1
A Questionnaire Survey on Chinese Translation and Interpreting Scholars’ Publication Pressure and Its Impact on Research Quality and Publishing Ethics	1
Informed Consent In Facial Photograph Publishing: A Cross-sectional Pilot Study To Determine The Effectiveness Of Deidentification Methods	1
Tribal Deliberations about Precision Medicine Research: Addressing Diversity and Inequity in Democratic Deliberation Design and Evaluation	1
Challenges in the Ethical Review of Clinical and Biomedical Research in Malaysia: A Mixed Methods Study	1
Assessing the Quality and Performance of Institutional Review Boards: Impact of the Revised Common Rule	1
Multicomponent Informed Consent with Marshallese Participants	1
Structural Influences on Consent Decisions in Participatory Health Research in Eswatini	1
Consent Requirements for Testing Health Policies: An Intercontinental Comparison of Expert Opinions	1
Facilitating Timely Institutional Review Board Review: Common Issues and Recommendations	1
Scoping Review: Ethical Considerations in Online Ethnographic Research With Military Populations	1
Using the Emanuel Framework to Explore the Ethical Issues Raised in a Participatory Visual Research Project in Rural South Africa	1
Path Analysis of RCT Recruitment: Secondary Analysis of Results from a Systematic Review	1
Practicalities of Impracticability: An Interim Review of Randomized Controlled Trials	1
Immediate and Delayed Reactions to Trauma-related Laboratory Research Among Rape Survivors and Controls	1
Research Participants’ Preferences for Individual Results of Pharmacogenomics Research: A Case of a Ugandan HIV Research Institute	1
A Critical Assessment of the Quality of Reporting of Ethical Protections in Medical Papers Published in Turkey	1
A Study on the Characteristics of Healthy Volunteers who Participate in Phase I Clinical Trials in Korea	1
Characterizing Current Attitudes and Practices for Human Subject Safety in Studies Involving Pupil Dilation	1
Informed Consent: Research Staff's Perspectives and Practical Recommendations to Improve Research Staff-Participant Communication	1
Ethical Analysis of Egypt's Law Regulating Clinical Research	1
Trust in Medical Research: A Comparative Study among Patients at a Regional Referral Hospital and Community Members in Lira District, Northern Uganda	1