OOIR: Observatory of International Research

Papers

(The median citation count of Journal of Empirical Research on Human Research Ethics is 1. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-11-01 to 2024-11-01.)

Article	Citations
A New Era of Indigenous Research: Community-based Indigenous Research Ethics Protocols in Canada	42
Towards a Research Agenda for Promoting Responsible Research Practices	27
Boundaries Between Research Ethics and Ethical Research Use in Artificial Intelligence Health Research	20
The Challenges of Big Data for Research Ethics Committees: A Qualitative Swiss Study	19
Social Researchers’ Approaches to Research Ethics During the COVID-19 Pandemic: An Exploratory Study	15
“I Wouldn’t Trust the Parents To ‘Do No Harm’ To a Queer Kid”: Rethinking Parental Permission Requirements for Youth Participation in Social Science Research	13
Measuring social desirability bias: Do the full and short versions of the Marlowe-Crowne Social Desirability scale matter?	13
Ethical and Methodological Considerations for Evaluating Participant Views on Alzheimer’s and Dementia Research	13
Informed Consent for Online Research—Is Anybody Reading?: Assessing Comprehension and Individual Differences in Readings of Digital Consent Forms	12
Survey on the Research Misconduct and Questionable Research Practices of Medical Students, PhD Students, and Supervisors at the Zagreb School of Medicine in Croatia	11
Understanding the Use of Optimal Formatting and Plain Language When Presenting Key Information in Clinical Trials	9
Participants’ Preferences and Reasons for Wanting Feedback of Individual Genetic Research Results From an HIV-TB Genomic Study: A Case Study From Botswana	8
Navigating Ethical Issues in Photovoice: Balancing the Principles of Community-Based Participatory Research Ethics with Institutional Review Board Requirements	8
Combatting neo-Colonialism in Health Research: What can Aboriginal Health Research Ethics and Global Health Research Ethics Teach Each Other?	7
‘As Long as It's Used for Beneficial Things’: An Investigation of non-Māori, Māori and Young People's Perceptions Regarding the Research use of the Aotearoa New Zealand Integrated Data Infrastructure	7
How do Research Ethics Committee Members Respond to Hypothetical Studies with Children? Results from the MESSI Study	7
Developing Quality and Efficiency of Institutional Review Board Review Under a Human Research Protection Program at a Leading Hospital in Central Southern China: A Descriptive Analysis of the First Th	7
Biobank Participants’ Attitudes Toward Data Sharing and Privacy: The Role of Trust in Reducing Perceived Risks	7
Research Integrity Attitudes and Behaviors are Difficult to alter: Results from a ten Year Follow-up Study in Norway	7
Citizens, Research Ethics Committee Members and Researchers’ Attitude Toward Information and Consent for the Secondary Use of Health Data: Implications for Research Within Learning Health Systems	7
“It’s Almost as if Stakeholder Engagement is the Annoying ‘Have-to-do'…”: Can Ethics Review Help Address the “3 Ts” of Tokenism, Toxicity, and Tailoring in Stakeholder Engagement?	6
Equitable Design and Use of Digital Surveillance Technologies During COVID-19: Norms and Concerns	6
Communicating With Diverse Patients About Participating in a Biobank: A Randomized Multisite Study Comparing Electronic and Face-to-Face Informed Consent Processes	6
“No Country Bureaucratised its way to Excellence”: A Content Analysis of Comments on a Petition to Streamline Australian Research Ethics and Governance Processes	6
Ethical Reflections on the Conduct of HIV Research with Community Members: A Case Study	6

Faculty Members’ Perceptions and Attitudes Towards Anti-Plagiarism Detection Tools: Applying the Theory of Planned Behavior	5
Understanding Constraints and Enablers of Turnaround Time for Ethics Review: The Case of Institutional Review Boards in Tanzania	5
Implementing a Review Process to Facilitate and Prioritize COVID-19 Research: Staying One Step Ahead of the Pandemic	5
Emotional Consequences of Participating in Research: How Does a History of Non-Suicidal Self-Injury and Trauma Exposure Affect Participants’ Experiences?	5
Vulnerability and Resilience in Sensitive Research: The Case of the Quantitative Researcher	5
The Ethical Implications of Using Social Media to Engage and Retain Justice-Involved Youth in Behavioral Health Research	4
Post Graduate Students’ Experiences with Research Ethics: A South African Perspective	4
“Normally I Try and Capture a Moment, and With This I Had to Create a Moment”: Implications of Anonymous Photography Protocols in Photovoice Research with People Who Inject Drugs	4
Comparing Payments Between Sociobehavioral and Biomedical Studies in a Large Research University in Southern California	4
COVID-19 Survey Participation and Wellbeing: A Survey Experiment	4
Perceived Social Influences on Women's Decisions to use Medications not Studied in Pregnancy. A Qualitative Ethical Analysis of Preexposure Prophylaxis Implementation Research in Kenya	4
Ethical Analysis of Egypt's Law Regulating Clinical Research	4
Human Research Ethics Committee Experiences and Views About Children’s Participation in Research: Results From the MESSI Study	4
Assessment of the Operational Characteristics of Research Ethics Committees in Ghana	3
Stakeholder Perspectives on Returning Nonactionable Apolipoprotein L1 (APOL1) Genetic Results to African American Research Participants	3
Vulnerability, Agency, and the Research Encounter: Family Members' Experiences and Perceptions of Participating in an Observational Clinical Study in Kenya	3
Examining the Risks of Engaging in Population-based Surveys on Violence: Follow-up Study of the Individual Deprivation Measure in South Africa	3
Documentary Assessment of the Abilities of Kyrgyzstan's Research Ethics Committees During Public Health Emergency and Non-Emergency Situations	3
A Study of a Culturally and Contextually Situated Multimedia Approach to Recruit a Hard-to-Reach Spanish-Speaking Population for a Randomized Control Trial (RCT)	3
Perceptions of HIV Research Participation Among Gay, Bisexual, and Other Men who Have Sex with Men and Transgender and Nonbinary Adults: Results From a Midwest Pride Event	3
Scoping Review: Ethical Considerations in Online Ethnographic Research With Military Populations	3
Improving the Quality and Performance of Institutional Review Boards in the U.S.A. Through Performance Measurements	3
A Survey to Determine the Capacity Development Needs of Research Ethics Committee Administrators in South Africa	3
Cultural Values and Beliefs of Selected Local Communities in Botswana: Implications for Human Subject Research Ethics Practice	3
A Critical Assessment of the Quality of Reporting of Ethical Protections in Medical Papers Published in Turkey	3
Facilitating Timely Institutional Review Board Review: Common Issues and Recommendations	3
A Systematic Literature Review of Ethical Challenges Related to Medical and Public Health Data Sharing in China	3
Informed Consent and Debriefing When Deceiving Participants: A Systematic Review of Research Ethics Guidelines	3
International Regulatory Standards for the Qualitative Measurement of Deep Brain Stimulation in Clinical Research	3
Informed Consent: Research Staff's Perspectives and Practical Recommendations to Improve Research Staff-Participant Communication	2
Stakeholders’ Perspectives regarding Participation in Neuromodulation-Based Dementia Intervention Research	2
Understanding of Critical Elements of Informed Consent in Genomic Research: A Case of a Paediatric HIV-TB Research Project in Uganda	2
Research Participants’ Preferences for Individual Results of Pharmacogenomics Research: A Case of a Ugandan HIV Research Institute	2
What are Important Ways of Sharing Power in Health Research Priority Setting? Perspectives From People With Lived Experience and Members of the Public	2
Research Site Anonymity in Context	2
Informed Consent In Facial Photograph Publishing: A Cross-sectional Pilot Study To Determine The Effectiveness Of Deidentification Methods	2
Researcher Knowledge, Attitudes, and Communication Practices for Genomic Data Sharing	2
Structural Influences on Consent Decisions in Participatory Health Research in Eswatini	2
A Course for Teaching and Learning About the Responsible Conduct of Research	2
Protecting the Vulnerable and Including the Under-Represented: IRB Practices and Attitudes	2
Reactions to Laboratory-Based Trauma Research in a Sample of Incarcerated Women	2
A Study on the Characteristics of Healthy Volunteers who Participate in Phase I Clinical Trials in Korea	2
Immediate and Delayed Reactions to Trauma-related Laboratory Research Among Rape Survivors and Controls	2
Preliminary Evidence for an Association between Journal Submission Requirements and Reproducibility of Published Findings: A Pilot Study	2
Providing Public Engagement Training to Build Connections Between the Community and Research Ethics Professionals: A Pilot Project	2
“Like a Sheriff in a Small Town”: Status, Roles, and Challenges of Ethics Committees in Academic Colleges of Education	2
Framing a Consent Form to Improve Consent Understanding and Determine How This Affects Willingness to Participate in HIV Cure Research: An Experimental Survey Study	2
Ethical Considerations for Discrete Choice Experiments with Caregivers	2
Human Subjects Research Guidelines for Undergraduate Researchers: An Analysis of Institutional Review Board (IRB) Websites at Top Liberal Arts Colleges in the United States	1
Path Analysis of RCT Recruitment: Secondary Analysis of Results from a Systematic Review	1

“My Blood, You Know, My Biology Being out There…”: Consent and Participant Control of Biological Samples	1
Process, Power, and Impact of the Institutional Review Board in Criminology and Criminal Justice Research	1
Using the Emanuel Framework to Explore the Ethical Issues Raised in a Participatory Visual Research Project in Rural South Africa	1
Promoting Transparent and Equitable Discussion of Controversial Research	1
The “3 Ps” of EmPowerment, Partnership and Protection - Stakeholder Perceptions of Beneficial Outcomes of Engagement in HIV Prevention Trials	1
Practicalities of Impracticability: An Interim Review of Randomized Controlled Trials	1
Knowledge and Attitudes of Research Participants in China Toward Electronic Informed Consent in Clinical Trials: A Cross Sectional Study	1
An Overview of King Hussein Cancer Center Institutional Review Board Over 12 Years (2009–2020), Successes and Challenges, Including Those Imposed by the COVID-19 Pandemic	1
Genetic and Genomic Researchers’ Perspectives on Biological Sample Sharing in Collaborative Research in Uganda: A Qualitative Study	1
Persuasive Appeals in Genetic Biobank Recruitment Campaigns: Social and Ethical Implications	1
Assessing the Quality and Performance of Institutional Review Boards: Impact of the Revised Common Rule	1
Building Capacity for Research Ethics Committees in Uganda	1
Research Ethics Consultation in Nursing Studies	1
Tribal Deliberations about Precision Medicine Research: Addressing Diversity and Inequity in Democratic Deliberation Design and Evaluation	1
Self-interestedness in Research Collaboration and its Association with Career Stage and Nature of Collaboration: A Survey of Zimbabwean Researchers	1
Challenges in the Ethical Review of Clinical and Biomedical Research in Malaysia: A Mixed Methods Study	1
The Multidimensional Nature of Research Ethics: Letters Issued by a French Research Ethics Committee Included Similar Proportions of Ethical and Scientific Queries	1
Disability Research in Australia: Deciding to Be a Research Participant and the Experience of Participation	1
Consent Requirements for Testing Health Policies: An Intercontinental Comparison of Expert Opinions	1
Blinding Models for Scientific Peer-Review of Biomedical Research Proposals: A Systematic Review	1
Variability in Ethics Review for Multicenter Protocols in Buenos Aires, Argentina. An Observational Study	1
Student Moral Foundations in the Context of Research Misbehavior: An Experimental Study	1
A Questionnaire Survey on Chinese Translation and Interpreting Scholars’ Publication Pressure and Its Impact on Research Quality and Publishing Ethics	1
Characterizing Current Attitudes and Practices for Human Subject Safety in Studies Involving Pupil Dilation	1
Ethical Challenges of Cross-Cultural Research – The Example of a Psychological Research Project in the Andean Context	1
When a Negative Experience Sticks With You: Does the Revised Outcome Debriefing Counteract the Consequences of Experimental Ostracism in Psychological Research?	1
Assessing the Decision-Making Capabilities of Artificial Intelligence Platforms as Institutional Review Board Members	1
Public and Patients’ Perspectives Towards Data and Sample Sharing for Research: An Overview of Empirical Findings	1
Obtaining Consent for Research on Risky Behaviours Among Adolescents in Canada: A Scoping Review	1
Multicomponent Informed Consent with Marshallese Participants	1
Reporting Ethics Approval in Articles on Criminality. An Audit of Adherence to Swedish Legislation	1