OOIR: Observatory of International Research

Papers

(The TQCC of Pediatric Rheumatology is 6. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2021-05-01 to 2025-05-01.)

Article	Citations
Predictive model based on gene and laboratory data for intravenous immunoglobulin resistance in Kawasaki disease in a Chinese population	165
Juvenile dermatomyositis: association between nail fold capillary end row loop– area under the curve– and disease damage indicators	44
Predictors of fibrogenesis in children with JIA: a single-center pilot study	43
Musculoskeletal symptoms and their impact on health-related quality of life in chronic nonbacterial osteomyelitis patients	40
Peripheral blood regulatory T cells and disease activity, quality of life, and outcomes in children with juvenile idiopathic arthritis	36
Increasing the etanercept dose in a treat-to-target approach in juvenile idiopathic arthritis: does it help to reach the target? A post-hoc analysis of the BeSt for Kids randomised clinical trial	36
Algorithmic approach in the diagnosis of pediatric uveitis	29
The successes and challenges of harmonising juvenile idiopathic arthritis (JIA) datasets to create a large-scale JIA data resource	26
Clinical features, treatment, and outcomes of celiac-associated arthritis: a retrospective cohort study	26
Barriers to care in juvenile localized and systemic scleroderma: an exploratory survey study of caregivers’ perspectives	25
Experiences of sexual and reproductive health screening and counseling in the clinical setting among adolescents and young adults with rheumatic disease	24
Serositis as an indicator of poor prognosis in pediatric systemic lupus erythematosus	23
Predictive value of Albumin-Bilirubin grade for intravenous immunoglobulin resistance in a large cohort of patients with Kawasaki disease: a prospective study	22
Developmentally appropriate transitional care during the Covid-19 pandemic for young people with juvenile-onset rheumatic and musculoskeletal diseases: the rationale for a position statement	22
Efficacy and safety of canakinumab in systemic juvenile idiopathic arthritis, the first Chinese experience	20
The protective effect of COVID-19 vaccines on developing multisystem inflammatory syndrome in children (MIS-C): a systematic literature review and meta-analysis	20
Three cases of autoinflammatory disease with novel NLRC4 mutations, and the first mutation reported in the CARD domain of NLRC4 associated with autoinflammatory infantile enterocolitis (AIFEC)	20
Immunoprofiling of active and inactive systemic juvenile idiopathic arthritis reveals distinct biomarkers: a single-center study	19
Therapeutic recreation camps for youth with childhood-onset systemic lupus erythematosus: perceived psychosocial benefits	19
Community poverty level influences time to first pediatric rheumatology appointment in Polyarticular Juvenile Idiopathic Arthritis	19
Proceedings of the 29th European Paediatric Rheumatology Congress	19
Looking for the best strategy to treat children with new onset juvenile idiopathic arthritis: presentation of the “comparison of STep-up and step-down therapeutic strategies in childhood ARthritiS” (S	18
Natural autoimmunity in oligoarticular juvenile idiopathic arthritis	17
Infection with SARS-CoV-2 causes flares in patients with juvenile idiopathic arthritis in remission or inactive disease on medication	17
The clinical relevance of different antiphospholipid antibody profiles in pediatric rheumatology patients	16

Translating research into practice—implementation recommendations for pediatric rheumatology; Proceedings of the childhood arthritis and rheumatology research alliance 2020 implementation science retr	16
A randomized controlled educational study to evaluate an e-learning module to teach the physical examination of the temporomandibular joint in juvenile idiopathic arthritis	16
Myeloid-related protein 8/14 in plasma and serum in patients with new-onset juvenile idiopathic arthritis in real-world setting in a single center	16
Clinical and genetic characteristics of PSTPIP1-associated myeloid-related proteinemia inflammatory syndrome	16
Relationship of regional ultraviolet index data with rash and systemic disease activity in youth with childhood-onset systemic lupus: results from the Childhood Arthritis and Rheumatology Research All	16
Adherence, helpfulness and barriers to treatment in juvenile idiopathic arthritis – data from a German Inception cohort	16
Consensus on transition care for juvenile idiopathic arthritis: a Delphi study with youth, caregivers, and health professionals	16
Meningococcal ACWY conjugate vaccine immunogenicity in adolescents with primary or secondary immune deficiencies, a prospective observational cohort study	16
Frequency of remission achievement in the pre-treat-to-target decade in juvenile idiopathic arthritis	15
Body mass index is associated with health-related quality of life and disease characteristics in young adults with juvenile idiopathic arthritis	14
Correction: PSTPIP1-associated myeloid-related proteinaemia inflammatory (PAMI) syndrome; a case presenting as a perinatal event with early central nervous system involvement?	14
Knowledge about juvenile idiopathic arthritis-associated uveitis: more frequent reminders are associated with higher patient and family uveitis knowledge	14
14-month-old female with anti-MDA5 juvenile dermatomyositis complicated by liver disease: a case report	13
Incidence and reasons for biologic and targeted synthetic DMARD switching in juvenile idiopathic arthritis: a real- life stratified analysis	13
Biologic switching patterns among children with non-systemic juvenile idiopathic arthritis	13
How common is remission in rheumatoid factor-positive juvenile idiopathic arthritis patients? The multicenter Pediatric Rheumatology Academy (PeRA) research group experience	13
Identification of a variant in NLRP3 gene in a patient with Muckle-Wells syndrome: a case report and review of literature	13
Real-world comparison of the effects of etanercept and adalimumab on well-being in non-systemic juvenile idiopathic arthritis: a propensity score matched cohort study	13
Exploring paediatric rheumatology care: a ten-year retrospective analysis of the patient population in Ghana	12
Subcutaneous tocilizumab in the management of non-infectious uveitis in children: a brief report	12
Immunomodulatory treatment and surgical management of idiopathic uveitis and juvenile idiopathic arthritis-associated uveitis in children: a French survey practice	12
Longitudinal assessment of preparation for care transition among adolescents and young adults with rheumatologic disease: a single-center pilot study	12
Juvenile primary fibromyalgia syndrome: A Review- Treatment and Prognosis	12
Disseminated coccidioidomycosis in a patient with juvenile idiopathic arthritis receiving infliximab	12
Development of the paediatric society of the African league against rheumatism (PAFLAR) JIA registry and clinical profile of JIA in Africa from the PAFLAR JIA registry	12
Feasibility of quantitative sensory testing in juvenile idiopathic arthritis	11
Screening for celiac disease in juvenile idiopathic arthritis	11
Predictors of persisting pain in children with Juvenile Idiopathic Arthritis: a case control study nested in the ReACCh-Out cohort	11
Juvenile dermatomyositis with Anti-SAE antibodies in a Moroccan child associated with pseudo-angioedema: a case report	11
Circulating prolactin level in Juvenile Systemic Lupus Erythematosus and its correlation with disease activity: a case control study	11
Tapering of biological treatment in autoinflammatory diseases: a scoping review	11
An iceberg I can’t handle: a qualitative inquiry on perceptions towards paediatric rheumatology among healthcare workers in Kenya	11
Exploring the clinical profiles and management of juvenile dermatomyositis in Africa: a survey of African rheumatology care providers	11
Factors associated with reduced infliximab exposure in the treatment of pediatric autoimmune disorders: a cross-sectional prospective convenience sampling study	11
Long noncoding RNAs (CTC-471J1.2, NeST) as epigenetic risk factors of active juvenile lupus nephritis: a case-control study	11
COVID-19 and myositis; true dermatomyositis or prolonged post viral myositis?	11
Economic evaluation of infliximab, synthetic triple therapy and methotrexate in the treatment of newly diagnosed juvenile idiopathic arthritis	11
Humoral and cellular immune response to mRNA SARS-CoV-2 BNT162b2 vaccine in adolescents with rheumatic diseases	10
Kawasaki disease in Kenya and review of the African literature	10
Myositis autoantibodies in a racially diverse population of children with idiopathic inflammatory myopathies	10
Prospective study to characterize adalimumab exposure in pediatric patients with rheumatic diseases	10
NLRP12-associated systemic autoinflammatory diseases in children	10
The occurrence of coronary artery lesions in Kawasaki disease based on C-reactive protein levels: a retrospective cohort study	10
Epstein–Barr Virus encephalitis associated hemophagocytic lymphohistiocytosis in childhood-onset systemic lupus erythematosus: a case-based review	10
Restricted upper airway dimensions in patients with dentofacial deformity from juvenile idiopathic arthritis	10
A virtual pediatric rheumatology teaching initiative for physicians in Somaliland	10
Frequency of Fabry disease in a juvenile idiopathic arthritis cohort	10
Differences between leukemic arthritis and juvenile idiopathic arthritis	10
Time for change at PROJ in 2021	10
Bone mineral density in egyptian children with juvenile idiopathic arthritis: possible correlation to serum RANKL / osteoprotegerin (OPG) ratio and OPG gene polymorphisms	10

Monogenic disorders as mimics of juvenile idiopathic arthritis	10
Maternal and infant outcomes of pregnancy associated with anti-SSA/RO antibodies: a systematic review and meta-analysis	10
Mitigated suppressive function of regulatory T cells (Treg) upon Th17-inducing cytokines in oligo- and polyarticular Juvenile Idiopathic Arthritis (JIA) patients	9
Correction: Transition readiness among finnish adolescents with juvenile idiopathic arthritis	9
A novel PRKDC mutation caused B lymphocytes V(D)J rearrangement disorder in the SLE-DAH like symptoms patient	9
Whole-exome sequencing analysis identifies novel variants associated with Kawasaki disease susceptibility	9
Structural ultrasound of joints and tendons in healthy children: development of normative data	9
Treatment escalation patterns to start biologics in refractory moderate juvenile dermatomyositis among members of the Childhood Arthritis and Rheumatology Research Alliance	9
Pyoderma gangrenosum-like ulceration as a presenting feature of pediatric granulomatosis with polyangiitis	9
Capillary microscopy is a potential screening method for connective tissue disease in children with Raynaud’s phenomenon	9
A qualitative evaluation of the specific carbohydrate diet for juvenile idiopathic arthritis based on children’s and parents’ experiences	9
Modified Delphi study to identify priority clinical questions for the Australian living guidelines for the management of Juvenile Idiopathic Arthritis	9
The vaccine coverage and vaccine immunity status and risk factors of non-protective levels of antibodies against vaccines in children with juvenile idiopathic arthritis: cross-sectional Russian tertia	9
Factors associated with care- and health-related quality of life of caregivers of children with juvenile idiopathic arthritis	9
High prevalence of sacroiliitis and early structural changes in the sacroiliac joint in children with enthesitis-related arthritis: findings from a tertiary centre in Hong Kong	9
Assessing preparation for care transition among adolescents with rheumatologic disease: a single-center assessment with patient survey	9
Dengue infection triggered immune mediated necrotizing myopathy in children: a case report and literature review	9
Assay for interferon gamma release as a novel marker in pediatric patients with systemic lupus erythematosus	9
Hypertension as a prominent manifestation secondary to renal artery lesions in pediatric Behcet’s disease	9
Bone health and physical activity in adolescents with juvenile idiopathic arthritis: a cross-sectional case-control study	8
Comment on: homozygous variant p. Arg90His in NCF1 is associated with early-onset interferonopathy: a case report	8
Changes over time in inflammatory and structural lesions at the sacroiliac joint in children with spondyloarthritis exposed and unexposed to tumor necrosis factor inhibitor	8
MicroRNA-27a-3p enhances the inflammatory phenotype of Juvenile Idiopathic Arthritis fibroblast-like synoviocytes	8
Paediatric autoimmune diseases with ELANE mutations associated with neutropenia	8
Changes in total body fat and body mass index among children with juvenile dermatomyositis treated with high-dose glucocorticoids	8
Axial involvement in enthesitis-related arthritis: results from a single-center cohort	8
Characterizing lupus in African American children in Southern United States	8
Implementation study of the CARRA Uveitis Consensus Treatment Plans: feasibility for clinical practice and applicability for research	8
Mental comorbidities in adolescents and young adults with juvenile idiopathic arthritis: an analysis of German nationwide health insurance data	8
Depression and anxiety in childhood-onset systemic lupus erythematosus: prevalence, associated factors, and impact on quality of life and family	8
Clinical outcomes and safety of anakinra in the treatment of multisystem inflammatory syndrome in children: a single center observational study	8
Infections and antibiotics during fetal life and childhood and their relationship to juvenile idiopathic arthritis: a prospective cohort study	8
ANCA-negative eosinophilic granulomatosis with polyangiitis in a girl misdiagnosed as asthma and pulmonary tuberculosis	8
Scurvy masquerading as IgA vasculitis	8
Clinical characteristics and prognostic factor in juvenile dermatomyositis: data of the Spanish registry	7
Non-criteria antiphospholipid antibodies and pediatric rheumatic disease: a case series	7
Patient with H syndrome, cardiogenic shock, multiorgan infiltration, and digital ischemia	7
Transition readiness in adolescents and young adults with chronic rheumatic disease in Oman: today’s needs and future challenges	7
Towards a histological diagnosis of childhood small vessel CNS vasculitis	7
Part 5: Allogeneic HSCT in refractory SJIA with lung disease; recent cases from centers in North America & Europe	7
Prevalence of spine pain among Tunisian children and adolescents and related factors	7
Kawasaki disease with an asymptomatic reversible splenial lesion	7
Juvenile idiopathic arthritis in Jordan: single center experience	7
Unveiling the uncommon: diagnostic journey of camurati-engelmann disease in a pediatric patient	7
Overlap syndrome in a 12-year-old girl with systemic lupus erythematosus and anti-oj antibody-positive polymyositis: a case report	7
Clinical characteristics and genetic analysis of A20 haploinsufficiency	7
Pain-coping scale for children and their parents: a cross-sectional study in children with musculoskeletal pain	7
Disease relapse rate in children with autoimmune rheumatic diseases after COVID-19 infection and vaccination	7
Musculoskeletal involvement in childhood leukemia: Characteristics and survival outcomes	7
An updated overview of Juvenile systemic sclerosis in a French cohort	7
Beneficial effects of anti-apolipoprotein A-2 on an animal model for coronary arteritis in Kawasaki disease	7
Juvenile idiopathic arthritis in Harlequin ichthyosis, a rare combination or the clinical spectrum of the disease? Report of a child treated with etanercept and review of the literature	7
Differences in rituximab use between pediatric rheumatologists and nephrologists for the treatment of refractory lupus nephritis and renal flare in childhood-onset SLE	7
Discontinuation of biologic DMARDs in non-systemic JIA patients: a scoping review of relapse rates and associated factors	7
Panniculitis with late onset enthesitis-related arthritis: a case report	7
Correction: Importance of pediatric rheumatologists and transitional care for juvenile idiopathic arthritis-associated uveitis: a retrospective series of 9 cases	7
Is an association of acro-osteolysis, bone fragility, and enchondromatosis a newfound disease caused by an amplification of PTHLH? A case report	7
What have we learned from long-term studies in juvenile idiopathic arthritis? – Prediction, classification, transition.	7
Effect of exercise training on heath, quality of life, exercise capacity in juvenile idiopathic arthritis: a meta-analysis of randomized controlled trials	7
Physical (in)activity and screen-based media use of adolescents with juvenile idiopathic arthritis over time - data from a German inception cohort	6
“I’d like more options!”: Interviews to explore young people and family decision-making needs for pain management in juvenile idiopathic arthritis	6
PSTPIP1-associated myeloid-related proteinaemia inflammatory (PAMI) syndrome; a case presenting as a perinatal event with early central nervous system involvement?	6
Clinical characteristics and prognosis of interstitial lung disease in systemic juvenile idiopathic arthritis: a two-center retrospective observational cohort study	6
A case of ANCA-associated vasculitis in a 16-year-old female following SARS-COV-2 infection and a systematic review of the literature	6
Musculoskeletal pain and its effect on daily activity and behaviour in Icelandic children and youths with juvenile idiopathic arthritis: a cross-sectional case-control study	6
Efficacy and safety associated with the infusion speed of intravenous immunoglobulin for the treatment of Kawasaki disease: a randomized controlled trial	6
Bacterial infection in patients with juvenile systemic lupus erythematosus and fever	6
Incidence, prevalence, and comorbidities of juvenile idiopathic arthritis in Germany: a retrospective observational cohort health claims database study	6
Patterns of etanercept use in juvenile idiopathic arthritis in the Childhood Arthritis and Rheumatology Research Alliance Registry	6
Accuracy and adequacy of photoprotection in pediatric systemic lupus erythematosus patients, and the effect of education on photoprotection: a prospective study	6
Towards a standardized program of transitional care for adolescents with juvenile idiopathic arthritis for Turkey: a national survey study	6
Blau syndrome: a case report from Palestine	6
Novel multiple Z-score models for detection of coronary artery dilation: application in Kawasaki disease	6
Systemic juvenile idiopathic arthritis in French Afro-Caribbean children, a retrospective cohort study	6
A novel frameshift variant in the ADA2 gene of a patient with a neurological phenotype: a case report	6
Nodular Regenerative Hyperplasia of the liver in Juvenile Dermatomyositis	6