OOIR: Observatory of International Research

Papers

(The TQCC of BMC Medical Ethics is 8. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-10-01 to 2024-10-01.)

Article	Citations
Privacy and artificial intelligence: challenges for protecting health information in a new era	246
Artificial intelligence for good health: a scoping review of the ethics literature	164
Moral distress and ethical climate in intensive care medicine during COVID-19: a nationwide study	95
Embedded ethics: a proposal for integrating ethics into the development of medical AI	63
Digital tools in the informed consent process: a systematic review	62
Ethics education to support ethical competence learning in healthcare: an integrative systematic review	54
Ethics review of big data research: What should stay and what should be reformed?	42
Patients’ and professionals’ views related to ethical issues in precision medicine: a mixed research synthesis	38
A scoping review of the literature featuring research ethics and research integrity cases	33
Preprints in times of COVID19: the time is ripe for agreeing on terminology and good practices	32
The social licence for data-intensive health research: towards co-creation, public value and trust	30
Forgoing life-sustaining treatment – a comparative analysis of regulations in Japan, Korea, Taiwan, and England	29
Ethical decision-making climate, moral distress, and intention to leave among ICU professionals in a tertiary academic hospital center	28
Trust and digital privacy in healthcare: a cross-sectional descriptive study of trust and attitudes towards uses of electronic health data among the general public in Sweden	27
Asking the right questions: towards a person-centered conception of shared decision-making regarding treatment of advanced chronic kidney disease in older patients	27
Do solidarity and reciprocity obligations compel African researchers to feedback individual genetic results in genomics research?	26
Ethics framework for citizen science and public and patient participation in research	26
Researchers’ views on, and experiences with, the requirement to obtain informed consent in research involving human participants: a qualitative study	26
Secondary research use of personal medical data: patient attitudes towards data donation	25
South African traditional values and beliefs regarding informed consent and limitations of the principle of respect for autonomy in African communities: a cross-cultural qualitative study	23
Ethical factors determining ECMO allocation during the COVID-19 pandemic	23
The concept of vulnerability in aged care: a systematic review of argument-based ethics literature	23
Ownership of individual-level health data, data sharing, and data governance	22
Attitudes towards organ donation in Syria: a cross-sectional study	22
A principled ethical approach to intersex paediatric surgeries	21

“Who is watching the watchdog?”: ethical perspectives of sharing health-related data for precision medicine in Singapore	21
Sharing whilst caring: solidarity and public trust in a data-driven healthcare system	21
The ethics of machine learning-based clinical decision support: an analysis through the lens of professionalisation theory	21
Redundant trials can be prevented, if the EU clinical trial regulation is applied duly	20
Prioritising ‘already-scarce’ intensive care unit resources in the midst of COVID-19: a call for regional triage committees in South Africa	20
Defining ethical challenge(s) in healthcare research: a rapid review	19
Personalized and long-term electronic informed consent in clinical research: stakeholder views	19
“Many roads lead to Rome and the Artificial Intelligence only shows me one road”: an interview study on physician attitudes regarding the implementation of computerised clinical decision support syste	18
Moral neutralization: Nurses’ evolution in unethical climate workplaces	18
Cultural sensitivity in brain death determination: a necessity in end-of-life decisions in Japan	18
Among equity and dignity: an argument-based review of European ethical guidelines under COVID-19	18
Citizens' views on sharing their health data: the role of competence, reliability and pursuing the common good	18
Health care ethics programs in U.S. Hospitals: results from a National Survey	17
Patient privacy and autonomy: a comparative analysis of cases of ethical dilemmas in China and the United States	17
Health professionals' knowledge and attitude towards patient confidentiality and associated factors in a resource-limited setting: a cross-sectional study	17
A qualitative study of big data and the opioid epidemic: recommendations for data governance	17
Why have Advance Directives failed in Spain?	17
The use of personal health information outside the circle of care: consent preferences of patients from an academic health care institution	17
Stakeholder perspectives on the ethico-legal dimensions of biobanking in South Africa	16
A scoping review of the perceptions of death in the context of organ donation and transplantation	16
Equitable data sharing in epidemics and pandemics	16
The full spectrum of ethical issues in dementia research: findings of a systematic qualitative review	16
Clinical ethics consultations: a scoping review of reported outcomes	16
Neonatologists’ decision-making for resuscitation and non-resuscitation of extremely preterm infants: ethical principles, challenges, and strategies—a qualitative study	15
Sharing genomic data from clinical testing with researchers: public survey of expectations of clinical genomic data management in Queensland, Australia	15
Mapping ethical issues in the use of smart home health technologies to care for older persons: a systematic review	15
Challenges and proposed solutions in making clinical research on COVID-19 ethical: a status quo analysis across German research ethics committees	15
The role of community advisory boards in community-based HIV clinical trials: a qualitative study from Tanzania	15
“I don’t think people are ready to trust these algorithms at face value”: trust and the use of machine learning algorithms in the diagnosis of rare disease	15
The theorisation of ‘best interests’ in bioethical accounts of decision-making	15
The path toward ectogenesis: looking beyond the technical challenges	15
Electronic informed consent criteria for research ethics review: a scoping review	15
Experts’ moral views on gene drive technologies: a qualitative interview study	15
Achieving inclusive research priority-setting: what do people with lived experience and the public think is essential?	14
Polygenic risk scoring of human embryos: a qualitative study of media coverage	14
Future healthcare providers and professionalism on social media: a cross-sectional study	14
Indicators and criteria of consciousness: ethical implications for the care of behaviourally unresponsive patients	14
Should Artificial Intelligence be used to support clinical ethical decision-making? A systematic review of reasons	14
Stakeholders' perspectives on research integrity training practices: a qualitative study	14
Taking stock of the availability and functions of National Ethics Committees worldwide	14
Trends in Swedish physicians’ attitudes towards physician-assisted suicide: a cross-sectional study	14
Should biomedical research with great apes be restricted? A systematic review of reasons	14
Clinical Ethics Committees in Africa: lost in the shadow of RECs/IRBs?	13
(Re)Conceptualising ‘good’ proxy decision-making for research: the implications for proxy consent decision quality	13
Views of university students in Jordan towards Biobanking	13
Using practical wisdom to facilitate ethical decision-making: a major empirical study of phronesis in the decision narratives of doctors	13
Organ donation after euthanasia starting at home in a patient with multiple system atrophy	13
Study protocol: the Australian genetics and life insurance moratorium—monitoring the effectiveness and response (A-GLIMMER) project	13
A qualitative interview study of Australian physicians on defensive practice and low value care: “it’s easier to talk about our fear of lawyers than to talk about our fear of looking bad in front of e	13
Enhancing patient safety by integrating ethical dimensions to Critical Incident Reporting Systems	12

A scoping review of genetics and genomics research ethics policies and guidelines for Africa	12
Communication patterns in the doctor–patient relationship: evaluating determinants associated with low paternalism in Mexico	12
The association between perceived hospital ethical climate and self-evaluated care quality for COVID-19 patients: the mediating role of ethical sensitivity among Chinese anti-pandemic nurses	12
Decision-making approaches for children with life-limiting conditions: results from a qualitative phenomenological study	12
Key ethical issues encountered during COVID-19 research: a thematic analysis of perspectives from South African research ethics committees	12
Knowledge, attitudes, ethical and social perspectives towards fecal microbiota transplantation (FMT) among Jordanian healthcare providers	12
Governance frameworks for COVID-19 research ethics review and oversight in Latin America: an exploratory study	12
What does engagement mean to participants in longitudinal cohort studies? A qualitative study	12
Adding dynamic consent to a longitudinal cohort study: A qualitative study of EXCEED participant perspectives	11
A scoping review of considerations and practices for benefit sharing in biobanking	11
Why should HCWs receive priority access to vaccines in a pandemic?	11
Meta-consent for the secondary use of health data within a learning health system: a qualitative study of the public’s perspective	11
The impact on patients of objections by institutions to assisted dying: a qualitative study of family caregivers’ perceptions	11
Participatory development of CURA, a clinical ethics support instrument for palliative care	11
Ethical values and principles to guide the fair allocation of resources in response to a pandemic: a rapid systematic review	11
Patient consent preferences on sharing personal health information during the COVID-19 pandemic: “the more informed we are, the more likely we are to help”	11
“I haven’t had to bare my soul but now I kind of have to”: describing how voluntary assisted dying conscientious objectors anticipated approaching conversations with patients in Victoria, Australia	11
Bioethics and the use of social media for medical crowdfunding	11
Health data research on sudden cardiac arrest: perspectives of survivors and their next-of-kin	10
Patient-centred care and patient autonomy: doctors’ views in Chinese hospitals	10
Being torn by inevitable moral dilemma: experiences of ICU nurses	10
The ethics of explantation	10
Human genome editing: how to prevent rogue actors	10
Caregiver reactions to neuroimaging evidence of covert consciousness in patients with severe brain injury: a qualitative interview study	10
Ethical challenges of caring for burn patients: a qualitative study	10
Data-driven research and healthcare: public trust, data governance and the NHS	10
Trustworthy artificial intelligence and ethical design: public perceptions of trustworthiness of an AI-based decision-support tool in the context of intrapartum care	10
Ethical challenges experienced by prehospital emergency personnel: a practice-based model of analysis	10
Current state of ethical challenges reported in Saudi Arabia: a systematic review & bibliometric analysis from 2010 to 2021	10
Developing new ways to listen: the value of narrative approaches in empirical (bio)ethics	10
Biomedical engineering and ethics: reflections on medical devices and PPE during the first wave of COVID-19	10
The Swedish translation and cultural adaptation of the Measure of Moral Distress for Healthcare Professionals (MMD-HP)	10
Solitary death and new lifestyles during and after COVID-19: wearable devices and public health ethics	10
Factors influencing practitioners’ who do not participate in ethically complex, legally available care: scoping review	9
US medical and surgical society position statements on physician-assisted suicide and euthanasia: a review	9
What ethical approaches are used by scientists when sharing health data? An interview study	9
Identifying disincentives to ethics consultation requests among physicians, advance practice providers, and nurses: a quality improvement all staff survey at a tertiary academic medical center	9
Attitudes about withholding or withdrawing life-prolonging treatment, euthanasia, assisted suicide, and physician assisted suicide: a cross-sectional survey among the general public in Croatia	9
Travelling to die: views, attitudes and end-of-life preferences of Israelis considering receiving aid-in-dying in Switzerland	9
Informed or misinformed consent and use of modified texture diets in dysphagia	9
Women’s viewpoints on egg freezing in Austria: an online Q-methodology study	9
The COVID-19 pandemic and organ donation and transplantation: ethical issues	9
Do-not-attempt-resuscitation orders: attitudes, perceptions and practices of Swedish physicians and nurses	9
Intensive and pharmacological care in times of COVID-19: A “special ethics” for emergency?	9
Assessing research misconduct in Iran: a perspective from Iranian medical faculty members	9
Who’s afraid of genetic tests?: An assessment of Singapore’s public attitudes and changes in attitudes after taking a genetic test	9
It is not a big deal: a qualitative study of clinical biobank donation experience and motives	9
Nurses’ ethical decision-making during end of life care in South Korea: a cross-sectional descriptive survey	9
The relationship between the perception of open disclosure of patient safety incidents, perception of patient safety culture, and ethical awareness in nurses	9
An ethical analysis of clinical triage protocols and decision-making frameworks: what do the principles of justice, freedom, and a disability rights approach demand of us?	9
An ethics analysis of the rationale for publicly funded plastic surgery	8
Better governance starts with better words: why responsible human tissue research demands a change of language	8
Ethical concerns in suicide research: thematic analysis of the views of human research ethics committees in Australia	8
Ethical considerations for involving adolescents in biomedical HIV prevention research	8
Documentation of ethically relevant information in out-of-hospital resuscitation is rare: a Danish nationwide observational study of 16,495 out-of-hospital cardiac arrests	8
Data privacy protection in scientific publications: process implementation at a pharmaceutical company	8
Recognising values and engaging communities across cultures: towards developing a cultural protocol for researchers	8
Advance research directives: avoiding double standards	8
Perspectives and ethical considerations for return of genetics and genomics research results: a qualitative study of genomics researchers in Uganda	8
Scarcity of resources and inequity in access are frequently reported ethical issues for physiotherapists internationally: an observational study	8
Needs to address clinicians’ moral distress in treating unvaccinated COVID-19 patients	8
Gurus and Griots: Revisiting the research informed consent process in rural African contexts	8
Operationalization of assent for research participation in pre-adolescent children: a scoping review	8
Health care providers’ ethical perspectives on waiver of final consent for Medical Assistance in Dying (MAiD): a qualitative study	8
What does coercion in intensive care mean for patients and their relatives? A thematic qualitative study	8
Perceptions of important outcomes of moral case deliberations: a qualitative study among healthcare professionals in childhood cancer care	8
Cross-sectional survey of surrogate decision-making in Japanese medical practice	8
Lay persons’ perception of the requirements for research in emergency obstetric and newborn care	8
Perceptions of and barriers to ethical promotion of pharmaceuticals in Pakistan: perspectives of medical representatives and doctors	8
To disclose, or not to disclose? Perspectives of clinical genomics professionals toward returning incidental findings from genomic research	8