OOIR: Observatory of International Research

Papers

(The TQCC of Dementia-International Journal of Social Research and Practice is 5. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-04-01 to 2024-04-01.)

Article	Citations
Understanding the impact of the COVID-19 pandemic on well-being and virtual care for people living with dementia and care partners living in the community	51
Using touchscreen tablets to support social connections and reduce responsive behaviours among people with dementia in care settings: A scoping review	34
The use of technology in creating individualized, meaningful activities for people living with dementia: A systematic review	32
The use of digital technologies by people with mild-to-moderate dementia during the COVID-19 pandemic: A positive technology perspective	26
Exploring the impact of Covid-19 on the care and quality of life of people with dementia and their carers: A scoping review	25
Effects of a virtual group cycling experience on people living with dementia: A mixed method pilot study	23
Partnerships in nursing homes: How do family caregivers of residents with dementia perceive collaboration with staff?	22
The use of Twitter by people with young-onset dementia: A qualitative analysis of narratives and identity formation in the age of social media	22
Towards an increased understanding of reminiscence therapy for people with dementia: A narrative analysis	21
A survey of the experience of living with dementia in a dementia-friendly community	18
Themes describing social isolation in family caregivers of people living with dementia: A scoping review	18
Social connectedness and dementia prevention: Pilot of the APPLE-Tree video-call intervention during the Covid-19 pandemic	17
Robot companion cats for people at home with dementia: A qualitative case study on companotics	17
Engaging persons with dementia in advance care planning: Challenges and opportunities	17
Social interactions of persons with dementia living in special care units in long-term care: A mixed-methods systematic review	17
Accessibility of health care experienced by persons with dementia from ethnic minority groups and formal and informal caregivers: A scoping review of European literature	15
Stakeholders’ perspectives on adapting the World Health Organization iSupport for Dementia in Australia	15
A qualitative exploration of how gender and relationship shape family caregivers’ experiences across the Alzheimer’s disease trajectory	15
Experiences of people with dementia and their caregivers during the COVID-19 pandemic in India: A mixed-methods study	14
Exploring resilience and well-being of family caregivers of people with dementia exposed to mandatory social isolation by COVID-19	14
The saliency of geographical landmarks for community navigation: A photovoice study with persons living with dementia	14
‘You can’t just put somebody in a situation with no armour’. An ethnographic exploration of the training and support needs of homecare workers caring for people living with dementia	14
How do we provide good mealtime care for people with dementia living in care homes? A systematic review of carer–resident interactions	13
The impact of participatory dementia research on researchers: A systematic review	13
Beyond crisis: Enacted sense-making among ethnic minority carers of people with dementia in Australia	13

Dementia stigma reduction (DESeRvE) through education and virtual contact in the general public: A multi-arm factorial randomised controlled trial	13
Resilience and supporting people living with dementia during the time of COVID-19; A qualitative study	13
Home care in dementia: The views of informal carers from a co-designed consultation	12
Journey of ethics – Conducting collaborative research with people with dementia	12
Satisfaction, utilization, and feasibility of a telehealth intervention for in-home dementia care support: A mixed methods study	12
Willingness of family caregivers of people with dementia to undertake Advance Care Planning: Examining an extended model of the Theory of Planned Behavior	12
The impact of driving cessation for people with dementia – An integrative review	12
Clarifying the information and support needs of family caregivers of nursing home residents with advancing dementia	12
Specific support needs and experiences of carers of people with frontotemporal dementia: A systematic review	12
A qualitative meta-synthesis of common and unique preferences for supportive services among persons with young onset dementia and their caregivers	11
The experiences of those affected by parental young onset dementia: A qualitative systematic literature review	11
Healthcare professionals’ perspectives on rehabilitating persons with cognitive impairment	11
Co-designing complex interventions with people living with dementia and their supporters	11
Beyond the project: Building a strategic theory of change to address dementia care, treatment and support gaps across seven middle-income countries	10
Community participation in activities and places among older adults with and without dementia	10
Familiarity and participation outside home for persons living with dementia	10
A preliminary evaluation of a client-centred prompting tool for supporting everyday activities in individuals with mild to moderate levels of cognitive impairment due to dementia	9
The experiences of grandchildren who provide care for a grandparent with dementia: A systematic review	9
The experiences, priorities, and perceptions of informal caregivers of people with dementia in nursing homes: A scoping review	9
Free to be: Experiences of arts-based relational caring in a community living and thriving with dementia	9
Everyday experiences of people living with dementia and their carers relating to oral health and dental care	9
Methods and approaches for enhancing communication with people with moderate-to-severe dementia that can facilitate their inclusion in research and service evaluation: Findings from the IDEAL programm	9
What do the public really know about dementia and its risk factors?	9
Emotion work and feeling rules: Coping strategies of family caregivers of people with end stage dementia in Israel—A qualitative study	9
How do factors of sociodemographic, health literacy and dementia experience influence carers’ knowledge of dementia?	9
Using meta-ethnography to understand the care transition experience of people with dementia and their caregivers	9
Cultural adaptation of World Health Organization iSupport for Dementia program for Chinese-Australian caregivers	9
The emotional experience of caregiving in dementia: Feelings of guilt and ambivalence underlying narratives of family caregivers	8
Resilience in older people living with dementia – A narrative analysis	8
Emotion regulation and decision-making in persons with dementia: A scoping review	8
The dignity of older individuals with Alzheimer’s disease and related dementias: A scoping review	8
Use of participatory action research approach to develop a self-management resource for persons living with dementia	8
Opening Minds through Art: A preliminary study evaluating the effects of a creative-expression program on persons living with dementia and their primary care partners	8
The changing self: The impact of dementia on the personal and social identity of women (findings from the Improving the Experience of Dementia and Enhancing Active Life programme)	8
Interventions promoting family involvement with care homes following placement of a relative with dementia: A systematic review	8
Peer support for people living with rare or young onset dementia: An integrative review	8
Tensions in support for family caregivers of people with dementia in Singapore: A qualitative study	7
Understanding the shared experiences of creating a digital life story with individuals with dementia and their spouse	7
Perceptions and experiences of dementia and its care in rural Kenya	7
The use of everyday technologies to enhance well-being and enjoyment for people living with dementia: A systematic literature review and narrative synthesis	7
Caregiver–provider communication about pain in persons with dementia	7
What is the present role for general practitioners in dementia care? Experiences of general practitioners, patients and family carers in Portugal	7
Important aspects of home care service: An interview study of persons with dementia	7
Long-term care placement: The transitional support needs and preferences of spousal dementia caregivers	7
Co-designing a dementia-specific education and training program for home care workers: The ‘Promoting Independence Through Quality Dementia Care at Home’ project	7
Everyday experiences of post-diagnosis life with dementia: A co-produced photography study	7
Using Twitter to understand perspectives and experiences of dementia and caregiving at the beginning of the COVID-19 pandemic	7
What are the elements needed to create an effective visual art intervention for people with dementia? A qualitative exploration	7
Pad cultures: An ethnography of continence care and its consequences for people living with dementia during a hospital admission	7
Embedding patient and public involvement in dementia research: Reflections from experiences during the ‘Journeying through Dementia’ randomised controlled trial	7

A qualitative analysis of virtues and strengths in persons living with early stage dementia informed by the values in action framework	7
Staff perspectives on the role of physical environment in long-term care facilities on dementia care in Canada and Sweden	7
‘Do I have the capacity to make capacity judgements?’ Researcher reflections from a person-centred dementia support study	6
Personal and complex: The needs and experiences related to technology use for people living with dementia	6
Peer support through video meetings: Experiences of people with young onset dementia	6
Olfactory stimulation for people with dementia: A rapid review	6
Identifying adoption and usability factors of locator devices for persons living with dementia	6
Challenges faced by residential aged care staff in decision-making for residents with dementia	6
Nostalgic conversations: The co-production of an intervention package for people living with dementia and their spouse	6
Dementia-friendly communities: The involvement of people living with dementia	6
Examining public stigma of Alzheimer’s disease and its correlates among Korean Americans	6
Psychosocial treatment preferences of persons living with young-onset dementia and their partners	6
‘Four walls and a garden’: Exploring the experiences of families affected by dementia during the COVID-19 pandemic	6
Understanding, experiences and attitudes of dementia in India: A qualitative study	6
Conceptualizing citizenship in dementia: A scoping review of the literature	6
Childrens’ and young adults’ perspectives of having a parent with dementia diagnosis: A scoping review	6
Receiving a diagnosis of young onset dementia: Evidence-based statements to inform best practice	6
Family carers’ narratives of the financial consequences of young onset dementia	6
The use of technology for arts-based activities in older adults living with mild cognitive impairment or dementia: A scoping review	5
Caregiver identity in care partners of persons living with mild cognitive impairment	5
What influences uptake of psychosocial interventions by people living with early dementia? A qualitative study	5
Influential factors of spousal relationship quality in couples living with dementia – A narrative synthesis systematic review	5
Dementia and its impacts on the intimate, sexual couple relationship: A systematic review of qualitative research studies	5
Stakeholder perspectives of the dementia-friendly hospital: A qualitative descriptive focus group study	5
People living with dementia and their family carers’ adherence to home-based Tai Chi practice	5
‘It is stressful, almost every hour…’: Experiences of caring for people living with dementia in Kenya—An interpretive phenomenological approach	5
“My quiet times”: Themes of sleep health among people caring for a family member with dementia	5
Couplehood as a compass: Spousal perspectives on the diminished everyday competence of partners	5
Understanding the lived experiences of family caregivers of individuals with dementia in Soweto, a South African Township	5
A feasibility study of the impact of a communication-skills course, ‘Empowered Conversations’, for care partners of people living with dementia	5
Dementia families: Relinquishing home care to aged care services: Guilt, traumatic loss and growth	5
Cognitive stimulation therapy for dementia: Provision in National Health Service settings in England, Scotland and Wales	5
Analysing the use of music to facilitate social interaction in care home residents with dementia: Narrative synthesis systematic review	5
Truth, hope and the disclosure of a dementia diagnosis: A scoping review of the ethical considerations from the perspective of the person, carer and clinician	5
Communication in dementia care: Experiences and needs of carers	5
Needs-appropriate services for people with young onset dementia: The perspectives of healthcare professionals	5
‘You come because it is an interesting place’: The impact of attending a heritage programme on the well-being of people living with dementia and their care partners	5
Doing their damnedest to seek change: How group identity helps people with dementia confront public stigma and maintain purpose	5
A scoping review: Sensory interventions for older adults living with dementia	5
Health promotion initiative: A dementia-friendly local community in Sweden	5
Exploring the feasibility of an individual cognitive stimulation therapy application and related technology for use by people with dementia and carers in Indonesia: A mixed-method study	5
Exploring how residential care facilities can enhance the autonomy of people with dementia and improve informal care	5
“I am not a good enough caregiver, and it is my fault”: The complex self-concept of Vietnamese female caregivers in dementia care	5
Experiences and practices of caregiving for older persons living with dementia in African countries: A qualitative scoping review	5
Characterizing dementia caregiver style in managing care challenges: Cognitive and behavioral components	5
Lessons learned from the statewide implementation of the Music & Memory program in nursing homes in Wisconsin in the USA	5
My experience of living with nonfluent/agrammatic variant primary progressive aphasia: Adaptations and strategies to improve quality of life	5
The meaning of autonomy when living with dementia: A Q-method investigation	5
Resonating moments: Exploring socio-material connectivity through artistic encounters with people living with dementia	5
Meeting own needs and supporting ability to care: Family caregivers’ and health care professionals’ perspectives on professional support provided through a potential mobile application	5
Relating to the end of life through advance care planning: Expectations and experiences of people with dementia and their family caregivers	5
The affective, behavioural, and cognitive reactions to a diagnosis of Primary Progressive Aphasia: A qualitative descriptive study	5
Carers Create: Carer perspectives of a creative programme for people with dementia and their carers on the relationship within the (carer and cared-for) dyad	5
The experience of bereavement on family caregivers of people with dementia in China	5
A labour of love: Reward and satisfaction for nurses: Findings from a grounded theory study in dementia care	5
Establishing priorities for psychosocial supports and services among family carers of people with dementia in Ireland	5