OOIR: Observatory of International Research

Papers

(The TQCC of Dementia-International Journal of Social Research and Practice is 6. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2021-05-01 to 2025-05-01.)

Article	Citations
Chinese diaspora caregivers’ experiences in dementia care in high-income countries: A systematic review	41
Resonating moments: Exploring socio-material connectivity through artistic encounters with people living with dementia	33
The influence of Alzheimer’s disease stigma on pain assessment in older persons	32
Doing relationship-centered dementia care: Learning from each other for better dementia support	27
Informal dementia care: The carer’s lived experience at the divides between policy and practice	22
Beyond the project: Building a strategic theory of change to address dementia care, treatment and support gaps across seven middle-income countries	21
The role and impact of therapeutic counselling on the emotional experience of adults living with dementia: A systematic review	20
Embodied meaning-making in the experiences and behaviours of persons with dementia	20
Understanding dementia care pathways for policy development and service planning in Kenya	20
Framing dementia experiences in a positive light: Conversational practices in one couple living with dementia	20
Peer support for people living with rare or young onset dementia: An integrative review	19
Connecting Today: Feasibility and acceptability of a remote visiting program for people living with dementia in long-term care homes	19
Influential factors of spousal relationship quality in couples living with dementia – A narrative synthesis systematic review	19
‘I want every minute to be worthwhile now’: The views and experiences of people living with dementia and their care partners about returning to in-person group meetings after COVID-19 lockdown restric	19
‘You can’t just put somebody in a situation with no armour’. An ethnographic exploration of the training and support needs of homecare workers caring for people living with dementia	18
Pad cultures: An ethnography of continence care and its consequences for people living with dementia during a hospital admission	18
A feasibility study of the impact of a communication-skills course, ‘Empowered Conversations’, for care partners of people living with dementia	18
Co-designing a dementia-specific education and training program for home care workers: The ‘Promoting Independence Through Quality Dementia Care at Home’ project	17
“We will tell everyone!” Capturing the impact of public and patient involvement in music therapy and dementia research through songwriting	17
Examining the mediating effect of psychosocial resources on the relationship between ambivalent feelings and depression among Israeli Arab family caregivers of people with dementia	17
Interprofessional collaboration in palliative dementia care through the eyes of informal caregivers	16
Book Review: Understanding young onset dementia: Evaluation, needs and care	16
The use of technology for arts-based activities in older adults living with mild cognitive impairment or dementia: A scoping review	16
A pilot study of an intergenerational program for people in residential aged care with cognitive impairment and children from a co-located early learning centre during COVID-19	15
A qualitative meta-synthesis of common and unique preferences for supportive services among persons with young onset dementia and their caregivers	14

My experience of person-centered and personalized care in early-stage primary progressive aphasia	14
Needs of older people living with dementia in low and middle-income Asian countries: A scoping review	14
Experiences of people with dementia and their caregivers during the COVID-19 pandemic in India: A mixed-methods study	14
Olfactory stimulation for people with dementia: A rapid review	14
Exploring the effectiveness and experiences of people living with dementia interacting with digital interventions: A mixed methods systematic review	14
A mixed method study exploring gender differences in dementia caregiving	14
How do care partners overcome the challenges associated with falls of community-dwelling older people with dementia? A qualitative study	14
Self-report instruments measuring aspects of self for people living with dementia: A systematic literature review of psychosocial interventions	13
Beliefs and attitudes of family caregivers of People with dementia toward advance care planning: A Q methodology study	13
Views of healthcare professionals on their relationships with families of people living with dementia: A qualitative study	13
A scoping review of dementia education programs to assess for the inclusion of culture	13
Book Review: And every morning the way home gets longer and longer: A book review	13
Themes describing social isolation in family caregivers of people living with dementia: A scoping review	12
A comparison of written case notes and the delivery of care in dementia specialist mental health wards	12
The relationship between guilt feelings, conflicts with staff and satisfaction with care in relatives of nursing home residents with dementia: A longitudinal analysis	12
The impact of participatory dementia research on researchers: A systematic review	12
Peer support through video meetings: Experiences of people with young onset dementia	11
Time perception among people living with and without dementia: A scoping review	11
Dementia and sexuality in long-term care: Incompatible bedfellows?	11
“It’s almost like not existing”: Adult children’s experiences of not being recognized and their perceptions of being forgotten by their parents with dementia	11
A qualitative study of unpaid caregivers of persons living with dementia and their interactions with health and community-based services and providers	11
Using Twitter to understand perspectives and experiences of dementia and caregiving at the beginning of the COVID-19 pandemic	10
Book Review: Joan Colnbrook's Dementia Painting	10
Neighbourhoods and dementia: An updated realist review of the qualitative literature to inform contemporary practice and policy understanding	10
Participation of persons living with dementia in research: A means to address epistemic injustice	10
Evolving dementia care: An explorative study on the lived experience of older adults living with dementia in nursing homes using observational and biometric sensor data	10
Journey to Diagnosis of Young-Onset Dementia: A Qualitative Study of People with Young-Onset Dementia and their Family Caregivers in Australia	10
Validation and expansion of a behavioral framework for dementia care partner resilience (CP-R)	10
Informal caregiver experiences at the end-of-life of individuals living with dementia with Lewy bodies: An interview study	10
Exploring why “memory loss” is a misleading descriptor of people living with dementia and can lead to dysfunctional care	10
Caring for an older person with dementia: Behavioral problems in the eyes of family caregivers and migrant home care workers	9
Cognitive assessment of nursing home residents: Survey data on tools used and perceptions of use among social service professionals in one U.S. state	9
Exploring perceived helpfulness of health services in men and women with dementia and care partners: A cross-sectional analysis	9
‘Do I have the capacity to make capacity judgements?’ Researcher reflections from a person-centred dementia support study	9
Childrens’ and young adults’ perspectives of having a parent with dementia diagnosis: A scoping review	9
The relationship at the heart of the experience of daughter caregivers of a parent with dementia: An interpretative phenomenological analysis	9
Better spiritual support for people living with early stage dementia: Developing the diamond conversation model	9
Free to be: Experiences of arts-based relational caring in a community living and thriving with dementia	9
Young onset dementia: implications for employment and finances	9
Navigating memory problems and mild cognitive impairment in later life: A qualitative secondary data analysis	9
A scoping review: Sensory interventions for older adults living with dementia	9
“Review of ‘Walk with me: Musings through the dementia fog’ by Peter Berry and Deb Bunt”	9
Understanding, experiences and attitudes of dementia in India: A qualitative study	9
Competency development for a volunteer navigation program to support caregivers of people living with dementia: A modified e-Delphi method	9
Playing the long game: Exploring the phenomenon of dementia-friendly golf	9
Brothers and sisters sharing in the care of a parent with dementia	9
‘It is stressful, almost every hour…’: Experiences of caring for people living with dementia in Kenya—An interpretive phenomenological approach	9
Cultural adaptations of the WHO iSupport for dementia: A scoping review	8
What will happen to my mom? A grounded theory on nurses’ support of relatives’ end-of-life decision-making process for residents living with dementia in long-term care homes	8
Understanding Capacity and Optimizing Meaningful Engagement among Persons Living with Dementia	8

Use of adapted or modified methods with people with dementia in research: A scoping review	8
Living with Dementia in Aotearoa (LiDiA): A Feasibility Study for a Dementia Prevalence Study in Māori and Non-Māori Living in New Zealand	8
Blogging with dementia: Writing about lived experience of dementia in the public domain	8
Strategies and factors to enhance active participation of family caregivers of people with dementia in psychoeducation: A scoping review	8
The care experience of people with diagnosed or suspected dementia living in prison: A case study approach	8
Exploring outcome measures with cognitive stimulation therapies and how these relate to the experiences of people with dementia: A narrative literature review	7
Understanding the lived experiences of family caregivers of individuals with dementia in Soweto, a South African Township	7
Anticipated suicidal and death ideation in response to an imagined dementia diagnosis: A qualitative study	7
The experience of lived body as expressed by people with dementia: A systematic meta-synthesis	7
Accessing Dementia Care in Brazil: An Analysis of Case Vignettes	7
Effectiveness of digital technologies to engage and support the wellbeing of people with dementia and family carers at home and in care homes: A scoping review	7
The art of friendliness: Organiser perspectives on curating dementia friendly cultural events	7
Out-of-home participation among people living with dementia: A study in four countries	7
Long-term care staff ’s positive experiences of caring for people living with dementia: Narratives’ content and lessons learned	7
Network analysis approach for exploring dementia representations in the Slovak media	7
Comparing two caregiver-delivered music listening interventions for community-dwelling people with dementia: A randomised controlled crossover pilot trial	7
Enabling work for people with dementia - Recommendations for interventions: A mixed-methods review	7
Book Review: Wendy Mitchell, Somebody I used to know	7
Specific support needs and experiences of carers of people with frontotemporal dementia: A systematic review	7
Threats to personhood from within the family? A study of family caregivers of people with dementia in the Chinese context	7
Animal-assisted and robotic animal-assisted interventions within dementia care: A systematic review	6
The feasibility and acceptability of a psychosocial intervention to support people with dementia with Lewy bodies and family care partners	6
Family members’ reasoning in relation to pleasant environments in nursing homes	6
Online support groups for carers of people living with dementia: An investigation of videoconferencing support groups in lockdown	6
Transforming dementia research into policy change: A case study of the multi-country STRiDE project	6
Pathways to care for people with dementia in India: An exploratory study using case vignettes	6
The experiences and perceptions of young people and older people living with dementia of participating in intergenerational programmes: A qualitative evidence synthesis	6
Real-world occupational therapy interventions for early-stage dementia: Characteristics and contextual barriers	6
A culturally and linguistically tailored Community-Engaged Dementia Education Program (CEDEP) for the Houston Vietnamese American community	6
Qualitative evaluation of My Life Today - A co-produced personal tool from the IDEAL programme to help people with dementia monitor valued aspects of their lives	6
Music in Mind Training: Producing a theory of change model to evaluate the implementation of an improvisation-based music-making training programme for care home staff working with people with dementi	6
Carers’ experiences of caring for a friend or family member with dementia during the Covid-19 pandemic	6
Embedding patient and public involvement in dementia research: Reflections from experiences during the ‘Journeying through Dementia’ randomised controlled trial	6
Living with dementia: Why I am thinking of ‘death’	6
The impact of social isolation and loneliness on the well-being of carers of a person with dementia in aotearoa New Zealand	6
Accessibility of health care experienced by persons with dementia from ethnic minority groups and formal and informal caregivers: A scoping review of European literature	6
‘I feel more part of the world’: Participatory action research to develop post-diagnostic dementia support	6
Dementia education in a primary school classroom: A pedagogical perspective	6