OOIR: Observatory of International Research

Papers

(The TQCC of Dementia-International Journal of Social Research and Practice is 5. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2022-08-01 to 2026-08-01.)

Article	Citations
Chinese diaspora caregivers’ experiences in dementia care in high-income countries: A systematic review	59
Doing relationship-centered dementia care: Learning from each other for better dementia support	53
The Role of Reminiscence in Arts-Based Interventions for Dementia Care: A Scoping Review	33
Population Attributable Fraction of Modifiable Risk Factors for Dementia in Turkey	32
Influential factors of spousal relationship quality in couples living with dementia – A narrative synthesis systematic review	32
The role and impact of therapeutic counselling on the emotional experience of adults living with dementia: A systematic review	31
The influence of Alzheimer’s disease stigma on pain assessment in older persons	31
Peer support for people living with rare or young onset dementia: An integrative review	27
Understanding dementia care pathways for policy development and service planning in Kenya	27
Physical Activity, Social Support, and the Health of Dementia Caregivers: A Scoping Review	22
Book Review: Understanding young onset dementia: Evaluation, needs and care	22
‘I want every minute to be worthwhile now’: The views and experiences of people living with dementia and their care partners about returning to in-person group meetings after COVID-19 lockdown restric	21
Emotional Intelligence and Cognitive Flexibility are Key Influences in Enabling Staff to Uphold Human Rights Values for People Living With Dementia in Care Homes	21
‘Everyone Needs a Hug’: A Lifeworld-Led Approach to Recognise and Maintain the Person of Care Recipients Living With Advanced Dementia	20
“We will tell everyone!” Capturing the impact of public and patient involvement in music therapy and dementia research through songwriting	19
Connecting Today: Feasibility and acceptability of a remote visiting program for people living with dementia in long-term care homes	18
A pilot study of an intergenerational program for people in residential aged care with cognitive impairment and children from a co-located early learning centre during COVID-19	18
The use of technology for arts-based activities in older adults living with mild cognitive impairment or dementia: A scoping review	18
Needs of older people living with dementia in low and middle-income Asian countries: A scoping review	17
Dementia Risk Reduction Education Programs and Resources for Indigenous Peoples of Canada, Aotearoa New Zealand, United States of America and Australia: A Scoping Review	17
A scoping review of dementia education programs to assess for the inclusion of culture	17
My experience of person-centered and personalized care in early-stage primary progressive aphasia	17
Beliefs and attitudes of family caregivers of People with dementia toward advance care planning: A Q methodology study	16
A comparison of written case notes and the delivery of care in dementia specialist mental health wards	16
Creative support: Enhancing well-being in mild and moderate cognitive impairment through museum interventions	15

How do care partners overcome the challenges associated with falls of community-dwelling older people with dementia? A qualitative study	14
A qualitative study of unpaid caregivers of persons living with dementia and their interactions with health and community-based services and providers	14
Exploring the effectiveness and experiences of people living with dementia interacting with digital interventions: A mixed methods systematic review	14
“It’s almost like not existing”: Adult children’s experiences of not being recognized and their perceptions of being forgotten by their parents with dementia	14
Views of healthcare professionals on their relationships with families of people living with dementia: A qualitative study	14
Self-report instruments measuring aspects of self for people living with dementia: A systematic literature review of psychosocial interventions	14
A mixed method study exploring gender differences in dementia caregiving	14
Time perception among people living with and without dementia: A scoping review	13
Participation of persons living with dementia in research: A means to address epistemic injustice	13
Peer support through video meetings: Experiences of people with young onset dementia	13
Evolving dementia care: An explorative study on the lived experience of older adults living with dementia in nursing homes using observational and biometric sensor data	12
Validation and expansion of a behavioral framework for dementia care partner resilience (CP-R)	12
The relationship at the heart of the experience of daughter caregivers of a parent with dementia: An interpretative phenomenological analysis	12
Book Review: Joan Colnbrook's Dementia Painting	12
Exploring why “memory loss” is a misleading descriptor of people living with dementia and can lead to dysfunctional care	12
Journey to Diagnosis of Young-Onset Dementia: A Qualitative Study of People with Young-Onset Dementia and their Family Caregivers in Australia	11
“Review of ‘Walk with me: Musings through the dementia fog’ by Peter Berry and Deb Bunt”	11
Exploring perceived helpfulness of health services in men and women with dementia and care partners: A cross-sectional analysis	11
Hearing Loss and Dementia Prevalence Across Countries: Global Ecological Evidence in Females and Males	11
Cognitive assessment of nursing home residents: Survey data on tools used and perceptions of use among social service professionals in one U.S. state	11
Competency development for a volunteer navigation program to support caregivers of people living with dementia: A modified e-Delphi method	11
Working With Patients Living With Dementia, Delirium and Behaviours of Concern: An Exploration into the Impact on Allied Health Staff Wellbeing	11
Delayed Access to Dementia Services: The Experiences of the African Caribbean Community in the UK	11
Cultural adaptations of the WHO iSupport for dementia: A scoping review	11
Better spiritual support for people living with early stage dementia: Developing the diamond conversation model	10
Navigating memory problems and mild cognitive impairment in later life: A qualitative secondary data analysis	10
Young onset dementia: implications for employment and finances	10
Caring for an older person with dementia: Behavioral problems in the eyes of family caregivers and migrant home care workers	10
Navigating Support Together: A Meaning-Oriented Dyadic Understanding of Daily Life With Young-Onset Dementia	10
Perceptions and Experiences of Dementia-Friendly Education Among Youth in Macao: A Qualitative Study	10
Use of adapted or modified methods with people with dementia in research: A scoping review	10
The care experience of people with diagnosed or suspected dementia living in prison: A case study approach	10
Understanding Capacity and Optimizing Meaningful Engagement among Persons Living with Dementia	10
Guiding People With Korsakoff’s Syndrome and Other Alcohol Related Cognitive Disorders in Long Term Care – An Ethnographic Study	10
Understanding, experiences and attitudes of dementia in India: A qualitative study	9
Accessing Dementia Care in Brazil: An Analysis of Case Vignettes	9
Effectiveness of digital technologies to engage and support the wellbeing of people with dementia and family carers at home and in care homes: A scoping review	9
Comparing two caregiver-delivered music listening interventions for community-dwelling people with dementia: A randomised controlled crossover pilot trial	9
Threats to personhood from within the family? A study of family caregivers of people with dementia in the Chinese context	9
Living with Dementia in Aotearoa (LiDiA): A Feasibility Study for a Dementia Prevalence Study in Māori and Non-Māori Living in New Zealand	9
Long-term care staff ’s positive experiences of caring for people living with dementia: Narratives’ content and lessons learned	9
Strategies and factors to enhance active participation of family caregivers of people with dementia in psychoeducation: A scoping review	9
Anticipated suicidal and death ideation in response to an imagined dementia diagnosis: A qualitative study	8
Management of Co-existing Dementia and Hearing Loss in Social Care Settings: A Focus Group Study	8
The art of friendliness: Organiser perspectives on curating dementia friendly cultural events	8
Exploring Ethical Dilemmas and Concerns in Caring for Persons With Dementia: Insights From Formal Caregivers in Albania	8
Care Experiences of Family Caregivers of People with Dementia: A Nationwide Survey Study Comparing Caregivers with Migrant and Native Backgrounds	8
Animal-assisted and robotic animal-assisted interventions within dementia care: A systematic review	7
Carers’ experiences of caring for a friend or family member with dementia during the Covid-19 pandemic	7
‘I feel more part of the world’: Participatory action research to develop post-diagnostic dementia support	7

Family members’ reasoning in relation to pleasant environments in nursing homes	7
Enabling work for people with dementia - Recommendations for interventions: A mixed-methods review	7
Understanding the lived experiences of family caregivers of individuals with dementia in Soweto, a South African Township	7
The Impact of E-Learning Platforms on Dementia Knowledge Acquisition Among General Public: A Systematic Review	7
Supporting the Well-Being of People Living With Dementia and Their Family Carers Through Concurrent Arts and Well-Being Community Programs: Qualitative Perspectives of Participants and Facilitators	7
Qualitative evaluation of My Life Today - A co-produced personal tool from the IDEAL programme to help people with dementia monitor valued aspects of their lives	7
A Mixed-Methods Systematic Review of Factors Associated With Wellbeing in the UK Dementia Social Care Workforce	7
The experience of long-term care staff caring for people with dementia in low- and middle-income Countries (LMICs): A qualitative evidence synthesis	7
Real-world occupational therapy interventions for early-stage dementia: Characteristics and contextual barriers	7
Online support groups for carers of people living with dementia: An investigation of videoconferencing support groups in lockdown	7
Conceptualizing access to community-based supports from the perspectives of people living with young onset dementia, family members and providers	6
‘Unalloyed, Uncomplicated Joy’: A Qualitative Study to Understand Dementia Care Partners’ Experiences of Dance/Movement Therapy	6
‘I do Things that I don’t Really Want to do …’: Understanding the Everyday Lives of Family Carers of People With Dementia	6
The impact of social isolation and loneliness on the well-being of carers of a person with dementia in aotearoa New Zealand	6
Book Review: Dementia and place: Practices, experiences and connections	6
Camaraderie for Care Partners: Addressing the Well-Being of Care Partners for Singing Group Participants With Parkinson’s Disease Through a Phenomenological Qualitative Approach	6
Music in Mind Training: Producing a theory of change model to evaluate the implementation of an improvisation-based music-making training programme for care home staff working with people with dementi	6
Shared decision-making in persons living with dementia: A scoping review	6
Efficacy and impact of spousal support groups in enhancing the well-being of caring in early onset dementia: Lessons learned from the ACE Alzheimer center Barcelona	6
Designing for Dementia: A Multiple Case Study Approach to Explore How Care Home Environments May Influence Wandering	6
Transforming dementia research into policy change: A case study of the multi-country STRiDE project	6
Experiences of People With Dementia and Their Family Caregivers After Earthquakes: A Qualitative Study	6
Understanding the impact of dementia on spousal relationships: A qualitative study with female spousal carers of people living with dementia	6
Exploring the interplay between dementia, multiple health conditions and couplehood: A qualitative evidence review and meta-ethnography	6
Effectiveness of interventions to prevent abuse in people living with dementia in community settings: A systematic review	6
A culturally and linguistically tailored Community-Engaged Dementia Education Program (CEDEP) for the Houston Vietnamese American community	6
Living with dementia: Why I am thinking of ‘death’	6
Implementing reablement for community dwelling people with dementia: A formative evaluation using single-case experimental design	6
Pathways to care for people with dementia in India: An exploratory study using case vignettes	6
Dementia education in a primary school classroom: A pedagogical perspective	6
‘What are nurses’ and healthcare workers’ cultural understandings of dementia?’ An integrative literature review	5
Book Review: From Dementia to Rementia: A Guide to Personal Rehabilitation Strategies	5
Increased community engagement of Indigenous Peoples in dementia research leads to higher context relevance of results	5
Ethical Challenges in the Dementia Care Triad: A Qualitative Study From a Danish Day Care Center	5
A qualitative analysis of virtues and strengths in persons living with early stage dementia informed by the values in action framework	5
Roles and usages of neuro service dogs for caregivers living at home with persons with dementia: An exploratory comparative case study	5
Implementing Montessori approaches after training: A mixed methods study to examine staff understanding and movement toward action	5
“There’ll always be something that I can do”: A Qualitative Exploration of Nurse Practitioner-Led Community Dementia Care Enabling a Life of Dignity	5
Caregiving as Work: A Qualitative Study of Dementia Caregiving Among Mexican American Families Using SEIPS 3.0	5
Navigating the coronavirus pandemic 2 years on: Experiences of people with dementia from the British IDEAL cohort	5
Characterizing diagnostic disclosure communication strategies and challenges in dementia care: A qualitative study of interprofessional clinicians across three systems	5
Navigating Dementia Services: An International Review of Informal Caregiver Perspectives	5
Dementia-Friendly Communities: Exploring Terms used to Describe Dementia, Attitudes and Reactions Towards People with Dementia in Ilembe District, South Africa	5
Supporting Continued Employment for Individuals With Young-Onset Dementia: Insights From a Qualitative Study Into Key Stakeholders’ Roles and Perspectives	5
Book Review: Dementia Caregiving East and West: Issues of Communication DavisBoyd H.MaclaganMargaret, Dementia Caregiving East and West: Issues of Communication, Cambridge Scholars Publishing: Newcast	5
Assessment of dementia knowledge in Indian speech-language pathology students	5
Patient-reported experience measures for people living with dementia: A scoping review	5
Effects of a Reminiscence Therapy Program on Neuropsychiatric Symptoms and Quality of Life in People With Dementia: A Pilot Study Comparing Immersive Virtual Reality and Non-immersive Approaches	5
The quality of family relationships in dementia: Mixed methods to unravel mixed feelings	5
Cultural variability in dementia caregiver motivations: Unraveling unique and common drivers	5
Post-diagnostic support in Australia: Perspectives of people recently diagnosed with dementia and their carers	5
Unpaid carers of people with dementia and information communication technology: Use, impact and ideas for the future	5
Care needs of people with dementia in Tanzania and associated impact on carers: A cross-sectional, observational study	5
Family Perspectives on Freedom of Movement for Nursing Home Residents With Dementia: A Qualitative Study	5
Cultural and Linguistic Adaptation of the iSupport for Dementia Program: Perspectives From Vietnamese Carers in Australia	5
A mixed methods evaluation of the music and psychology and social connections (MAPS) pilot – A dyadic intervention for couples affected by young-onset dementia	5
The context, mechanisms and outcomes of intergenerational programmes involving people living with dementia in scotland: A realist, qualitative study	5
Vigilance, risk, and service use among caregivers of people living with dementia	5