OOIR: Observatory of International Research

Papers

(The TQCC of Dementia-International Journal of Social Research and Practice is 6. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-07-01 to 2024-07-01.)

Article	Citations
Understanding the impact of the COVID-19 pandemic on well-being and virtual care for people living with dementia and care partners living in the community	52
Effects of a virtual group cycling experience on people living with dementia: A mixed method pilot study	33
The use of digital technologies by people with mild-to-moderate dementia during the COVID-19 pandemic: A positive technology perspective	28
Exploring the impact of Covid-19 on the care and quality of life of people with dementia and their carers: A scoping review	26
Partnerships in nursing homes: How do family caregivers of residents with dementia perceive collaboration with staff?	25
Towards an increased understanding of reminiscence therapy for people with dementia: A narrative analysis	24
The use of Twitter by people with young-onset dementia: A qualitative analysis of narratives and identity formation in the age of social media	24
Themes describing social isolation in family caregivers of people living with dementia: A scoping review	22
A survey of the experience of living with dementia in a dementia-friendly community	22
Social connectedness and dementia prevention: Pilot of the APPLE-Tree video-call intervention during the Covid-19 pandemic	19
Engaging persons with dementia in advance care planning: Challenges and opportunities	19
Robot companion cats for people at home with dementia: A qualitative case study on companotics	18
‘You can’t just put somebody in a situation with no armour’. An ethnographic exploration of the training and support needs of homecare workers caring for people living with dementia	17
Dementia stigma reduction (DESeRvE) through education and virtual contact in the general public: A multi-arm factorial randomised controlled trial	17
Accessibility of health care experienced by persons with dementia from ethnic minority groups and formal and informal caregivers: A scoping review of European literature	17
Experiences of people with dementia and their caregivers during the COVID-19 pandemic in India: A mixed-methods study	16
A qualitative exploration of how gender and relationship shape family caregivers’ experiences across the Alzheimer’s disease trajectory	16
Resilience and supporting people living with dementia during the time of COVID-19; A qualitative study	16
The impact of participatory dementia research on researchers: A systematic review	15
The experiences of those affected by parental young onset dementia: A qualitative systematic literature review	15
Exploring resilience and well-being of family caregivers of people with dementia exposed to mandatory social isolation by COVID-19	15
Stakeholders’ perspectives on adapting the World Health Organization iSupport for Dementia in Australia	15
Specific support needs and experiences of carers of people with frontotemporal dementia: A systematic review	14
Emotion work and feeling rules: Coping strategies of family caregivers of people with end stage dementia in Israel—A qualitative study	14
How do we provide good mealtime care for people with dementia living in care homes? A systematic review of carer–resident interactions	14

Beyond the project: Building a strategic theory of change to address dementia care, treatment and support gaps across seven middle-income countries	13
Home care in dementia: The views of informal carers from a co-designed consultation	13
Beyond crisis: Enacted sense-making among ethnic minority carers of people with dementia in Australia	13
Familiarity and participation outside home for persons living with dementia	12
Cultural adaptation of World Health Organization iSupport for Dementia program for Chinese-Australian caregivers	12
A qualitative meta-synthesis of common and unique preferences for supportive services among persons with young onset dementia and their caregivers	12
Satisfaction, utilization, and feasibility of a telehealth intervention for in-home dementia care support: A mixed methods study	12
Emotion regulation and decision-making in persons with dementia: A scoping review	12
How do factors of sociodemographic, health literacy and dementia experience influence carers’ knowledge of dementia?	11
Identifying adoption and usability factors of locator devices for persons living with dementia	11
Using meta-ethnography to understand the care transition experience of people with dementia and their caregivers	11
Healthcare professionals’ perspectives on rehabilitating persons with cognitive impairment	11
Caregiver–provider communication about pain in persons with dementia	11
Co-designing complex interventions with people living with dementia and their supporters	11
Perceptions and experiences of dementia and its care in rural Kenya	10
Everyday experiences of people living with dementia and their carers relating to oral health and dental care	10
Methods and approaches for enhancing communication with people with moderate-to-severe dementia that can facilitate their inclusion in research and service evaluation: Findings from the IDEAL programm	10
The experiences, priorities, and perceptions of informal caregivers of people with dementia in nursing homes: A scoping review	10
Opening Minds through Art: A preliminary study evaluating the effects of a creative-expression program on persons living with dementia and their primary care partners	10
The changing self: The impact of dementia on the personal and social identity of women (findings from the Improving the Experience of Dementia and Enhancing Active Life programme)	10
The experiences of grandchildren who provide care for a grandparent with dementia: A systematic review	10
Use of participatory action research approach to develop a self-management resource for persons living with dementia	10
The dignity of older individuals with Alzheimer’s disease and related dementias: A scoping review	10
Conceptualizing citizenship in dementia: A scoping review of the literature	10
Interventions promoting family involvement with care homes following placement of a relative with dementia: A systematic review	10
Understanding, experiences and attitudes of dementia in India: A qualitative study	9
Tensions in support for family caregivers of people with dementia in Singapore: A qualitative study	9
What do the public really know about dementia and its risk factors?	9
Free to be: Experiences of arts-based relational caring in a community living and thriving with dementia	9
Long-term care placement: The transitional support needs and preferences of spousal dementia caregivers	9
Peer support for people living with rare or young onset dementia: An integrative review	9
Dementia-friendly communities: The involvement of people living with dementia	9
The use of technology for arts-based activities in older adults living with mild cognitive impairment or dementia: A scoping review	9
The meaning of autonomy when living with dementia: A Q-method investigation	8
Staff perspectives on the role of physical environment in long-term care facilities on dementia care in Canada and Sweden	8
Using Twitter to understand perspectives and experiences of dementia and caregiving at the beginning of the COVID-19 pandemic	8
Everyday experiences of post-diagnosis life with dementia: A co-produced photography study	8
Childrens’ and young adults’ perspectives of having a parent with dementia diagnosis: A scoping review	8
Peer support through video meetings: Experiences of people with young onset dementia	8
Prevalence, causes, and consequences of moral distress in healthcare providers caring for people living with dementia in long-term care during a pandemic	8
A qualitative analysis of virtues and strengths in persons living with early stage dementia informed by the values in action framework	8
The emotional experience of caregiving in dementia: Feelings of guilt and ambivalence underlying narratives of family caregivers	8
Understanding the shared experiences of creating a digital life story with individuals with dementia and their spouse	8
Embedding patient and public involvement in dementia research: Reflections from experiences during the ‘Journeying through Dementia’ randomised controlled trial	7
Influential factors of spousal relationship quality in couples living with dementia – A narrative synthesis systematic review	7
Young onset dementia: implications for employment and finances	7
Nostalgic conversations: The co-production of an intervention package for people living with dementia and their spouse	7
What is the present role for general practitioners in dementia care? Experiences of general practitioners, patients and family carers in Portugal	7
Important aspects of home care service: An interview study of persons with dementia	7
Experiences and practices of caregiving for older persons living with dementia in African countries: A qualitative scoping review	7

Pad cultures: An ethnography of continence care and its consequences for people living with dementia during a hospital admission	7
Family carers’ narratives of the financial consequences of young onset dementia	7
Analysing the use of music to facilitate social interaction in care home residents with dementia: Narrative synthesis systematic review	7
Relating to the end of life through advance care planning: Expectations and experiences of people with dementia and their family caregivers	7
The affective, behavioural, and cognitive reactions to a diagnosis of Primary Progressive Aphasia: A qualitative descriptive study	7
What are the elements needed to create an effective visual art intervention for people with dementia? A qualitative exploration	7
Co-designing a dementia-specific education and training program for home care workers: The ‘Promoting Independence Through Quality Dementia Care at Home’ project	7
Caregiver identity in care partners of persons living with mild cognitive impairment	7
‘Do I have the capacity to make capacity judgements?’ Researcher reflections from a person-centred dementia support study	7
Doing their damnedest to seek change: How group identity helps people with dementia confront public stigma and maintain purpose	7
The ‘tipping point’: Exploring the factors associated with entry into residential care for people with dementia in Western Australia	7
Psychosocial treatment preferences of persons living with young-onset dementia and their partners	7
Receiving a diagnosis of young onset dementia: Evidence-based statements to inform best practice	6
Understanding the lived experiences of family caregivers of individuals with dementia in Soweto, a South African Township	6
Dementia families: Relinquishing home care to aged care services: Guilt, traumatic loss and growth	6
Resonating moments: Exploring socio-material connectivity through artistic encounters with people living with dementia	6
‘Four walls and a garden’: Exploring the experiences of families affected by dementia during the COVID-19 pandemic	6
Development of health literacy in persons and caregivers living with dementia: A qualitative directed content analysis	6
A multicomponent psychosocial intervention among people with early-stage dementia involving physical exercise, cognitive stimulation therapy, psychoeducation and counselling: Results from a mixed-meth	6
Dementia and its impacts on the intimate, sexual couple relationship: A systematic review of qualitative research studies	6
Exploring the feasibility of an individual cognitive stimulation therapy application and related technology for use by people with dementia and carers in Indonesia: A mixed-method study	6
Olfactory stimulation for people with dementia: A rapid review	6
Cognitive stimulation therapy for dementia: Provision in National Health Service settings in England, Scotland and Wales	6
Montessori mealtimes for dementia: A pathway to person-centred care	6
What influences uptake of psychosocial interventions by people living with early dementia? A qualitative study	6
Communication in dementia care: Experiences and needs of carers	6
Volunteers’ experiences building relationships with long-term care residents who have advanced dementia	6
Personal and complex: The needs and experiences related to technology use for people living with dementia	6
A feasibility study of the impact of a communication-skills course, ‘Empowered Conversations’, for care partners of people living with dementia	6
Exploring how residential care facilities can enhance the autonomy of people with dementia and improve informal care	6
Stakeholder perspectives of the dementia-friendly hospital: A qualitative descriptive focus group study	6
Characterizing dementia caregiver style in managing care challenges: Cognitive and behavioral components	6
Truth, hope and the disclosure of a dementia diagnosis: A scoping review of the ethical considerations from the perspective of the person, carer and clinician	6
Childhood perspectives of parental young onset dementia: A qualitative data synthesis	6
Neighbourhoods and dementia: An updated realist review of the qualitative literature to inform contemporary practice and policy understanding	6
Assessment tools for measurement of dementia-friendliness of a community: A scoping review	6