OOIR: Observatory of International Research

Papers

(The TQCC of Dementia-International Journal of Social Research and Practice is 5. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-12-01 to 2024-12-01.)

Article	Citations
Understanding the impact of the COVID-19 pandemic on well-being and virtual care for people living with dementia and care partners living in the community	51
The use of digital technologies by people with mild-to-moderate dementia during the COVID-19 pandemic: A positive technology perspective	34
Exploring the impact of Covid-19 on the care and quality of life of people with dementia and their carers: A scoping review	26
The use of Twitter by people with young-onset dementia: A qualitative analysis of narratives and identity formation in the age of social media	26
Accessibility of health care experienced by persons with dementia from ethnic minority groups and formal and informal caregivers: A scoping review of European literature	25
Themes describing social isolation in family caregivers of people living with dementia: A scoping review	25
Dementia stigma reduction (DESeRvE) through education and virtual contact in the general public: A multi-arm factorial randomised controlled trial	21
A qualitative exploration of how gender and relationship shape family caregivers’ experiences across the Alzheimer’s disease trajectory	20
Engaging persons with dementia in advance care planning: Challenges and opportunities	19
Social connectedness and dementia prevention: Pilot of the APPLE-Tree video-call intervention during the Covid-19 pandemic	19
‘You can’t just put somebody in a situation with no armour’. An ethnographic exploration of the training and support needs of homecare workers caring for people living with dementia	18
Resilience and supporting people living with dementia during the time of COVID-19; A qualitative study	17
Emotion work and feeling rules: Coping strategies of family caregivers of people with end stage dementia in Israel—A qualitative study	17
The impact of participatory dementia research on researchers: A systematic review	16
Experiences of people with dementia and their caregivers during the COVID-19 pandemic in India: A mixed-methods study	16
How do we provide good mealtime care for people with dementia living in care homes? A systematic review of carer–resident interactions	16
The experiences of those affected by parental young onset dementia: A qualitative systematic literature review	15
Exploring resilience and well-being of family caregivers of people with dementia exposed to mandatory social isolation by COVID-19	15
Home care in dementia: The views of informal carers from a co-designed consultation	15
Beyond the project: Building a strategic theory of change to address dementia care, treatment and support gaps across seven middle-income countries	15
The emotional experience of caregiving in dementia: Feelings of guilt and ambivalence underlying narratives of family caregivers	15
Familiarity and participation outside home for persons living with dementia	14
Cultural adaptation of World Health Organization iSupport for Dementia program for Chinese-Australian caregivers	14
Co-designing complex interventions with people living with dementia and their supporters	14
Specific support needs and experiences of carers of people with frontotemporal dementia: A systematic review	14

Caregiver–provider communication about pain in persons with dementia	14
Methods and approaches for enhancing communication with people with moderate-to-severe dementia that can facilitate their inclusion in research and service evaluation: Findings from the IDEAL programm	14
Perceptions and experiences of dementia and its care in rural Kenya	13
The changing self: The impact of dementia on the personal and social identity of women (findings from the Improving the Experience of Dementia and Enhancing Active Life programme)	13
Identifying adoption and usability factors of locator devices for persons living with dementia	13
Interventions promoting family involvement with care homes following placement of a relative with dementia: A systematic review	13
The dignity of older individuals with Alzheimer’s disease and related dementias: A scoping review	12
A qualitative meta-synthesis of common and unique preferences for supportive services among persons with young onset dementia and their caregivers	12
Everyday experiences of people living with dementia and their carers relating to oral health and dental care	12
How do factors of sociodemographic, health literacy and dementia experience influence carers’ knowledge of dementia?	12
The meaning of autonomy when living with dementia: A Q-method investigation	11
Using meta-ethnography to understand the care transition experience of people with dementia and their caregivers	11
The use of technology for arts-based activities in older adults living with mild cognitive impairment or dementia: A scoping review	11
Conceptualizing citizenship in dementia: A scoping review of the literature	11
Peer support through video meetings: Experiences of people with young onset dementia	11
Opening Minds through Art: A preliminary study evaluating the effects of a creative-expression program on persons living with dementia and their primary care partners	11
Free to be: Experiences of arts-based relational caring in a community living and thriving with dementia	11
Tensions in support for family caregivers of people with dementia in Singapore: A qualitative study	11
The experiences, priorities, and perceptions of informal caregivers of people with dementia in nursing homes: A scoping review	11
Peer support for people living with rare or young onset dementia: An integrative review	11
Shared decision-making in persons living with dementia: A scoping review	10
Co-designing a dementia-specific education and training program for home care workers: The ‘Promoting Independence Through Quality Dementia Care at Home’ project	10
What do the public really know about dementia and its risk factors?	10
A qualitative analysis of virtues and strengths in persons living with early stage dementia informed by the values in action framework	10
The experiences of grandchildren who provide care for a grandparent with dementia: A systematic review	10
Experiences and practices of caregiving for older persons living with dementia in African countries: A qualitative scoping review	10
Influential factors of spousal relationship quality in couples living with dementia – A narrative synthesis systematic review	10
Understanding, experiences and attitudes of dementia in India: A qualitative study	10
Use of participatory action research approach to develop a self-management resource for persons living with dementia	10
Long-term care placement: The transitional support needs and preferences of spousal dementia caregivers	10
Young onset dementia: implications for employment and finances	9
Using Twitter to understand perspectives and experiences of dementia and caregiving at the beginning of the COVID-19 pandemic	9
Doing their damnedest to seek change: How group identity helps people with dementia confront public stigma and maintain purpose	9
The affective, behavioural, and cognitive reactions to a diagnosis of Primary Progressive Aphasia: A qualitative descriptive study	9
Staff perspectives on the role of physical environment in long-term care facilities on dementia care in Canada and Sweden	9
Dementia-friendly communities: The involvement of people living with dementia	9
Caregiver identity in care partners of persons living with mild cognitive impairment	9
Communication in dementia care: Experiences and needs of carers	8
Childrens’ and young adults’ perspectives of having a parent with dementia diagnosis: A scoping review	8
Nostalgic conversations: The co-production of an intervention package for people living with dementia and their spouse	8
Olfactory stimulation for people with dementia: A rapid review	8
Development of health literacy in persons and caregivers living with dementia: A qualitative directed content analysis	8
‘It is stressful, almost every hour…’: Experiences of caring for people living with dementia in Kenya—An interpretive phenomenological approach	8
Relating to the end of life through advance care planning: Expectations and experiences of people with dementia and their family caregivers	8
Montessori mealtimes for dementia: A pathway to person-centred care	8
Prevalence, causes, and consequences of moral distress in healthcare providers caring for people living with dementia in long-term care during a pandemic	8
What is the present role for general practitioners in dementia care? Experiences of general practitioners, patients and family carers in Portugal	8
Assessment tools for measurement of dementia-friendliness of a community: A scoping review	8
Understanding the lived experiences of family caregivers of individuals with dementia in Soweto, a South African Township	8
A feasibility study of the impact of a communication-skills course, ‘Empowered Conversations’, for care partners of people living with dementia	7

Dementia knowledge among physiotherapists in Nigeria	7
Characterizing dementia caregiver style in managing care challenges: Cognitive and behavioral components	7
Cultural adaptation of the iSupport online training and support programme for caregivers of people with dementia in Castilla y León, Spain	7
Analysing the use of music to facilitate social interaction in care home residents with dementia: Narrative synthesis systematic review	7
Meeting own needs and supporting ability to care: Family caregivers’ and health care professionals’ perspectives on professional support provided through a potential mobile application	7
Exploring how residential care facilities can enhance the autonomy of people with dementia and improve informal care	7
Psychosocial treatment preferences of persons living with young-onset dementia and their partners	7
Embedding patient and public involvement in dementia research: Reflections from experiences during the ‘Journeying through Dementia’ randomised controlled trial	7
‘Four walls and a garden’: Exploring the experiences of families affected by dementia during the COVID-19 pandemic	7
Resonating moments: Exploring socio-material connectivity through artistic encounters with people living with dementia	7
Childhood perspectives of parental young onset dementia: A qualitative data synthesis	7
Volunteers’ experiences building relationships with long-term care residents who have advanced dementia	7
‘The Jigsaw Culture of Care’: A qualitative analysis of Montessori-Based programming for dementia care in the United Kingdom	7
Pad cultures: An ethnography of continence care and its consequences for people living with dementia during a hospital admission	7
Truth, hope and the disclosure of a dementia diagnosis: A scoping review of the ethical considerations from the perspective of the person, carer and clinician	7
Family carers’ narratives of the financial consequences of young onset dementia	7
‘Do I have the capacity to make capacity judgements?’ Researcher reflections from a person-centred dementia support study	7
Dementia and its impacts on the intimate, sexual couple relationship: A systematic review of qualitative research studies	7
The ‘tipping point’: Exploring the factors associated with entry into residential care for people with dementia in Western Australia	7
Me, myself, and nature: living with dementia and connecting with the natural world – more than a breath of fresh air? A literature review	6
Neighbourhoods and dementia: An updated realist review of the qualitative literature to inform contemporary practice and policy understanding	6
Dementia and dignity of identity: A qualitative evidence synthesis	6
Exploring the feasibility of an individual cognitive stimulation therapy application and related technology for use by people with dementia and carers in Indonesia: A mixed-method study	6
Couplehood as a compass: Spousal perspectives on the diminished everyday competence of partners	6
Animal-assisted and robotic animal-assisted interventions within dementia care: A systematic review	6
What influences uptake of psychosocial interventions by people living with early dementia? A qualitative study	6
A multicomponent psychosocial intervention among people with early-stage dementia involving physical exercise, cognitive stimulation therapy, psychoeducation and counselling: Results from a mixed-meth	6
A scoping review: Sensory interventions for older adults living with dementia	6
Care home practitioners’ perceptions of the barriers and facilitators for using off-the-shelf gaming technology with people with dementia	6
A qualitative evaluation of the impact of a Good Life Club on people living with dementia and care partners	6
A scoping review of psychosocial interventions to enhance the relationship of couples living with dementia	6
Working towards inclusion: Creating technology for and with people living with mild cognitive impairment or dementia who are employed	6
Personal and complex: The needs and experiences related to technology use for people living with dementia	6
How do family carers and care-home staff manage refusals when assisting a person with advanced dementia with their personal care?	6
Intercultural care for people of migrant origin with dementia – A literature analysis	6
Transcending inequities in dementia care in Black communities: Lessons from the maximizing independence at home care coordination program	6
Development and acceptability of a brief, evidence-based Dementia Awareness for Caregivers course in low- and middle-income countries	5
‘You come because it is an interesting place’: The impact of attending a heritage programme on the well-being of people living with dementia and their care partners	5
Health promotion initiative: A dementia-friendly local community in Sweden	5
Practical and emotional preparation for death: A mixed methods study investigating experiences of family carers of people with dementia	5
Establishing priorities for psychosocial supports and services among family carers of people with dementia in Ireland	5
Practice of end-of-life care for patients with advanced dementia by hospital physicians and nurses: Comparison between medical and surgical wards	5
Using Journey Mapping to support staff, family members and allies of people with dementia to think and act differently during a care transition: The benefits and limits of care imagination	5
Use of tangible, educational and psychological support services among Chinese American dementia caregivers	5
Understanding dementia care pathways for policy development and service planning in Kenya	5
Ageing, dementia and the future – ambivalent futurework in rehabilitation-focused dementia care	5
Stressors and coping strategies in Chinese family caregivers of people with dementia in long-term care facilities: A qualitative descriptive study	5
“My quiet times”: Themes of sleep health among people caring for a family member with dementia	5
Online support groups for carers of people living with dementia: An investigation of videoconferencing support groups in lockdown	5
Exploring outcome measures with cognitive stimulation therapies and how these relate to the experiences of people with dementia: A narrative literature review	5
“I think I could have coped if I was sleeping better”: Sleep across the trajectory of caring for a family member with dementia	5
The experiences and perceptions of young people and older people living with dementia of participating in intergenerational programmes: A qualitative evidence synthesis	5
Risk, worry and motivation: How is public knowledge of dementia shaped?	5
Needs-appropriate services for people with young onset dementia: The perspectives of healthcare professionals	5
Exploring the contextual factors that impact the dementia family caregiving experience in Soweto township, South Africa	5
Ethical issues in dementia guidelines for people with dementia and informal caregivers in Denmark: A qualitative thematic synthesis	5
Carers’ experiences of caring for a friend or family member with dementia during the Covid-19 pandemic	5
The experience of bereavement on family caregivers of people with dementia in China	5
“I am not a good enough caregiver, and it is my fault”: The complex self-concept of Vietnamese female caregivers in dementia care	5
Out-of-home participation among people living with dementia: A study in four countries	5
Effectiveness of digital technologies to engage and support the wellbeing of people with dementia and family carers at home and in care homes: A scoping review	5
Taking part in the community occupational therapy in dementia UK intervention from the perspective of people with dementia, family carers and occupational therapists: A qualitative study	5