Dementia-International Journal of Social Research and Practice

Article	Citations
Understanding the impact of the COVID-19 pandemic on well-being and virtual care for people living with dementia and care partners living in the community	51
The use of digital technologies by people with mild-to-moderate dementia during the COVID-19 pandemic: A positive technology perspective	34
Exploring the impact of Covid-19 on the care and quality of life of people with dementia and their carers: A scoping review	26
The use of Twitter by people with young-onset dementia: A qualitative analysis of narratives and identity formation in the age of social media	26
Themes describing social isolation in family caregivers of people living with dementia: A scoping review	25
Accessibility of health care experienced by persons with dementia from ethnic minority groups and formal and informal caregivers: A scoping review of European literature	25
Dementia stigma reduction (DESeRvE) through education and virtual contact in the general public: A multi-arm factorial randomised controlled trial	21
A qualitative exploration of how gender and relationship shape family caregivers’ experiences across the Alzheimer’s disease trajectory	20
Social connectedness and dementia prevention: Pilot of the APPLE-Tree video-call intervention during the Covid-19 pandemic	19
Engaging persons with dementia in advance care planning: Challenges and opportunities	19
‘You can’t just put somebody in a situation with no armour’. An ethnographic exploration of the training and support needs of homecare workers caring for people living with dementia	18
Emotion work and feeling rules: Coping strategies of family caregivers of people with end stage dementia in Israel—A qualitative study	17
Resilience and supporting people living with dementia during the time of COVID-19; A qualitative study	17
Experiences of people with dementia and their caregivers during the COVID-19 pandemic in India: A mixed-methods study	16
How do we provide good mealtime care for people with dementia living in care homes? A systematic review of carer–resident interactions	16
The impact of participatory dementia research on researchers: A systematic review	16
Home care in dementia: The views of informal carers from a co-designed consultation	15
Beyond the project: Building a strategic theory of change to address dementia care, treatment and support gaps across seven middle-income countries	15
The emotional experience of caregiving in dementia: Feelings of guilt and ambivalence underlying narratives of family caregivers	15
The experiences of those affected by parental young onset dementia: A qualitative systematic literature review	15
Exploring resilience and well-being of family caregivers of people with dementia exposed to mandatory social isolation by COVID-19	15
Beyond crisis: Enacted sense-making among ethnic minority carers of people with dementia in Australia	14
Specific support needs and experiences of carers of people with frontotemporal dementia: A systematic review	14
Familiarity and participation outside home for persons living with dementia	14
Co-designing complex interventions with people living with dementia and their supporters	14

Emotion regulation and decision-making in persons with dementia: A scoping review	14
Methods and approaches for enhancing communication with people with moderate-to-severe dementia that can facilitate their inclusion in research and service evaluation: Findings from the IDEAL programm	14
Cultural adaptation of World Health Organization iSupport for Dementia program for Chinese-Australian caregivers	14
Identifying adoption and usability factors of locator devices for persons living with dementia	13
Interventions promoting family involvement with care homes following placement of a relative with dementia: A systematic review	13
Perceptions and experiences of dementia and its care in rural Kenya	13
Caregiver–provider communication about pain in persons with dementia	12
A qualitative meta-synthesis of common and unique preferences for supportive services among persons with young onset dementia and their caregivers	12
Everyday experiences of people living with dementia and their carers relating to oral health and dental care	12
The dignity of older individuals with Alzheimer’s disease and related dementias: A scoping review	12
How do factors of sociodemographic, health literacy and dementia experience influence carers’ knowledge of dementia?	12
Conceptualizing citizenship in dementia: A scoping review of the literature	11
Tensions in support for family caregivers of people with dementia in Singapore: A qualitative study	11
The use of technology for arts-based activities in older adults living with mild cognitive impairment or dementia: A scoping review	11
Healthcare professionals’ perspectives on rehabilitating persons with cognitive impairment	11
The meaning of autonomy when living with dementia: A Q-method investigation	11
The changing self: The impact of dementia on the personal and social identity of women (findings from the Improving the Experience of Dementia and Enhancing Active Life programme)	11
Using meta-ethnography to understand the care transition experience of people with dementia and their caregivers	11
Opening Minds through Art: A preliminary study evaluating the effects of a creative-expression program on persons living with dementia and their primary care partners	11
Free to be: Experiences of arts-based relational caring in a community living and thriving with dementia	11
Peer support through video meetings: Experiences of people with young onset dementia	11
The experiences, priorities, and perceptions of informal caregivers of people with dementia in nursing homes: A scoping review	11
Peer support for people living with rare or young onset dementia: An integrative review	11
Understanding, experiences and attitudes of dementia in India: A qualitative study	10
Co-designing a dementia-specific education and training program for home care workers: The ‘Promoting Independence Through Quality Dementia Care at Home’ project	10
What do the public really know about dementia and its risk factors?	10
The experiences of grandchildren who provide care for a grandparent with dementia: A systematic review	10
Experiences and practices of caregiving for older persons living with dementia in African countries: A qualitative scoping review	10
A qualitative analysis of virtues and strengths in persons living with early stage dementia informed by the values in action framework	10
Use of participatory action research approach to develop a self-management resource for persons living with dementia	10
Long-term care placement: The transitional support needs and preferences of spousal dementia caregivers	10
Young onset dementia: implications for employment and finances	9
Dementia-friendly communities: The involvement of people living with dementia	9
Influential factors of spousal relationship quality in couples living with dementia – A narrative synthesis systematic review	9
Staff perspectives on the role of physical environment in long-term care facilities on dementia care in Canada and Sweden	9
Using Twitter to understand perspectives and experiences of dementia and caregiving at the beginning of the COVID-19 pandemic	9
Caregiver identity in care partners of persons living with mild cognitive impairment	9
Doing their damnedest to seek change: How group identity helps people with dementia confront public stigma and maintain purpose	9
The affective, behavioural, and cognitive reactions to a diagnosis of Primary Progressive Aphasia: A qualitative descriptive study	9
Olfactory stimulation for people with dementia: A rapid review	8
Everyday experiences of post-diagnosis life with dementia: A co-produced photography study	8
Assessment tools for measurement of dementia-friendliness of a community: A scoping review	8
‘It is stressful, almost every hour…’: Experiences of caring for people living with dementia in Kenya—An interpretive phenomenological approach	8
Understanding the lived experiences of family caregivers of individuals with dementia in Soweto, a South African Township	8
Prevalence, causes, and consequences of moral distress in healthcare providers caring for people living with dementia in long-term care during a pandemic	8
Communication in dementia care: Experiences and needs of carers	8
What is the present role for general practitioners in dementia care? Experiences of general practitioners, patients and family carers in Portugal	8
Relating to the end of life through advance care planning: Expectations and experiences of people with dementia and their family caregivers	8
Montessori mealtimes for dementia: A pathway to person-centred care	8
Development of health literacy in persons and caregivers living with dementia: A qualitative directed content analysis	8

Nostalgic conversations: The co-production of an intervention package for people living with dementia and their spouse	8
Childrens’ and young adults’ perspectives of having a parent with dementia diagnosis: A scoping review	8
Dementia and its impacts on the intimate, sexual couple relationship: A systematic review of qualitative research studies	7
Shared decision-making in persons living with dementia: A scoping review	7
Embedding patient and public involvement in dementia research: Reflections from experiences during the ‘Journeying through Dementia’ randomised controlled trial	7
Exploring how residential care facilities can enhance the autonomy of people with dementia and improve informal care	7
Psychosocial treatment preferences of persons living with young-onset dementia and their partners	7
Characterizing dementia caregiver style in managing care challenges: Cognitive and behavioral components	7
Family carers’ narratives of the financial consequences of young onset dementia	7
Analysing the use of music to facilitate social interaction in care home residents with dementia: Narrative synthesis systematic review	7
Meeting own needs and supporting ability to care: Family caregivers’ and health care professionals’ perspectives on professional support provided through a potential mobile application	7
The ‘tipping point’: Exploring the factors associated with entry into residential care for people with dementia in Western Australia	7
‘The Jigsaw Culture of Care’: A qualitative analysis of Montessori-Based programming for dementia care in the United Kingdom	7
Pad cultures: An ethnography of continence care and its consequences for people living with dementia during a hospital admission	7
Cultural adaptation of the iSupport online training and support programme for caregivers of people with dementia in Castilla y León, Spain	7
Childhood perspectives of parental young onset dementia: A qualitative data synthesis	7
Volunteers’ experiences building relationships with long-term care residents who have advanced dementia	7
Dementia knowledge among physiotherapists in Nigeria	7
Dementia families: Relinquishing home care to aged care services: Guilt, traumatic loss and growth	7
A feasibility study of the impact of a communication-skills course, ‘Empowered Conversations’, for care partners of people living with dementia	7
‘Four walls and a garden’: Exploring the experiences of families affected by dementia during the COVID-19 pandemic	7
Resonating moments: Exploring socio-material connectivity through artistic encounters with people living with dementia	7
‘Do I have the capacity to make capacity judgements?’ Researcher reflections from a person-centred dementia support study	7
Working towards inclusion: Creating technology for and with people living with mild cognitive impairment or dementia who are employed	6
A multicomponent psychosocial intervention among people with early-stage dementia involving physical exercise, cognitive stimulation therapy, psychoeducation and counselling: Results from a mixed-meth	6
A scoping review: Sensory interventions for older adults living with dementia	6
Care home practitioners’ perceptions of the barriers and facilitators for using off-the-shelf gaming technology with people with dementia	6
A qualitative evaluation of the impact of a Good Life Club on people living with dementia and care partners	6
Truth, hope and the disclosure of a dementia diagnosis: A scoping review of the ethical considerations from the perspective of the person, carer and clinician	6
What influences uptake of psychosocial interventions by people living with early dementia? A qualitative study	6
Neighbourhoods and dementia: An updated realist review of the qualitative literature to inform contemporary practice and policy understanding	6
How do family carers and care-home staff manage refusals when assisting a person with advanced dementia with their personal care?	6
Intercultural care for people of migrant origin with dementia – A literature analysis	6
Transcending inequities in dementia care in Black communities: Lessons from the maximizing independence at home care coordination program	6
A scoping review of psychosocial interventions to enhance the relationship of couples living with dementia	6
Me, myself, and nature: living with dementia and connecting with the natural world – more than a breath of fresh air? A literature review	6
Personal and complex: The needs and experiences related to technology use for people living with dementia	6
Dementia and dignity of identity: A qualitative evidence synthesis	6
Exploring the feasibility of an individual cognitive stimulation therapy application and related technology for use by people with dementia and carers in Indonesia: A mixed-method study	6
Couplehood as a compass: Spousal perspectives on the diminished everyday competence of partners	6
Animal-assisted and robotic animal-assisted interventions within dementia care: A systematic review	6
Establishing priorities for psychosocial supports and services among family carers of people with dementia in Ireland	5
Practice of end-of-life care for patients with advanced dementia by hospital physicians and nurses: Comparison between medical and surgical wards	5
Risk, worry and motivation: How is public knowledge of dementia shaped?	5
Understanding dementia care pathways for policy development and service planning in Kenya	5
Ageing, dementia and the future – ambivalent futurework in rehabilitation-focused dementia care	5
‘You come because it is an interesting place’: The impact of attending a heritage programme on the well-being of people living with dementia and their care partners	5
Health promotion initiative: A dementia-friendly local community in Sweden	5
Practical and emotional preparation for death: A mixed methods study investigating experiences of family carers of people with dementia	5
Out-of-home participation among people living with dementia: A study in four countries	5
Exploring outcome measures with cognitive stimulation therapies and how these relate to the experiences of people with dementia: A narrative literature review	5
“I think I could have coped if I was sleeping better”: Sleep across the trajectory of caring for a family member with dementia	5
Taking part in the community occupational therapy in dementia UK intervention from the perspective of people with dementia, family carers and occupational therapists: A qualitative study	5
Needs-appropriate services for people with young onset dementia: The perspectives of healthcare professionals	5
Exploring the contextual factors that impact the dementia family caregiving experience in Soweto township, South Africa	5
Stressors and coping strategies in Chinese family caregivers of people with dementia in long-term care facilities: A qualitative descriptive study	5
Ethical issues in dementia guidelines for people with dementia and informal caregivers in Denmark: A qualitative thematic synthesis	5
Online support groups for carers of people living with dementia: An investigation of videoconferencing support groups in lockdown	5
Using Journey Mapping to support staff, family members and allies of people with dementia to think and act differently during a care transition: The benefits and limits of care imagination	5
“I am not a good enough caregiver, and it is my fault”: The complex self-concept of Vietnamese female caregivers in dementia care	5
The experiences and perceptions of young people and older people living with dementia of participating in intergenerational programmes: A qualitative evidence synthesis	5
Effectiveness of digital technologies to engage and support the wellbeing of people with dementia and family carers at home and in care homes: A scoping review	5
Development and acceptability of a brief, evidence-based Dementia Awareness for Caregivers course in low- and middle-income countries	5
“My quiet times”: Themes of sleep health among people caring for a family member with dementia	5
Carers’ experiences of caring for a friend or family member with dementia during the Covid-19 pandemic	5
The experience of bereavement on family caregivers of people with dementia in China	5
“This is how I want it”: Exploring the use of a workbook with persons with dementia to support advance care planning engagement	4
The interplay between leisure, friendship, and dementia	4
The (in)accuracies of floating leaves: How people with varying experiences of dementia differently position the same visual metaphor	4
Understanding the subjective experiences of memory concern and MCI diagnosis: A scoping review	4
A visit with Viv: Empathising with a digital human character embodying the lived experiences of dementia	4
Embodied meaning-making in the experiences and behaviours of persons with dementia	4
Identity work of children with a parent with early-onset dementia in the Netherlands: Giving meaning through narrative construction	4
Challenges and opportunities in providing dementia care for Aboriginal and Torres Strait Islander peoples living in rural and remote areas	4
The meaning and experience of gratitude for people living with dementia	4
Pathways to care for people with dementia in India: An exploratory study using case vignettes	4
From dementia mindsets to emotions and behaviors: Predicting person-centered care in care professionals	4
Beyond instrumental support: Mobile application use by family caregivers of persons living with dementia	4
The feasibility and acceptability of a psychosocial intervention to support people with dementia with Lewy bodies and family care partners	4
The impact of montessori-based programmes on individuals with dementia living in residential aged care: A systematic review	4

Use of tangible, educational and psychological support services among Chinese American dementia caregivers	4
Active inclusion of people living with dementia in planning for dementia care and services in low- and middle-income countries	4
Between sexual assault and compassion: The experience of living with a spouse’s dementia-related hypersexuality—A narrative case-study	4
Promoting empowerment for people living with dementia in nursing homes: Development and feasibility evaluation of an empowerment program	4
The use of a bespoke website developed for people with dementia and carers: Users’ experiences, perceptions and support needs	4
Expressions of masculine identity through sports-based reminiscence: An ethnographic study with community-dwelling men with dementia	4
Dementia-friendly initiatives within the context of COVID-19 pandemic: Challenges and strategies perceived by service professional stakeholders from the USA and China	4
Interprofessional collaboration in palliative dementia care through the eyes of informal caregivers	4
Examining the mediating effect of psychosocial resources on the relationship between ambivalent feelings and depression among Israeli Arab family caregivers of people with dementia	4
Stories of violence and dementia in mainstream news media: Applying a citizenship perspective	4
‘We must have a new VIPS meeting soon!’ Barriers and facilitators for implementing the VIPS practice model in primary health care	4
Understanding Capacity and Optimizing Meaningful Engagement among Persons Living with Dementia	4
iSupport-Brasil: Cross-cultural adaptation of the content included in the iSupport program for caregivers of people who have dementia	4
A qualitative study of unpaid caregivers of persons living with dementia and their interactions with health and community-based services and providers	4
Mouvement de passage: Creating connections through movement among persons with dementia	3
A scoping review of family-centered interventions in dementia care	3
Introducing the ‘3 Fs model of complexity’ for people with dementia accessing a NHS mental health inpatient dementia assessment ward: An interpretive description study	3
Behind closed doors. A case study exploring the lived experiences of a family of a person with the behavioral variant of frontotemporal dementia	3
Informal caregiver experiences at the end-of-life of individuals living with dementia with Lewy bodies: An interview study	3
Emotion-focused dyadic coping styles used by family carers of people with dementia during the COVID-19 pandemic	3
Beliefs around help-Seeking and Support for Dementia in the Australian Arabic Speaking Community	3
Couples living with Alzheimer’s disease talk about sex and intimacy: A phenomenological qualitative study	3
Measuring hope and resilience in carers of people living with dementia: The positive psychology outcome measure for carers (PPOM-C)	3
Dementia-friendliness – Inclusion or exclusion: A critical discourse analysis	3
A scoping review to inform the development of dementia care competencies	3
Online Singing Groups for People With Dementia: Adaptation and Resilience in the Face of the COVID-19 Pandemic	3
What is the relationship between people with dementia and their caregiver’s illness perceptions post-diagnosis and the impact on help-seeking behaviour? A systematic review	3
Spousal Caregiver Resilience in A Nutshell: A Directed Content Analysis in the Context of Dementia Caregiving in Vietnam	3
Dementia in South Africa: A Situational Analysis	3
Expanding the conversation: A Person-centred Communication Enhancement Model	3
Setting individualised goals for people living with dementia and their family carers: A systematic review of goal-setting outcome measures and their psychometric properties	3
Experiences of intimate continence care and the impact on the family dyad relationship for people living at home with dementia and their co-resident family members	3
The experience of lived body as expressed by people with dementia: A systematic meta-synthesis	3
Needs of carers participating in support groups and caring for a person with dementia: A focused ethnographic study	3
Experiences of people with memory disorders and their spouse carers on influencing formal care: “They ask my wife questions that they should ask me”	3
Evaluating quality of life and well-being at the intersection of dementia care and creative engagement	3
“Am I entitled to take a break in caregiving?”: Perceptions of leisure activities of family caregivers of loved ones with dementia in China	3
Emotional availability in dyads of nursing aide - resident with dementia: Old tool, new perspective	3
A suite of evaluation resources for Dementia Friendly Communities: Development and guidance for use	3
Family carers’ expectations regarding dementia care services and support in China: A qualitative study	3
Inclusion of people living with Alzheimer’s disease or related dementias who lack a study partner in social research: Ethical considerations from a qualitative evidence synthesis	3
Development of the dementia community attitudes questionnaire	3
Journey to Diagnosis of Young-Onset Dementia: A Qualitative Study of People with Young-Onset Dementia and their Family Caregivers in Australia	3
Phenomenology of anxiety in people living with mild to moderate dementia: A conceptual meta-ethnographic review	3
Dementia and sexuality in long-term care: Incompatible bedfellows?	3
Characteristics and value of ‘meaningful activity’ for people living with dementia in residential aged care facilities: “You’re still part of the world, not just existing”	3
A review of policy and provision of emotional support for people living with early-stage dementia in the Republic of Ireland and call for specialist counselling and psychotherapy services	3
Mindfulness-based cognitive therapy for depression in people with dementia: A qualitative study on participant, carer and facilitator experiences	3
Normative tensions in filial caring for a mother with dementia: A narrative perspective	3
Network analysis approach for exploring dementia representations in the Slovak media	2
Lived experiences of maintaining self-identity among persons living with young-onset dementia: A qualitative meta-synthesis	2
The influence of Alzheimer’s disease stigma on pain assessment in older persons	2
A personalized dementia care intervention for family carers from minority ethnic groups in Denmark: A pilot study	2
Learning lessons from dementia workforce education to develop general hospital dementia change agents for the future: A constructivist grounded theory study	2
Chinese diaspora caregivers’ experiences in dementia care in high-income countries: A systematic review	2
Evaluating ‘living well’ with mild-to-moderate dementia: Co-production and validation of the IDEAL My Life Questionnaire	2
Reflections of Buddhist priests who started a dementia carers’ café in Japan	2
Blogging through dementia: Reworking mainstream discourse through metaphor in online early-onset dementia narratives	2
“It is the beautiful things that let us live”: How engaging in creative activities outside of standardized interventions helps family members of persons with Dementia	2
Implementing Gentle Persuasive Approaches dementia education for staff on in-patient medicine units: A program evaluation	2
Art box deliveries: The experiences of people with dementia and their carers during the Covid 19 lockdown	2
End-of-life perspectives according to family caregivers of older adults with dementia: A qualitative study	2
Are spousal carers’ perceptions of continuity and discontinuity within the relationship influenced by the symptoms of dementia?	2
The MINDSET Study: Co-Designing Training for Interpreters in Dementia and Cognitive Assessments	2
The meaning and experience of hope by people living with dementia as expressed through poetry	2
Accessing Dementia Care in Brazil: An Analysis of Case Vignettes	2
The quality of family relationships in dementia: Mixed methods to unravel mixed feelings	2
Perceived and unmet needs for health and social services among families coping with dementia in China: A descriptive study	2
Cultural inclusivity and diversity in dementia friendly communities: An integrative review	2
Volume, scope, and consideration of ethical issues in Indigenous cognitive impairment and dementia research: A systematic scoping review of studies published between 2000-2021	2
Dementia Without Borders: Building community connections to reduce stigma and foster inclusion	2
Opportunistic cognitive screening in Sweden: What the tests mean and do for patients and healthcare professionals	2
Experience of UK Latin Americans caring for a relative living with dementia: A qualitative study of family carers	2
Online gallery facilitated art activities for people with dementia during the COVID-19 pandemic and beyond: A narrative review	2
Challenges navigating publicly funded home care in Ontario, Canada: Perspectives from unpaid caregivers of persons living with dementia	2
Economics and dementia: Challenges and responses	2
Delivering person-centred dementia care: Perceptions of radiography practitioners within diagnostic imaging and radiotherapy departments	2
Psychodrama with persons with dementia on zoom: Proof of concept	2
Activistic citizenship in nursing homes: co-ownership in the mundane	2
Framing dementia experiences in a positive light: Conversational practices in one couple living with dementia	2
Patient and caregiver experiences of living with dementia in Tanzania	2
Informal dementia care: The carer’s lived experience at the divides between policy and practice	2
Negotiating a sociophysical space for elders with dementia in Shanghai	2
Representations of the experiences of people with dementia in Irish newspapers	2
The life of people with dementia who have multiple children in rural China: A phenomenological case study	2
Navigating the coronavirus pandemic 2 years on: Experiences of people with dementia from the British IDEAL cohort	2
Transitions: Experiences of younger persons recently diagnosed with Alzheimer-type dementia	2
Usefulness and acceptability of an animation to raise awareness to grief experienced by carers of individuals with dementia	2
Frameworks for cultural adaptation of psychosocial interventions: A systematic review with narrative synthesis	2
Effects of music interventions on sleep in people with dementia: A systematic review	2
The relationship between guilt feelings, conflicts with staff and satisfaction with care in relatives of nursing home residents with dementia: A longitudinal analysis	2
A mixed method study exploring gender differences in dementia caregiving	2
Connecting Today: Feasibility and acceptability of a remote visiting program for people living with dementia in long-term care homes	2
Anticipated suicidal and death ideation in response to an imagined dementia diagnosis: A qualitative study	2
Dementia-Friendly Communities: Exploring Terms used to Describe Dementia, Attitudes and Reactions Towards People with Dementia in Ilembe District, South Africa	2