Dementia-International Journal of Social Research and Practice

Article	Citations
Understanding the impact of the COVID-19 pandemic on well-being and virtual care for people living with dementia and care partners living in the community	51
Effects of a virtual group cycling experience on people living with dementia: A mixed method pilot study	33
The use of digital technologies by people with mild-to-moderate dementia during the COVID-19 pandemic: A positive technology perspective	31
Towards an increased understanding of reminiscence therapy for people with dementia: A narrative analysis	26
Exploring the impact of Covid-19 on the care and quality of life of people with dementia and their carers: A scoping review	26
Partnerships in nursing homes: How do family caregivers of residents with dementia perceive collaboration with staff?	25
Themes describing social isolation in family caregivers of people living with dementia: A scoping review	24
The use of Twitter by people with young-onset dementia: A qualitative analysis of narratives and identity formation in the age of social media	24
A survey of the experience of living with dementia in a dementia-friendly community	22
Engaging persons with dementia in advance care planning: Challenges and opportunities	19
Accessibility of health care experienced by persons with dementia from ethnic minority groups and formal and informal caregivers: A scoping review of European literature	19
Social connectedness and dementia prevention: Pilot of the APPLE-Tree video-call intervention during the Covid-19 pandemic	19
Dementia stigma reduction (DESeRvE) through education and virtual contact in the general public: A multi-arm factorial randomised controlled trial	19
A qualitative exploration of how gender and relationship shape family caregivers’ experiences across the Alzheimer’s disease trajectory	18
‘You can’t just put somebody in a situation with no armour’. An ethnographic exploration of the training and support needs of homecare workers caring for people living with dementia	17
Stakeholders’ perspectives on adapting the World Health Organization iSupport for Dementia in Australia	17
Resilience and supporting people living with dementia during the time of COVID-19; A qualitative study	17
Experiences of people with dementia and their caregivers during the COVID-19 pandemic in India: A mixed-methods study	16
Emotion work and feeling rules: Coping strategies of family caregivers of people with end stage dementia in Israel—A qualitative study	16
Exploring resilience and well-being of family caregivers of people with dementia exposed to mandatory social isolation by COVID-19	15
The impact of participatory dementia research on researchers: A systematic review	15
The experiences of those affected by parental young onset dementia: A qualitative systematic literature review	15
How do we provide good mealtime care for people with dementia living in care homes? A systematic review of carer–resident interactions	14
Specific support needs and experiences of carers of people with frontotemporal dementia: A systematic review	14
Beyond crisis: Enacted sense-making among ethnic minority carers of people with dementia in Australia	13

Satisfaction, utilization, and feasibility of a telehealth intervention for in-home dementia care support: A mixed methods study	13
Emotion regulation and decision-making in persons with dementia: A scoping review	13
Home care in dementia: The views of informal carers from a co-designed consultation	13
Beyond the project: Building a strategic theory of change to address dementia care, treatment and support gaps across seven middle-income countries	13
Co-designing complex interventions with people living with dementia and their supporters	12
Cultural adaptation of World Health Organization iSupport for Dementia program for Chinese-Australian caregivers	12
The dignity of older individuals with Alzheimer’s disease and related dementias: A scoping review	12
A qualitative meta-synthesis of common and unique preferences for supportive services among persons with young onset dementia and their caregivers	12
Familiarity and participation outside home for persons living with dementia	12
Identifying adoption and usability factors of locator devices for persons living with dementia	12
Using meta-ethnography to understand the care transition experience of people with dementia and their caregivers	11
Healthcare professionals’ perspectives on rehabilitating persons with cognitive impairment	11
Caregiver–provider communication about pain in persons with dementia	11
The emotional experience of caregiving in dementia: Feelings of guilt and ambivalence underlying narratives of family caregivers	11
Opening Minds through Art: A preliminary study evaluating the effects of a creative-expression program on persons living with dementia and their primary care partners	11
The changing self: The impact of dementia on the personal and social identity of women (findings from the Improving the Experience of Dementia and Enhancing Active Life programme)	11
Methods and approaches for enhancing communication with people with moderate-to-severe dementia that can facilitate their inclusion in research and service evaluation: Findings from the IDEAL programm	11
Perceptions and experiences of dementia and its care in rural Kenya	11
How do factors of sociodemographic, health literacy and dementia experience influence carers’ knowledge of dementia?	11
Conceptualizing citizenship in dementia: A scoping review of the literature	10
Interventions promoting family involvement with care homes following placement of a relative with dementia: A systematic review	10
Everyday experiences of people living with dementia and their carers relating to oral health and dental care	10
The experiences, priorities, and perceptions of informal caregivers of people with dementia in nursing homes: A scoping review	10
The experiences of grandchildren who provide care for a grandparent with dementia: A systematic review	10
Use of participatory action research approach to develop a self-management resource for persons living with dementia	10
Free to be: Experiences of arts-based relational caring in a community living and thriving with dementia	9
Tensions in support for family caregivers of people with dementia in Singapore: A qualitative study	9
The use of technology for arts-based activities in older adults living with mild cognitive impairment or dementia: A scoping review	9
Understanding, experiences and attitudes of dementia in India: A qualitative study	9
Peer support through video meetings: Experiences of people with young onset dementia	9
What do the public really know about dementia and its risk factors?	9
Staff perspectives on the role of physical environment in long-term care facilities on dementia care in Canada and Sweden	9
Dementia-friendly communities: The involvement of people living with dementia	9
Long-term care placement: The transitional support needs and preferences of spousal dementia caregivers	9
Peer support for people living with rare or young onset dementia: An integrative review	9
Everyday experiences of post-diagnosis life with dementia: A co-produced photography study	8
Prevalence, causes, and consequences of moral distress in healthcare providers caring for people living with dementia in long-term care during a pandemic	8
Doing their damnedest to seek change: How group identity helps people with dementia confront public stigma and maintain purpose	8
Caregiver identity in care partners of persons living with mild cognitive impairment	8
Young onset dementia: implications for employment and finances	8
The meaning of autonomy when living with dementia: A Q-method investigation	8
Using Twitter to understand perspectives and experiences of dementia and caregiving at the beginning of the COVID-19 pandemic	8
Influential factors of spousal relationship quality in couples living with dementia – A narrative synthesis systematic review	8
A qualitative analysis of virtues and strengths in persons living with early stage dementia informed by the values in action framework	8
Childrens’ and young adults’ perspectives of having a parent with dementia diagnosis: A scoping review	8
Understanding the shared experiences of creating a digital life story with individuals with dementia and their spouse	8
‘Do I have the capacity to make capacity judgements?’ Researcher reflections from a person-centred dementia support study	7
Relating to the end of life through advance care planning: Expectations and experiences of people with dementia and their family caregivers	7
What is the present role for general practitioners in dementia care? Experiences of general practitioners, patients and family carers in Portugal	7
Important aspects of home care service: An interview study of persons with dementia	7

Olfactory stimulation for people with dementia: A rapid review	7
Experiences and practices of caregiving for older persons living with dementia in African countries: A qualitative scoping review	7
Embedding patient and public involvement in dementia research: Reflections from experiences during the ‘Journeying through Dementia’ randomised controlled trial	7
Resonating moments: Exploring socio-material connectivity through artistic encounters with people living with dementia	7
‘It is stressful, almost every hour…’: Experiences of caring for people living with dementia in Kenya—An interpretive phenomenological approach	7
Assessment tools for measurement of dementia-friendliness of a community: A scoping review	7
Nostalgic conversations: The co-production of an intervention package for people living with dementia and their spouse	7
The ‘tipping point’: Exploring the factors associated with entry into residential care for people with dementia in Western Australia	7
Dementia families: Relinquishing home care to aged care services: Guilt, traumatic loss and growth	7
Dementia knowledge among physiotherapists in Nigeria	7
Pad cultures: An ethnography of continence care and its consequences for people living with dementia during a hospital admission	7
Family carers’ narratives of the financial consequences of young onset dementia	7
Analysing the use of music to facilitate social interaction in care home residents with dementia: Narrative synthesis systematic review	7
Dementia and its impacts on the intimate, sexual couple relationship: A systematic review of qualitative research studies	7
Volunteers’ experiences building relationships with long-term care residents who have advanced dementia	7
The affective, behavioural, and cognitive reactions to a diagnosis of Primary Progressive Aphasia: A qualitative descriptive study	7
A feasibility study of the impact of a communication-skills course, ‘Empowered Conversations’, for care partners of people living with dementia	7
Psychosocial treatment preferences of persons living with young-onset dementia and their partners	7
Co-designing a dementia-specific education and training program for home care workers: The ‘Promoting Independence Through Quality Dementia Care at Home’ project	7
Characterizing dementia caregiver style in managing care challenges: Cognitive and behavioral components	7
‘Four walls and a garden’: Exploring the experiences of families affected by dementia during the COVID-19 pandemic	6
Childhood perspectives of parental young onset dementia: A qualitative data synthesis	6
Communication in dementia care: Experiences and needs of carers	6
A multicomponent psychosocial intervention among people with early-stage dementia involving physical exercise, cognitive stimulation therapy, psychoeducation and counselling: Results from a mixed-meth	6
Receiving a diagnosis of young onset dementia: Evidence-based statements to inform best practice	6
Understanding the lived experiences of family caregivers of individuals with dementia in Soweto, a South African Township	6
Stakeholder perspectives of the dementia-friendly hospital: A qualitative descriptive focus group study	6
Truth, hope and the disclosure of a dementia diagnosis: A scoping review of the ethical considerations from the perspective of the person, carer and clinician	6
What influences uptake of psychosocial interventions by people living with early dementia? A qualitative study	6
Personal and complex: The needs and experiences related to technology use for people living with dementia	6
People living with dementia and their family carers’ adherence to home-based Tai Chi practice	6
Exploring the feasibility of an individual cognitive stimulation therapy application and related technology for use by people with dementia and carers in Indonesia: A mixed-method study	6
Exploring how residential care facilities can enhance the autonomy of people with dementia and improve informal care	6
Montessori mealtimes for dementia: A pathway to person-centred care	6
Development of health literacy in persons and caregivers living with dementia: A qualitative directed content analysis	6
Neighbourhoods and dementia: An updated realist review of the qualitative literature to inform contemporary practice and policy understanding	6
Shared decision-making in persons living with dementia: A scoping review	6
Transcending inequities in dementia care in Black communities: Lessons from the maximizing independence at home care coordination program	6
Cognitive stimulation therapy for dementia: Provision in National Health Service settings in England, Scotland and Wales	6
How do family carers and care-home staff manage refusals when assisting a person with advanced dementia with their personal care?	5
Couplehood as a compass: Spousal perspectives on the diminished everyday competence of partners	5
Animal-assisted and robotic animal-assisted interventions within dementia care: A systematic review	5
The experiences and perceptions of young people and older people living with dementia of participating in intergenerational programmes: A qualitative evidence synthesis	5
“I am not a good enough caregiver, and it is my fault”: The complex self-concept of Vietnamese female caregivers in dementia care	5
Development and acceptability of a brief, evidence-based Dementia Awareness for Caregivers course in low- and middle-income countries	5
Me, myself, and nature: living with dementia and connecting with the natural world – more than a breath of fresh air? A literature review	5
A scoping review: Sensory interventions for older adults living with dementia	5
Health promotion initiative: A dementia-friendly local community in Sweden	5
Intercultural care for people of migrant origin with dementia – A literature analysis	5
Care home practitioners’ perceptions of the barriers and facilitators for using off-the-shelf gaming technology with people with dementia	5
A labour of love: Reward and satisfaction for nurses: Findings from a grounded theory study in dementia care	5
Practice of end-of-life care for patients with advanced dementia by hospital physicians and nurses: Comparison between medical and surgical wards	5
Effectiveness of digital technologies to engage and support the wellbeing of people with dementia and family carers at home and in care homes: A scoping review	5
Ageing, dementia and the future – ambivalent futurework in rehabilitation-focused dementia care	5
Dementia and dignity of identity: A qualitative evidence synthesis	5
‘You come because it is an interesting place’: The impact of attending a heritage programme on the well-being of people living with dementia and their care partners	5
A qualitative evaluation of the impact of a Good Life Club on people living with dementia and care partners	5
Carers’ experiences of caring for a friend or family member with dementia during the Covid-19 pandemic	5
The experience of bereavement on family caregivers of people with dementia in China	5
Exploring outcome measures with cognitive stimulation therapies and how these relate to the experiences of people with dementia: A narrative literature review	5
Establishing priorities for psychosocial supports and services among family carers of people with dementia in Ireland	5
Needs-appropriate services for people with young onset dementia: The perspectives of healthcare professionals	5
Working towards inclusion: Creating technology for and with people living with mild cognitive impairment or dementia who are employed	5
Lessons learned from the statewide implementation of the Music & Memory program in nursing homes in Wisconsin in the USA	5
Meeting own needs and supporting ability to care: Family caregivers’ and health care professionals’ perspectives on professional support provided through a potential mobile application	5
“My quiet times”: Themes of sleep health among people caring for a family member with dementia	5
Ethical issues in dementia guidelines for people with dementia and informal caregivers in Denmark: A qualitative thematic synthesis	4
Practical and emotional preparation for death: A mixed methods study investigating experiences of family carers of people with dementia	4
Beyond instrumental support: Mobile application use by family caregivers of persons living with dementia	4
Examining the mediating effect of psychosocial resources on the relationship between ambivalent feelings and depression among Israeli Arab family caregivers of people with dementia	4
“I think I could have coped if I was sleeping better”: Sleep across the trajectory of caring for a family member with dementia	4
Understanding dementia care pathways for policy development and service planning in Kenya	4
Use of tangible, educational and psychological support services among Chinese American dementia caregivers	4
Active inclusion of people living with dementia in planning for dementia care and services in low- and middle-income countries	4
Promoting empowerment for people living with dementia in nursing homes: Development and feasibility evaluation of an empowerment program	4
Dementia-friendly initiatives within the context of COVID-19 pandemic: Challenges and strategies perceived by service professional stakeholders from the USA and China	4
‘The Jigsaw Culture of Care’: A qualitative analysis of Montessori-Based programming for dementia care in the United Kingdom	4
The (in)accuracies of floating leaves: How people with varying experiences of dementia differently position the same visual metaphor	4
National dementia supporter programme in Japan	4
Stories of violence and dementia in mainstream news media: Applying a citizenship perspective	4

Risk, worry and motivation: How is public knowledge of dementia shaped?	4
Understanding Capacity and Optimizing Meaningful Engagement among Persons Living with Dementia	4
Stressors and coping strategies in Chinese family caregivers of people with dementia in long-term care facilities: A qualitative descriptive study	4
Online support groups for carers of people living with dementia: An investigation of videoconferencing support groups in lockdown	4
Expressions of masculine identity through sports-based reminiscence: An ethnographic study with community-dwelling men with dementia	4
The impact of montessori-based programmes on individuals with dementia living in residential aged care: A systematic review	4
A visit with Viv: Empathising with a digital human character embodying the lived experiences of dementia	4
Understanding the subjective experiences of memory concern and MCI diagnosis: A scoping review	4
Embodied meaning-making in the experiences and behaviours of persons with dementia	4
Identity work of children with a parent with early-onset dementia in the Netherlands: Giving meaning through narrative construction	4
Expanding the conversation: A Person-centred Communication Enhancement Model	3
Challenges and opportunities in providing dementia care for Aboriginal and Torres Strait Islander peoples living in rural and remote areas	3
“Am I entitled to take a break in caregiving?”: Perceptions of leisure activities of family caregivers of loved ones with dementia in China	3
A review of policy and provision of emotional support for people living with early-stage dementia in the Republic of Ireland and call for specialist counselling and psychotherapy services	3
Evaluating quality of life and well-being at the intersection of dementia care and creative engagement	3
Out-of-home participation among people living with dementia: A study in four countries	3
Mouvement de passage: Creating connections through movement among persons with dementia	3
Dementia-friendliness – Inclusion or exclusion: A critical discourse analysis	3
A suite of evaluation resources for Dementia Friendly Communities: Development and guidance for use	3
Taking part in the community occupational therapy in dementia UK intervention from the perspective of people with dementia, family carers and occupational therapists: A qualitative study	3
Mindfulness-based cognitive therapy for depression in people with dementia: A qualitative study on participant, carer and facilitator experiences	3
Experiences of people with memory disorders and their spouse carers on influencing formal care: “They ask my wife questions that they should ask me”	3
The feasibility and acceptability of a psychosocial intervention to support people with dementia with Lewy bodies and family care partners	3
Introducing the ‘3 Fs model of complexity’ for people with dementia accessing a NHS mental health inpatient dementia assessment ward: An interpretive description study	3
Experiencing dementia: How does assessment of cognition and language relate to daily life?	3
The meaning and experience of gratitude for people living with dementia	3
“This is how I want it”: Exploring the use of a workbook with persons with dementia to support advance care planning engagement	3
From evidence to practice: Developing best practice guidelines for the delivery of activities to people living with moderate to advanced dementia using a pragmatic observational study	3
Changing perceptions towards dementia: How does involvement in the arts alongside persons with dementia promote positive attitudes?	3
Online Singing Groups for People With Dementia: Adaptation and Resilience in the Face of the COVID-19 Pandemic	3
Cultural adaptation of the iSupport online training and support programme for caregivers of people with dementia in Castilla y León, Spain	3
Normative tensions in filial caring for a mother with dementia: A narrative perspective	3
Phenomenology of anxiety in people living with mild to moderate dementia: A conceptual meta-ethnographic review	3
Emotional availability in dyads of nursing aide - resident with dementia: Old tool, new perspective	3
Interprofessional collaboration in palliative dementia care through the eyes of informal caregivers	3
Between sexual assault and compassion: The experience of living with a spouse’s dementia-related hypersexuality—A narrative case-study	3
Experiences of intimate continence care and the impact on the family dyad relationship for people living at home with dementia and their co-resident family members	3
A qualitative study of unpaid caregivers of persons living with dementia and their interactions with health and community-based services and providers	3
The use of a bespoke website developed for people with dementia and carers: Users’ experiences, perceptions and support needs	3
Using Journey Mapping to support staff, family members and allies of people with dementia to think and act differently during a care transition: The benefits and limits of care imagination	3
The interplay between leisure, friendship, and dementia	3
Emotion-focused dyadic coping styles used by family carers of people with dementia during the COVID-19 pandemic	3
What is the relationship between people with dementia and their caregiver’s illness perceptions post-diagnosis and the impact on help-seeking behaviour? A systematic review	3
Support groups for family caregivers of persons with dementia in India	3
Can music reminiscence approaches be used in moderate–severe dementia? A pilot of music mirrors	3
‘We must have a new VIPS meeting soon!’ Barriers and facilitators for implementing the VIPS practice model in primary health care	3
Family carers’ expectations regarding dementia care services and support in China: A qualitative study	3
Blogging through dementia: Reworking mainstream discourse through metaphor in online early-onset dementia narratives	2
Characteristics and value of ‘meaningful activity’ for people living with dementia in residential aged care facilities: “You’re still part of the world, not just existing”	2
Opportunistic cognitive screening in Sweden: What the tests mean and do for patients and healthcare professionals	2
Challenges navigating publicly funded home care in Ontario, Canada: Perspectives from unpaid caregivers of persons living with dementia	2
Implementing Gentle Persuasive Approaches dementia education for staff on in-patient medicine units: A program evaluation	2
“It is the beautiful things that let us live”: How engaging in creative activities outside of standardized interventions helps family members of persons with Dementia	2
A scoping review of family-centered interventions in dementia care	2
Spousal Caregiver Resilience in A Nutshell: A Directed Content Analysis in the Context of Dementia Caregiving in Vietnam	2
Journey to Diagnosis of Young-Onset Dementia: A Qualitative Study of People with Young-Onset Dementia and their Family Caregivers in Australia	2
Art box deliveries: The experiences of people with dementia and their carers during the Covid 19 lockdown	2
Volume, scope, and consideration of ethical issues in Indigenous cognitive impairment and dementia research: A systematic scoping review of studies published between 2000-2021	2
The MINDSET Study: Co-Designing Training for Interpreters in Dementia and Cognitive Assessments	2
Informal caregiver experiences at the end-of-life of individuals living with dementia with Lewy bodies: An interview study	2
Dementia Without Borders: Building community connections to reduce stigma and foster inclusion	2
Dementia and sexuality in long-term care: Incompatible bedfellows?	2
The influence of Alzheimer’s disease stigma on pain assessment in older persons	2
Experience of UK Latin Americans caring for a relative living with dementia: A qualitative study of family carers	2
The experience of lived body as expressed by people with dementia: A systematic meta-synthesis	2
Needs of carers participating in support groups and caring for a person with dementia: A focused ethnographic study	2
Economics and dementia: Challenges and responses	2
From dementia mindsets to emotions and behaviors: Predicting person-centered care in care professionals	2
The relationship between guilt feelings, conflicts with staff and satisfaction with care in relatives of nursing home residents with dementia: A longitudinal analysis	2
Connecting Today: Feasibility and acceptability of a remote visiting program for people living with dementia in long-term care homes	2
A personalized dementia care intervention for family carers from minority ethnic groups in Denmark: A pilot study	2
Psychodrama with persons with dementia on zoom: Proof of concept	2
Perceived and unmet needs for health and social services among families coping with dementia in China: A descriptive study	2
Gender and dementia national strategy policymaking: Working toward health equity in Canada through gender-based analysis plus	2
Beliefs around help-Seeking and Support for Dementia in the Australian Arabic Speaking Community	2
Informal dementia care: The carer’s lived experience at the divides between policy and practice	2
Pathways to care for people with dementia in India: An exploratory study using case vignettes	2
Couples living with Alzheimer’s disease talk about sex and intimacy: A phenomenological qualitative study	2
Measuring hope and resilience in carers of people living with dementia: The positive psychology outcome measure for carers (PPOM-C)	2
Cultural inclusivity and diversity in dementia friendly communities: An integrative review	2
Reflections of Buddhist priests who started a dementia carers’ café in Japan	2
Framing dementia experiences in a positive light: Conversational practices in one couple living with dementia	2
Online gallery facilitated art activities for people with dementia during the COVID-19 pandemic and beyond: A narrative review	2
A mixed method study exploring gender differences in dementia caregiving	2
Effects of music interventions on sleep in people with dementia: A systematic review	2
Dementia in South Africa: A Situational Analysis	2
End-of-life perspectives according to family caregivers of older adults with dementia: A qualitative study	2
Representations of the experiences of people with dementia in Irish newspapers	2
Delivering person-centred dementia care: Perceptions of radiography practitioners within diagnostic imaging and radiotherapy departments	2
iSupport-Brasil: Cross-cultural adaptation of the content included in the iSupport program for caregivers of people who have dementia	2
The life of people with dementia who have multiple children in rural China: A phenomenological case study	2
Navigating the coronavirus pandemic 2 years on: Experiences of people with dementia from the British IDEAL cohort	2
Network analysis approach for exploring dementia representations in the Slovak media	2
Evaluating ‘living well’ with mild-to-moderate dementia: Co-production and validation of the IDEAL My Life Questionnaire	2
A scoping review of psychosocial interventions to enhance the relationship of couples living with dementia	2