OOIR: Observatory of International Research

Papers

(The TQCC of Journal of Intellectual & Developmental Disability is 2. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2021-02-01 to 2025-02-01.)

Article	Citations
Psychological adjustment of siblings of children with Prader-Willi syndrome	20
Families’ perspectives on the process of community transitions of individuals with severe intellectual and developmental disabilities	19
Peer-led self-advocacy for people with intellectual disability through the lens of “freedom through encounter”	18
Siblings’ and parents’ perspectives on the future care for their family member with profound intellectual and multiple disabilities: A qualitative study	18
Home literacy environment and literacy outcomes in individuals with Williams syndrome and Down syndrome	11
Challenges to accessing behaviour support services for people with intellectual disability before and after the NDIS	11
Self-advocate perspectives on COVID-19 in Urban Los Angeles: impacts on autonomy and access to supports	10
The Body Experience Questionnaire for adults with mild intellectual disability or borderline intellectual functioning (BEQ-mb): Development and initial evaluation	10
A preliminary firesetting offence chain for adults with intellectual and other developmental disabilities	9
Vulnerable but stronger together: An interpretative phenomenological analysis of the experiences of mothers of young adults with profound intellectual and multiple disabilities during the COVID-19 pan	9
Family members use superficial justice information to evaluate performance of sheltered workshops: A warning about “cognitive shortcuts”	8
2022: JIDD Awards Announcement	8
Preconditions influencing the development of post-secondary training programs in universities for individuals with intellectual disabilities	7
Are obesity and physical fitness associated with cardiovascular disease risk in adolescents with Down syndrome? The longitudinal UP&DOWN study	7
Whose voice is it anyway? Adults with intellectual disabilities and future planning: A scoping review of qualitative studies	7
2024 Reviewers	6
2023 JIDD Awards Announcement	6
“I hope I’ll outlive him”: A qualitative study of parents’ concerns about being outlived by their child with profound intellectual and multiple disabilities	6
Parents’ perceptions of risk and protective factors for problematic sexual behaviour in young Korean individuals with developmental disabilities	5
Does preservice teachers’ contact with children with intellectual disabilities during their practicum impact their attitudes and teaching practices? “If you don’t have the heart, you can’t cope … ”	5
Obstacles to the transition to adulthood of people with severe to profound intellectual disability and potential solutions: Perspectives of professionals in one region of Quebec	5
Characteristics of children attending an autism specific early learning and care setting prior to and following introduction of the National Disability Insurance Scheme	5
Facilitators, barriers, and strategies for supporting shared decision-making with people with intellectual disability: A West Australian primary healthcare professional perspective	5
Down syndrome or Rett syndrome in the family: Parental reflections on sibling experience	5
Differences in disease severity and in-hospital mortality in patients hospitalised for pneumonia with and without intellectual disabilities: A matched-pair retrospective cohort study using nationwide	5

Inclusive mainstream services for people with intellectual disabilities: A relational approach	5
Networks of support: Microboards for children with intellectual disability	4
A qualitative investigation of support workers’ experiences of the impact of the COVID-19 pandemic on Dutch migrant families who have children with intellectual disabilities	4
The adaptation experience of families with children with developmental disabilities in Mainland China	4
Epidemiology of constipation and its associated factors in an ageing population of people with an intellectual disability in Ireland: A cross-sectional study	4
Evaluating a visual communications tool to explore risk and safety with nurses and patients within an intellectual disability forensic service: A pilot study	4
2021 Reviewers	4
The impact of sexual abuse on body experience in adults with mild intellectual disability or borderline intellectual functioning	4
Evaluating the impact of a virtual educational intervention on medical students’ knowledge and attitudes towards patients with intellectual and developmental disabilities	4
“A life well led”: What does this mean for a person with severe intellectual disability?	3
Occupational stress, coping and wellbeing among registered psychologists working with people with intellectual disabilities during the COVID-19 pandemic in the United Kingdom	3
Sensory and balance impairments in Special Olympics athletes: An epidemiological study	3
Adaptive profiles within a broad clinical sample from a transdiagnostic point of view	3
Barriers to the NDIS for people with intellectual disability and/or complex support needs involved with the criminal justice systems: The current state of literature	3
How do children with intellectual disabilities regulate their emotions? The views of parents	3
“Continuously struggling for balance”: The lived experiences of Dutch parents caring for children with profound intellectual and multiple disabilities	2
Signs of abuse in children with disabilities: A rapid review with expert panel social validation	2
What is it like to be a twin of a person with profound intellectual and multiple disabilities?	2
My plan for a good life, right to the end: An accessible approach to advance care planning	2
Looking for the experts: examining course accommodations and modifications for students with intellectual disability in inclusive higher education	2
Clinical supervision in positive behaviour support: A brief report on the perspectives of practitioners in Australia	2
2022 Reviewers	2
Susceptibility to peer influence in adolescents with mild-to-borderline intellectual disability: Investigating links with inhibition, Theory of Mind and negative interpretation bias	2
Work stress and professional quality of life in disability support workers: The mediating role of psychological flexibility	2
Parents’ tacit knowledge of their child with profound intellectual and multiple disabilities: A qualitative study	2
Awareness of intellectual disability and intervention beliefs among teachers and university students in Kuwait	2
Challenges of parents with children with intellectual and neurodevelopmental disorders during COVID-19: Experiences and their impact on mental health	2
Reconceptualising the role of direct support staff for adults with intellectual disabilities by introducing the holistic support model	2
Interdisciplinarity and self-injury: Toward an inclusive research and treatment paradigm	2
Relatives’ experiences of quality of healthcare services for adults with profound intellectual and multiple disabilities in Sweden	2
Expressions of stress of people with severe intellectual disabilities and sensitive caregiving to regulate stress: A qualitative study	2