OOIR: Observatory of International Research

Papers

(The TQCC of Journal of Intellectual & Developmental Disability is 4. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-03-01 to 2024-03-01.)

Article	Citations
Dedifferentiation and people with intellectual disabilities in the Australian National Disability Insurance Scheme: Bringing research, politics and policy together	25
Ensuring the reproductive rights of women with intellectual disability	19
Deconstructing the co-production ideal: Dilemmas of knowledge and representation in a co-design project with people with intellectual disabilities	16
eHealth in support for daily functioning of people with intellectual disability: Views of service users, relatives, and professionals on both its advantages and disadvantages and its facilitating and	16
“I hope I’ll outlive him”: A qualitative study of parents’ concerns about being outlived by their child with profound intellectual and multiple disabilities	15
A survey of Registered Nurses’ educational experiences and self-perceived capability to care for people with intellectual disability and/or autism spectrum disorder	15
Siblings’ and parents’ perspectives on the future care for their family member with profound intellectual and multiple disabilities: A qualitative study	15
Complex support needs profile of an adult cohort with intellectual disability transitioning from state-based service provision to NDIS-funded residential support	14
A process of decision-making support: Exploring supported decision-making practice in Canada	13
Young students with Down syndrome: Early longitudinal academic achievement and neuropsychological predictors	13
Shadowing as a qualitative research method for intellectual disability research: Opportunities and challenges	11
Struggling with sameness and strangeness: (Non)-encounters between people with and without intellectual disabilities in two Dutch neighbourhoods	10
Creating opportunities for convivial encounters for people with intellectual disabilities: “It looks like an accident”	10
Parental strategies that support adults with intellectual disabilities to explore decision preferences, constraints and consequences	10
Elementary school students’ attitudes towards peers with disabilities: The role of personal and contextual factors	9
The impact of physical activity and sport programs on community participation for people with intellectual disability: A systematic review	9
Micro-recognition, invisibility and hesitation: Theorising the non-encounter in the social inclusion of people with intellectual and developmental disabilities	9
As if living like others: An idealisation of life in group homes for people with intellectual disability	8
A systematic review of emotion regulation measurement in children and adolescents diagnosed with intellectual disabilities	8
Psychomotor, cognitive, and socio-emotional developmental profiles of children with Rubinstein-Taybi Syndrome and a severe intellectual disability	7
“It’s ignorant stereotypes”: Key stakeholder perspectives on stereotypes associated with fetal alcohol spectrum disorder, alcohol, and pregnancy	7
Long-term outcomes following Fetal Alcohol Spectrum Disorder (FASD) diagnosis in adulthood	7
“Continuously struggling for balance”: The lived experiences of Dutch parents caring for children with profound intellectual and multiple disabilities	7
Passing laws is not enough to change staff practice: The case of legally mandated “incident” reporting in Sweden	7
Post-traumatic stress disorder symptom manifestations in an autistic man with severe intellectual disability following coercion and scalding	7

Mortality, predictors and causes among people with intellectual disabilities: A systematic narrative review supplemented by machine learning	7
Possibility and risk in encounter between people with and without intellectual disability	6
Expressions of stress of people with severe intellectual disabilities and sensitive caregiving to regulate stress: A qualitative study	6
Occupational stress, coping and wellbeing among registered psychologists working with people with intellectual disabilities during the COVID-19 pandemic in the United Kingdom	6
Childhood experience, family support and parenting by people with intellectual disability	6
Dedifferentiation and difference: People with profound intellectual and multiple disabilities and the National Disability Insurance Scheme (NDIS)	6
A qualitative investigation of support workers’ experiences of the impact of the COVID-19 pandemic on Dutch migrant families who have children with intellectual disabilities	6
Challenges of online learning for children with special educational needs and disabilities during the COVID-19 pandemic: A scoping review	6
Growing up with a brother or sister with Down syndrome: Adult siblings’ perceptions of their childhood relationships	6
Barriers to the NDIS for people with intellectual disability and/or complex support needs involved with the criminal justice systems: The current state of literature	6
Prevalence and risk factors of choking in older adults with intellectual disability: Results from a national cross-sectional study	5
Social worker perspectives on marriage and parenting among Muslim men with intellectual disabilities in Israel	5
Health practitioner knowledge and confidence in diagnosis and treatment of mental health issues in people with intellectual disabilities	5
Performance, purpose, and creation of encounter between people with and without intellectual disabilities	5
COVID-19 and people with intellectual disabilities	5
Identifying important persons in the promotion of positive behaviour support (PBS) in disability services: A social network analysis	4
Reducing restrictive measures in complex long-term care for people with intellectual disabilities: Implementation interventions through the lens of normalisation process theory	4
The Attachment Strengths and Needs Interview for parents of children with severe or profound intellectual disabilities: An acceptability and feasibility study	4
The role of professionals in strengthening social relations of adults with a disability in independent supported living: Practices and influencing factors	4
Parents of children with developmental disorders: Family hardiness and resilience	4
Pregnancies and births in women with Down syndrome – An analysis based on the Medical Statistics of Swiss Hospitals	4
The need to include intellectual/developmental disability in medical school curriculum: The perspective of a student advocate	4
Perspectives of adults with intellectual disabilities and key individuals on community participation in inclusive settings: A Canadian exploratory study	4
Examining potential predictors of attention training outcomes in children with intellectual and developmental disorders	4
Being in control: Choice and control of support received in supported living. A study based on the narratives of people with intellectual disability and support staff	4