OOIR: Observatory of International Research

Papers

(The TQCC of Journal of Intellectual & Developmental Disability is 4. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-10-01 to 2024-10-01.)

Article	Citations
Siblings’ and parents’ perspectives on the future care for their family member with profound intellectual and multiple disabilities: A qualitative study	19
A survey of Registered Nurses’ educational experiences and self-perceived capability to care for people with intellectual disability and/or autism spectrum disorder	18
“I hope I’ll outlive him”: A qualitative study of parents’ concerns about being outlived by their child with profound intellectual and multiple disabilities	18
Shadowing as a qualitative research method for intellectual disability research: Opportunities and challenges	16
Long-term outcomes following Fetal Alcohol Spectrum Disorder (FASD) diagnosis in adulthood	13
Parental strategies that support adults with intellectual disabilities to explore decision preferences, constraints and consequences	11
“It’s ignorant stereotypes”: Key stakeholder perspectives on stereotypes associated with fetal alcohol spectrum disorder, alcohol, and pregnancy	10
Elementary school students’ attitudes towards peers with disabilities: The role of personal and contextual factors	10
“Continuously struggling for balance”: The lived experiences of Dutch parents caring for children with profound intellectual and multiple disabilities	10
Struggling with sameness and strangeness: (Non)-encounters between people with and without intellectual disabilities in two Dutch neighbourhoods	10
Passing laws is not enough to change staff practice: The case of legally mandated “incident” reporting in Sweden	9
Post-traumatic stress disorder symptom manifestations in an autistic man with severe intellectual disability following coercion and scalding	9
Occupational stress, coping and wellbeing among registered psychologists working with people with intellectual disabilities during the COVID-19 pandemic in the United Kingdom	8
Mortality, predictors and causes among people with intellectual disabilities: A systematic narrative review supplemented by machine learning	8
Forming and supporting circles of support for people with intellectual disabilities – a comparative case analysis	8
Possibility and risk in encounter between people with and without intellectual disability	7
Growing up with a brother or sister with Down syndrome: Adult siblings’ perceptions of their childhood relationships	7
The need to include intellectual/developmental disability in medical school curriculum: The perspective of a student advocate	7
A qualitative investigation of support workers’ experiences of the impact of the COVID-19 pandemic on Dutch migrant families who have children with intellectual disabilities	7
Childhood experience, family support and parenting by people with intellectual disability	7
Expressions of stress of people with severe intellectual disabilities and sensitive caregiving to regulate stress: A qualitative study	6
Barriers to the NDIS for people with intellectual disability and/or complex support needs involved with the criminal justice systems: The current state of literature	6
Challenges of online learning for children with special educational needs and disabilities during the COVID-19 pandemic: A scoping review	6
Performance, purpose, and creation of encounter between people with and without intellectual disabilities	6
Identifying important persons in the promotion of positive behaviour support (PBS) in disability services: A social network analysis	5

Development of a personalised substance use disorder treatment for people with mild intellectual disabilities or borderline intellectual functioning: An intervention mapping approach	5
Operationalisation of self-determination of persons with profound intellectual and multiple disabilities: A Delphi study	5
Perspectives of people with intellectual disability about their family networks: A comparison study with key support worker proxy reports	5
Loneliness and how to counter it: People with intellectual disability share their experiences and ideas	5
Obstacles to the transition to adulthood of people with severe to profound intellectual disability and potential solutions: Perspectives of professionals in one region of Quebec	5
The effectiveness of schema therapy in offenders with intellectual disabilities: a case series design	5
Reducing restrictive measures in complex long-term care for people with intellectual disabilities: Implementation interventions through the lens of normalisation process theory	5
The Attachment Strengths and Needs Interview for parents of children with severe or profound intellectual disabilities: An acceptability and feasibility study	5
Susceptibility to peer influence in adolescents with mild-to-borderline intellectual disability: Investigating links with inhibition, Theory of Mind and negative interpretation bias	4
The online lives of adolescents with mild or borderline intellectual disabilities in the Netherlands: Care staff knowledge and perceptions	4
Parents of children with developmental disorders: Family hardiness and resilience	4
Self-advocate perspectives on COVID-19 in Urban Los Angeles: impacts on autonomy and access to supports	4
The impact of inclusion: Improving medical student confidence in caring for adults with intellectual disabilities through an interactive, narrative-based session	4
Parents’ experiences of raising adolescents with intellectual or developmental disabilities	4
Patterns of presentation to a Children’s Hospital Emergency Department of patients with autism and/or intellectual disability with behaviours of concern	4
Use of health and dental care services in adults with intellectual disability in relation to age and intellectual disability levels	4
Examining potential predictors of attention training outcomes in children with intellectual and developmental disorders	4