OOIR: Observatory of International Research

Papers

(The median citation count of Journal of Intellectual & Developmental Disability is 1. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-03-01 to 2024-03-01.)

Article	Citations
Dedifferentiation and people with intellectual disabilities in the Australian National Disability Insurance Scheme: Bringing research, politics and policy together	25
Ensuring the reproductive rights of women with intellectual disability	19
Deconstructing the co-production ideal: Dilemmas of knowledge and representation in a co-design project with people with intellectual disabilities	16
eHealth in support for daily functioning of people with intellectual disability: Views of service users, relatives, and professionals on both its advantages and disadvantages and its facilitating and	16
A survey of Registered Nurses’ educational experiences and self-perceived capability to care for people with intellectual disability and/or autism spectrum disorder	15
Siblings’ and parents’ perspectives on the future care for their family member with profound intellectual and multiple disabilities: A qualitative study	15
“I hope I’ll outlive him”: A qualitative study of parents’ concerns about being outlived by their child with profound intellectual and multiple disabilities	15
Complex support needs profile of an adult cohort with intellectual disability transitioning from state-based service provision to NDIS-funded residential support	14
A process of decision-making support: Exploring supported decision-making practice in Canada	13
Young students with Down syndrome: Early longitudinal academic achievement and neuropsychological predictors	13
Shadowing as a qualitative research method for intellectual disability research: Opportunities and challenges	11
Creating opportunities for convivial encounters for people with intellectual disabilities: “It looks like an accident”	10
Parental strategies that support adults with intellectual disabilities to explore decision preferences, constraints and consequences	10
Struggling with sameness and strangeness: (Non)-encounters between people with and without intellectual disabilities in two Dutch neighbourhoods	10
Micro-recognition, invisibility and hesitation: Theorising the non-encounter in the social inclusion of people with intellectual and developmental disabilities	9
Elementary school students’ attitudes towards peers with disabilities: The role of personal and contextual factors	9
The impact of physical activity and sport programs on community participation for people with intellectual disability: A systematic review	9
A systematic review of emotion regulation measurement in children and adolescents diagnosed with intellectual disabilities	8
As if living like others: An idealisation of life in group homes for people with intellectual disability	8
Long-term outcomes following Fetal Alcohol Spectrum Disorder (FASD) diagnosis in adulthood	7
“Continuously struggling for balance”: The lived experiences of Dutch parents caring for children with profound intellectual and multiple disabilities	7
Passing laws is not enough to change staff practice: The case of legally mandated “incident” reporting in Sweden	7
Post-traumatic stress disorder symptom manifestations in an autistic man with severe intellectual disability following coercion and scalding	7
Mortality, predictors and causes among people with intellectual disabilities: A systematic narrative review supplemented by machine learning	7
Psychomotor, cognitive, and socio-emotional developmental profiles of children with Rubinstein-Taybi Syndrome and a severe intellectual disability	7

“It’s ignorant stereotypes”: Key stakeholder perspectives on stereotypes associated with fetal alcohol spectrum disorder, alcohol, and pregnancy	7
Childhood experience, family support and parenting by people with intellectual disability	6
Dedifferentiation and difference: People with profound intellectual and multiple disabilities and the National Disability Insurance Scheme (NDIS)	6
A qualitative investigation of support workers’ experiences of the impact of the COVID-19 pandemic on Dutch migrant families who have children with intellectual disabilities	6
Challenges of online learning for children with special educational needs and disabilities during the COVID-19 pandemic: A scoping review	6
Growing up with a brother or sister with Down syndrome: Adult siblings’ perceptions of their childhood relationships	6
Barriers to the NDIS for people with intellectual disability and/or complex support needs involved with the criminal justice systems: The current state of literature	6
Possibility and risk in encounter between people with and without intellectual disability	6
Expressions of stress of people with severe intellectual disabilities and sensitive caregiving to regulate stress: A qualitative study	6
Occupational stress, coping and wellbeing among registered psychologists working with people with intellectual disabilities during the COVID-19 pandemic in the United Kingdom	6
Health practitioner knowledge and confidence in diagnosis and treatment of mental health issues in people with intellectual disabilities	5
Performance, purpose, and creation of encounter between people with and without intellectual disabilities	5
COVID-19 and people with intellectual disabilities	5
Prevalence and risk factors of choking in older adults with intellectual disability: Results from a national cross-sectional study	5
Social worker perspectives on marriage and parenting among Muslim men with intellectual disabilities in Israel	5
Parents of children with developmental disorders: Family hardiness and resilience	4
Pregnancies and births in women with Down syndrome – An analysis based on the Medical Statistics of Swiss Hospitals	4
The need to include intellectual/developmental disability in medical school curriculum: The perspective of a student advocate	4
Perspectives of adults with intellectual disabilities and key individuals on community participation in inclusive settings: A Canadian exploratory study	4
Examining potential predictors of attention training outcomes in children with intellectual and developmental disorders	4
Being in control: Choice and control of support received in supported living. A study based on the narratives of people with intellectual disability and support staff	4
Identifying important persons in the promotion of positive behaviour support (PBS) in disability services: A social network analysis	4
Reducing restrictive measures in complex long-term care for people with intellectual disabilities: Implementation interventions through the lens of normalisation process theory	4
The Attachment Strengths and Needs Interview for parents of children with severe or profound intellectual disabilities: An acceptability and feasibility study	4
The role of professionals in strengthening social relations of adults with a disability in independent supported living: Practices and influencing factors	4
The effectiveness of schema therapy in offenders with intellectual disabilities: a case series design	3
Forming and supporting circles of support for people with intellectual disabilities – a comparative case analysis	3
Development of a personalised substance use disorder treatment for people with mild intellectual disabilities or borderline intellectual functioning: An intervention mapping approach	3
Obstacles to the transition to adulthood of people with severe to profound intellectual disability and potential solutions: Perspectives of professionals in one region of Quebec	3
Perspectives of people with intellectual disability about their family networks: A comparison study with key support worker proxy reports	3
Adaptive behaviours in children with Down syndrome: A cross-sectional study of developmental trajectories	3
Assessment of challenging behaviours with the Nisonger Child Behavior Rating Form: Agreement/disagreement between frequency and severity ratings	3
Susceptibility to peer influence in adolescents with mild-to-borderline intellectual disability: Investigating links with inhibition, Theory of Mind and negative interpretation bias	3
The online lives of adolescents with mild or borderline intellectual disabilities in the Netherlands: Care staff knowledge and perceptions	3
Validity of an instrument that assesses functional abilities in people with profound intellectual and multiple disabilities: Look what I can do!	3
An ethnography exploring the limits of dedifferentiation in the lives of adults with intellectual disabilities	3
Understanding parental physical activity behaviours in parents of children with disabilities: An expanded theory of planned behaviour approach	3
A preliminary firesetting offence chain for adults with intellectual and other developmental disabilities	3
Experiences in outdoor recreation among individuals with developmental disabilities: Benefits, constraints, and facilitators	2
Timetabling a transition with dignity: Perspectives of young adults with significant support needs	2
What does the French public think about inclusive education?	2
Operationalisation of self-determination of persons with profound intellectual and multiple disabilities: A Delphi study	2
The Body Experience Questionnaire for adults with mild intellectual disability or borderline intellectual functioning (BEQ-mb): Development and initial evaluation	2
The juncture and disjuncture of service delivery systems in post-parental care planning for rural people with intellectual disabilities	2
Psychomotor therapy for individuals with mild intellectual disabilities or borderline intellectual functioning presenting anger regulation problems and/or aggressive behaviour: A qualitative study on	2
Cross-cultural preliminary validation of a measure of social vulnerability in people with intellectual disabilities	2
Loneliness and how to counter it: People with intellectual disability share their experiences and ideas	2
Futures of adults with intellectual disability: Staff expectations	2
Self-advocate perspectives on COVID-19 in Urban Los Angeles: impacts on autonomy and access to supports	2
Use of health and dental care services in adults with intellectual disability in relation to age and intellectual disability levels	2

Barriers and facilitators to implementation of a guideline for school-aged children with feeding difficulties	2
Giving guidance in the online lives of young people with intellectual disabilities: Challenges and guiding approaches in the daily practice of Dutch care staff	2
Parents’ experiences of raising adolescents with intellectual or developmental disabilities	2
Searching for balance: The effects of dance training on the postural stability of individuals with intellectual disability	2
Parents with intellectual disability and mental health conditions: Early intervention providers’ perceptions	1
Reasonable adjustments to the application of the comprehensive care standard within an Australian mainstream internal medicine outpatient clinic attended by adults with Down syndrome	1
2019 JIDD Awards Announcement	1
Clinician-reported barriers to providing perinatal care to women with intellectual and developmental disabilities	1
A visual report on what is of value for people with intellectual disabilities in a Flemish care organisation	1
The impact of sexual abuse on body experience in adults with mild intellectual disability or borderline intellectual functioning	1
Signs of abuse in children with disabilities: A rapid review with expert panel social validation	1
Patterns of group home culture in organisations supporting people with intellectual disabilities: A cross-sectional study	1
Exploring the complexity of implementing National Disability Insurance Scheme plans for adults with intellectual disability: Parents’ perspectives	1
The perspectives of agents working in positions of authority within health sector organisations regarding the involvement of experts by experience with an intellectual disability: An exploratory study	1
The showcase of special education in Turkey: Guidance and research centres	1
Caregiver perceptions of care of a medical-dental community clinic for adults with autism and intellectual disabilities: Implementing a program evaluation	1
Challenges of parents with children with intellectual and neurodevelopmental disorders during COVID-19: Experiences and their impact on mental health	1
Evaluating the impact of a virtual educational intervention on medical students’ knowledge and attitudes towards patients with intellectual and developmental disabilities	1
The impact of inclusion: Improving medical student confidence in caring for adults with intellectual disabilities through an interactive, narrative-based session	1
The relationship of productivity-based wages to human rights and occupational justice – an exploratory study	1
eHealth content-sharing and emotional support among Italian parents of children with Down Syndrome: A qualitative report	1
Interview skills associated with employment recommendations for individuals with intellectual and developmental disabilities	1
Patterns of presentation to a Children’s Hospital Emergency Department of patients with autism and/or intellectual disability with behaviours of concern	1
What is “fair and reasonable”? Norms and strategies guiding the distribution of assets by testators who have an adult child with intellectual disability	1
Preconditions influencing the development of post-secondary training programs in universities for individuals with intellectual disabilities	1