OOIR: Observatory of International Research

Papers

(The median citation count of Journal of Intellectual & Developmental Disability is 1. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-10-01 to 2024-10-01.)

Article	Citations
Siblings’ and parents’ perspectives on the future care for their family member with profound intellectual and multiple disabilities: A qualitative study	19
A survey of Registered Nurses’ educational experiences and self-perceived capability to care for people with intellectual disability and/or autism spectrum disorder	18
“I hope I’ll outlive him”: A qualitative study of parents’ concerns about being outlived by their child with profound intellectual and multiple disabilities	18
Shadowing as a qualitative research method for intellectual disability research: Opportunities and challenges	16
Long-term outcomes following Fetal Alcohol Spectrum Disorder (FASD) diagnosis in adulthood	13
Parental strategies that support adults with intellectual disabilities to explore decision preferences, constraints and consequences	11
Elementary school students’ attitudes towards peers with disabilities: The role of personal and contextual factors	10
“Continuously struggling for balance”: The lived experiences of Dutch parents caring for children with profound intellectual and multiple disabilities	10
Struggling with sameness and strangeness: (Non)-encounters between people with and without intellectual disabilities in two Dutch neighbourhoods	10
“It’s ignorant stereotypes”: Key stakeholder perspectives on stereotypes associated with fetal alcohol spectrum disorder, alcohol, and pregnancy	10
Post-traumatic stress disorder symptom manifestations in an autistic man with severe intellectual disability following coercion and scalding	9
Passing laws is not enough to change staff practice: The case of legally mandated “incident” reporting in Sweden	9
Mortality, predictors and causes among people with intellectual disabilities: A systematic narrative review supplemented by machine learning	8
Forming and supporting circles of support for people with intellectual disabilities – a comparative case analysis	8
Occupational stress, coping and wellbeing among registered psychologists working with people with intellectual disabilities during the COVID-19 pandemic in the United Kingdom	8
Childhood experience, family support and parenting by people with intellectual disability	7
Possibility and risk in encounter between people with and without intellectual disability	7
Growing up with a brother or sister with Down syndrome: Adult siblings’ perceptions of their childhood relationships	7
The need to include intellectual/developmental disability in medical school curriculum: The perspective of a student advocate	7
A qualitative investigation of support workers’ experiences of the impact of the COVID-19 pandemic on Dutch migrant families who have children with intellectual disabilities	7
Challenges of online learning for children with special educational needs and disabilities during the COVID-19 pandemic: A scoping review	6
Performance, purpose, and creation of encounter between people with and without intellectual disabilities	6
Expressions of stress of people with severe intellectual disabilities and sensitive caregiving to regulate stress: A qualitative study	6
Barriers to the NDIS for people with intellectual disability and/or complex support needs involved with the criminal justice systems: The current state of literature	6
The effectiveness of schema therapy in offenders with intellectual disabilities: a case series design	5

Reducing restrictive measures in complex long-term care for people with intellectual disabilities: Implementation interventions through the lens of normalisation process theory	5
The Attachment Strengths and Needs Interview for parents of children with severe or profound intellectual disabilities: An acceptability and feasibility study	5
Identifying important persons in the promotion of positive behaviour support (PBS) in disability services: A social network analysis	5
Development of a personalised substance use disorder treatment for people with mild intellectual disabilities or borderline intellectual functioning: An intervention mapping approach	5
Operationalisation of self-determination of persons with profound intellectual and multiple disabilities: A Delphi study	5
Perspectives of people with intellectual disability about their family networks: A comparison study with key support worker proxy reports	5
Loneliness and how to counter it: People with intellectual disability share their experiences and ideas	5
Obstacles to the transition to adulthood of people with severe to profound intellectual disability and potential solutions: Perspectives of professionals in one region of Quebec	5
The impact of inclusion: Improving medical student confidence in caring for adults with intellectual disabilities through an interactive, narrative-based session	4
Parents’ experiences of raising adolescents with intellectual or developmental disabilities	4
Patterns of presentation to a Children’s Hospital Emergency Department of patients with autism and/or intellectual disability with behaviours of concern	4
Use of health and dental care services in adults with intellectual disability in relation to age and intellectual disability levels	4
Examining potential predictors of attention training outcomes in children with intellectual and developmental disorders	4
Susceptibility to peer influence in adolescents with mild-to-borderline intellectual disability: Investigating links with inhibition, Theory of Mind and negative interpretation bias	4
The online lives of adolescents with mild or borderline intellectual disabilities in the Netherlands: Care staff knowledge and perceptions	4
Parents of children with developmental disorders: Family hardiness and resilience	4
Self-advocate perspectives on COVID-19 in Urban Los Angeles: impacts on autonomy and access to supports	4
Futures of adults with intellectual disability: Staff expectations	3
Adaptive behaviours in children with Down syndrome: A cross-sectional study of developmental trajectories	3
What does the French public think about inclusive education?	3
Parents’ tacit knowledge of their child with profound intellectual and multiple disabilities: A qualitative study	3
Clinician-reported barriers to providing perinatal care to women with intellectual and developmental disabilities	3
Understanding parental physical activity behaviours in parents of children with disabilities: An expanded theory of planned behaviour approach	3
A preliminary firesetting offence chain for adults with intellectual and other developmental disabilities	3
Timetabling a transition with dignity: Perspectives of young adults with significant support needs	3
An ethnography exploring the limits of dedifferentiation in the lives of adults with intellectual disabilities	3
Decision-making in people with mild intellectual disability: Relations with intelligence and a measure of executive functioning	2
The relationship of productivity-based wages to human rights and occupational justice – an exploratory study	2
The juncture and disjuncture of service delivery systems in post-parental care planning for rural people with intellectual disabilities	2
Psychomotor therapy for individuals with mild intellectual disabilities or borderline intellectual functioning presenting anger regulation problems and/or aggressive behaviour: A qualitative study on	2
Evaluating the impact of a virtual educational intervention on medical students’ knowledge and attitudes towards patients with intellectual and developmental disabilities	2
The Body Experience Questionnaire for adults with mild intellectual disability or borderline intellectual functioning (BEQ-mb): Development and initial evaluation	2
Parents with intellectual disability and mental health conditions: Early intervention providers’ perceptions	2
Experiences in outdoor recreation among individuals with developmental disabilities: Benefits, constraints, and facilitators	2
The key elements of ageing well: Perspectives of middle-aged adults with intellectual disabilities and family carers in South Korea	2
Giving guidance in the online lives of young people with intellectual disabilities: Challenges and guiding approaches in the daily practice of Dutch care staff	2
Signs of abuse in children with disabilities: A rapid review with expert panel social validation	2
Families’ perspectives on the process of community transitions of individuals with severe intellectual and developmental disabilities	2
eHealth content-sharing and emotional support among Italian parents of children with Down Syndrome: A qualitative report	2
Exploring sexual health in people with mild intellectual disabilities: A concept mapping study on the perspectives of relatives and support staff	2
Exploring the complexity of implementing National Disability Insurance Scheme plans for adults with intellectual disability: Parents’ perspectives	2
Barriers and facilitators to implementation of a guideline for school-aged children with feeding difficulties	2
How should we support families of people with intellectual disability to promote their self-determination? A Delphi study on critical components for intervention	2
Searching for balance: The effects of dance training on the postural stability of individuals with intellectual disability	2
Caregiver perceptions of care of a medical-dental community clinic for adults with autism and intellectual disabilities: Implementing a program evaluation	1
Challenges of parents with children with intellectual and neurodevelopmental disorders during COVID-19: Experiences and their impact on mental health	1
Are obesity and physical fitness associated with cardiovascular disease risk in adolescents with Down syndrome? The longitudinal UP&DOWN study	1
Family relationships in intellectual disability: Parents’ perceptions as elicited by family photographs	1
Reasonable adjustments to the application of the comprehensive care standard within an Australian mainstream internal medicine outpatient clinic attended by adults with Down syndrome	1
Supporting healthy ageing for people with intellectual disabilities in group homes: Staff experiences	1

The perspectives of agents working in positions of authority within health sector organisations regarding the involvement of experts by experience with an intellectual disability: An exploratory study	1
A survey on the use of remote consultation for people with intellectual disability: The experience of community intellectual disability teams	1
Challenges and strengths experienced by fetal alcohol spectrum disorder diagnostic clinics in Canada	1
The showcase of special education in Turkey: Guidance and research centres	1
Initiatives to support the school-to-work transition of people with intellectual disabilities: a systematic review	1
The impact of sexual abuse on body experience in adults with mild intellectual disability or borderline intellectual functioning	1
Beyond inclusion: Why research on encounter needs a feminist account of freedom	1
Patterns of group home culture in organisations supporting people with intellectual disabilities: A cross-sectional study	1
Stigmatising young people with intellectual disability: Perceptions of the main stakeholders at a Spanish university	1
Educating the educated: The impact of educational interventions on knowledge, attitudes and confidence of healthcare professionals in caring for patients with intellectual disability: A systematic rev	1
Short Physical Performance Battery reliability and validity in adults with mild to moderate intellectual disability	1
An Australian online training and support program for caregivers of children and youth with Fetal Alcohol Spectrum Disorder: Families linking with families	1
A visual report on what is of value for people with intellectual disabilities in a Flemish care organisation	1
Measurement properties of the German version of the Cambridge examination for mental disorders of older people with Down syndrome and others with intellectual disabilities (CAMDEX-DS)	1
Preconditions influencing the development of post-secondary training programs in universities for individuals with intellectual disabilities	1
Impact of infection outbreak on people with intellectual disabilities: A scoping review	1
The experiences of parents arranging the move of their young adult offspring with intellectual disabilities to 24-hour residential settings; a continuing puzzle	1
Young people with intellectual disability speak out about life after school: “I want to do more in life than just…be a disability person”	1
2019 JIDD Awards Announcement	1
Interview skills associated with employment recommendations for individuals with intellectual and developmental disabilities	1