OOIR: Observatory of International Research

Papers

(The TQCC of Journal of Applied Research in Intellectual Disabilities is 4. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2021-05-01 to 2025-05-01.)

Article	Citations
Using ethnodrama to support parents in sense‐making after prenatal or neonatal diagnosis of a child's disabling condition	30
Intellectual/developmental disabilities among people incarcerated in federal correctional facilities in Ontario, Canada: Examining prevalence, health and correctional characteristics	30
Analysis of sedentary behaviour levels and patterns in adults with Down syndrome	29
Improvement of group climate in a residential setting for juveniles with mild intellectual disability through training of staff in Non‐Violent Resistance	27
Correction to “‘A Potentially Ticking Time Bomb’—Barriers for Prevention, Diagnosis, and Treatment of Cardiovascular Disease in People With Intellectual Disabilities”	26
A Scoping Review of Outcomes Measured and Involvement of People With Intellectual Disabilities in Active Support Research	25
Paid carers' understanding and experiences of meaningful involvement in bereavement for people with intellectual disability when a significant other is dying	24
Should inclusion have an expiry date? Older people's attitudes on intellectual disabilities	24
Consensus on a conversation aid for shared decision making with people with intellectual disabilities in the palliative phase	23
Australian Registered Nurse's' Awareness of Key Issues, Ambivalence and Education Related to the Health of People With Intellectual Disability and/or Autism	23
Efficacy of a school‐based intervention to influence attitudes about future parenting among Swedish youth with intellectual disability: An RCT study	23
Using multimedia technology to enhance self‐advocacy of people with intellectual disabilities: Introducing a theoretical framework for ‘Multimedia Advocacy’	22
A behavioural description of meaningful moments of interaction between people with profound intellectual disabilities and support staff	21
Adapting psychological interventions for people with severe and profound intellectual disabilities: A behavioural activation exemplar	21
Facilitating the inclusion of adults with intellectual disability as direct respondents in research: Strategies for fostering trust, respect, accessibility and engagement	20
Semi‐Structured Interview Guide Development and Validation to Explore Parental Experiences and Expectations From Physiotherapy for Children With Down Syndrome	19
Development of a sexual consent intervention for adolescents with intellectual and developmental disabilities	19
Correction to “I think they do not know how to lie:” The perceptions of legal support staff about person with intellectual disabilities/autism in Turkish legal system	15
Prevalence of diabetes in people with intellectual disabilities and age‐ and gender‐matched controls: A meta‐analysis	14
Designing an international survey for organisations serving people with Down syndrome	14
Issue Information	14
Gender and racial/ethnic differences in food selectivity in children with intellectual disabilities	14
Issue Information	14
Adapting suicide safety plans for youth with intellectual and developmental disabilities	13
‘Standing up for Myself’ (STORM): Development and qualitative evaluation of a psychosocial group intervention designed to increase the capacity of people with intellectual disabilities to manage and r	12

Effects of positive behaviour support delivered by direct staff on challenging behaviours and quality of life of adults with intellectual disabilities: A multicentre cluster‐controlled trial	12
A quantitative evaluation of a regional Positive Behavioural Support workforce development approach	12
The adaptive ability performance test (ADAPT): A factor analytic study in clients with intellectual disabilities	12
‘Not seeing people as capable’: Disability professionals' mis/understandings of ableism	12
Proxy‐report in individuals with intellectual disability: A scoping review	12
Issue Information	12
Supported employment, quality of jobs and employment typicalness: The experience of the Engage to Change project	12
Did I Take My Medication Today? Understanding Medication Self‐Management for Adults With Intellectual Disabilities Through Participatory Research	12
Current services and outcomes of formerly institutionalised and never‐institutionalised US adults with intellectual and developmental disabilities: A propensity score matching analysis	12
Personal support networks of young people with and without intellectual disability. A comparative study	11
Sexual knowledge and behaviour in 22q11.2 deletion syndrome, a complex care condition	11
What makes life better or worse: Quality of life according to people with intellectual disabilities	11
A systematic review of community psychosocial group interventions for adults with intellectual disabilities and mental health conditions	11
The development of the Adapted Firesetting Assessment Scale	11
Experiences of family carers in providing care to children with intellectual disabilities in India: A qualitative evidence synthesis	11
Identifying key components of a web‐based long term care planning intervention for family caregivers of individuals with intellectual/developmental disabilities	11
Menstrual education programs for girls and young women with intellectual and developmental disabilities: A systematic review	10
Psychological aspects of being a parent of an individual with Rett syndrome: A scoping review	10
‘Playing a guessing game’: Recognising and responding to anxiety in children with intellectual disability	10
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Ultrasonography is an effective tool for breast cancer screening in individuals with severe motor and intellectual disabilities	10
‘They don't think I can do it’: Experiences of self‐advocates, employment specialists, and employers on employment of adults with intellectual disability	10
Differences in physical activity volume and intensity between Unified and non‐Unified Special Olympics football training: An observational pilot study	9
Early positive approaches to support (E‐PAtS): Qualitative experiences of a new support programme for family caregivers of young children with intellectual and developmental disabilities	9
What are the experiences of clinical psychologists working with people with intellectual disabilities during the COVID‐19 pandemic?	9
Psychiatric inpatient admissions and discharges of people with intellectual disabilities: A time series analysis of English national data	9
The use of proxy measurement of internal states in people with intellectual disability: A scoping review	9
	9
‘We don't have the answers’: What do we know about the experiences of psychological professionals providing virtual psychological support to people with intellectual disabilities during the COVID	9
Parents' satisfaction with a Canadian pilot clinic to reduce waiting lists for the assessment and diagnosis of autism spectrum disorder and intellectual disability in young children	9
	9
The Family Game to support parents with intellectual disability in managing challenging behaviours: A replication	9
Psychometric analysis of the Group Climate Inventory—Revised in adults with mild intellectual disability or borderline intellectual functioning in a secure residential facility	9
Psychosocial‐behavioural interventions for school‐aged children with intellectual disabilities: A systematic review of randomised control trials	9
Community participation in adults with autism: A systematic review	8
Postural balance problems in people with intellectual disabilities: Do not forget the sensory input systems	8
Issue Information	8
Improvement of palliative care for people with intellectual disabilities: A multi‐site evaluation	8
Attitudes towards sexuality and related caregiver support of people with intellectual disabilities: A systematic review on the perspectives of people with intellectual disabilities	8
	8
How to support peer resistance in adolescents with mild‐to‐borderline intellectual disability? Intervention development and feasibility	8
Measurement of basic psychological needs for physical activity participation for college students with intellectual disabilities: A validation study	8
The identification of exceptional skills in school‐age autistic children: Prevalence, misconceptions and the alignment of informant perspectives	8
Navigating Unique Intersectional Experiences: LGBTQ+ Community Organisations Addressing Individuals With Intellectual Disabilities' Needs	8
Interventions addressing challenging behaviours in Arab children and adults with intellectual disabilities and/or autism: A systematic review	7
Caregivers' perspectives on future planning for their adult children with intellectual disabilities in Romania	7
	7
Medicaid long‐term services and supports and caregiving needs of caregivers of individuals with intellectual and developmental disabilities	7
	7
Fostering Healthy Relationships in Special Olympic Athletes: Supporting the Intersection of Intellectual Disability and Sexual Health	7

The impact of COVID‐19 pandemic on jobs for people with intellectual disabilities and autism in Wales	7
The feasibility of an adapted virtual mindfulness intervention for Special Olympics athletes and their caregivers	7
Assessment of dementia in a clinical sample of persons with intellectual disability	7
Exploring experiential elements, strategies and outcomes of quality participation for children with intellectual and developmental disabilities: A systematic scoping review	7
The Behavior Problem Inventory‐Short Form: Psychometric Properties in a Spanish Sample of Intellectual Disabilities	7
Moral distress in carers for people with an intellectual disability who died during the COVID‐19 pandemic, a template analysis extending the Barlem and Ramos model of moral distr	7
Supervisory and administrative staff's perspectives of self‐directed supports for people with intellectual and developmental disabilities	7
Behaviour change techniques used in lifestyle support of adults with mild intellectual disabilities	7
Expectant parents with intellectual disabilities in child protection: Risk factors for child safety	7
Positive identity development through community engagement among youth with intellectual and developmental disabilities	7
The Organisational Characteristics That Enable Successful Employment Transition for People With Intellectual Disabilities	7
People with intellectual disabilities' sexuality from three different perspectives: Parents, professionals, and themselves	6
The predictive value of the dynamic risk outcome scales (DROS) for recidivism in (forensic) clients with mild intellectual disabilities or borderline intellectual functioning	6
Preliminary feasibility study of a cognitive stimulation therapy programme for older adults with an intellectual disability	6
	6
Health professionals' education related to people with intellectual and developmental disabilities: A scoping review	6
Research topics in intellectual disabilities in North Korea: A scoping review	6
Characteristics associated with frequent health system use by Australian adults with intellectual disability: A cohort study	6
Outcome measures for economic evaluations and cost‐effectiveness analyses of interventions for people with intellectual disabilities: A methodological systematic review	6
Intellectual disabilities and dementia: New tasks and experiences of Austrian formal caregivers	6
Understanding Barriers to Mental Health Supports During the Pandemic for Workers in Intellectual Disability Services	6
Adapting a Self‐Concept Questionnaire for Students With Intellectual Disabilities: An Inclusive Research Approach	6
Hair glucocorticoids in adults with intellectual disabilities and depressive symptoms pre‐ and post‐bright light therapy: First explorations	6
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Issue Information	6
Feasibility and acceptability of a culinary nutrition programme for adults with mild‐to‐moderate intellectual disability: FLIP Food and Lifestyle Information Programme	6
Identifying Patient Safety Competencies for Healthcare Staff Treating Children and Young People With Intellectual Disability in Hospitals: A Delphi Study	5
Initiatives to facilitate the social inclusion of people with intellectual disability in physical activities with others in community‐based sporting, recreation and leisure activities: A scoping revie	5
A Tele‐Coaching Pilot Study: An Innovative Approach to Enhance Motor Skills in Adolescents With Down Syndrome	5
Cognitive reserve proxies for individuals with intellectual developmental disability: A scoping review	5
Issue Information	5
Examining cognitive accessibility of the VIA Inventory of Strengths for adults with intellectual disability	5
The effect of a telehealth exercise intervention on balance in adults with Down syndrome	5
Factors associated with workers' attitudes towards employment of persons with intellectual disabilities in Saudi Arabia	5
Mitigating the impact of the ‘silos’ between the disability and aged‐care sectors in Australia: Development of a Best Practice Framework	5
Exploring the victim offender overlap among people with an intellectual disability	5
Exploring the similarities and differences amongst service users with and without learning disabilities attending Saint Marys Sexual Assault Referral Centre	5
Brain reserve theory: Are adults with intellectual disability more vulnerable to age than peers with typical development?	5
Using community‐based interventions to reduce public stigma of children with disabilities: A feasibility study	5
Meaningful Engagement: Exploring Principles and Actions to Build Client and Caregiver Engagement Within a Community‐Based Dual Diagnosis Service	5
Transition to retirement: The lived experiences of adults with intellectual disabilities	5
Factors that affect GP referral of a child with intellectual disability for a mild illness: A discrete choice experiment	5
Evaluating a Virtual Community‐of‐Practice as Implementation Strategy for the Needs Assessment Framework in Intellectual Disability Care: A Quasi‐Experimental Multi‐Methods Study	4
Social Workers' Experiences of Working With Support Workers in Services for Adults With Intellectual Disabilities in Hong Kong	4
Researching belonging in the context of research with people with intellectual disabilities: A systematic review of inclusive approaches	4
Straight from the horse's mouth: Increasing self‐report in mental health assessment in individuals with intellectual disability	4
Preparing adults with intellectual disabilities for their future: How do support services staff view their role?	4
Feasibility of school‐based parent support groups for transition‐aged youth with intellectual disabilities	4
Issue Information	4
Who is at risk? Adults with intellectual disability at risk of admission to mental health inpatient care	4
Predictors of the Friendship Quality in Adults With Mild Intellectual Disability	4
‘Walk Buds’: A walking intervention to increase physical activity, physical fitness, and emotional wellbeing, in 9–13 year old children with intellectual disabilities. Results of a clustered randomise	4
Living arrangements and satisfaction of current arrangement among autistic adults reported by autistic individuals or their caregivers	4
Explicit and implicit attitudes of occupational therapy workshops' staff towards people with intellectual disabilities	4
Association between employment status and quality of life for individuals with intellectual or developmental disability	4
Setting up a new team of support staff for people with mild intellectual disability or borderline intellectual functioning and severe challenging behaviour: A concept mapping study	4
Virtual reality to foster empathy in disability workers: A feasibility study during COVID‐19	4
Parents' perspectives on provided health care for adults with Down syndrome: A qualitative interview study	4
Adults with intellectual disabilities and third‐wave therapies: A systematic review and meta‐ethnography	4
Issue Information	4
My Life: A Photovoice Exploration of Aspirations of People With Intellectual Disabilities	4
Hypothyroidism in a Psychiatric Outpatient Population of People With Intellectual Disabilities	4
Correction to: “Development of a sexual consent intervention for adolescents with intellectual and developmental disabilities”	4
Conducting theory‐based qualitative interviews with adults with intellectual disabilities and their carers: Adaptations to facilitate participation	4
Safer Online Lives: Internet Use and Online Experiences of Adults With Intellectual Disabilities—A Survey Study	4
Exploring chronic disease prevalence in people with intellectual disabilities in primary care settings: A scoping review	4
Prolonged exposure treatment for post‐traumatic stress disorder: Single case studies in a sample of adults with mild intellectual disabilities	4
A demographic and qualitative analysis of the determinants of success in a National Supported Employment project	4
Technology first: The impact on technology availability for people with intellectual and developmental disabilities	4
A feasibility study on social competence intervention for Chinese adolescents and adults with comorbid autism spectrum disorder and intellectual disability	4
Sleep–wake monitoring of people with intellectual disability: Examining the agreement of EMFIT QS and actigraphy	4
The Role of Specialised Medical ID Expertise in Care Consultations for People With Intellectual Disabilities: Experiences of Caregivers and Patients	4