OOIR: Observatory of International Research

Papers

(The TQCC of Journal of Applied Research in Intellectual Disabilities is 5. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-03-01 to 2024-03-01.)

Article	Citations
Effect of the COVID‐19 pandemic on the mental health of carers of people with intellectual disabilities	172
Looking back, looking forward: Methodological challenges and future directions in research on persons with profound intellectual and multiple disabilities	48
Parents' knowledge of their child with profound intellectual and multiple disabilities: An interpretative synthesis	46
Experiences and needs of direct support staff working with people with intellectual disabilities during the COVID‐19 pandemic: A thematic analysis	44
The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period	43
“If we do not look for it, we do not see it”: Clinicians' experiences and understanding of identifying post‐traumatic stress disorder in adults with autism and intellectual disability	36
Trauma experiences of people with an intellectual disability and their implications: A scoping review	35
Factors influencing access to early intervention for families of children with developmental disabilities: A narrative review	33
The impact of self‐advocacy organizations on the subjective well‐being of people with intellectual disabilities: A systematic review of the literature	25
A comparison of the prevalence of health problems among adults with and without intellectual disability: A total administrative population study	25
Resilience in the face of adversity in adults with an intellectual disability: A literature review	25
eHealth in the support of people with mild intellectual disability in daily life: A systematic review	24
Evidence of continued reduction in the age‐at‐death disparity between adults with and without intellectual and/or developmental disabilities	23
The role of mobile technology in promoting social inclusion among adults with intellectual disabilities	21
A qualitative study on parents’ concerns about adult children with intellectual disabilities amid the COVID‐19 pandemic in South Korea	20
Effectiveness of active video game usage on body composition, physical activity level and motor proficiency in children with intellectual disability	19
Last months of life of people with intellectual disabilities: A UK population‐based study of death and dying in intellectual disability community services	18
Social support as a mediator of stress and life satisfaction for people with intellectual or developmental disabilities during the COVID‐19 pandemic	18
Physical activity patterns in adults with Down Syndrome	18
People with intellectual disability in Ireland are still dying young	18
Caregivers’ and parents’ explanatory models of intellectual disability in Khayelitsha, Cape Town, South Africa	17
Stakeholder‐driven approach to developing a peer‐mentoring intervention for young adults with intellectual/developmental disabilities and co‐occurring mental health conditions	16
Multimorbidity in older people with intellectual disability	16
The value of competitive employment: In‐depth accounts of people with intellectual disabilities	15
Approaches to and outcomes of future planning for family carers of adults with an intellectual disability: A systematic review	15

Social networks and people with intellectual disabilities: A systematic review	15
Employment for persons with intellectual disability in the Nordic countries: A scoping review	15
Proxy‐report in individuals with intellectual disability: A scoping review	15
Evaluation of the National Task Group‐Early Detection Screen for Dementia: Sensitivity to ‘mild cognitive impairment’ in adults with Down syndrome	14
Impact of COVID‐19 on the burden of care of families of people with intellectual and developmental disabilities	14
‘It's been adapted rather than impacted’: A qualitative evaluation of the impact of Covid‐19 restrictions on the positive behavioural support of people with an intellectual disability and/or autism	14
Social inclusion of LGBTQ and gender diverse adults with intellectual disability in disability services: A systematic review of the literature	14
People with intellectual disabilities living in care facilities engaging in virtual social contact: A systematic review of the feasibility and effects on well‐being	13
How can care settings for people with intellectual disabilities embed health promotion?	13
The relative influence of intellectual disabilities and autism on sensory impairments and physical disability: A whole‐country cohort of 5.3 million children and adults	13
Anxiety characteristics in individuals with Williams syndrome	13
Effects of physical activity on behaviour and emotional problems, mental health and psychosocial well‐being in children and adolescents with intellectual disability: A systematic review	13
Barriers and facilitators of physical activity in adolescents with intellectual disabilities: An analysis informed by the COM‐B model	13
Staff member's views and attitudes to supporting people with an Intellectual Disability: A multi‐method investigation of intimate relationships and sexuality	13
Group Cognitive Behavioural Treatment for Anxiety in Autistic Adolescents with Intellectual Disability: A Pilot and Feasibility Study	13
Deaths of people with intellectual disabilities: Analysis of deaths in England from COVID‐19 and other causes	12
The nature and quality of friendship for older adults with an intellectual disability in Ireland	12
Exploring parents' experiences of promoting physical activity for their child with intellectual disabilities	12
Psychological eHealth interventions for people with intellectual disabilities: A scoping review	12
The ADaptive Ability Performance Test (ADAPT): A new instrument for measuring adaptive skills in people with intellectual disabilities and borderline intellectual functioning	11
Outcomes and costs of skilled support for people with severe or profound intellectual disability and complex needs	11
Postural balance problems in people with intellectual disabilities: Do not forget the sensory input systems	11
Mediating effects of family functioning on the relationship between care burden and family quality of life of caregivers of children with intellectual disabilities in Mongolia	11
Static postural balance between male athletes with intellectual disabilities and their sedentary peers: A comparative study	11
Detection and prevention of abuse of adults with intellectual and other developmental disabilities in care services: A systematic review	11
A person‐centred approach to implementation of psychosocial interventions with people who have an intellectual disability and dementia—A participatory action study	10
The neglected puzzle of dementia in people with severe/profound intellectual disabilities: A systematic literature review of observable symptoms	10
Predictors of worker mental health in intellectual disability services during COVID‐19	10
Is fatness or fitness key for survival in older adults with intellectual disabilities?	10
Does talking about end of life with adults with intellectual disability cause emotional discomfort or psychological harm?	10
Homelessness and people with intellectual disabilities: A systematic review of the international research evidence	10
Attitudes towards sexuality and related caregiver support of people with intellectual disabilities: A systematic review on the perspectives of people with intellectual disabilities	9
Piloting the use of global health measures in a Down syndrome clinic	9
Belonging and reciprocity amongst people with intellectual disabilities: A systematic methodological review	9
Community participation in adults with autism: A systematic review	9
Factors facilitating or hindering meaningful staff–client interactions in people with intellectual disabilities and challenging behaviour: A systematic mixed studies review using thematic synthesis	9
The impact of competitive integrated employment on economic, psychological, and physical health outcomes for individuals with intellectual and developmental disabilities	9
Experience sampling method and the everyday experiences of adults with intellectual disability: A feasibility study	9
Effectiveness of the online mindset intervention ‘The Growth Factory’ for adolescents with intellectual disabilities	9
Estimating sexual knowledge of people with mild intellectual disability through a valid and reliable assessment scale: The ISK‐ID	9
Dementia in people with severe or profound intellectual (and multiple) disabilities: Focus group research into relevance, symptoms and training needs	8
United States Medicaid home and community‐based services for people with intellectual and developmental disabilities: A scoping review	8
Applicability of the post‐traumatic stress disorder gate criterion in people with mild to moderate intellectual disabilities: Do additional adverse events impact current symptoms of Post Traumatic Str	8
Community participation of families of children with profound intellectual and multiple disabilities in South Africa	8
A deviation too many? Healthcare professionals’ knowledge and attitudes concerning patients with intellectual disability disrupting norms regarding sexual orientation and/or gender identity	8
What is good service quality? Day service staff's perspectives about what it looks like and how it should be monitored	8
Using community‐based interventions to reduce public stigma of children with disabilities: A feasibility study	8
Using a kinect‐based game to teach oral hygiene in four elementary students with intellectual disabilities	8
Feeling of grief and loss in parental caregivers of adults diagnosed with intellectual disability	8
People with intellectual disabilities as business owners: A systematic review of peer‐reviewed literature	8

Parental perspectives on research for Down syndrome	8
Factors influencing the opportunities of supporting staff to promote a healthy diet in adults with intellectual disabilities	8
Facilitating the inclusion of adults with intellectual disability as direct respondents in research: Strategies for fostering trust, respect, accessibility and engagement	8
Parenting girls with Rett syndrome: An investigation on self‐perceived levels of stress	8
The prevalence and health status of people with developmental disabilities in provincial prisons in Ontario, Canada: A retrospective cohort study	8
Changes over time in the management of long‐term conditions in primary health care for adults with intellectual disabilities, and the healthcare inequality gap	7
Diet quality among people with intellectual disabilities and borderline intellectual functioning	7
Behavioural, psychiatric and psychosocial factors associated with aggressive behaviour in adults with intellectual disabilities: A systematic review and narrative analysis	7
Straight from the horse's mouth: Increasing self‐report in mental health assessment in individuals with intellectual disability	7
Risk factors for falls among adults with intellectual disabilities: A narrative review	7
A qualitative study of the needs of older adults with intellectual disabilities	7
The foundations of mathematical development in Williams syndrome and Down syndrome	7
Dimensions of group home culture as predictors of quality of life outcomes	7
Supporting people with an intellectual disability and dementia: A constructivist grounded theory study exploring care providers’ views and experiences in the UK	7
Homeward bound: Exploring the motives of mothers who brought their offspring with intellectual disabilities home from residential settings during the COVID‐19 pandemic	7
Development and psychometric properties of an instrument for the Assessment of Sexual Behaviour and Knowledge of people with Intellectual Disability	7
‘The cure for us is a lot of things’: How young people with Prader‐Willi syndrome view themselves and future clinical trials	7
Robot‐mediated therapy to reduce worrying in persons with visual and intellectual disabilities	7
Mitigating the impact of the ‘silos’ between the disability and aged‐care sectors in Australia: Development of a Best Practice Framework	7
An 8‐year study of admissions and discharges to a specialist intellectual disability inpatient unit	6
Screening for intellectual disability in Dutch psychiatrically disturbed detainees: Assessing the psychometric properties of the Screener for Intelligence and Learning Disability (SCIL)	6
Exploring chronic disease prevalence in people with intellectual disabilities in primary care settings: A scoping review	6
‘Standing up for Myself’ (STORM): Development and qualitative evaluation of a psychosocial group intervention designed to increase the capacity of people with intellectual disabilities to manage and r	6
Construct validity of the Actiwatch‐2 for assessing movement in people with profound intellectual and multiple disabilities	6
What works in community health education for adults with learning disabilities: A scoping review of the literature	6
Development of a questionnaire to assess the quality of service trajectories in autism spectrum disorder from families' perspective	6
Screening of dementia indicating signs in adults with intellectual disabilities	6
The experiences of psychologists working with people with intellectual disabilities during the COVID‐19 crisis	6
Where to next? Experiences of adults with intellectual disability after they complete a university program	6
Intervention effects on professionals’ attitudes towards the participation of adults with visual and severe or profound intellectual disabilities	6
The relationship between adverse interpersonal experiences and self‐esteem in people with intellectual disabilities: The role of shame, self‐compassion and social support	6
Compound sibling caregivers of individuals with intellectual and developmental disabilities	6
Transition of adolescents with intellectual disability from schools for learners with special educational needs: Parents views for the preparedness	6
“Look, all our hard work is paying off”: A qualitative evaluation of a system‐wide, workforce development model to promote positive behavioural support	6
An exploration of lifestyle/obesity programmes for adults with intellectual disabilities through a realist lens: Impact of a ‘context, mechanism and outcome’ evaluation	6
Inventory of assessment practices in people with profound intellectual and multiple disabilities in three European countries	6
Development and psychometric properties of a self‐report instrument for the assessment of sexual behaviour and concerns of people with mild intellectual disabilities (SEBECOMID‐S)	6
Assessment of dementia in a clinical sample of persons with intellectual disability	5
Stressed parents, happy parents. An assessment of parenting stress and family quality of life in families with a child with Phelan‐McDermid syndrome	5
Proposed diagnostic criteria for mild cognitive impairment in Down syndrome population	5
Healthcare providers’ role in providing sexual and reproductive health information to people with intellectual and developmental disabilities: A qualitative study	5
Staff perceptions following a training programme about reducing psychotropic medication use in adults with intellectual disability: The need for a realistic professional practice framework	5
Group climate, aggressive incidents and coercion in a secure forensic setting for individuals with mild intellectual disability or borderline intellectual functioning: A multilevel study	5
Comparing everyday autonomy and adult identity in young people with and without intellectual disabilities	5
Gender and racial/ethnic differences in food selectivity in children with intellectual disabilities	5
Intellectual/developmental disabilities among people incarcerated in federal correctional facilities in Ontario, Canada: Examining prevalence, health and correctional characteristics	5
Internet use among adults with intellectual and developmental disabilities in South Korea	5
Exploring the nature and correlates of caregiving among parents of adults with intellectual and developmental disabilities	5
Relationships between feeding problems, eating behaviours and parental feeding practices in children with Down syndrome: A cross‐sectional study	5
A Photovoice Study: The life experiences of middle‐aged adults with intellectual disabilities in Korea	5
What are the experiences of clinical psychologists working with people with intellectual disabilities during the COVID‐19 pandemic?	5
Responding to safe care: Healthcare staff experiences caring for a child with intellectual disability in hospital. Implications for practice and training	5
A systematic review of community psychosocial group interventions for adults with intellectual disabilities and mental health conditions	5
“They don't think I can cope, because I have got a learning disability…”: Experiences of stigma in the lives of parents with learning disabilities	5
The adaptive ability performance test (ADAPT): A factor analytic study in clients with intellectual disabilities	5
Modelling triadic relationships in families of children with intellectual disability	5
Oral health and oral health behaviour of adolescents with mild or borderline intellectual disabilities compared with a national representative sample of 17‐year‐olds in the Netherlands	5
How people with intellectual and developmental disabilities on collaborative research teams use technology: A rapid scoping review	5
Psychotropic drugs intake in people aging with intellectual disability: Prevalence and predictors	5
What difficulties do people with mild intellectual disabilities experience when seeking medical help from their GP? A qualitative study	5
Early positive approaches to support (E‐PAtS): Qualitative experiences of a new support programme for family caregivers of young children with intellectual and developmental disabilities	5
Using a think‐aloud methodology to understand online physical activity information search experiences and preferences of parents of children and youth with disabilities	5
A systematic review and narrative synthesis of inclusive health and social care research with people with intellectual disabilities: How are co‐researchers involved and what are their experiences?	5
Thriving with Down syndrome: A qualitative multiple case study	5
Reproductive and pregnancy health care for women with intellectual and developmental disabilities: A scoping review	5
Use of behaviour change techniques by direct support professionals to support healthy lifestyle behaviour for people with moderate to profound intellectual disabilities	5
Consensus on a conversation aid for shared decision making with people with intellectual disabilities in the palliative phase	5
Expecting the unexpected: measures, outcomes and dying trajectories for expected and unexpected death in adults with intellectual disabilities in social care settings in the UK	5
The feasibility of daily monitoring in adolescents and young adults with mild intellectual disability or borderline intellectual functioning	5
Odour detection in children and young people with profound intellectual and multiple disabilities	5