OOIR: Observatory of International Research

Papers

(The TQCC of Journal of Applied Research in Intellectual Disabilities is 5. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-08-01 to 2024-08-01.)

Article	Citations
Effect of the COVID‐19 pandemic on the mental health of carers of people with intellectual disabilities	188
Looking back, looking forward: Methodological challenges and future directions in research on persons with profound intellectual and multiple disabilities	55
The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period	52
Experiences and needs of direct support staff working with people with intellectual disabilities during the COVID‐19 pandemic: A thematic analysis	49
Factors influencing access to early intervention for families of children with developmental disabilities: A narrative review	47
Trauma experiences of people with an intellectual disability and their implications: A scoping review	46
Evidence of continued reduction in the age‐at‐death disparity between adults with and without intellectual and/or developmental disabilities	24
A qualitative study on parents’ concerns about adult children with intellectual disabilities amid the COVID‐19 pandemic in South Korea	24
The role of mobile technology in promoting social inclusion among adults with intellectual disabilities	23
Social support as a mediator of stress and life satisfaction for people with intellectual or developmental disabilities during the COVID‐19 pandemic	22
Effectiveness of active video game usage on body composition, physical activity level and motor proficiency in children with intellectual disability	21
Social networks and people with intellectual disabilities: A systematic review	21
Employment for persons with intellectual disability in the Nordic countries: A scoping review	21
The value of competitive employment: In‐depth accounts of people with intellectual disabilities	21
People with intellectual disability in Ireland are still dying young	20
Evaluation of the National Task Group‐Early Detection Screen for Dementia: Sensitivity to ‘mild cognitive impairment’ in adults with Down syndrome	19
Impact of COVID‐19 on the burden of care of families of people with intellectual and developmental disabilities	19
People with intellectual disabilities living in care facilities engaging in virtual social contact: A systematic review of the feasibility and effects on well‐being	18
Detection and prevention of abuse of adults with intellectual and other developmental disabilities in care services: A systematic review	17
Community participation in adults with autism: A systematic review	17
Static postural balance between male athletes with intellectual disabilities and their sedentary peers: A comparative study	16
Proxy‐report in individuals with intellectual disability: A scoping review	16
Social inclusion of LGBTQ and gender diverse adults with intellectual disability in disability services: A systematic review of the literature	16
Barriers and facilitators of physical activity in adolescents with intellectual disabilities: An analysis informed by the COM‐B model	16
Effects of physical activity on behaviour and emotional problems, mental health and psychosocial well‐being in children and adolescents with intellectual disability: A systematic review	16

The impact of competitive integrated employment on economic, psychological, and physical health outcomes for individuals with intellectual and developmental disabilities	16
Postural balance problems in people with intellectual disabilities: Do not forget the sensory input systems	16
Group Cognitive Behavioural Treatment for Anxiety in Autistic Adolescents with Intellectual Disability: A Pilot and Feasibility Study	16
Anxiety characteristics in individuals with Williams syndrome	15
‘It's been adapted rather than impacted’: A qualitative evaluation of the impact of Covid‐19 restrictions on the positive behavioural support of people with an intellectual disability and/or autism	15
Staff member's views and attitudes to supporting people with an Intellectual Disability: A multi‐method investigation of intimate relationships and sexuality	15
Deaths of people with intellectual disabilities: Analysis of deaths in England from COVID‐19 and other causes	15
The ADaptive Ability Performance Test (ADAPT): A new instrument for measuring adaptive skills in people with intellectual disabilities and borderline intellectual functioning	14
Exploring parents' experiences of promoting physical activity for their child with intellectual disabilities	14
Outcomes and costs of skilled support for people with severe or profound intellectual disability and complex needs	13
United States Medicaid home and community‐based services for people with intellectual and developmental disabilities: A scoping review	13
Psychological eHealth interventions for people with intellectual disabilities: A scoping review	13
The nature and quality of friendship for older adults with an intellectual disability in Ireland	13
Homelessness and people with intellectual disabilities: A systematic review of the international research evidence	12
A person‐centred approach to implementation of psychosocial interventions with people who have an intellectual disability and dementia—A participatory action study	12
The neglected puzzle of dementia in people with severe/profound intellectual disabilities: A systematic literature review of observable symptoms	12
Attitudes towards sexuality and related caregiver support of people with intellectual disabilities: A systematic review on the perspectives of people with intellectual disabilities	12
Effectiveness of the online mindset intervention ‘The Growth Factory’ for adolescents with intellectual disabilities	11
Facilitating the inclusion of adults with intellectual disability as direct respondents in research: Strategies for fostering trust, respect, accessibility and engagement	11
Homeward bound: Exploring the motives of mothers who brought their offspring with intellectual disabilities home from residential settings during the COVID‐19 pandemic	11
Mediating effects of family functioning on the relationship between care burden and family quality of life of caregivers of children with intellectual disabilities in Mongolia	11
Diet quality among people with intellectual disabilities and borderline intellectual functioning	11
Belonging and reciprocity amongst people with intellectual disabilities: A systematic methodological review	11
Estimating sexual knowledge of people with mild intellectual disability through a valid and reliable assessment scale: The ISK‐ID	10
Community participation of families of children with profound intellectual and multiple disabilities in South Africa	10
Factors facilitating or hindering meaningful staff–client interactions in people with intellectual disabilities and challenging behaviour: A systematic mixed studies review using thematic synthesis	10
Factors influencing the opportunities of supporting staff to promote a healthy diet in adults with intellectual disabilities	10
Does talking about end of life with adults with intellectual disability cause emotional discomfort or psychological harm?	10
A systematic review and narrative synthesis of inclusive health and social care research with people with intellectual disabilities: How are co‐researchers involved and what are their experiences?	10
What is good service quality? Day service staff's perspectives about what it looks like and how it should be monitored	10
Predictors of worker mental health in intellectual disability services during COVID‐19	10
Parental perspectives on research for Down syndrome	10
A qualitative study of the needs of older adults with intellectual disabilities	9
Changes over time in the management of long‐term conditions in primary health care for adults with intellectual disabilities, and the healthcare inequality gap	9
Straight from the horse's mouth: Increasing self‐report in mental health assessment in individuals with intellectual disability	9
Feeling of grief and loss in parental caregivers of adults diagnosed with intellectual disability	9
Benefits and cultural adaptations of psychosocial interventions for parents and their children with intellectual disabilities in low‐and middle‐income countries: A systematic review	9
Risk factors for falls among adults with intellectual disabilities: A narrative review	9
Relationships between feeding problems, eating behaviours and parental feeding practices in children with Down syndrome: A cross‐sectional study	9
Piloting the use of global health measures in a Down syndrome clinic	9
Using community‐based interventions to reduce public stigma of children with disabilities: A feasibility study	9
People with intellectual disabilities as business owners: A systematic review of peer‐reviewed literature	8
Behavioural, psychiatric and psychosocial factors associated with aggressive behaviour in adults with intellectual disabilities: A systematic review and narrative analysis	8
Association between employment status and quality of life for individuals with intellectual or developmental disability	8
Consensus on a conversation aid for shared decision making with people with intellectual disabilities in the palliative phase	8
The experiences of psychologists working with people with intellectual disabilities during the COVID‐19 crisis	8
Group climate, aggressive incidents and coercion in a secure forensic setting for individuals with mild intellectual disability or borderline intellectual functioning: A multilevel study	8
Robot‐mediated therapy to reduce worrying in persons with visual and intellectual disabilities	8
Using a kinect‐based game to teach oral hygiene in four elementary students with intellectual disabilities	8
The experiences and views of adults with intellectual disabilities accessing digital mental health interventions: A qualitative systematic review and thematic synthesis	8

Development and psychometric properties of an instrument for the Assessment of Sexual Behaviour and Knowledge of people with Intellectual Disability	8
Reproductive and pregnancy health care for women with intellectual and developmental disabilities: A scoping review	8
Dementia in people with severe or profound intellectual (and multiple) disabilities: Focus group research into relevance, symptoms and training needs	8
Mitigating the impact of the ‘silos’ between the disability and aged‐care sectors in Australia: Development of a Best Practice Framework	8
The adaptive ability performance test (ADAPT): A factor analytic study in clients with intellectual disabilities	7
What difficulties do people with mild intellectual disabilities experience when seeking medical help from their GP? A qualitative study	7
Development and psychometric properties of a self‐report instrument for the assessment of sexual behaviour and concerns of people with mild intellectual disabilities (SEBECOMID‐S)	7
Where to next? Experiences of adults with intellectual disability after they complete a university program	7
‘More together than apart’: The evaluation of a virtual course to improve mental health and well‐being of adults with intellectual disabilities during the COVID‐19 pandemic	7
Inventory of assessment practices in people with profound intellectual and multiple disabilities in three European countries	7
Psychotropic drugs intake in people aging with intellectual disability: Prevalence and predictors	7
“It's not easy to change the mentality”: Challenges to sex education delivery for persons with intellectual disability	7
Exploring chronic disease prevalence in people with intellectual disabilities in primary care settings: A scoping review	7
‘Standing up for Myself’ (STORM): Development and qualitative evaluation of a psychosocial group intervention designed to increase the capacity of people with intellectual disabilities to manage and r	7
The feasibility of daily monitoring in adolescents and young adults with mild intellectual disability or borderline intellectual functioning	7
A Photovoice Study: The life experiences of middle‐aged adults with intellectual disabilities in Korea	7
“They don't think I can cope, because I have got a learning disability…”: Experiences of stigma in the lives of parents with learning disabilities	7
‘The cure for us is a lot of things’: How young people with Prader‐Willi syndrome view themselves and future clinical trials	7
Development and validation of a functional screening tool for adults with intellectual disabilities	6
‘Love makes me feel good inside and my heart is fixed’: What adults with intellectual disabilities have to say about love and relationships	6
Intervention effects on professionals’ attitudes towards the participation of adults with visual and severe or profound intellectual disabilities	6
Internet use among adults with intellectual and developmental disabilities in South Korea	6
Healthcare providers’ role in providing sexual and reproductive health information to people with intellectual and developmental disabilities: A qualitative study	6
What are the experiences of clinical psychologists working with people with intellectual disabilities during the COVID‐19 pandemic?	6
An exploration of lifestyle/obesity programmes for adults with intellectual disabilities through a realist lens: Impact of a ‘context, mechanism and outcome’ evaluation	6
Expecting the unexpected: measures, outcomes and dying trajectories for expected and unexpected death in adults with intellectual disabilities in social care settings in the UK	6
Oral health and oral health behaviour of adolescents with mild or borderline intellectual disabilities compared with a national representative sample of 17‐year‐olds in the Netherlands	6
The use of an implementation science theoretical framework to inform the development of a region wide Positive Behavioural Support Workforce Development approach	6
Positive behavioural support for children and young people with developmental disabilities in special education settings: A systematic review	6
Screening of dementia indicating signs in adults with intellectual disabilities	6
Staff perceptions following a training programme about reducing psychotropic medication use in adults with intellectual disability: The need for a realistic professional practice framework	6
People with intellectual disability and employment sustainability: A qualitative interview study	6
Intellectual/developmental disabilities among people incarcerated in federal correctional facilities in Ontario, Canada: Examining prevalence, health and correctional characteristics	6
The relationship between adverse interpersonal experiences and self‐esteem in people with intellectual disabilities: The role of shame, self‐compassion and social support	6
Assessment of dementia in a clinical sample of persons with intellectual disability	6
An 8‐year study of admissions and discharges to a specialist intellectual disability inpatient unit	6
Design Thinking: Assessing the health needs of college students with intellectual and/or developmental disabilities	5
How do students with intellectual disabilities tell stories? An investigation of narrative macrostructure and microstructure	5
Parents' satisfaction with a Canadian pilot clinic to reduce waiting lists for the assessment and diagnosis of autism spectrum disorder and intellectual disability in young children	5
Sexual knowledge and behaviour in 22q11.2 deletion syndrome, a complex care condition	5
A systematic review of community psychosocial group interventions for adults with intellectual disabilities and mental health conditions	5
Prevalence of diabetes in people with intellectual disabilities and age‐ and gender‐matched controls: A meta‐analysis	5
Use of behaviour change techniques by direct support professionals to support healthy lifestyle behaviour for people with moderate to profound intellectual disabilities	5
Using the learning disability screening questionnaire to help identify people with an intellectual disability in homeless services	5
Modelling triadic relationships in families of children with intellectual disability	5
How people with intellectual and developmental disabilities on collaborative research teams use technology: A rapid scoping review	5
Linked data analysis of learning disability health checks and emergency hospital admissions in the Kent Integrated Dataset	5
Social educator students' readiness to address sexual health in their future profession	5
Stressed parents, happy parents. An assessment of parenting stress and family quality of life in families with a child with Phelan‐McDermid syndrome	5
The experience of being a father of a son or daughter with an intellectual disability: Older fathers’ perspectives	5
Employment preferences of individuals with intellectual and developmental disabilities: An evaluation of gender and age differences	5
Responding to safe care: Healthcare staff experiences caring for a child with intellectual disability in hospital. Implications for practice and training	5
Tacit knowledge in dyads of persons with profound intellectual and multiple disabilities and their caregivers: An interpretative literature study	5
Gender and racial/ethnic differences in food selectivity in children with intellectual disabilities	5
Exploring the knowledge base of trauma and trauma informed care of staff working in community residential accommodation for adults with an intellectual disability	5
Parental mental health screening in a neuropaediatric sample: Psychometric properties of the Everyday Feeling Questionnaire and variables associated with parental mental health	5
Factors affecting residential staff's role in supporting the sexuality of adults with intellectual disabilities	5
Belonging through sport participation for young adults with intellectual and developmental disabilities: A scoping review	5
Destination unknown: Parents and healthcare professionals' perspectives on transition from paediatric to adult care in Down syndrome	5
Unscheduled healthcare for children with intellectual disabilities: A systematic scoping review	5
Proposed diagnostic criteria for mild cognitive impairment in Down syndrome population	5
Early positive approaches to support (E‐PAtS): Qualitative experiences of a new support programme for family caregivers of young children with intellectual and developmental disabilities	5
Virtual reality to foster empathy in disability workers: A feasibility study during COVID‐19	5
Setting up a new team of support staff for people with mild intellectual disability or borderline intellectual functioning and severe challenging behaviour: A concept mapping study	5
A systematic review of photovoice research methods with people with intellectual disabilities	5
A quantitative evaluation of a regional Positive Behavioural Support workforce development approach	5
Effects of the COVID‐19 pandemic on quality of life among relatives of individuals with intellectual disabilities: A longitudinal study	5
Antiepileptic drugs, occurrence of seizures and effect of co‐administration of potential seizure threshold‐lowering psychotropic drugs in adults with intellectual disability who have epilepsy	5
Odour detection in children and young people with profound intellectual and multiple disabilities	5
A manualised weight management programme for adults with mild–moderate intellectual disabilities affected by excess weight: A randomised controlled feasibility trial (Shape Up‐LD)*	5
Indicators of health in Down syndrome: A virtual focus group study with patients and their parents	5