OOIR: Observatory of International Research

Papers

(The TQCC of Journal of Applied Research in Intellectual Disabilities is 4. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2021-02-01 to 2025-02-01.)

Article	Citations
Improvement of group climate in a residential setting for juveniles with mild intellectual disability through training of staff in Non‐Violent Resistance	53
Self‐advocates with Down syndrome research the lived experiences of COVID‐19 lockdowns in Aotearoa New Zealand	51
Preferred outcome measures in treatments for challenging behaviour in individuals with intellectual disabilities: Results of an inclusive Delphi method	26
Australian Registered Nurse's' Awareness of Key Issues, Ambivalence and Education Related to the Health of People With Intellectual Disability and/or Autism	25
The Impact of Menopause on the Mental Health of Women With an Intellectual Disability: A Scoping Review	25
Deaths of people with intellectual disabilities: Analysis of deaths in England fromCOVID‐19 and other causes	24
Issue Information	23
Modelling triadic relationships in families of children with intellectual disability	22
Should inclusion have an expiry date? Older people's attitudes on intellectual disabilities	22
Issue Information	20
Using ethnodrama to support parents in sense‐making after prenatal or neonatal diagnosis of a child's disabling condition	19
Issue Information	19
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Using community‐based interventions to reduce public stigma of children with disabilities: A feasibility study	18
The effect of a telehealth exercise intervention on balance in adults with Down syndrome	17
Complete physical examinations in Manitoba adults with an intellectual or developmental disability: A retrospective cohort study	17
Exploring the social care‐related quality of life outcomes of adults with intellectual disabilities through the use of Talking Mats®	17
Outcome measures for economic evaluations and cost‐effectiveness analyses of interventions for people with intellectual disabilities: A methodological systematic review	17
Efficacy of a school‐based intervention to influence attitudes about future parenting among Swedish youth with intellectual disability: An RCT study	17
Intellectual disabilities and dementia: New tasks and experiences of Austrian formal caregivers	16
Analysis of sedentary behaviour levels and patterns in adults with Down syndrome	16
Caregiving and future planning perspectives of siblings of individuals with intellectual and developmental disabilities: Insights from South Korea, Japan and Taiwan	16
Reported speech in individuals with Down syndrome: First evidence	15
Mitigating the impact of family burden on psychological health in parents of children with special needs: Buffering effects of resilience and social support	14
Parental styles and attitudes of fathers of children and adolescents with intellectual disability: Do parental styles and attitudes impact children’s adaptive behaviour?	13

Designing an international survey for organisations serving people with Down syndrome	13
Antiepileptic drugs, occurrence of seizures and effect of co‐administration of potential seizure threshold‐lowering psychotropic drugs in adults with intellectual disability who have epilepsy	13
A holistic approach to fragile X syndrome integrated guidance for person‐centred care	12
The influence of 15‐weeks climbing program on the static and dynamic balance of young adults with mild and moderate intellectual disabilities	12
Effect of the environmental factor of coexistence on the physical condition of people with mild and moderate intellectual disabilities	11
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Paid carers' understanding and experiences of meaningful involvement in bereavement for people with intellectual disability when a significant other is dying	11
Issue Information	11
Brain reserve theory: Are adults with intellectual disability more vulnerable to age than peers with typical development?	10
An Exploratory Study on the Suicidal Behaviours of People With Intellectual Disability or Autism: Examining Their Understanding of Suicide and Death, and the Perceptions of Their Direct Support Staff	10
Issue Information	10
Using multimedia technology to enhance self‐advocacy of people with intellectual disabilities: Introducing a theoretical framework for ‘Multimedia Advocacy’	10
Quality of life measurement tools for people with dementia and intellectual disabilities: A systematic review	10
Exploring the victim offender overlap among people with an intellectual disability	10
Mental Health Services for Adults With Intellectual Disabilities: A Qualitative Study of Patient Characteristics, Associated Factors and Consequent Needs for Adaptation in Assessment and Treatment	10
Effects of textual prompting and constant time delay on social communication skills of young adults with Prader Willi syndrome during online socialisation activities	10
A behavioural description of meaningful moments of interaction between people with profound intellectual disabilities and support staff	9
A personal narrative intervention combined with self‐monitoring strategies: Outcomes for Mandarin‐speaking adolescents with Down syndrome	9
‘There's a timebomb’: Planning for parental death and transitions in care for older people with intellectual disabilities and their families	9
Cognitive reserve proxies for individuals with intellectual developmental disability: A scoping review	9
Factors associated with workers' attitudes towards employment of persons with intellectual disabilities in Saudi Arabia	9
Optimising the oral midazolam dose for premedication in people with intellectual disabilities and/or autism spectrum disorder	9
Examining cognitive accessibility of the VIA Inventory of Strengths for adults with intellectual disability	9
Factors that affect GP referral of a child with intellectual disability for a mild illness: A discrete choice experiment	8
Training programme for community service providers who support adults with intellectual disabilities: A systematic quantitative literature review of single‐case research	8
Adapting psychological interventions for people with severe and profound intellectual disabilities: A behavioural activation exemplar	8
Exploring the similarities and differences amongst service users with and without learning disabilities attending Saint Marys Sexual Assault Referral Centre	8
Intellectual/developmental disabilities among people incarcerated in federal correctional facilities in Ontario, Canada: Examining prevalence, health and correctional characteristics	8
Physical activity levels of children and adolescents with intellectual disabilities in Northern China	8
Formal support and service needs of family caregivers of adults with intellectual and/or developmental disabilities in India	8
Exploring the experiences of self‐determination of individuals with mild intellectual disabilities and epilepsy	8
Transition to retirement: The lived experiences of adults with intellectual disabilities	8
School‐based targeted prevention for children with mild intellectual disabilities or borderline intellectual functioning and behaviour problems: A pilot implementation study	8
Initiatives to facilitate the social inclusion of people with intellectual disability in physical activities with others in community‐based sporting, recreation and leisure activities: A scoping revie	7
Contribution of static and dynamic balance skills to activities of daily living in children with intellectual disabilities	7
Support as described by fathers with intellectual disabilities	7
Understanding experiences of ‘Gig Buddies’: A befriending scheme for people with intellectual disabilities	7
Effects of physical activity on behaviour and emotional problems, mental health and psychosocial well‐being in children and adolescents with intellectual disability: A systematic review	7
‘It's working together with what you've got’: Healthcare professionals' experiences of working with people with combined intellectual disability and personality disorder diagnoses	7
Exploring the association of staff characteristics with staff perceptions of quality of life of individuals with intellectual disabilities and challenging behaviours	7
‘It really is quite a different ballgame’. A qualitative study into the work experiences of remote support professionals	7
Development and sensibility assessment of a health‐related quality of life instrument for adults with severe disabilities who are non‐ambulatory	7
Understanding capabilities, opportunities and motivations to engage in physical activity for adults with intellectual disabilities: A qualitative evidence synthesis	6
Facilitating the inclusion of adults with intellectual disability as direct respondents in research: Strategies for fostering trust, respect, accessibility and engagement	6
Factors affecting labour market transitions, sustained employment and sustained unemployment in individuals with intellectual disabilities	6
The UK psychiatrists' experience of rationalising antipsychotics in adults with intellectual disabilities: A qualitative data analysis of free‐text questionnaire responses	6
Mitigating the impact of the ‘silos’ between the disability and aged‐care sectors in Australia: Development of a Best Practice Framework	6
Negative and Positive Experiences During the COVID‐19 Pandemic in Canadians With Developmental Disabilities: A One‐Year Ontario‐Based Survey	6
A Scoping Review of Outcomes Measured and Involvement of People With Intellectual Disabilities in Active Support Research	6
Impact of neuromuscular training including balance, strength and plyometric exercises on static and dynamic balance in high‐level male runners with mild intellectual disability	6

Issue Information	6
Characteristics associated with frequent health system use by Australian adults with intellectual disability: A cohort study	6
The impact of competitive integrated employment on economic, psychological, and physical health outcomes for individuals with intellectual and developmental disabilities	6
How are medical students learning to care for patients with intellectual disabilities? A scoping review	6
Social inclusion of LGBTQ and gender diverse adults with intellectual disability in disability services: A systematic review of the literature	6
Social support as a mediator of stress and life satisfaction for people with intellectual or developmental disabilities during the COVID‐19 pandemic	6
Community participation and staying home if you want:USadults with intellectual and developmental disabilities	6
Behavioural interventions to treat anxiety in adults with autism and moderate to severe intellectual disabilities: The BEAMS‐ID feasibility study	6
Inventory of assessment practices in people with profound intellectual and multiple disabilities in three European countries	6
Barriers and facilitators influencing implementation of care technology for people with intellectual disabilities: A cross‐sectional study among care professionals	6
Consensus on a conversation aid for shared decision making with people with intellectual disabilities in the palliative phase	5
‘Love makes me feel good inside and my heart is fixed’: What adults with intellectual disabilities have to say about love and relationships	5
Identifying Patient Safety Competencies for Healthcare Staff Treating Children and Young People With Intellectual Disability in Hospitals: A Delphi Study	5
Corrigendum	5
The adaptive ability performance test (ADAPT): A factor analytic study in clients with intellectual disabilities	5
Relationships between dynamic risk factors for externalising problem behaviour and group climate in adults with mild intellectual disability in forensic treatment	5
Advancing trauma‐informed care in intellectual and developmental disability services: A pilot study of a digital training with direct service providers	5
Impact of COVID‐19 on the burden of care of families of people with intellectual and developmental disabilities	5
Who cares? A scoping review about the experiences of parental caregivers of autistic adults	5
Correction to “I think they do not know how to lie:” The perceptions of legal support staff about person with intellectual disabilities/autism in Turkish legal system	5
Proceedings of the 6th IASSIDD Europe Congress: Value Diversity	5
Stressful experiences and coping strategies of parents of young children with Down syndrome: A qualitative study	5
Scoping review on communication systems used by adults with severe/profound intellectual disability for functional communication	5
Development and validation of a functional screening tool for adults with intellectual disabilities	5
Development of a sexual consent intervention for adolescents with intellectual and developmental disabilities	5
How effective are interventions at enhancing empathy for service users with an intellectual disability who engage in sexually abusive behaviour? A review of the literature	5
Correction to “‘A Potentially Ticking Time Bomb’—Barriers for Prevention, Diagnosis, and Treatment of Cardiovascular Disease in People With Intellectual Disabilities”	5
‘A potentially ticking time bomb’ – barriers for prevention, diagnosis, and treatment of cardiovascular disease in people with intellectual disabilities	5
How do Australian mental health services use easy read to make information accessible for people with intellectual disability?	5
Gender and racial/ethnic differences in food selectivity in children with intellectual disabilities	5
Researching belonging in the context of research with people with intellectual disabilities: A systematic review of inclusive approaches	5
‘I cannot be missed yet’: A qualitative study of carers of family members with an intellectual disability about long‐term care planning during the COVID‐19 pandemic	4
Evaluating a Virtual Community‐of‐Practice as Implementation Strategy for the Needs Assessment Framework in Intellectual Disability Care: A Quasi‐Experimental Multi‐Methods Study	4
The adaptation and feasibility of dialectical behaviour therapy for adults with intellectual developmental disabilities and transdiagnoses: A pilot community‐based randomized controlled trial	4
Perceived barriers and facilitators to good end of life care: Focusing on people with intellectual disabilities	4
Sleep–wake monitoring of people with intellectual disability: Examining the agreement of EMFIT QS and actigraphy	4
A qualitative study on parents’ concerns about adult children with intellectual disabilities amid the COVID‐19 pandemic in South Korea	4
The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period	4
Issue Information	4
A remotely‐delivered pilot and feasibility program to promote physical and food literacy in adolescents with intellectual disabilities	4
Supported employment, quality of jobs and employment typicalness: The experience of the Engage to Change project	4
People with intellectual disability and employment sustainability: A qualitative interview study	4
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Issue Information	4
‘More together than apart’: The evaluation of a virtual course to improve mental health and well‐being of adults with intellectual disabilities during the COVID‐19 pandemic	4
Dementia in people with severe or profound intellectual (and multiple) disabilities: Focus group research into relevance, symptoms and training needs	4
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Explicit and implicit attitudes of occupational therapy workshops' staff towards people with intellectual disabilities	4
Developing the self‐determination of children and young people with intellectual disabilities in schools: A systematic review of the literature	4
Annual health checks for people with intellectual disabilities: An exploration of experiences, follow‐up and self‐management of health conditions	4
Reliability and validity of the dynamic risk outcome scales—short version for clients with mild intellectual disabilities or borderline intellectual functioning	4
Measuring quality of life of adults with intellectual disabilities: Psychometric evaluation of the personal outcomes scale in the United Kingdom	4
What is good service quality? Day service staff's perspectives about what it looks like and how it should be monitored	4
Predictors of employment for adults with intellectual and developmental disabilities participating in a postsecondary transition program in the United States	4
Conducting theory‐based qualitative interviews with adults with intellectual disabilities and their carers: Adaptations to facilitate participation	4
Survey of parents of children with intellectual disabilities and/or autism who experience chronic constipation	4
Interviews with parents of adolescents with intellectual and developmental disabilities in a weight management study	4
‘Not seeing people as capable’: Disability professionals' mis/understandings of ableism	4
Chewing difficulties, oral health, and nutritional status in adults with intellectual disabilities: A cross‐sectional study	4