Patient-Patient Centered Outcomes Research

Papers
(The TQCC of Patient-Patient Centered Outcomes Research is 7. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-04-01 to 2024-04-01.)
ArticleCitations
Conducting Qualitative Research Online: Challenges and Solutions69
United States COVID-19 Vaccination Preferences (CVP): 2020 Hindsight38
Shared Decision Making in Surgery: A Meta-Analysis of Existing Literature36
The Use of Patient-Reported Outcome Measures in Rare Diseases and Implications for Health Technology Assessment32
Development of a Patient-Reported Outcome Measure for Non-Alcoholic Steatohepatitis (NASH-CHECK): Results of a Qualitative Study31
Respondent Understanding in Discrete Choice Experiments: A Scoping Review30
Patient-Reported Outcomes Through 1 Year of an HIV-1 Clinical Trial Evaluating Long-Acting Cabotegravir and Rilpivirine Administered Every 4 or 8 Weeks (ATLAS-2M)27
Eliciting Preferences for HIV Prevention Technologies: A Systematic Review26
Measurement Properties of the EQ-5D-5L and EQ-5D-3L in Six Commonly Diagnosed Cancers25
Developing a Framework for Public Involvement in Mathematical and Economic Modelling: Bringing New Dynamism to Vaccination Policy Recommendations23
Exploring the Trade-Off Between Economic and Health Outcomes During a Pandemic: A Discrete Choice Experiment of Lockdown Policies in Australia22
Time for Tele-TTO? Lessons Learned From Digital Interviewer-Assisted Time Trade-Off Data Collection22
Involving Patients in Health Economics Research: “The PACTS Principles”22
Use of Patient Preferences in Health Technology Assessment: Perspectives of Canadian, Belgian and German HTA Representatives21
Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development21
Patient- and Caregiver-Reported Burden of Transfusion-Dependent β-Thalassemia Measured Using a Digital Application21
“The Whole Game is Changing and You’ve Got Hope”: Australian Perspectives on Treatment Decision Making in Spinal Muscular Atrophy21
Stakeholder-Engaged Derivation of Patient-Informed Value Elements19
The Perspectives of Patients with Chronic Diseases and Their Caregivers on Self-Management Interventions: A Scoping Review of Reviews18
Patient and Public Involvement in Health Economics and Outcomes Research17
QALYs for COVID-19: A Comparison of US EQ-5D-5L Value Sets17
Development and Validation of the Insomnia Daytime Symptoms and Impacts Questionnaire (IDSIQ)17
A Systematic Review of Discrete Choice Experiments in Oncology Treatments16
What Factors Influence Non-Participation Most in Colorectal Cancer Screening? A Discrete Choice Experiment16
Patient Engagement Partnerships in Clinical Trials: Development of Patient Partner and Investigator Decision Aids15
Are Videos or Text Better for Describing Attributes in Stated-Preference Surveys?15
Utilising Patient and Public Involvement in Stated Preference Research in Health: Learning from the Existing Literature and a Case Study14
Identifying Unmet Care Needs and Important Treatment Attributes in the Management of Hidradenitis Suppurativa: A Qualitative Interview Study14
Health Literacy: The Common Denominator of Healthcare Progress13
Quantitative Preferences for Lung Cancer Treatment from the Patients’ Perspective: A Systematic Review13
Long COVID Citizen Scientists: Developing a Needs-Based Research Agenda by Persons Affected by Long COVID12
Patient-Reported Experience and Outcome Measures in People Living with Diabetes: A Scoping Review of Instruments12
Benefit–Risk or Risk–Benefit Trade-Offs? Another Look at Attribute Ordering Effects in a Pilot Choice Experiment12
Public Preferences for Allocating Ventilators in an Intensive Care Unit: A Discrete Choice Experiment12
Outcome-Based Payment Schemes: What Outcomes Do Patients with Cancer Value?12
Patient-Powered Research Networks of the Autoimmune Research Collaborative: Rationale, Capacity, and Future Directions12
What is the Most Valid and Reliable Compassion Measure in Healthcare? An Updated Comprehensive and Critical Review11
Mapping the Chinese Version of the EORTC QLQ-BR53 Onto the EQ-5D-5L and SF-6D Utility Scores11
How Do Respondents Interpret and View the EQ-VAS? A Qualitative Study of Three Asian Populations11
A Systematic Review of Discrete Choice Experiments and Conjoint Analysis on Genetic Testing11
The Successful Return-To-Work Questionnaire for Cancer Survivors (I-RTW_CS): Development, Validity and Reproducibility11
Patient and Family Caregiver Considerations When Selecting Early Breast Cancer Treatment: Implications for Clinical Pathway Development10
Patient and Public Involvement (PPI) in Health Economics Methodology Research: Reflections and Recommendations10
Patient Experiences with Avelumab in Treatment-Naïve Metastatic Merkel Cell Carcinoma: Longitudinal Qualitative Interview Findings from JAVELIN Merkel 200, a Registrational Clinical Trial10
Shared Decision Making in a Youth Mental Health Service Design and Research Project: Insights From the Pan-Canadian ACCESS Open Minds Network10
Designing Discrete Choice Experiments Using a Patient-Oriented Approach10
Increasing the Patient-Centeredness of Health Economics and Outcomes Research Through Patient Engagement in Core Outcome Set Development9
An Evidence-Based Theory About PRO Use in Kidney Care: A Realist Synthesis9
Opportunities to Improve Long COVID Care: Implications from Semi-structured Interviews with Black Patients9
Rethinking Patient Engagement in Cancer Research9
Perceived Benefits and Facilitators and Barriers to Providing Psychosocial Interventions for Informal Caregivers of People with Rare Diseases: A Scoping Review9
Patient Perceptions Regarding Multiple Myeloma and Its Treatment: Qualitative Evidence from Interviews with Patients in the United Kingdom, France, and Germany9
Patient-Centered Core Impact Sets: What They are and Why We Need Them9
Challenges in Using Recommended Quality of Life Measures to Assess Fluctuating Health: A Think-Aloud Study to Understand How Recall and Timing of Assessment Influence Patient Responses8
Patient Commentary: Added Value and Validity to Research Outcomes Through Thoughtful Multifaceted Patient-Oriented Research8
Should I Have Adjuvant Immunotherapy? An Interview Study Among Adults with Resected Stage 3 Melanoma and Their Partners8
Women’s Experiences of and Perspectives on Transvaginal Mesh Surgery for Stress Urine Incontinency and Pelvic Organ Prolapse: A Qualitative Systematic Review8
Attributes Used for Cancer Screening Discrete Choice Experiments: A Systematic Review8
Exploring the Comparability of Face-to-Face Versus Video Conference-Based Composite Time Trade-Off Interviews: Insights from EQ-5D-Y-3L Valuation Studies in Belgium and Spain8
A Systematic Review of the Use and Quality of Qualitative Methods in Concept Elicitation for Measures with Children and Young People8
Valuing End-of-Life Care for Older People with Advanced Cancer: Is Dying at Home Important?8
What Author Instructions Do Health Journals Provide for Writing Plain Language Summaries? A Scoping Review8
Comparing Patient Preferences for Antithrombotic Treatment During the Acute and Chronic Phases of Myocardial Infarction: A Discrete-Choice Experiment8
Methodological Priorities for Patient Preferences Research: Stakeholder Input to the PREFER Public–Private Project8
Agreement Among Paper and Electronic Modes of the EQ-5D-5L8
Patient Preferences for Multi-Cancer Early Detection (MCED) Screening Tests7
Comparing the Preferences of Patients and the General Public for Treatment Outcomes in Type 2 Diabetes Mellitus7
Willingness to Wait for a Vaccine Against COVID-19: Results of a Preference Survey7
A Standard Set of Value-Based Patient-Centered Outcomes and Measures of Overall Health in Adults7
Our Most Powerful Weapon to Fight COVID-19: Patient Involvement7
Beliefs and Values About Gene Therapy and In-Utero Gene Editing in Patients with Hemophilia and Their Relatives7
Taking the Shortcut: Simplifying Heuristics in Discrete Choice Experiments7
Designing HIV Testing and Self-Testing Services for Young People in Nigeria: A Discrete Choice Experiment7
Patient Preferences in Rare Diseases: A Qualitative Study in Neuromuscular Disorders to Inform a Quantitative Preference Study7
Mobilising the Next Generation of Stated-Preference Studies: the Association of Access Device with Choice Behaviour and Data Quality7
Exit Interviews Examining the Patient Experience in Clinical Trials of Tirzepatide for Treatment of Type 2 Diabetes7
Don’t Forget the Caregivers! A Discrete Choice Experiment Examining Caregiver Views of Integrated Youth Services7
Utility Values for the CP-6D, a Cerebral Palsy-Specific Multi-Attribute Utility Instrument, Using a Discrete Choice Experiment7
Understanding Attributes that Influence Physician and Caregiver Decisions About Neurotechnology for Pediatric Drug-Resistant Epilepsy: A Formative Qualitative Study to Support the Development of a Dis7
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