Patient-Patient Centered Outcomes Research

Papers
(The TQCC of Patient-Patient Centered Outcomes Research is 7. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-11-01 to 2024-11-01.)
ArticleCitations
Conducting Qualitative Research Online: Challenges and Solutions73
United States COVID-19 Vaccination Preferences (CVP): 2020 Hindsight46
The Use of Patient-Reported Outcome Measures in Rare Diseases and Implications for Health Technology Assessment41
Patient-Reported Outcomes Through 1 Year of an HIV-1 Clinical Trial Evaluating Long-Acting Cabotegravir and Rilpivirine Administered Every 4 or 8 Weeks (ATLAS-2M)38
Respondent Understanding in Discrete Choice Experiments: A Scoping Review37
Development of a Patient-Reported Outcome Measure for Non-Alcoholic Steatohepatitis (NASH-CHECK): Results of a Qualitative Study36
Eliciting Preferences for HIV Prevention Technologies: A Systematic Review35
Perceived Utility of Genomic Sequencing: Qualitative Analysis and Synthesis of a Conceptual Model to Inform Patient-Centered Instrument Development27
Exploring the Trade-Off Between Economic and Health Outcomes During a Pandemic: A Discrete Choice Experiment of Lockdown Policies in Australia27
Developing a Framework for Public Involvement in Mathematical and Economic Modelling: Bringing New Dynamism to Vaccination Policy Recommendations27
Time for Tele-TTO? Lessons Learned From Digital Interviewer-Assisted Time Trade-Off Data Collection25
The Perspectives of Patients with Chronic Diseases and Their Caregivers on Self-Management Interventions: A Scoping Review of Reviews22
Development and Validation of the Insomnia Daytime Symptoms and Impacts Questionnaire (IDSIQ)21
A Systematic Review of Discrete Choice Experiments in Oncology Treatments20
What is the Most Valid and Reliable Compassion Measure in Healthcare? An Updated Comprehensive and Critical Review19
Patient and Public Involvement in Health Economics and Outcomes Research18
QALYs for COVID-19: A Comparison of US EQ-5D-5L Value Sets18
What Factors Influence Non-Participation Most in Colorectal Cancer Screening? A Discrete Choice Experiment17
Long COVID Citizen Scientists: Developing a Needs-Based Research Agenda by Persons Affected by Long COVID16
Identifying Unmet Care Needs and Important Treatment Attributes in the Management of Hidradenitis Suppurativa: A Qualitative Interview Study16
Patient-Reported Experience and Outcome Measures in People Living with Diabetes: A Scoping Review of Instruments16
Patient-Centered Core Impact Sets: What They are and Why We Need Them15
Taking the Shortcut: Simplifying Heuristics in Discrete Choice Experiments14
Women’s Experiences of and Perspectives on Transvaginal Mesh Surgery for Stress Urine Incontinency and Pelvic Organ Prolapse: A Qualitative Systematic Review14
Benefit–Risk or Risk–Benefit Trade-Offs? Another Look at Attribute Ordering Effects in a Pilot Choice Experiment14
Public Preferences for Allocating Ventilators in an Intensive Care Unit: A Discrete Choice Experiment14
Health Literacy: The Common Denominator of Healthcare Progress14
A Systematic Review of Discrete Choice Experiments and Conjoint Analysis on Genetic Testing13
Patient-Powered Research Networks of the Autoimmune Research Collaborative: Rationale, Capacity, and Future Directions12
Patient Preferences for Multi-Cancer Early Detection (MCED) Screening Tests12
Opportunities to Improve Long COVID Care: Implications from Semi-structured Interviews with Black Patients12
Rethinking Patient Engagement in Cancer Research12
Challenges in Using Recommended Quality of Life Measures to Assess Fluctuating Health: A Think-Aloud Study to Understand How Recall and Timing of Assessment Influence Patient Responses11
Attributes Used for Cancer Screening Discrete Choice Experiments: A Systematic Review11
Patient and Public Preferences for Coordinated Care in Switzerland: Development of a Discrete Choice Experiment10
Exploring the Comparability of Face-to-Face Versus Video Conference-Based Composite Time Trade-Off Interviews: Insights from EQ-5D-Y-3L Valuation Studies in Belgium and Spain10
Exit Interviews Examining the Patient Experience in Clinical Trials of Tirzepatide for Treatment of Type 2 Diabetes10
Patient Perceptions Regarding Multiple Myeloma and Its Treatment: Qualitative Evidence from Interviews with Patients in the United Kingdom, France, and Germany10
Valuing End-of-Life Care for Older People with Advanced Cancer: Is Dying at Home Important?10
What Author Instructions Do Health Journals Provide for Writing Plain Language Summaries? A Scoping Review10
A Standard Set of Value-Based Patient-Centered Outcomes and Measures of Overall Health in Adults10
Interpreting Within-Patient Changes on the EORTC QLQ-C30 and EORTC QLQ-LC139
Patients’ Preferences for Connected Insulin Pens: A Discrete Choice Experiment Among Patients with Type 1 and Type 2 Diabetes9
Methodological Priorities for Patient Preferences Research: Stakeholder Input to the PREFER Public–Private Project9
Don’t Forget the Caregivers! A Discrete Choice Experiment Examining Caregiver Views of Integrated Youth Services9
A Comparison of Caregiver and Patient Preferences for Treating Duchenne Muscular Dystrophy9
An Evidence-Based Theory About PRO Use in Kidney Care: A Realist Synthesis9
FDA Guidance on Selecting, Developing, or Modifying Fit-for-Purpose Clinical Outcome Assessments: Old Wine in a New Bottle?9
Designing HIV Testing and Self-Testing Services for Young People in Nigeria: A Discrete Choice Experiment9
Should I Have Adjuvant Immunotherapy? An Interview Study Among Adults with Resected Stage 3 Melanoma and Their Partners9
Mobilising the Next Generation of Stated-Preference Studies: the Association of Access Device with Choice Behaviour and Data Quality9
Systematic Review of the Effect of a One-Day Versus Seven-Day Recall Duration on Patient Reported Outcome Measures (PROMs)8
The Impact of Patient Support Programs in Europe: A Systematic Literature Review8
Improvements to Survey Design from Pilot Testing a Discrete-Choice Experiment of the Preferences of Persons Living with HIV for Long-Acting Antiretroviral Therapies8
Pretesting Discrete-Choice Experiments: A Guide for Researchers8
Understanding Attributes that Influence Physician and Caregiver Decisions About Neurotechnology for Pediatric Drug-Resistant Epilepsy: A Formative Qualitative Study to Support the Development of a Dis8
Comparing Patient Preferences for Antithrombotic Treatment During the Acute and Chronic Phases of Myocardial Infarction: A Discrete-Choice Experiment8
Process- and Outcome-Based Financial Incentives to Improve Self-Management and Glycemic Control in People with Type 2 Diabetes in Singapore: A Randomized Controlled Trial8
How to Present a Decision Object in Health Preference Research: Attributes and Levels, the Decision Model, and the Descriptive Framework7
Patient Preferences in Rare Diseases: A Qualitative Study in Neuromuscular Disorders to Inform a Quantitative Preference Study7
Willingness to Wait for a Vaccine Against COVID-19: Results of a Preference Survey7
The Impact of the Risk Functional Form Assumptions on Maximum Acceptable Risk Measures7
Patient Perspectives and Experiences of Preventive Treatments and Self-Injectable Devices for Migraine: A Focus Group Study7
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