OOIR: Observatory of International Research

Papers

(The TQCC of Journal of Intellectual Disability Research is 4. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-03-01 to 2024-03-01.)

Article	Citations
Examining the impact of COVID‐19 in ethnically diverse families with young children with intellectual and developmental disabilities	212
Changes in access to educational and healthcare services for individuals with intellectual and developmental disabilities during COVID‐19 restrictions	176
The use of online support by people with intellectual disabilities living independently during COVID‐19	57
COVID‐19 impact on psychological outcomes of parents, siblings and children with intellectual disability: longitudinal before and during lockdown design	45
Perceptions of people with intellectual and developmental disabilities about COVID‐19 in Spain: a cross‐sectional study	45
Impact of the initial response to COVID‐19 on long‐term care for people with intellectual disability: an interrupted time series analysis of incident reports	39
Supporting individuals with intellectual and developmental disability during the first 100 days of the COVID‐19 outbreak in the USA	37
Weight status and associated comorbidities in children and adults with Down syndrome, autism spectrum disorder and intellectual and developmental disabilities	35
Coronaviruses and people with intellectual disability: an exploratory data analysis	32
Cause of death in adults with intellectual disability in the United States	32
A meta‐analysis of the executive function components inhibition, shifting, and attention in intellectual disabilities	30
Exploring the experiences of siblings of adults with intellectual/developmental disabilities during the COVID‐19 pandemic	28
Experiences of mothers caring for a child with an intellectual disability during the COVID‐19 pandemic in the Netherlands	27
Mortality of people with intellectual disabilities during the 2017/2018 influenza epidemic in the Netherlands: potential implications for the COVID‐19 pandemic	27
The impact of COVID‐19 on the social inclusion of older adults with an intellectual disability during the first wave of the pandemic in Ireland	27
The association between challenging behaviour and symptoms of post‐traumatic stress disorder in people with intellectual disabilities: a Bayesian mediation analysis approach	23
Parenting experiences of fathers of children with autism spectrum disorder with or without intellectual disability	20
Polypharmacy and psychotropic polypharmacy in adults with intellectual disability: a cross‐sectional total population study	19
Participation in sport and physical activity in adults with intellectual disabilities	18
A randomised clinical pilot trial to test the effectiveness of parent training with video modelling to improve functioning and symptoms in children with autism spectrum disorders and intellectual disa	18
A systematic review of the behaviours associated with depression in people with severe–profound intellectual disability	16
Non‐pharmacological interventions for challenging behaviours of adults with intellectual disabilities: A meta‐analysis	15
Correlates of physical activity in children and adolescents with intellectual disabilities: a systematic review	15
The effect of 8 weeks of freestyle swim training on the functional fitness of adults with Down syndrome	15
Behavioural change in Prader–Willi syndrome during COVID‐19 pandemic	14

Beliefs regarding COVID‐19 vaccines among Canadian workers in the intellectual disability sector prior to vaccine implementation	14
Societal cost of childhood intellectual disability in Australia	14
Biopsychosocial factors associated with depression and anxiety in older adults with intellectual disability: results of the wave 3 Intellectual Disability Supplement to The Irish Longitudinal Study on	14
The impact of multicomponent programmes on balance and fall reduction in adults with intellectual disabilities: a randomised trial	13
Evaluating working memory outcome measures for children with Down syndrome	13
Latent profiles of autism symptoms in children and adolescents with Down syndrome	12
Sensory processing profiles and autistic symptoms as predictive factors in autism spectrum disorder and Williams syndrome	12
Development, behaviour and sensory processing in Marshall–Smith syndrome and Malan syndrome: phenotype comparison in two related syndromes	12
An observational cohort study of numbers and causes of preventable general hospital admissions in people with and without intellectual disabilities in England	12
Anthropometry does not fully explain low fitness among adults with Down syndrome	11
Cancer diagnoses among older people with intellectual disability compared with the general population: a national register study	11
Language and executive functioning in young adults with Down syndrome	11
Medical conditions of children and young people with Down syndrome	11
Diagnostic yield of whole‐exome sequencing in non‐syndromic intellectual disability	11
The impact of the COVID‐19 pandemic on the health of adults with intellectual impairment: evidence from two longitudinal UK surveys	11
Concordance of the Adaptive Behavior Assessment System, second and third editions	11
A prospective study of hospital episodes of adults with intellectual disability	10
The impact of emotional development in people with autism spectrum disorder and intellectual developmental disability	10
Psychotropic medications use and side effects of individuals with intellectual and developmental disabilities	10
Overweight/obesity and chronic health conditions in older people with intellectual disability in Ireland	10
Exposure to challenging behaviours and burnout symptoms among care staff: the role of psychological resources	10
Shedding light on light exposure in elderly with intellectual disabilities	10
Exploration of diet, physical activity, health knowledge and the cardiometabolic profile of young adults with intellectual disability	10
Shared decision‐making with people with intellectual disabilities in the last phase of life: A scoping review	10
Using linked administrative data to determine the prevalence of intellectual disability in adult prison in New South Wales, Australia	10
Advances in the assessment of self‐determination: internal structure of a scale for people with intellectual disabilities aged 11 to 40	9
Psychosocial and cultural needs of children with intellectual disability and their families among the Syrian refugee population in Turkey	9
Co‐occurring medical and behavioural conditions in children with Down syndrome with or without ADHD symptom presentation	9
The effect of the adapted soccer programme on motor learning and psychosocial behaviour in adolescents with Down syndrome	9
Efficacy and safety of methylphenidate on attention deficit hyperactivity disorder in children with Down syndrome	9
Down syndrome caregivers' support needs: a mixed‐method participatory approach	9
The willingness of UK adults with intellectual disabilities to take COVID‐19 vaccines	9
Prevalence of psychotropic medication and factors associated with antipsychotic treatment in adults with intellectual disabilities: a cross‐sectional, epidemiological study in Germany	8
A distinct cognitive profile in individuals with 3q29 deletion syndrome	8
Reactivity to accelerometer measurement of youth with moderate and severe intellectual disabilities	8
The LEDs move pilot study: the Light Curtain and physical activity and well‐being among people with visual and intellectual disabilities	8
Using behavioural skills training via telehealth to increase teachers use of communication interventions and increase student use of speech‐generating devices in a high school functional skills classr	8
Metabolic syndrome and its components in people with intellectual disability: a meta‐analysis	8
How do multimorbidity and lifestyle factors impact the perceived health of adults with intellectual disabilities?	8
Feasibility of a syndrome‐informed micro‐intervention for infants with Down syndrome	8
Mental health and COVID‐19: The impact of a virtual course for family caregivers of adults with intellectual and developmental disabilities	8
Coercive parenting: modifiable and nonmodifiable risk factors in parents of children with developmental disabilities	8
Cognitive profile of young children with Williams syndrome	8
Electroencephalographic functional connectivity is altered in persons with Down syndrome and Alzheimer's disease	7
Factor structure of the professional quality of life scale among direct support professionals: factorial validity and scale reliability	7
Family‐based social capital of emerging adults with and without mild intellectual disability	7
Goal‐directed action planning in infants with Down syndrome	7
Healthcare utilisation and unmet health needs in children with intellectual disability: a propensity score matching approach using longitudinal cohort data	7
Comparative analysis of self‐injurious behaviour topographies in young children with and without developmental delay	7
An exploratory study of self‐reported complicated grief symptoms in parentally bereaved adults with intellectual disability	7

Mental ill‐health in mothers of people with intellectual disabilities compared with mothers of typically developing people: a systematic review and meta‐analysis	7
A socio‐emotional analysis of technology use by people with intellectual disabilities	7
Executive functions and their relationship with intellectual capacity and age in schoolchildren with intellectual disability	7
Physical activity and sedentary behaviour among children and adolescents with intellectual disabilities during the COVID‐19 lockdown in China	6
A systematic review of behaviour analytic interventions for young children with intellectual disabilities	6
Executive functions and adaptive behaviour in individuals with Down syndrome	6
Feasibility and reliability of the Assessing Levels of Physical Activity health‐related fitness test battery in adults with intellectual disabilities	6
Executive function and intellectual disability: innovations, methods and treatment	6
Validation of the Japanese version of the Dementia Screening Questionnaire for Individuals with Intellectual Disabilities	6
A systematic review of relationships and sex education outcomes for students with intellectual disability reported in the international literature	6
Changes in community and hospital‐based health care use during the COVID‐19 pandemic for adults with and without intellectual and developmental disabilities	6
Neurocognitive functioning of children with mild to borderline intellectual disabilities and psychiatric disorders: profile characteristics and predictors of behavioural problems	6
Diagnostic yield of microarrays in individuals with non‐syndromic developmental delay and intellectual disability	6
Social and community inclusion outcomes for adults with autism with and without intellectual disability in Australia	6
Identifying dementia in Down syndrome with the Severe Impairment Battery, Brief Praxis Test and Dementia Scale for People with Learning Disabilities	6
Risk of anticholinergic burden in adults with intellectual disabilities: a Scottish retrospective cohort study of n = 17 220	6
Infant precursors of executive function in Down syndrome	6
Cognitive assessment using the Rapid Assessment for Developmental Disabilities, Second Edition (RADD‐2)	6
Caregiver knowledge of obstructive sleep apnoea in Down syndrome	6
Physical activity, sedentary behaviour and screen time among youths with Down syndrome during the COVID‐19 pandemic	6
Factors associated with the reporting of Down syndrome as the underlying cause of death on US death certificates	5
A survey study of the attitudes and experiences of adults with intellectual disability regarding participation in research	5
Racial‐ethnic differences in educational trajectories for individuals with intellectual disability	5
Changes in physical activity across a 6‐month weight loss intervention in adolescents with intellectual and developmental disabilities	5
Association of BDNF levels with IQ: comparison of S100B and BDNF levels in typically developing children and subjects with neurologically normal nonsyndromic intellectual disability	5
Reconciling communication repertoires: navigating interactions involving persons with severe/profound intellectual disability, a classic grounded theory study	5
Borderline intellectual functioning: an increased risk of severe psychiatric problems and inability to work	5
Intrapersonal, interpersonal and environmental correlates of moderate to vigorous physical activity and sedentary time in adolescents with intellectual and developmental disabilities	5
Family quality of life among Taiwanese children with developmental delay before and after early intervention	5
Relationships among gastrointestinal symptoms, sleep problems, challenging behaviour, comorbid psychopathology and autism spectrum disorder symptoms in children and adolescents with 15q duplication sy	5
Trends and predictions for survival and mortality in individuals with Down syndrome in Brazil: A 21‐year analysis	5
Individual and contextual predictors of retention in Special Olympics for youth with intellectual disability: who stays involved?	5
Promoting self‐determination of persons with severe or profound intellectual disabilities: a systematic review and meta‐analysis	5
Oral health care and service utilisation in individuals with Rett syndrome: an international cross‐sectional study	5
Comparison of forward and backward gait in males with and without intellectual disabilities	5
Effects of classroom‐based active breaks on cognition, sitting and on‐task behaviour in children with intellectual disability: a pilot study	5
Prevalence of overweight and obesity in children and adolescents with intellectual disabilities in China	4
Caregiver‐reported executive functioning and associated adaptive and challenging behaviour in children with histories of developmental delay	4
Comparison of uniaxial and triaxial accelerometer outputs among individuals with and without Down syndrome	4
Dental attendance, restoration and extractions in adults with intellectual disabilities compared with the general population: a record linkage study	4
Health in Down syndrome: creating a conceptual model	4
Two novel pathogenic variants in MED13L: one familial and one isolated case	4
Training support workers about the overmedication of people with intellectual disabilities: an Australian pre–post pilot study	4
Involving adolescents with intellectual disability in the adaptation of self‐reported subjective well‐being measures: participatory research and methodological considerations	4
Executive function as measured by the Behavior Rating Inventory of Executive Function‐2: children and adolescents with Williams syndrome	4
A preliminary study of cerebral blood flow, aging and dementia in people with Down syndrome	4
Parent perceptions regarding literacy instruction for students with intellectual disability	4
Family‐systems interventions for families of people with an intellectual disability or who are autistic: a systematic review	4
An international field study of the ICD‐11 behavioural indicators for disorders of intellectual development	4
An international study of public contact with people who have an intellectual disability	4
A 12‐week exercise programme has a positive effect on everyday executive function in young people with Down syndrome: a pilot non‐randomised controlled trial	4
Intellectual disabilities moderate sex/gender differences in autism spectrum disorder: a systematic review and meta‐analysis	4
Hyperactive behaviour in Angelman syndrome: the association with sleep problems and age of epilepsy onset	4
Updated profiles of everyday executive function in youth with Down syndrome using the BRIEF‐2	4
Working memory training in children with borderline intellectual functioning and neuropsychiatric disorders: a triple‐blind randomised controlled trial	4
A pilot randomised controlled trial of befriending by volunteers in people with intellectual disability and depressive symptoms	4
Survival of children and adolescents with intellectual disability following gastrostomy insertion	4
Light up: an intervention study of the effect of environmental dynamic lighting on sleep–wake rhythm, mood and behaviour in older adults with intellectual disabilities	4
Comparing the fundamental movement skill proficiency of children with intellectual disabilities and typically developing children: a systematic review and meta‐analysis	4
‘We need to share our stories’: the lives of Pakistanis with intellectual disability and their guardians	4
The association between medication use and gait in adults with intellectual disabilities	4
The intellectual and developmental disability shared citizenship paradigm: its cross‐cultural status, implementation and confirmation	4