OOIR: Observatory of International Research

Papers

(The TQCC of Journal of Intellectual Disability Research is 4. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2022-08-01 to 2026-08-01.)

Article	Citations
Issue Information	68
Psychological Distress Trajectories of Parents of Children With Developmental Disabilities Participating in a Parenting Intervention	54
Assessment of dental and periodontal indices and Streptococcus mutans virulence in fragile X syndrome patients	49
Factors Associated With the Receipt of Female Breast Cancer Treatment Among People Living With Intellectual or Developmental Disabilities: A Population‐Based Retrospective Cohort Study	28
Psychometric properties of measures designed to assess common mental health problems and wellbeing in adults with intellectual disabilities: a systematic review	26
Sleep in people with and without intellectual disabilities: a systematic review and meta‐analysis	25
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Association of behavioural and social–communicative profiles in children with 16p11.2 copy number variants: a multi‐site study	19
Parental Feeding Styles, Parental Feeding Practices and Obesity Among Children With and Without Intellectual Disabilities	19
Accelerometer Output and Oxygen Uptake in Adults With and Without Down Syndrome: METs vs. Percent VO_2Reserve	19
Outcomes of an Intervention Programme for People With Intellectual Disabilities and Behavioural Concerns Based on Emotional Development	18
Assessment of Cardiometabolic Risk Factors in Children With Down Syndrome With Normal Weight: A Comparative Study Against a Non–Down Syndrome Cohort	17
A meta‐analytic review of attitudes towards the sexuality of adults with intellectual disabilities as measured by the ASQ‐ID and related variables: Is context the key?	17
Clinical Models of Care for Adults With Intellectual Disabilities in Forensic Mental Health Services: A Scoping Review	16
Assessing the Diagnostic Performance of Triglyceride–Glucose–Based Indices for Early Detection of Metabolic Syndrome in Paediatric Down Syndrome	16
Psychometric properties of two ADHD rating scales used in children with ADHD and intellectual disability	16
What Constitutes Effective Support and Provision Within Day Service Centres for People With Intellectual Disabilities? A Systematic Review of Qualitative Research	16
Health in Down syndrome: creating a conceptual model	16
Unlocking Vision Care Accessibility: Evaluating Caregivers' Willingness to Pay in Specialised Eye Clinics for Family Members With Intellectual Disabilities	16
Exploring the psychometric properties of the Intellectual Disability versions of the Short Warwick–Edinburgh Mental Wellbeing Scale and Kidscreen10, self‐reported by adolescents with intellectual disa	15
The associations among executive planning, self‐determination, and quality of life in adolescents with intellectual disability	15
Reliability and Validity of Questionnaires to Assess Communication Skills in People With Intellectual Disabilities: A Systematic Review	14
Issue Information	14
Prompted Voiding Utilising Toilet Alarms and Individual Toileting Plans for Adults With an Intellectual Disability And Incontinence	14

Keynote Abstracts for Presentation at the SSBP 27th International Research Symposium and Educational Day, Amsterdam, the Netherlands	14
Determining the neurocognitive profile of children with tuberous sclerosis complex within the Western Cape region of South Africa	13
Oral Health and Pneumonia in Adults With Intellectual and Developmental Disabilities: A Scoping Review	13
Community and Hospital Healthcare Use by Adults With and Without Intellectual and Developmental Disabilities in Ontario, Canada, During the First 2 Years of the COVID‐19 Pandemic	13
Web‐based training intervention to increase physical activity level and improve health for adults with intellectual disability	13
A retrospective cohort study of prescription drug use among youth with intellectual/developmental disabilities in British Columbia	12
Self‐esteem and its relationship with depression and anxiety in adults with intellectual disabilities: a systematic literature review	12
Predictive Validity of the Brøset Violence Checklist in a Secured Institution for Offenders With Intellectual Disabilities	12
Shorter Telomeres and Faster Telomere Attrition in Individuals With Five Syndromic Forms of Intellectual Disability: A Systematic Review and Meta‐Analysis	12
Cognitive dysfunction and psychopathology: a cohort study of adults with intellectual developmental disorder	12
Brief report comparing the Scale of Emotional Development – Short (SED‐S) with other scales for emotional development	11
Wellbeing of Family Carers of Adults With Intellectual Disabilities During the COVID‐19 Pandemic in the UK: Longitudinal Study	11
Issue Information	11
Judging Offenders With Intellectual Disabilities: Systematic Review of Criminal Justice System Professionals' Expressed Views and Attitudes Towards Offenders With Intellectual Disabilities	11
Issue Information	10
Automated sleep staging in people with intellectual disabilities using heart rate and respiration variability	10
Developmental Profile and Variability in Preschool‐Age Children With Down Syndrome	10
Issue Information	10
Factors related to parenting styles of Chinese mothers of children with and without intellectual disability	10
Development and Validation of the Outcomes of WeLlbeing and Distress Scale for Adults With an Intellectual Disability (OWLS‐ID), Formally Known as the PTOS‐ID	10
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Mental health and COVID‐19: The impact of a virtual course for family caregivers of adults with intellectual and developmental disabilities	10
Calibration of hip accelerometers for measuring physical activity and sedentary behaviours in adults with Down syndrome	10
The prospective associations between autonomy support, basic psychological needs, motivation and well‐being among people with a mild to borderline intellectual disability: a two‐wave study	10
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Reliability of the Dutch Version of the Matson Evaluation of Drug Side Effects in People With Intellectual Disabilities	9
Evaluating the Clinical Applicability of Multifrequency Bioelectrical Impedance Analysis for Nutritional Status Prediction in Hospitalized Persons With Severe Motor and Intellectual Disabilities	9
PTSD Symptoms After Traumatic Versus Stressful Life Events in People With Mild Intellectual Disabilities: Proving the Null	9
Issue Information	9
Description of Common Ailments and Nonprescription Medications Found in Medication Reviews for People With Intellectual Disability	8
Performance‐Based Executive Functions Predict Internalising but Not Externalising Maladaptive Behaviour in Students With ID	8
Emphasising Learning in Health Promotion Targeting Individuals With Intellectual Disabilities	8
Causes of mortality among adults with Down syndrome before and after the COVID‐19 pandemic in Spain	8
The needs of family members of people with severe or profound intellectual disabilities when collaborating with healthcare professionals: a systematic review	8
Issue Information	8
Antipsychotic Use Among Intellectually Disabled Individuals With Rare Genetic Variants That Confer Risk for Schizophrenia	8
Parents' Experiences and Expectations From Physiotherapy for Children With Down Syndrome: A Scoping Review	8
Prevalence of intellectual disability among adults born in the 1980s and 1990s in the United States	8
Cut‐off points for isometric handgrip and low limb explosive strength in relation to indicators of overweight/obesity in people with intellectual disabilities: analysis by age groups	8
Feasibility of Physical Fitness Measurements in Older Adults With Intellectual Disabilities Within Two Large Cohort Studies: The HA‐ID and IDS‐TILDA Study	8
	7
IASSIDD 2024	7
Unique profile of academic learning difficulties in Wiedemann–Steiner syndrome	7
Phenotyping Down syndrome: discovery and predictive modelling with electronic medical records	7
Association of muscular strength with total and central adiposity in adolescents with intellectual disability	7
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Prader–Willi syndrome in a large sample from Spain: general features, obesity and regular use of psychotropic medication	7
SSBP 26th International Research Symposium, Bali, Indonesia: Abstracts for presentation	7
Characterising repetitive behaviours in children and adolescents with Down syndrome	7
Issue Information	7

Factors Affecting Psychiatric Bed Utilisation by People With Intellectual Disabilities: A Time Series Analysis Using the English National Mental Health Services Data Set	6
Issue Information	6
Preliminary assessment of the reliability and validity of infrared skin temperature measurements in Rett syndrome	6
Using UNICEF's Early Child Development Index 2030 to Identify Young Children With Significant Cognitive Delay	6
Issue Information	6
Stressful life events, post‐traumatic stress disorder symptoms and mental health in individuals with intellectual disabilities: a scoping review	6
Cancer risk‐factor and symptom awareness among adults with intellectual disabilities, paid and unpaid carers, and healthcare practitioners: a scoping review	6
Prediction of obstructive sleep apnoea in children and adolescents with Down syndrome	6
Feasibility study of a parent‐driven intervention for youth with Down syndrome	6
Healthcare Utilisation and Barriers and Facilitators of Healthcare Access for Young People With Intellectual Disability: A Systematic Review	6
From Concerns to Care: Understanding Parental Priorities and Access to Early Intervention for Infants With Fragile X Syndrome	6
Comparing the fundamental movement skill proficiency of children with intellectual disabilities and typically developing children: a systematic review and meta‐analysis	6
Online Health Literacy Resources for People With Intellectual Disability: A Grey Literature Scoping Review	5
Characterising the social interaction style of autism in young adult males with fragile X syndrome	5
Resting Energy Expenditure in Adults With Williams Syndrome: Comparative Accuracy of Predictive Equations	5
Values of Individuals With Rare Genetic Neurodevelopmental Disorders and Their Family/Caregivers in Healthcare: A Scoping Review to Inform Guideline Development	5
The prevalence of significant cognitive delay among 3‐ to 4‐year‐old children growing up in low‐ and middle‐income countries: results from 126 nationally representative surveys undertaken in 73 countr	5
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Growth‐related changes in the influence of obesity on signs suggesting sleep‐disordered breathing and sleepiness in young individuals with Down syndrome	5
Caregiver knowledge of obstructive sleep apnoea in Down syndrome	5
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The Intellectual Disability Frailty Index Predicts 10‐Year Mortality Within the HA‐ID Cohort	5
Resting energy expenditure in adolescents with Down syndrome: a comparison of commonly used predictive equations	5
Issue Information	5
Criterion Validity, Scalability and Stability of Scoring on the Bayley‐III in Children With Angelman Syndrome	5
Parental Stress and Family Quality of Life in Families of Individuals Living With Angelman Syndrome	5
Lifting Limits: The Impact of Strength Training in Down Syndrome—A Systematic Review and Meta‐Analysis	5
Issue Information	5
Celiac disease in children and adolescents with Down syndrome: behavioural, adaptive and sleep profiles	5
Cognitive and Adaptive Functioning of CTNNB1 Syndrome Patients: A Comparison With Autism Spectrum Disorder and Cerebral Palsy	5
Prevalence of orthopaedic conditions in Rett syndrome: a systematic review and meta‐analysis	5
Effectiveness of Interventions to Increase Physical Activity and Reduce Sedentary Behaviour in Children and Adolescents With Intellectual Disabilities: A Systematic Review and Meta‐Analysis of Randomi	5
Micronutrient status in children and adolescents with Down syndrome: systematic review and meta‐analysis	5
Issue Information	5
EAMHID 2025	5
	5
Effects of person‐centred planning and practices on the health and well‐being of adults with intellectual and developmental disabilities: a multilevel analysis of linked administrative and survey data	5
Issue Information	5
Correction to “The needs of family members of people with severe or profound intellectual disabilities when collaborating with healthcare professionals: a systematic review”	5
Effective Translation Requires Effective Collaboration	5
Issue Information	4
Views and Experiences of Dementia in People With Intellectual Disabilities: A Systematic Review of Qualitative Research	4
Early developmental profiles among infants with Down syndrome	4
Attitude of elite tennis coaches working with athletes with intellectual disabilities participating in Special Olympics	4
Investigation of cardiopulmonary parameters, motor development and muscle strength in children with Down syndrome with and without congenital heart disease	4
Issue Information	4
Issue Information	4
Re‐visiting the ‘mysterious myth of attention deficit’: A systematic review of the recent evidence	4
Vocabulary and Syntactic Development in Japanese Children With Autism Spectrum Disorder and Down Syndrome Accompanied by Intellectual Disability	4
Structural Validity of the Psychopathology in Autism Checklist Among Children and Adolescents	4
Prevalence and Course of Anxiety and Depressive Symptoms in Adolescents With a Mild to Borderline Intellectual Disability, Inside and Outside Residential Treatment	4
Identifying Key Gaps: A Qualitative Exploration of Physicians‐in‐Training Caring for Adults With Intellectual and Developmental Disabilities	4
Prevalence of Psychotropic Use and Psychotropic Polypharmacy in a Finnish National Cohort of Persons With Intellectual Disabilities	4
Sexual Health Literacy Among Adults With Intellectual Disabilities: A Scoping Review	4
Impaired communication ability in SOX11 syndrome	4
Psychometric Properties of the Nine‐Item Personal Health Questionnaire (PHQ‐9) Seven‐Item Generalised Anxiety Disorder Scale (GAD‐7), and the Work and Social Adjustment Scale (WSAS) With People With I	4
The Mental Health and Well‐Being of Adults With Intellectual Disabilities During the COVID‐19 Pandemic Across the UK: A Four‐Wave Longitudinal Analysis	4
Measuring working alliance and technical alliance from the perspective of healthcare professionals working with people with mild intellectual disabilities: adaptation, factor structure and reliability	4
Feasibility, Test–Retest Reliability and Convergent Validity of the Two‐Minute Step Test in Older Adults With Intellectual Disabilities	4
‘It's especially good just to know that you're not the only one’: a qualitative study exploring experiences with online peer support programmes for the Fragile X community	4
Factors Associated With Depression in Caregivers of Adults With Down Syndrome	4
Secondary analysis of large quantitative datasets (or doing research with other people's data)	4
The physical and psychosocial impact of a school‐based running programme for adolescents with disabilities	4
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Issue Information	4