OOIR: Observatory of International Research

Papers

(The TQCC of Journal of Intellectual Disability Research is 4. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2021-11-01 to 2025-11-01.)

Article	Citations
Assessment of dental and periodontal indices and Streptococcus mutans virulence in fragile X syndrome patients	39
Issue Information	39
Sleep in people with and without intellectual disabilities: a systematic review and meta‐analysis	35
Psychometric properties of measures designed to assess common mental health problems and wellbeing in adults with intellectual disabilities: a systematic review	26
Psychological Distress Trajectories of Parents of Children With Developmental Disabilities Participating in a Parenting Intervention	20
Effects of exercise training on obesity‐related parameters in people with intellectual disabilities: systematic review and meta‐analysis	19
Assessment of Cardiometabolic Risk Factors in Children With Down Syndrome With Normal Weight: A Comparative Study Against a Non–Down Syndrome Cohort	18
Unlocking Vision Care Accessibility: Evaluating Caregivers' Willingness to Pay in Specialised Eye Clinics for Family Members With Intellectual Disabilities	18
	18
Association of behavioural and social–communicative profiles in children with 16p11.2 copy number variants: a multi‐site study	18
	17
Accelerometer Output and Oxygen Uptake in Adults With and Without Down Syndrome: METs vs. Percent VO_2Reserve	16
Clinical Models of Care for Adults With Intellectual Disabilities in Forensic Mental Health Services: A Scoping Review	16
Health in Down syndrome: creating a conceptual model	16
Exploring the psychometric properties of the Intellectual Disability versions of the Short Warwick–Edinburgh Mental Wellbeing Scale and Kidscreen10, self‐reported by adolescents with intellectual disa	16
Psychometric properties of two ADHD rating scales used in children with ADHD and intellectual disability	15
A meta‐analytic review of attitudes towards the sexuality of adults with intellectual disabilities as measured by the ASQ‐ID and related variables: Is context the key?	15
Keynote Abstracts for Presentation at the SSBP 27th International Research Symposium and Educational Day, Amsterdam, the Netherlands	14
The associations among executive planning, self‐determination, and quality of life in adolescents with intellectual disability	14
A retrospective cohort study of prescription drug use among youth with intellectual/developmental disabilities in British Columbia	14
Oral Health and Pneumonia in Adults With Intellectual and Developmental Disabilities: A Scoping Review	14
Outcomes of an Intervention Programme for People With Intellectual Disabilities and Behavioural Concerns Based on Emotional Development	14
Accelerometer‐based estimation of oxygen uptake in adults with Down syndrome: vector magnitude vs. vertical axis	13
Determining the neurocognitive profile of children with tuberous sclerosis complex within the Western Cape region of South Africa	13
Shorter Telomeres and Faster Telomere Attrition in Individuals With Five Syndromic Forms of Intellectual Disability: A Systematic Review and Meta‐Analysis	13

Predictive Validity of the Brøset Violence Checklist in a Secured Institution for Offenders With Intellectual Disabilities	13
A distinct cognitive profile in individuals with 3q29 deletion syndrome	13
Issue Information	13
Self‐esteem and its relationship with depression and anxiety in adults with intellectual disabilities: a systematic literature review	13
Feasibility of wearable technology for ‘real‐world’ gait analysis in children with Prader–Willi and Angelman syndromes	12
Cognitive dysfunction and psychopathology: a cohort study of adults with intellectual developmental disorder	12
Web‐based training intervention to increase physical activity level and improve health for adults with intellectual disability	12
Community and Hospital Healthcare Use by Adults With and Without Intellectual and Developmental Disabilities in Ontario, Canada, During the First 2 Years of the COVID‐19 Pandemic	12
Wellbeing of Family Carers of Adults With Intellectual Disabilities During the COVID‐19 Pandemic in the UK: Longitudinal Study	11
Judging Offenders With Intellectual Disabilities: Systematic Review of Criminal Justice System Professionals' Expressed Views and Attitudes Towards Offenders With Intellectual Disabilities	11
Issue Information	11
Calibration of hip accelerometers for measuring physical activity and sedentary behaviours in adults with Down syndrome	10
The prospective associations between autonomy support, basic psychological needs, motivation and well‐being among people with a mild to borderline intellectual disability: a two‐wave study	10
Issue Information	10
Automated sleep staging in people with intellectual disabilities using heart rate and respiration variability	10
Mental health and COVID‐19: The impact of a virtual course for family caregivers of adults with intellectual and developmental disabilities	10
Factors related to parenting styles of Chinese mothers of children with and without intellectual disability	10
Brief report comparing the Scale of Emotional Development – Short (SED‐S) with other scales for emotional development	10
Field‐based versus laboratory‐based estimates of muscle quality index in adolescents with and without Down syndrome	9
	9
Cognitive stimulation has potential for brain activation in individuals with Rett syndrome	9
Issue Information	9
	9
Issue Information	9
Evaluating the Clinical Applicability of Multifrequency Bioelectrical Impedance Analysis for Nutritional Status Prediction in Hospitalized Persons With Severe Motor and Intellectual Disabilities	9
The needs of family members of people with severe or profound intellectual disabilities when collaborating with healthcare professionals: a systematic review	8
Description of Common Ailments and Nonprescription Medications Found in Medication Reviews for People With Intellectual Disability	8
Cut‐off points for isometric handgrip and low limb explosive strength in relation to indicators of overweight/obesity in people with intellectual disabilities: analysis by age groups	8
PTSD Symptoms After Traumatic Versus Stressful Life Events in People With Mild Intellectual Disabilities: Proving the Null	8
Phenotyping Down syndrome: discovery and predictive modelling with electronic medical records	8
SSBP 26th International Research Symposium, Bali, Indonesia: Abstracts for presentation	8
Causes of mortality among adults with Down syndrome before and after the COVID‐19 pandemic in Spain	8
Reliability of the Dutch Version of the Matson Evaluation of Drug Side Effects in People With Intellectual Disabilities	8
Prevalence of intellectual disability among adults born in the 1980s and 1990s in the United States	8
Performance‐Based Executive Functions Predict Internalising but Not Externalising Maladaptive Behaviour in Students With ID	8
Issue Information	7
	7
Association of muscular strength with total and central adiposity in adolescents with intellectual disability	7
Stressful life events, post‐traumatic stress disorder symptoms and mental health in individuals with intellectual disabilities: a scoping review	7
Healthcare Utilisation and Barriers and Facilitators of Healthcare Access for Young People With Intellectual Disability: A Systematic Review	7
Unique profile of academic learning difficulties in Wiedemann–Steiner syndrome	7
IASSIDD 2024	7
Factors Affecting Psychiatric Bed Utilisation by People With Intellectual Disabilities: A Time Series Analysis Using the English National Mental Health Services Data Set	7
Prader–Willi syndrome in a large sample from Spain: general features, obesity and regular use of psychotropic medication	7
	7
Feasibility study of a parent‐driven intervention for youth with Down syndrome	6
Comprehensive cardiopulmonary profile of individuals with Down syndrome	6
Cancer risk‐factor and symptom awareness among adults with intellectual disabilities, paid and unpaid carers, and healthcare practitioners: a scoping review	6
Comparing the fundamental movement skill proficiency of children with intellectual disabilities and typically developing children: a systematic review and meta‐analysis	6
Characterising repetitive behaviours in children and adolescents with Down syndrome	6

Preliminary assessment of the reliability and validity of infrared skin temperature measurements in Rett syndrome	6
Using UNICEF's Early Child Development Index 2030 to Identify Young Children With Significant Cognitive Delay	6
Prediction of obstructive sleep apnoea in children and adolescents with Down syndrome	6
Involving adolescents with intellectual disability in the adaptation of self‐reported subjective well‐being measures: participatory research and methodological considerations	6
Issue Information	6
Issue Information	6
Micronutrient status in children and adolescents with Down syndrome: systematic review and meta‐analysis	6
EAMHID 2025	5
The Adapted Firesetting Assessment Scale: reliability and validity	5
	5
Issue Information	5
	5
	5
	5
Criterion Validity, Scalability and Stability of Scoring on the Bayley‐III in Children With Angelman Syndrome	5
‘It's especially good just to know that you're not the only one’: a qualitative study exploring experiences with online peer support programmes for the Fragile X community	5
Issue Information	5
Online Health Literacy Resources for People With Intellectual Disability: A Grey Literature Scoping Review	5
Resting energy expenditure in adolescents with Down syndrome: a comparison of commonly used predictive equations	5
	5
Prevalence of orthopaedic conditions in Rett syndrome: a systematic review and meta‐analysis	5
The prevalence of significant cognitive delay among 3‐ to 4‐year‐old children growing up in low‐ and middle‐income countries: results from 126 nationally representative surveys undertaken in 73 countr	5
Issue Information	5
Parental Stress and Family Quality of Life in Families of Individuals Living With Angelman Syndrome	5
Sexual Health Literacy Among Adults With Intellectual Disabilities: A Scoping Review	4
Investigation of cardiopulmonary parameters, motor development and muscle strength in children with Down syndrome with and without congenital heart disease	4
Caregiver knowledge of obstructive sleep apnoea in Down syndrome	4
Measuring working alliance and technical alliance from the perspective of healthcare professionals working with people with mild intellectual disabilities: adaptation, factor structure and reliability	4
Issue Information	4
Celiac disease in children and adolescents with Down syndrome: behavioural, adaptive and sleep profiles	4
Cognitive and Adaptive Functioning of CTNNB1 Syndrome Patients: A Comparison With Autism Spectrum Disorder and Cerebral Palsy	4
Issue Information	4
Secondary analysis of large quantitative datasets (or doing research with other people's data)	4
Re‐visiting the ‘mysterious myth of attention deficit’: A systematic review of the recent evidence	4
Growth‐related changes in the influence of obesity on signs suggesting sleep‐disordered breathing and sleepiness in young individuals with Down syndrome	4
Effects of person‐centred planning and practices on the health and well‐being of adults with intellectual and developmental disabilities: a multilevel analysis of linked administrative and survey data	4
Comparison of unmet health care needs in children with intellectual disability, autism spectrum disorder and both disorders combined	4
Attitude of elite tennis coaches working with athletes with intellectual disabilities participating in Special Olympics	4
Prevalence and Course of Anxiety and Depressive Symptoms in Adolescents With a Mild to Borderline Intellectual Disability, Inside and Outside Residential Treatment	4
Structural Validity of the Psychopathology in Autism Checklist Among Children and Adolescents	4
	4
Views and Experiences of Dementia in People With Intellectual Disabilities: A Systematic Review of Qualitative Research	4
Lifting Limits: The Impact of Strength Training in Down Syndrome—A Systematic Review and Meta‐Analysis	4
Behavioural phenomena in persons with an intellectual developmental disorder according to the level of emotional development	4
Characterising the social interaction style of autism in young adult males with fragile X syndrome	4
Early developmental profiles among infants with Down syndrome	4
Factors Associated With Depression in Caregivers of Adults With Down Syndrome	4
The Mental Health and Well‐Being of Adults With Intellectual Disabilities During the COVID‐19 Pandemic Across the UK: A Four‐Wave Longitudinal Analysis	4