Quality of Life Research

Papers
(The TQCC of Quality of Life Research is 6. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2021-12-01 to 2025-12-01.)
ArticleCitations
Trajectories of dyadic quality of life in young to middle-aged stroke couples: a longitudinal study109
Psychometric properties of patient-reported outcome measures assessing recovery from hand fractures: a systematic review83
Applicability of the PRISMA-COSMIN guidelines for systematic reviews of outcome measurement instruments to ISOQOL’s special interest group for clinical practice56
Functional and psychosocial impact of COVID-19 pandemic on rheumatic patients’ quality of life in Saudi Arabia55
A patient first perspective of sleep disturbance across therapeutic areas: a systematic literature review of qualitative studies47
Patient-reported mental health and well-being trajectories in oncology patients during radiation therapy: an exploratory retrospective cohort analysis using the Ontario Cancer Registry39
Mediational roles of stress-coping factors in the relationship between patient-perceived communication quality and physical functioning: racial difference between Chinese and Non-Hispanic White Americ39
Use of a generic Paediatric Patient Reported Outcome Measure (P-PROM) in Routine hospital Outpatient Care for Kids (ROCK): A qualitative exploration of adolescent, caregiver and service provider persp38
Development of algorithms for estimating the Child Health Utility 9D from Caregiver Priorities and Child Health Index of Life with Disabilities38
Psychometric properties of health-related quality of life instruments used in survivors of critical illness: a systematic review37
Commentary on “Predictors of survival among head and neck cancer patients after radiotherapy based on health-related quality of life indices and symptoms-specific outcomes: a systematic review”36
Valuing health‐related quality of life: an EQ‐5D‐5L value set for Morocco35
Can patient-reported data improve predictions about who will be a high-need, high-cost patient in British Columbia?34
Dynamics and determinants of long-term quality of life in children and adolescents with type 1 diabetes: real-world evidence from China29
Self-reported quality of recovery after radical prostatectomy—a prospective cohort study28
COSMIN reporting guideline for studies on measurement properties of patient‑reported outcome measures: version 2.026
Understanding the unique patient—causal singularism and patient reported outcomes26
Effect of caregiver burden on the quality of life of informal caregivers of people with cystic fibrosis in the United Kingdom: a cross-sectional study26
Quality of life among people living with mental illness and predictors in Africa: a systematic review and meta-analysis25
"I feel like my body is broken": exploring the experiences of people living with long COVID25
Comparative analysis of pediatric anxiety measures in clinical sample: evaluation of the PROMIS pediatric anxiety short forms24
Psychometric properties of kidney disease quality of life-36 (KDQOL-36) in dialysis patients in Indonesia24
One report, multiple aims: orthopedic surgeons vary how they use patient-reported outcomes with patients23
Measurement invariance of physical, mental, and social health PROMIS measures across individuals with spinal cord injury and traumatic brain injury23
Sexual health in Belgian cervical cancer survivors: an exploratory qualitative study23
Unsupervised item response theory models for assessing sample heterogeneity in patient-reported outcomes measures22
The prototype of a preference-based index of weight-related quality of life: demonstrating the possibilities22
What does better look like in individuals with severe neurodevelopmental impairments? A qualitative descriptive study on SCN2A-related developmental and epileptic encephalopathy22
Quality of mobility measures among individuals with acquired brain injury: an umbrella review22
Predictors of persistence of post-chemotherapy symptoms among survivors of solid tumor cancers21
Correction: Likely change indexes improve estimates of individual change on patient‑reported outcomes21
Common methods of determining meaningful change in clinical practice: implications for precision patient-reported outcomes21
Glycemic status and health-related quality of life (HRQOL) in populations at risk of diabetes in two Latin American cities21
Development of mapping algorithms for gastric cancer: translating EORTC QLQ-C30 and QLQ-STO22 to EQ-5D-5L health utilities21
Psychosocial factors associated with j-pouch surgery for patients with IBD: a scoping review21
Comparative evaluation of the health utilities index mark 3 and the short form 6D: evidence from an individual participant data meta-analysis of very preterm and very low birthweight adults21
Response to letters in QoLR20
Understanding the measurement relationship between EQ-5D-5L, PROMIS-29 and PROPr20
Sensitivity to change of generic preference-based instruments (EQ-5D-3L, EQ-5D-5L, and HUI3) in the context of treatment for people with prescription-type opioid use disorder in Canada20
Associations between 24-h movement behaviors and health-related quality of life(HRQoL) in preschool children: a cross-sectional study20
Bidirectional association between frailty and quality of life within English longitudinal study of aging20
Understanding diagnostic delays and health outcomes for inflammatory bowel disease: a mixed-methods study of patients’ perspectives20
Content validity and psychometric properties of the inFLUenza Patient-Reported Outcome Plus (FLU-PRO Plus©) instrument in patients with COVID-1920
Understanding health-related quality of life in Chinese infertility patients: a qualitative study20
Novel prognostic factors for successful treatment of pediatric chronic rhinosinusitis using the sinus and nasal quality of life survey (SN-5H)20
Patient-reported outcome measures for uncomplicated urinary tract infections in women: a systematic review20
Modifying the social responsiveness scale for adaptive administration19
What is the impact of home non-invasive ventilation on the health-related quality of life of patients with chronic obstructive pulmonary disease? A systematic review19
Translation and linguistic validation of 24 PROMIS item banks into French19
30th Annual Conference of the International Society for Quality of Life Research19
Effectiveness of unguided web-based interventions for the treatment of depressive symptoms in improving the quality of life: a meta-analysis18
Validation of the ecological momentary well-being instrument (EMOWI) in Canadian adolescents17
The effects of stigma and social support on the health-related quality of life of people with drug resistance tuberculosis in Lagos, Nigeria17
Correction: Quality of the adaptation procedures and psychometric properties of the scale of oral health outcomes for 5‑year‑old children (SOHO‑5): a systematic review17
Quality of life of primary caregivers by severity and control of children’s asthma: a systematic review and meta-analysis17
A scoping review of the use of visual tools and adapted easy-read approaches in Quality-of-Life instruments for adults17
A literature review exploring whether meaningful change threshold estimates for patient-reported outcome (PRO) measures vary depending on baseline severity17
Association of healthy eating behaviours and comorbidity on quality of life among adults with beta-thalassemia major: a moderation analysis17
Response shift results of quantitative research using patient-reported outcome measures: a descriptive systematic review17
Correction to: Resilience to health challenges is related to different ways of thinking: mediators of physical and emotional quality of life in a heterogeneous rare-disease cohort17
Measuring health-related quality of life among school adolescents across Chinese Human Geography Regions: psychometric validation and norm development of the Mandarin Chinese self-reported KID­SCREEN-17
Different effects between the current capability of and changes in self-management strategies on improving health behavior and psychological health after 6 months: evidence from a prospective cohort s16
Family functioning and health-related quality of life in children and young adults with Marfan syndrome16
How important is subjective well-being for patients? A qualitative interview study of people with psoriasis16
Advancing response-shift assessment: insights and directions from a series of ISOQOL SIG meetings16
Assessing the psychometric properties of quality of life measures in individuals with amyotrophic lateral sclerosis: a systematic review16
Use of the adult social care outcomes toolkit (ASCOT) in research studies: an international scoping review15
Patient-reported tolerability of adjuvant ipilimumab (3 or 10 mg/kg) versus high-dose interferon alfa-2b for resected high-risk stage III–IV melanoma in phase III trial E160915
Testing the added value of self-reported health and well-being in understanding healthcare utilization and costs15
Differences and common ground in the frameworks of health-related quality of life in traditional Chinese medicine and modern medicine: a systematic review15
Correction: The PROMIS-16 reproduces the PROMIS-29 physical and mental health summary scores accurately in a probability-based internet panel15
The relationship between memory and quality of life is mediated by trait anxiety in patients with temporal lobe epilepsy15
The Swedish version of the Anterior Cruciate Ligament Quality Of Life measure (ACL-QOL): translation and measurement properties15
Guideline for reporting systematic reviews of outcome measurement instruments (OMIs): PRISMA-COSMIN for OMIs 202414
A systematic review of quality of life (QoL) studies using the CASP scale in older adults14
Comprehensive assessment of pain characteristics, quality of life, and pain management in cancer patients: a multi-center cross-sectional study14
Quality of life outcomes for informal carers of long-term care service users in Austria, England and Finland14
A systematic review of health state utility values for older people with acute myeloid leukaemia14
Interventions for improving clinical outcomes and health-related quality-of-life for people living with skeletal dysplasias: an evidence gap map14
Impact of a minimal monitoring HCV treatment approach on Health-Related Quality of Life14
Measurement properties of utility-based health-related quality of life measures in cardiac rehabilitation and secondary prevention programs: a systematic review14
Correction to: Suitability of the animated activity questionnaire for use as computer adaptive test: establishing the AAQ‑CAT13
Time, age, gender and cultural measurement invariance of the CASP-12, a measure of psychological quality of life in adulthood13
Post COVID-19 infection and quality of life of healthcare workers at Sahloul University Hospital of Sousse in Tunisia13
Correction: How strong should my anchor be for estimating group and individual level meaningful change? A simulation study assessing anchor correlation strength and the impact of sample size, distribu13
Psychometric properties of the Spanish version of the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQ-C30)13
Associations between dyadic coping, mutuality, and quality of life among maintenance hemodialysis patients and caregivers: an actor–partner interdependence mediation model13
Item selection, scaling and construct validation of the Patient-Reported Inventory of Self-Management of Chronic Conditions (PRISM-CC) measurement tool in adults13
Adherence to daily electronic symptom screening in pediatric cancer: associations with time, location and pain13
Health-related quality of life after spontaneous subarachnoid hemorrhage – a prospective cohort study13
The influence of mode of remote delivery on health-related quality of life outcome measures in British Sign Language: a mixed methods pilot randomised crossover trial13
Proceedings of the 6th National Patient Reported Outcome Measures (PROMs) Annual UK Research Virtual Conference, Bridgend, Wales 202213
Comparison of EQ-5D-3L and 5L versions following operative fixation of closed ankle fractures13
Ankle fractures: a systematic review of patient-reported outcome measures and their measurement properties13
Understanding Canadian stakeholders’ views on measuring and valuing health for children and adolescents: a qualitative study12
Patient-reported outcomes and patient-reported outcome measures in liver transplantation: a scoping review12
Patient perspectives and preferences on cerclage and preterm birth: a focus group study12
Chronic physical conditions, physical multimorbidity, and quality of life among adults aged ≥ 50 years from six low- and middle-income countries12
Patient-reported outcome measures of musculoskeletal symptoms and psychosocial factors in musicians: a systematic review of psychometric properties12
Clinical cut-offs for hip- and knee arthroplasty outcome - minimal clinically important improvement (MCII) and patient acceptable symptom state (PASS) of patient-reported outcome measures (PROM)12
Minimally important changes do not always reflect minimally important change; moreover, there is no need for them12
Patient adherence and response time in electronic patient-reported outcomes: insights from three longitudinal clinical trials12
Perceived health- related quality of life in persons with multiple sclerosis with and without a vascular comorbidity12
An influence of menopausal symptoms on mental health, emotion perception, and quality of life: a multi-faceted approach12
Can EQ-5D-3L utility values of low back pain patients be validly predicted by the Oswestry Disability Index for use in cost-effectiveness analyses?12
Health state utilities associated with invasive pneumococcal disease, pneumonia, and recurrent acute otitis media in young children12
Differences in rating of health related quality of life on the EQ-5D-5 L between ethnic groups12
Neuropsychological and psychiatric outcomes among community-dwelling young Chinese older adults affected by falls in the past year with and without vision impairment12
Patients’ perspectives on irritable bowel syndrome: a qualitative analysis based on social media in China12
Differences in health-related quality of life between native and foreign-born gynaecological cancer patients in Sweden: a five-year cross-sectional study11
A random item effects generalized partial credit model with a multiple imputation-based scoring procedure11
Disutilities of treatment-related attributes for type 2 diabetes mellitus: a systematic review11
The relationship between healthcare access and change in health-related quality-of-life among the general population of five countries during the COVID-19 pandemic11
Systematic review of the needs and health-related quality of life domains relevant to people surviving cancer in Europe11
The effects of community-based home health care on the physical and mental health of older adults with chronic diseases11
Response to letters from the ISOQOL SIGs regarding PRISMA-COSMIN for OMIs 202411
Differential associations of emotional and physical domains of the MacNew Heart with changes in 6-min walking test11
Quality of life among community-dwelling older adults: evidence from a large population-based study in rural Sri Lanka11
Assessing sleep and pain among adults with myalgic encephalomyelitis/chronic fatigue syndrome: psychometric evaluation of the PROMIS® sleep and pain short forms11
Unmet Needs, Pain, Shame, Regret, and Loss of Identity among Men with Urethral Injuries Resulting from Traffic Accidents; A Qualitative Study11
Ethical and practical considerations related to data sharing when collecting patient-reported outcomes in care-based child health research11
Risk factors and intervention of caregiver burden in Parkinson’s disease: a systematic review and meta-analysis11
Statin withdrawal and health-related quality of life in a primary cardiovascular prevention cohort11
Quality of life among family caregivers of people with schizophrenia in rural China11
Normative profile of the EQ-5D-5L dimensions, EQ-5D-5L index and EQ-VAS scores for the general Thai population11
Quality of life in nasopharyngeal carcinoma survivors: a systematic review and meta-analysis of longitudinal outcomes11
Correction to: Active and sham transcranial direct current stimulation (tDCS) improved quality of life in female patients with fibromyalgia11
Design and implementation of data quality controls in the EQ-DAPHNIE study: insights from the pilot phase and 15-country analysis11
Health-related quality of life in parents of long-term childhood cancer survivors: a report from the Swiss Childhood Cancer Survivor Study - Parents11
Enhancing quality of life measurement: adapting the ASCOT easy read for older adults accessing social care10
Mapping the EORTC QLQ-C30 and QLQ H&N35 to the EQ-5D-5L and SF-6D for papillary thyroid carcinoma10
Predictive factors and quality of life assessment among patients with spinal cord injury in the Middle East: a systematic review10
A comparison between measurement properties of four shoulder-related outcome measures in Nepalese patients with shoulder pain10
Improving the patient-reported outcome sections of clinical trial protocols: a mixed methods evaluation of educational workshops10
Effects of an autonomy-supportive intervention programme (ASIP) on self-care, quality of life, and mental health in heart failure patients: a randomized controlled trial10
Longitudinal changes of health-related quality of life over 10 years in breast cancer patients treated with radiotherapy following breast-conserving surgery10
Patient-reported outcome (PRO) measurements in chronic and malignant diseases: ten years’ experience with PRO-algorithm-based patient-clinician interaction (telePRO) in AmbuFlex10
Criteria for developing, assessing and selecting candidate EQ-5D bolt-ons10
Identifying and developing culturally relevant EQ-5D-5L bolt-on items for Chinese population: qualitative phase of a mixed-methods study10
Conceptualizing meaningful between-group difference in change over time: a demonstration of possible viewpoints10
The use of composite time trade-off and discrete choice experiment methods for the valuation of the Short Warwick-Edinburgh Mental Well-being Scale (SWEMWBS): a think-aloud study10
What are the perspectives of patients with hand and wrist conditions, chronic pain, and patients recovering from stroke on the use of patient and outcome information in everyday care? A Mixed-Methods 10
The impact of care–recipient relationship type on health-related quality of life in community-dwelling older adults with dementia and their informal caregivers10
Health-related quality of life of people with heart failure in low- and middle-income countries: a systematic review and meta-analysis9
Evaluating an electronic patient-reported outcome monitoring system in patients with prostate cancer in routine clinical care: a prospective observational study9
Transitions in depression: if, how, and when depressive symptoms return during and after discontinuing antidepressants9
Patients’ experiences of responding to a Patient-Reported Outcome Measure for palliative care: a mixed method study9
Patient acceptable symptom state and treatment failure threshold values for work productivity and activity Impairment and EQ-5D-5L in osteoarthritis9
Healthcare consumer acceptability of routine use of the EQ-5D-5L in clinical care: a cross-sectional survey9
Cognitive interviewing for assessing the content validity of older-person specific outcome measures for quality assessment and economic evaluation: a scoping review9
How does the subjective well-being of Australian adults with a congenital corpus callosum disorder compare with that of the general Australian population?9
Estimating the EQ-5D-5L value set for the Philippines9
The mere-measurement effect of patient-reported outcomes: a systematic review and meta-analysis9
The associations between HIV stigma and mental health symptoms, life satisfaction, and quality of life among Black sexual minority men with HIV9
How to make PROMs work: qualitative insights from leaders at United States hospitals with successful PROMs programs9
Systematic reviews of patient-reported outcome measures (PROMs): table templates for effective communication9
Blood ammonia and eye-hand coordination negatively affect health-related quality of life in women with minimal hepatic encephalopathy9
Quality of life in a high-risk group of elderly primary care patients: characteristics and potential for improvement9
Knowledge translation concerns for the CONSORT-PRO extension reporting guidance: a review of reviews9
Validation of the bowel urgency numeric rating scale in patients with Crohn’s disease: results from a mixed methods study9
Mediating effect of post-stroke depression between activities of daily living and health-related quality of life: meta-analytic structural equation modeling9
Relationship between multimorbidity, functional limitation, and quality of life among middle-aged and older adults: findings from the longitudinal analysis of the 2013–2020 Survey of Health, Ageing, a9
Examining the psychometric properties of a split version of the EQ-5D-5L anxiety/depression dimension in patients with anxiety and/or depression9
Do generic population utility scores accurately represent real-world experienced health?9
Investigating item response theory model performance in the context of evaluating clinical outcome assessments in clinical trials9
The quality of life of frequently vs. infrequently screened HPV vaccinated women9
Understanding the influence of different proxy perspectives in explaining the difference between self-rated and proxy-rated quality of life in people living with dementia: a systematic literature revi8
Correction to: Development and initial validation of the health-related quality of life pictorial inventory for children (HEALTH-PIC)8
Patients’ experience on waiting for spinal arthrodesis: a qualitative study8
A landscape review to identify what matters to patients with thrombotic cardiovascular diseases and patient-reported outcome instruments which can be used to capture the patient experience8
Developing a utility value set for the Gambling Quality of Life Scale-Brief (GQoLS-Brief) using a discrete choice experiment8
Association between sleep quality and quality of life in Singapore8
Sexual quality of life in young gynaecological cancer survivors: a qualitative study8
Does context matter? A discrete choice experiment investigating the impact of palliative context on EQ-5D-5L health state valuation8
Examining tools for assessing the impact of chronic pain on emotional functioning in children and young people with cerebral palsy: stakeholder preference and recommendations for modification8
Assessing the reliability of a novel cancer-specific multi-attribute utility instrument (FACT-8D) and comparing its validity to EQ-5D-5L in colorectal cancer patients8
Socio-demographic disparities in health-related quality of life in hypertensive patients in Bangladesh: a comprehensive survey analysis8
German adult population norm values of the short Warwick Edinburgh mental well-being scale (SWEMWBS)8
A systematic review of patient-reported outcome measures (PROMs) to assess health-related quality of life (HRQoL) for breast cancer patients who are undertaking adjuvant endocrine therapy8
Living with cryptoglandular anal fistula: a qualitative investigation of the patient's experience through semi-structured patient interviews8
Correction: Development of an ultra-short measure of eight domains of health-related quality of life for research and clinical care: the patient-reported outcomes measurement information systemⓇ PROMI8
Health-related quality of life and caregiver burden of pediatric patients with inborn errors of metabolism in Japan using EQ-5D-Y, PedsQL, and J-ZBI8
Quality of life in the year after new diagnosis with advanced prostate cancer for Black and White individuals living in the US8
31st Annual Conference of the International Society for Quality of Life Research8
The psychometric properties of a caregiving-related strain scale in oncology8
The dyadic associations among self-efficacy, dyadic coping, and health-related quality of life between high-risk pregnant women and spouses: a cross-sectional study8
Quality-adjusted life years among people who inject drugs in a needle syringe program in Sweden8
Health-related quality of life in racial and ethnic minority adults with type 2 diabetes: validity and responsiveness of the EQ-5D-3L8
Equivalence of psychiatric structured interviews and symptom checklists in predicting health-related quality of life in children with chronic physical illness8
A composite measure for patient-reported outcomes in orthopedic care: design principles and validity checks8
Danish value sets for the EORTC QLU-C10D utility instrument8
Psychometric validation and interpretation of the Nocturia Impact Diary in a clinical trial setting8
The association between health-related quality of life, self-reported characteristics and 1- and 3-year mortality amongst cardiac patients with and without type 2 diabetes8
The effect of social care nurses on health related quality of life in patients with advanced cancer: A non-randomized, multicenter, controlled trial8
The comprehensibility and feasibility of the modified brief pain inventory and fear of pain questionnaire adapted for children and young people with cerebral palsy8
Comparison of patient-reported outcomes measurement information system (PROMIS®)-29 and PROMIS global physical and mental health scores8
Characteristics of patients diagnosed with pancreatic cancer who access palliative care: An observational study8
Trajectory of health-related quality of life during and after hospitalisation due to worsening of heart failure8
Symptom clusters and impact on quality of life in lung cancer patients undergoing chemotherapy7
Examining health-related quality of life in ambulatory adult patients with chronic heart failure: insights from Malaysia using EQ-5D-5L7
Reliability and validity of PRO-CTCAE® daily reporting with a 24-hour recall period7
Proxy reporting in health: a scoping review of instructions, perspectives, and reporting experiences7
Multimorbidity and health-related quality of life amongst Indigenous Australians: A longitudinal analysis7
Significant liver fibrosis is a predictor of poor health-related quality of life in people living with HIV7
Extending the PROMIS item bank “ability to participate in social roles and activities”: a psychometric evaluation using IRT7
Swallowing and quality of life in individuals with Marfan syndrome: a cross-sectional study7
Anchor-based minimal important difference values are often sensitive to the distribution of the change score7
Assessing and accounting for measurement in intensive longitudinal studies: current practices, considerations, and avenues for improvement7
Response shift in parent-reported psychopathology in children with chronic physical illness7
An investigation of the longitudinal trajectory patterns of health-related quality of life among Australians with disabilities: explaining disability types and properties7
The Cyprus Women’s Health Research (COHERE) initiative: normative data from the SF-36v2 questionnaire for reproductive aged women from the Eastern Mediterranean7
Enabling QALY estimation in mental health trials and care settings: mapping from the PHQ-9 and GAD-7 to the ReQoL-UI or EQ-5D-5L using mixture models7
Health-related quality of life due to malaria: a systematic review7
Comment on “PRISMA–COSMIN guidance for reporting systematic reviews of outcome measurement instruments”7
Parent/caregiver perspectives of meaningful improvement in functional domains for people with CDKL5 deficiency disorder: a mixed-methods study7
Correction to: Individual differences in the long-term impact of the pandemic: moderators of COVID-related hardship, worry, and social support7
Population-level norm values by EQ-5D-3L in Hungary - a comparison of survey results from 2022 with those from 20007
Twenty-five years of experience with patient-reported outcome measures in soft-tissue sarcoma patients: a systematic review7
Cross-sectional study examining psychometric properties of the Slovenian version of the 14-item Resilience Scale (RS-14-SL)7
Strategies to promote the completion of patient-reported outcome measures by culturally and linguistically diverse and Indigenous Peoples in clinical care settings: A systematic review7
Comparative analysis of pediatric depression measures in clinical sample: evaluation of the PROMIS pediatric depression short form7
Physical and mental health of breast cancer patients and survivors before and during successive SARS-CoV-2-infection waves7
The mediating role of appraisal on health-related quality of life in adolescent and young adult cancer survivors7
Validation of the FROM-16 in family members of patients receiving advanced therapy medicinal product (ATMP)7
Development and calibration data for the Medication Adherence Item Bank: a new computer adaptive test for persons with type 2 diabetes mellitus7
Tree-based item-response theory model for evaluating differential item functioning in patient-reported outcome measures: a web-based R Shiny implementation6
Recalling what we thought we knew about recall periods: a qualitative descriptive study of how adults diagnosed with cancer use recall periods for patient-reported outcome items about physical functio6
The moderating effect of family socioeconomic status in the relationship between health-related behaviors and quality of life among the Hakka older adults in Fujian, China6
China Health Related Outcomes Measures (CHROME): development of a descriptive system to support cardiovascular disease specific preference-based measure for the Chinese population6
The impact of dipeptidyl peptidase 4 inhibitors on health-related quality of life in patients with type 2 diabetes mellitus: a systematic review and meta-analysis6
Linking the RCADS-25 to the PROMIS® pediatric item banks Anxiety and Depressive Symptoms in a general Dutch population sample6
Health-related quality of life and medication use among individuals with Angelman syndrome6
A qualitative study to examine meaningful change in physical function associated with weight-loss6
Enabling six- to ten-year-old children to self-report their wellbeing and quality of life: development and psychometric investigation of an age-adapted and video-assisted version of the KIDSCREEN-276
Identifying potential action points for reducing kinesiophobia among atrial fibrillation patients: a network and DAG analysis6
Does the global activity limitation indicator measure participation restriction? Data from the European Health and Social Integration Survey in Spain6
Differences in quality-of-life scores across injury categories by mental health status among injured U.S. military service members and veterans6
Updating our understanding of health-related quality of life issues in children with cancer: a systematic review of patient-reported outcome measures and qualitative studies6
The effects of U.S. county and state income inequality on self-reported happiness and health are equivalent to zero6
Challenges in interpreting individual-level changes in health-related quality of life in patients with glioma using minimally important differences (MIDs) and a 4-point Likert scale6
Are OMERACT recommendations followed in clinical trials on fibromyalgia? A systematic review of patient-reported outcomes and their measures6
Mapping the 12-item World Health Organization disability assessment schedule 2.0 (WHODAS 2.0) onto the assessment of quality of life (AQoL)-4D utilities6
Psychometric properties, and cultural appropriateness, of patient reported outcome measures for use in primary healthcare: a scoping review6
International Society for Quality of Life Research commentary on the US Food and Drug Administration draft guidance for industry on core patient-reported outcomes in cancer clinical trials6
Quantifying bias due to missing data in quality of life surveys of advanced-stage cancer patients6
An international compendium of health state utilities in people with HIV: a systematic review6
Implications of the syntheses on definition, theory, and methods conducted by the Response Shift – in Sync Working Group6
Investigating gender-based differential item functioning on the Kansas City Cardiomyopathy Questionnaire (KCCQ) using qualitative content analysis6
Trajectory of health-related quality of life in parents of children treated with epilepsy surgery versus medical therapy6
Health-related quality of life in patients with newly diagnosed inflammatory bowel disease: an observational prospective cohort study (IBSEN III)6
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