OOIR: Observatory of International Research

Papers

(The H4-Index of Quality of Life Research is 28. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2022-08-01 to 2026-08-01.)

Article	Citations
Applicability of the PRISMA-COSMIN guidelines for systematic reviews of outcome measurement instruments to ISOQOL’s special interest group for clinical practice	339
Commentary on “Predictors of survival among head and neck cancer patients after radiotherapy based on health-related quality of life indices and symptoms-specific outcomes: a systematic review”	147
Self-reported quality of recovery after radical prostatectomy—a prospective cohort study	78
Effect of caregiver burden on the quality of life of informal caregivers of people with cystic fibrosis in the United Kingdom: a cross-sectional study	76
Understanding the unique patient—causal singularism and patient reported outcomes	74
Psychometric properties of patient-reported outcome measures assessing recovery from hand fractures: a systematic review	71
Psychometric properties of health-related quality of life instruments used in survivors of critical illness: a systematic review	67
Sexual health in Belgian cervical cancer survivors: an exploratory qualitative study	54
What does better look like in individuals with severe neurodevelopmental impairments? A qualitative descriptive study on SCN2A-related developmental and epileptic encephalopathy	53
Can patient-reported data improve predictions about who will be a high-need, high-cost patient in British Columbia?	47
Unsupervised item response theory models for assessing sample heterogeneity in patient-reported outcomes measures	45
Comparative analysis of pediatric anxiety measures in clinical sample: evaluation of the PROMIS pediatric anxiety short forms	43
The association among psychological factors, pain severity and quality of life in people living beyond adolescent and young adult cancer: a systematic review and meta-analysis	42
Development of algorithms for estimating the Child Health Utility 9D from Caregiver Priorities and Child Health Index of Life with Disabilities	38
Trajectories of dyadic quality of life in young to middle-aged stroke couples: a longitudinal study	35
Transcultural translation and adaptation of EuroQol’s EQ-5D-5L for Nepal: process description and recommendations for an interpretation guide	34
Impact of body weight on quality of life trajectories following metabolic bariatric surgery in individuals with obesity: a longitudinal study	34
Mediational roles of stress-coping factors in the relationship between patient-perceived communication quality and physical functioning: racial difference between Chinese and Non-Hispanic White Americ	32
Caregiver strain is strongly associated with health and family outcomes in military couples following traumatic brain injury in service members and veterans	31
A patient first perspective of sleep disturbance across therapeutic areas: a systematic literature review of qualitative studies	31
Patient-reported mental health and well-being trajectories in oncology patients during radiation therapy: an exploratory retrospective cohort analysis using the Ontario Cancer Registry	31
Associations influencing quality of life in caregivers of patients with amyotrophic lateral sclerosis: a stress-process model approach	30
Use of a generic Paediatric Patient Reported Outcome Measure (P-PROM) in Routine hospital Outpatient Care for Kids (ROCK): A qualitative exploration of adolescent, caregiver and service provider persp	30
Valuing health‐related quality of life: an EQ‐5D‐5L value set for Morocco	30
One report, multiple aims: orthopedic surgeons vary how they use patient-reported outcomes with patients	29

Development and psychometric evaluation of a new itch assessment questionnaire for use in multi-ethnic Asian population	29
Understanding determinants of patient-reported outcome measure non-response among transgender and gender diverse individuals: an intersectional multilevel analysis of sociodemographic and structural v	28
Psychometric properties of kidney disease quality of life-36 (KDQOL-36) in dialysis patients in Indonesia	28
Dynamics and determinants of long-term quality of life in children and adolescents with type 1 diabetes: real-world evidence from China	28
COSMIN reporting guideline for studies on measurement properties of patient‑reported outcome measures: version 2.0	28
Health-related quality of life in chronic kidney disease patients in low- and lower-middle income countries: a systematic review and meta-analysis	28
Qualitative testing of the EQ-HWB-9 with a ‘blank’ EQ-HWB VAS and EQ-5D-5L with skin bolt-ons in a rare genetic skin disease population	28
Quality of life among people living with mental illness and predictors in Africa: a systematic review and meta-analysis	28