OOIR: Observatory of International Research

Papers

(The TQCC of Palliative Medicine is 9. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2021-05-01 to 2025-05-01.)

Article	Citations
Facilitators and barriers in using comics to support family caregivers of patients receiving palliative care at home: A qualitative study	129
A tribute to Derek Doyle and Cynthia Goh	70
Assessing the suitability of the Carer Support Needs Assessment Tool (CSNAT-Paediatric) for use with parents of children with a life-limiting condition: A qualitative secondary analysis	68
Posttraumatic growth in palliative care settings: A scoping review of prevalence, characteristics and interventions	54
What are we planning, exactly? The perspectives of people with intellectual disabilities, their carers and professionals on end-of-life care planning: A focus group study	54
Complexity and function of family involvement in advance care planning: A qualitative study of perspectives from people living with advanced cancer, family members and healthcare professionals	48
Neuropalliative care for progressive neurological diseases: A scoping review on models of care and priorities for future research	48
Resilience in advanced cancer caregiving. A systematic review and meta-synthesis	48
Use of long term aprepitant as a treatment for refractory nausea following oesophageal stent insertion – a case report	47
Preserving the integrity of personhood in people with advanced cancer: An in-depth qualitative study among patients, relatives, and care professionals	47
Mixed methods process evaluation of an advance care planning intervention among nursing home staff	47
Prevalence of grief disorders in bereaved families of cancer patients: A meta-analysis	47
The COVID-19 pandemic: A tipping point for advance care planning? Experiences of general practitioners	44
Trends in quality of care and dying perceived by family caregivers of nursing home residents with dementia 2005–2019	41
Living experiences of people with advance cancer with low socioeconomic status: A systematic review of qualitative evidence	40
Impact of the COVID-19 pandemic on end of life care delivery in care homes: A mixed method systematic review	38
Effect of continuous deep sedation on survival in the last days of life of cancer patients: A multicenter prospective cohort study	36
“Walk me through the final day”: A thematic analysis study on the family caregiver experience of the Medical Assistance in Dying procedure day	36
Views of patients with progressive illness and carers about the role of digital advance care planning systems to record and share information: A qualitative study	36
How can we ensure the success of specialised palliative home-care? A qualitative study (ELSAH) identifying key issues from the perspective of patients, relatives and health professionals	34
Association between religious beliefs and discussions regarding advance care planning: A nationwide survey	34
Palliative care volunteering: Pressing challenges in research	32
Maybe for unbearable suffering: Diverse racial, ethnic and cultural perspectives of assisted dying. A scoping review	30
The experiences, perceptions, and support needs among family caregivers of patients with advanced cancer and eating problems: An integrative review	29
Parents’ experiences of being involved in medical decision-making for their child with a life-limiting condition: A systematic review with narrative synthesis	28

The utility of the surprise question: A useful tool for identifying patients nearing the last phase of life? A systematic review and meta-analysis	27
Adaptation and continuous learning: integrative review of coping strategies of palliative care professionals	27
A rapid review of end-of-life needs in the LGBTQ+ community and recommendations for clinicians	25
What is the role of paramedics in palliative and end of life care?	25
‘Sadly I think we are sort of still quite white, middle-class really’ – Inequities in access to bereavement support: Findings from a mixed methods study	25
Utilizing intricate care networks: An ethnography of patients and families navigating palliative care in a resource-limited setting	25
Organizational and individual barriers and facilitators to the integration of pediatric palliative care for children: A grounded theory study	24
The 13th World Research Congress of the European Association for Palliative Care	24
Corrigendum to Updating international consensus on best practice in care of the dying: A Delphi study	23
Facilitating equitable access to hospice care in socially deprived areas: A mixed methods multiple case study	23
Timely short-term specialized palliative care service intervention for older people with frailty and their family carers in primary care: Development and modelling of the frailty+ intervention using t	23
Conserving dignity and facilitating adaptation to dependency with intimate hygiene for people with advanced disease: A qualitative study	23
Identifying, exploring and integrating the spiritual dimension in proactive care planning: A mixed methods evaluation of a communication training intervention for multidisciplinary palliative care tea	22
Differences in palliative care needs between cancer patients and non-cancer patients at the start of specialized palliative care: A nationwide register-based study	21
Defining end of life in dementia: A systematic review	21
The problems of using migration background as a conceptual framework in palliative care research	21
How best to capture the impact of complementary therapies in palliative care: A systematic review to identify and assess the appropriateness and validity of multi-domain tools	20
Using the Delphi technique to achieve consensus on bereavement care in palliative care in Europe: An EAPC White Paper	20
How doctors actually (do not) involve families in decisions to continue or discontinue life-sustaining treatment in neonatal, pediatric, and adult intensive care: A qualitative study	20
Support from healthcare professionals in empowering family carers to discuss advance care planning: A population-based survey	20
The experience of nurses when providing care across acts that may be perceived as death hastening: A qualitative evidence synthesis	20
An emergency department nurse led intervention to facilitate serious illness conversations among seriously ill older adults: A feasibility study	19
A peripherally acting μ-opioid receptor antagonist for treating opioid-associated tinnitus: A case report	19
C-reactive protein and white blood cell count are adverse prognostic markers for patients with advanced cancer on parenteral nutrition in a palliative care unit setting: A retrospective cohort study	18
How much information is ‘reasonable’? A qualitative interview study of the prescribing practices of palliative care professionals	18
Improving palliative care for people with intellectual disabilities: Communication is key	17
Delirium prevention in hospices: Opportunities and limitations – A focused ethnography	17
The management of absolute iron deficiency anaemia in the palliative care population: A reply to Neoh et al.	17
What outcomes do studies use to measure the impact of prognostication on people with advanced cancer? Findings from a systematic review of quantitative and qualitative studies	17
Palliative care integration for patients with advanced chronic obstructive pulmonary disease (COPD): Identifying essential components using participatory action research	16
Machine learning models to detect social distress, spiritual pain, and severe physical psychological symptoms in terminally ill patients with cancer from unstructured text data in electronic medical r	16
Barriers and facilitators influencing referral and access to palliative care for children and young people with life-limiting and life-threatening conditions: a scoping review of the evidence	16
Re: Tan et al., Subcutaneous sodium valproate in palliative care: A systematic review	16
Sadness, despair and anger when a patient dies alone from COVID-19: A thematic content analysis of Twitter data from bereaved family members and friends	16
Education modalities for serious illness communication training: A scoping review on the impact on clinician behavior and patient outcomes	16
Integrating lived experiences of out-of-hours health services for people with palliative and end-of-life care needs with national datasets for people dying in Scotland in 2016: A mixed methods, multi-	16
Implementation of an acute palliative care unit for COVID-19 patients in a tertiary hospital: Qualitative data on clinician perspectives	15
Caring toward end of life through acute hospital and community partnerships: A scoping review	15
‘How long do you think?’ Unresponsive dying patients in a specialist palliative care service: A consecutive cohort study	15
“I think that she would have wanted. . .”: Qualitative interviews with bereaved caregivers reveal complexity in measuring goal-concordant care at the end of life	15
Bridging cultures in palliative care: A qualitative study of the care of Indigenous Australians with advanced illness	15
Factors associated with hospitalisations of patients with chronic heart failure approaching the end of life: A systematic review	15
Capturing what matters: A retrospective observational study of advance care planning documentation at an academic medical center during the COVID-19 pandemic	15
Medical communication and decision-making about assisted hydration in the last days of life: A qualitative study of doctors experienced with end of life care	15
Using advance and emergency care plans during transfer decisions: A grounded theory interview study with care home staff	15
EAPC2023 Abstract Book	14
Hypertonic packs to reverse blindness caused by facial lymphoedema in the setting of head and neck cancer – A case report	14
Impact of expected parental death on the health of adolescent and young adult children: A systematic review of the literature	14
Pharmacological treatment of pain, dyspnea, death rattle, fever, nausea, and vomiting in the last days of life in older people: A systematic review	14
Nurse perspectives on the psychosocial care of patients with urinary incontinence in home hospice: A qualitative study	14

Bereaved relatives’ quality of life before and during the COVID-19 pandemic: Results of the prospective, multicenter, observational eQuiPe study	14
Engagement of specialized palliative care services with the general public: A population-level survey in three European countries	14
The perspectives of people with dementia and their supporters on advance care planning: A qualitative study with the European Working Group of People with Dementia	13
Supporting best practice in reflexive thematic analysis reporting in Palliative Medicine: A review of published research and introduction to the Reflexive Thematic Analysis Reporting Guideli	13
Healthy siblings’ perspectives about paediatric palliative care: A qualitative systematic review and meta-synthesis	13
Health care professional recruitment of patients and family carers to palliative care randomised controlled trials: A qualitative multiple case study	13
Exploring “good days” with advanced cancer: A pilot daily diary study	13
International consensus on occupational therapy interventions for people with palliative care needs: A European Association for Palliative Care Group Concept Mapping study	13
Coming to terms with dying: Advance care planning as a conduit between clinicians, patients, and conversations about death and dying – a qualitative interview study	13
Exercise interventions for advanced cancer palliative care patients: A systematic literature review and descriptive evidence synthesis of randomized controlled trials	13
Systematic review of conceptual and theoretical frameworks used in palliative care and end-of-life care research studies	13
Measurement equivalence of the paper-based and electronic version of the Integrated Palliative care Outcome Scale (IPOS): A randomised crossover trial	13
A systematic review on the impact of financial insecurity on the physical and psychological well-being for people living with terminal illness	13
Thanks to Reviewers	13
Deaths at home, area-based deprivation and the effect of the Covid-19 pandemic: An analysis of mortality data across four nations	13
‘So being here is. . . I feel like I’m being a social worker again, at the hospice’: Using interpretative phenomenological analysis to explore social workers’ experiences of hospice work	13
Effectiveness of transmural team-based palliative care in prevention of hospitalizations in patients at the end of life: A systematic review and meta-analysis	13
What can patient safety science do for palliative care? Bridging the gap	12
Motor neurone disease: A point-prevalence study of patient reported symptom prevalence, severity and palliative care needs	12
Advance care planning and quality of life: A qualitative interview study in people with young-onset dementia and their family caregivers	12
Where to for core outcome sets for best care for the dying person?	12
End of life skin care – Research informing theory to traverse between Scylla and Charybdis?	12
When a dying patient is asked to participate in a double-blind, placebo-controlled clinical trial on symptom control: The decision-making process and experiences of relatives	12
Palliative and end-of-life care needs, experiences, and preferences of LGBTQ+ individuals with serious illness: A systematic mixed-methods review	12
Effects of advance care planning in care dependent community-dwelling older persons (STADPLAN): A cluster-randomised controlled trial	12
Telehealth requires improved evidence to achieve its full potential in palliative care	12
The spiritual dimension of parenting a child with a life-limiting or life-threatening condition: A mixed-methods systematic review	12
Definition and recommendations of advance care planning: A Delphi study in five Asian sectors	12
The ideal path to a good death: An international meta-synthesis of rural residents’ perspectives	11
An electronic pre-visit agenda-setting questionnaire in ambulatory palliative care is feasible and acceptable to patients, care partners, and clinicians: A mixed methods evaluation	11
A rapid review of the evidence for online interventions for bereavement support	11
The spiritual care intervention “In dialogue with your life story”: Results of a longitudinal study on palliative clients’ spiritual wellbeing	11
Peer review and Palliative Medicine : Guiding reviewers’ contributions to ensuring high quality publications	11
A peripheral opioid antagonist for treating urinary retention induced by opioids: A case report	11
Moral distress amongst palliative care doctors working during the COVID-19 pandemic: A narrative-focussed interview study	11
The development of the ADO-SQ model to predict 1-year mortality in patients with COPD	11
Closing the health equity gap in palliative care: The time for action is now	11
End of life care for people with severe mental illness: Mixed methods systematic review and thematic synthesis (the MENLOC study)	11
Tensions in advance care planning with dementia: Time for a good-enough laid-back approach?	11
Palliative care and neuro-oncological care: Better integration is needed	11
Strategies and checklist for designing and conducting palliative care research with family carers: EAPC international expert elicitation study	10
Perspectives of inpatients with palliative care needs, their families, clinicians and key stakeholders on measuring quality of hospital care via patient experience measures: A qualitative study	10
Iatrogenic suffering at the end of life: An ethnographic study	10
What are the triggers for palliative care referral in burn intensive care units? Results from a qualitative study based on healthcare professionals’ views, clinical experiences and practices	10
Effectiveness and safety of opioids on breathlessness and exercise endurance in patients with chronic obstructive pulmonary disease: A systematic review and meta-analysis of randomised controlled tria	10
Implementation of clinical guidelines in specialized palliative care—results from a national improvement project: A national register-based study	10
Revised recommendations on standards and norms for palliative care in Europe from the European Association for Palliative Care (EAPC): A Delphi study	10
The impact on emotional well-being of being a palliative care volunteer: An interpretative phenomenological analysis	10
‘That just doesn’t feel right at times’ – lone working practices, support and educational needs of newly employed Healthcare Assistants providing 24/7 palliative care in the community: A qualitative i	10
Risk factors for delirium in adult patients receiving specialist palliative care: A systematic review and meta-analysis	10
COVID-19 in pediatric palliative care patients: Multicenter, retrospective cohort study	10
Practice review: Evidence-based and effective management of anaemia in palliative care patients	10
Loneliness, its effect on mental and physical health, and the dying	10
Intranasal dexmedetomidine: Procedural sedation in palliative care: A case report	10
Pharmacovigilance in hospice/palliative care: Net effect of amitriptyline or nortriptyline on neuropathic pain: UTS/IMPACCT Rapid programme international consecutive cohort	10
‘My life is a mess but I cope’: An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition	10
An easier way to die?—A qualitative interview study on specialist palliative care team members’ views on dying under sedation	9
A feasibility study of a decision aid to support family carers of people with severe dementia or those towards the end-of-life	9
Investigating the benefits and harms of hypodermoclysis of patients in palliative care: A consecutive cohort study	9
Preferences of patients with palliative care needs and their families for engagement with service improvement work within the hospital setting: A qualitative study	9
‘I couldn’t live without hope’: A qualitative study using reflexive thematic analysis on approaches to hope and prognostic awareness among people with advanced disease	9
Long-term bereavement outcomes in family members of those who died in acute care hospitals before and during the first wave of COVID-19: A cohort study	9
Palliative paramedicine: An interrupted time series analysis of pre-hospital guideline efficacy	9
Serious health-related suffering experienced by children with disability and their families living in Bangladesh: A scoping review	9
Do learners implement what they learn? Commitment-to-change following an interprofessional palliative care course	9
Co-designing a culturally-sensitive theory-driven advance care planning game with Chinese older adults and healthcare providers	9
Are public health measures and individualised care compatible in the face of a pandemic? A national observational study of bereaved relatives’ experiences during the COVID-19 pandemic	9
Clinicians’ delirium treatment practice, practice change, and influences: A national online survey	9
More than the sum of its parts—A constructivist grounded-theory study on specialist palliative care during crises like the COVID pandemic	9
Understanding parent experiences of end-of-life care for children: A systematic review and qualitative evidence synthesis	9
Paramedics delivering palliative and end-of-life care in community-based settings: A systematic integrative review with thematic synthesis	9
Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement: Results of a national online survey of people bereaved during the COVID-19 pandemic	9