OOIR: Observatory of International Research

Papers

(The TQCC of Palliative Medicine is 11. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2021-12-01 to 2025-12-01.)

Article	Citations
A tribute to Derek Doyle and Cynthia Goh	365
Assessing the suitability of the Carer Support Needs Assessment Tool (CSNAT-Paediatric) for use with parents of children with a life-limiting condition: A qualitative secondary analysis	94
Neuropalliative care for progressive neurological diseases: A scoping review on models of care and priorities for future research	59
Facilitators and barriers in using comics to support family caregivers of patients receiving palliative care at home: A qualitative study	57
Posttraumatic growth in palliative care settings: A scoping review of prevalence, characteristics and interventions	56
What are we planning, exactly? The perspectives of people with intellectual disabilities, their carers and professionals on end-of-life care planning: A focus group study	52
Complexity and function of family involvement in advance care planning: A qualitative study of perspectives from people living with advanced cancer, family members and healthcare professionals	50
Resilience in advanced cancer caregiving. A systematic review and meta-synthesis	42
Use of long term aprepitant as a treatment for refractory nausea following oesophageal stent insertion – a case report	41
Mixed methods process evaluation of an advance care planning intervention among nursing home staff	40
Views of patients with progressive illness and carers about the role of digital advance care planning systems to record and share information: A qualitative study	39
“Walk me through the final day”: A thematic analysis study on the family caregiver experience of the Medical Assistance in Dying procedure day	36
Palliative care volunteering: Pressing challenges in research	34
Preserving the integrity of personhood in people with advanced cancer: An in-depth qualitative study among patients, relatives, and care professionals	33
Prevalence of grief disorders in bereaved families of cancer patients: A meta-analysis	32
Maybe for unbearable suffering: Diverse racial, ethnic and cultural perspectives of assisted dying. A scoping review	32
Living experiences of people with advance cancer with low socioeconomic status: A systematic review of qualitative evidence	30
The experiences, perceptions, and support needs among family caregivers of patients with advanced cancer and eating problems: An integrative review	27
Effect of continuous deep sedation on survival in the last days of life of cancer patients: A multicenter prospective cohort study	27
A rapid review of end-of-life needs in the LGBTQ+ community and recommendations for clinicians	26
Utilizing intricate care networks: An ethnography of patients and families navigating palliative care in a resource-limited setting	26
The experience of nurses when providing care across acts that may be perceived as death hastening: A qualitative evidence synthesis	26
What is the role of paramedics in palliative and end of life care?	26
Corrigendum to Updating international consensus on best practice in care of the dying: A Delphi study	26
Facilitating equitable access to hospice care in socially deprived areas: A mixed methods multiple case study	26

The 13th World Research Congress of the European Association for Palliative Care	25
The utility of the surprise question: A useful tool for identifying patients nearing the last phase of life? A systematic review and meta-analysis	24
Differences in palliative care needs between cancer patients and non-cancer patients at the start of specialized palliative care: A nationwide register-based study	24
Support from healthcare professionals in empowering family carers to discuss advance care planning: A population-based survey	23
How best to capture the impact of complementary therapies in palliative care: A systematic review to identify and assess the appropriateness and validity of multi-domain tools	23
Identifying, exploring and integrating the spiritual dimension in proactive care planning: A mixed methods evaluation of a communication training intervention for multidisciplinary palliative care tea	23
‘Sadly I think we are sort of still quite white, middle-class really’ – Inequities in access to bereavement support: Findings from a mixed methods study	23
Parents’ experiences of being involved in medical decision-making for their child with a life-limiting condition: A systematic review with narrative synthesis	23
The management of absolute iron deficiency anaemia in the palliative care population: A reply to Neoh et al.	23
What outcomes do studies use to measure the impact of prognostication on people with advanced cancer? Findings from a systematic review of quantitative and qualitative studies	22
Barriers and facilitators influencing referral and access to palliative care for children and young people with life-limiting and life-threatening conditions: a scoping review of the evidence	21
Education modalities for serious illness communication training: A scoping review on the impact on clinician behavior and patient outcomes	21
C-reactive protein and white blood cell count are adverse prognostic markers for patients with advanced cancer on parenteral nutrition in a palliative care unit setting: A retrospective cohort study	20
Delirium prevention in hospices: Opportunities and limitations – A focused ethnography	20
An emergency department nurse led intervention to facilitate serious illness conversations among seriously ill older adults: A feasibility study	20
How much information is ‘reasonable’? A qualitative interview study of the prescribing practices of palliative care professionals	20
A peripherally acting μ-opioid receptor antagonist for treating opioid-associated tinnitus: A case report	19
“ I think that she would have wanted. . .” : Qualitative interviews with bereaved caregivers reveal complexity in measuring goal-concordant care at the end of life	19
Machine learning models to detect social distress, spiritual pain, and severe physical psychological symptoms in terminally ill patients with cancer from unstructured text data in electronic medical r	19
Bridging cultures in palliative care: A qualitative study of the care of Indigenous Australians with advanced illness	19
Capturing what matters: A retrospective observational study of advance care planning documentation at an academic medical center during the COVID-19 pandemic	19
Integrating lived experiences of out-of-hours health services for people with palliative and end-of-life care needs with national datasets for people dying in Scotland in 2016: A mixed methods, multi-	18
Factors associated with hospitalisations of patients with chronic heart failure approaching the end of life: A systematic review	18
Medical communication and decision-making about assisted hydration in the last days of life: A qualitative study of doctors experienced with end of life care	18
Implementation of an acute palliative care unit for COVID-19 patients in a tertiary hospital: Qualitative data on clinician perspectives	18
Engagement of specialized palliative care services with the general public: A population-level survey in three European countries	18
Re: Tan et al., Subcutaneous sodium valproate in palliative care: A systematic review	18
Prevalence, risk factors and management of pressure injuries and their implications for palliative care: A rapid overview of reviews	18
‘How long do you think?’ Unresponsive dying patients in a specialist palliative care service: A consecutive cohort study	18
Using advance and emergency care plans during transfer decisions: A grounded theory interview study with care home staff	17
A systematic review on the impact of financial insecurity on the physical and psychological well-being for people living with terminal illness	17
Hypertonic packs to reverse blindness caused by facial lymphoedema in the setting of head and neck cancer – A case report	17
The 19th World Congress of the European Association for Palliative Care 29 – 31 May 2025 Helsinki, Finland	16
Enhancing the wellbeing of refugees living with advanced life-limiting illness in high-income resettlement countries: A systematic review	16
Exploring “good days” with advanced cancer: A pilot daily diary study	16
International consensus on occupational therapy interventions for people with palliative care needs: A European Association for Palliative Care Group Concept Mapping study	16
Measurement equivalence of the paper-based and electronic version of the Integrated Palliative care Outcome Scale (IPOS): A randomised crossover trial	16
Health care professional recruitment of patients and family carers to palliative care randomised controlled trials: A qualitative multiple case study	16
Impact of expected parental death on the health of adolescent and young adult children: A systematic review of the literature	16
Caring toward end of life through acute hospital and community partnerships: A scoping review	16
EAPC2023 Abstract Book	15
Deaths at home, area-based deprivation and the effect of the Covid-19 pandemic: An analysis of mortality data across four nations	15
Pharmacological treatment of pain, dyspnea, death rattle, fever, nausea, and vomiting in the last days of life in older people: A systematic review	15
Models, components and outcomes of palliative and end-of-life care provided to adults living at home: A systematic umbrella review of reviews	15
‘So being here is. . . I feel like I’m being a social worker again, at the hospice’: Using interpretative phenomenological analysis to explore social workers’ experiences of hospice work	15
Memory-making interventions for children with life-threatening or life-limiting conditions and their families: A systematic review of evidence and implications for practice	15
Exercise interventions for advanced cancer palliative care patients: A systematic literature review and descriptive evidence synthesis of randomized controlled trials	14
Systematic review of conceptual and theoretical frameworks used in palliative care and end-of-life care research studies	14
Thanks to Reviewers	14
Where to for core outcome sets for best care for the dying person?	14

Motor neurone disease: A point-prevalence study of patient reported symptom prevalence, severity and palliative care needs	14
The perspectives of people with dementia and their supporters on advance care planning: A qualitative study with the European Working Group of People with Dementia	14
What can patient safety science do for palliative care? Bridging the gap	14
Reducing unnecessary hospital admissions for end-of-life patients in lower and middle-income countries	14
Supporting best practice in reflexive thematic analysis reporting in Palliative Medicine: A review of published research and introduction to the Reflexive Thematic Analysis Reporting Guideli	14
Effectiveness of transmural team-based palliative care in prevention of hospitalizations in patients at the end of life: A systematic review and meta-analysis	14
Palliative and end-of-life care needs, experiences, and preferences of LGBTQ+ individuals with serious illness: A systematic mixed-methods review	13
Effects of advance care planning in care dependent community-dwelling older persons (STADPLAN): A cluster-randomised controlled trial	13
When a dying patient is asked to participate in a double-blind, placebo-controlled clinical trial on symptom control: The decision-making process and experiences of relatives	13
Definition and recommendations of advance care planning: A Delphi study in five Asian sectors	13
The spiritual dimension of parenting a child with a life-limiting or life-threatening condition: A mixed-methods systematic review	13
Healthy siblings’ perspectives about paediatric palliative care: A qualitative systematic review and meta-synthesis	13
Telehealth requires improved evidence to achieve its full potential in palliative care	13
Advance care planning and quality of life: A qualitative interview study in people with young-onset dementia and their family caregivers	13
Masculinity and ethnicity in intersection: Implications for men’s health and palliative care services	12
Iatrogenic suffering at the end of life: An ethnographic study	12
Peer review and Palliative Medicine : Guiding reviewers’ contributions to ensuring high quality publications	12
Perspectives of inpatients with palliative care needs, their families, clinicians and key stakeholders on measuring quality of hospital care via patient experience measures: A qualitative study	12
An electronic pre-visit agenda-setting questionnaire in ambulatory palliative care is feasible and acceptable to patients, care partners, and clinicians: A mixed methods evaluation	12
Strategies and checklist for designing and conducting palliative care research with family carers: EAPC international expert elicitation study	12
Palliative care and neuro-oncological care: Better integration is needed	12
Coming to terms with dying: Advance care planning as a conduit between clinicians, patients, and conversations about death and dying – a qualitative interview study	12
Practice review: Evidence-based and effective management of anaemia in palliative care patients	12
Loneliness, its effect on mental and physical health, and the dying	12
Closing the health equity gap in palliative care: The time for action is now	12
The spiritual care intervention “In dialogue with your life story”: Results of a longitudinal study on palliative clients’ spiritual wellbeing	12
Reducing inequity in the provision of children’s palliative care in low- and middle- income countries: A focus on education and research	12
The ideal path to a good death: An international meta-synthesis of rural residents’ perspectives	12
Implementation of clinical guidelines in specialized palliative care—results from a national improvement project: A national register-based study	12
A peripheral opioid antagonist for treating urinary retention induced by opioids: A case report	12
The development of the ADO-SQ model to predict 1-year mortality in patients with COPD	12
The impact on emotional well-being of being a palliative care volunteer: An interpretative phenomenological analysis	11
Feeling groovy? The present and future of psychedelic research in palliative care	11
Risk factors for delirium in adult patients receiving specialist palliative care: A systematic review and meta-analysis	11
‘I couldn’t live without hope’: A qualitative study using reflexive thematic analysis on approaches to hope and prognostic awareness among people with advanced disease	11
Moral distress amongst palliative care doctors working during the COVID-19 pandemic: A narrative-focussed interview study	11
Revised recommendations on standards and norms for palliative care in Europe from the European Association for Palliative Care (EAPC): A Delphi study	11
Sexual health at the end of life in patients with advanced cancer and their partners. Results of a Dutch prospective longitudinal study (eQuiPe)	11
An easier way to die?—A qualitative interview study on specialist palliative care team members’ views on dying under sedation	11
Pharmacovigilance in hospice/palliative care: Net effect of amitriptyline or nortriptyline on neuropathic pain: UTS/IMPACCT Rapid programme international consecutive cohort	11
COVID-19 in pediatric palliative care patients: Multicenter, retrospective cohort study	11
What are the triggers for palliative care referral in burn intensive care units? Results from a qualitative study based on healthcare professionals’ views, clinical experiences and practices	11
A rapid review of the evidence for online interventions for bereavement support	11
‘That just doesn’t feel right at times’ – lone working practices, support and educational needs of newly employed Healthcare Assistants providing 24/7 palliative care in the community: A qualitative i	11
Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement: Results of a national online survey of people bereaved during the COVID-19 pandemic	11
Long-term bereavement outcomes in family members of those who died in acute care hospitals before and during the first wave of COVID-19: A cohort study	11
‘My life is a mess but I cope’: An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition	11
Co-designing a culturally-sensitive theory-driven advance care planning game with Chinese older adults and healthcare providers	11
Effectiveness and safety of opioids on breathlessness and exercise endurance in patients with chronic obstructive pulmonary disease: A systematic review and meta-analysis of randomised controlled tria	11
Tensions in advance care planning with dementia: Time for a good-enough laid-back approach?	11