OOIR: Observatory of International Research

Papers

(The TQCC of Palliative Medicine is 10. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2022-05-01 to 2026-05-01.)

Article	Citations
A tribute to Derek Doyle and Cynthia Goh	613
Assessing the suitability of the Carer Support Needs Assessment Tool (CSNAT-Paediatric) for use with parents of children with a life-limiting condition: A qualitative secondary analysis	76
Facilitators and barriers in using comics to support family caregivers of patients receiving palliative care at home: A qualitative study	58
Complexity and function of family involvement in advance care planning: A qualitative study of perspectives from people living with advanced cancer, family members and healthcare professionals	50
Neuropalliative care for progressive neurological diseases: A scoping review on models of care and priorities for future research	47
Posttraumatic growth in palliative care settings: A scoping review of prevalence, characteristics and interventions	46
What are we planning, exactly? The perspectives of people with intellectual disabilities, their carers and professionals on end-of-life care planning: A focus group study	39
“Walk me through the final day”: A thematic analysis study on the family caregiver experience of the Medical Assistance in Dying procedure day	38
Preserving the integrity of personhood in people with advanced cancer: An in-depth qualitative study among patients, relatives, and care professionals	37
Living experiences of people with advance cancer with low socioeconomic status: A systematic review of qualitative evidence	34
‘Saying goodbye’. . . A systematic integrative review of palliative caregiving in intergenerational living contexts	33
Mixed methods process evaluation of an advance care planning intervention among nursing home staff	32
Views of patients with progressive illness and carers about the role of digital advance care planning systems to record and share information: A qualitative study	32
REstoring Sleep and Energy using a mulTimodal non-pharmacological intervention in advanced Cancer: A feasibility study (RESET-C)	30
Maybe for unbearable suffering: Diverse racial, ethnic and cultural perspectives of assisted dying. A scoping review	30
The 13th World Research Congress of the European Association for Palliative Care	29
Parents’ experiences of being involved in medical decision-making for their child with a life-limiting condition: A systematic review with narrative synthesis	29
The utility of the surprise question: A useful tool for identifying patients nearing the last phase of life? A systematic review and meta-analysis	28
The experience of nurses when providing care across acts that may be perceived as death hastening: A qualitative evidence synthesis	28
‘Sadly I think we are sort of still quite white, middle-class really’ – Inequities in access to bereavement support: Findings from a mixed methods study	28
Differences in palliative care needs between cancer patients and non-cancer patients at the start of specialized palliative care: A nationwide register-based study	27
End-of-life experience patterns among older adults and their association with pain near death: A population-based study	25
Utilizing intricate care networks: An ethnography of patients and families navigating palliative care in a resource-limited setting	25
Identifying, exploring and integrating the spiritual dimension in proactive care planning: A mixed methods evaluation of a communication training intervention for multidisciplinary palliative care tea	24
The management of absolute iron deficiency anaemia in the palliative care population: A reply to Neoh et al.	23

Education modalities for serious illness communication training: A scoping review on the impact on clinician behavior and patient outcomes	23
Facilitating equitable access to hospice care in socially deprived areas: A mixed methods multiple case study	23
Enhancing identification of potential palliative care needs in older adults: An umbrella review of screening instruments	23
Corrigendum to Updating international consensus on best practice in care of the dying: A Delphi study	23
How best to capture the impact of complementary therapies in palliative care: A systematic review to identify and assess the appropriateness and validity of multi-domain tools	22
A peripherally acting μ-opioid receptor antagonist for treating opioid-associated tinnitus: A case report	21
Delirium prevention in hospices: Opportunities and limitations – A focused ethnography	20
What outcomes do studies use to measure the impact of prognostication on people with advanced cancer? Findings from a systematic review of quantitative and qualitative studies	20
Machine learning models to detect social distress, spiritual pain, and severe physical psychological symptoms in terminally ill patients with cancer from unstructured text data in electronic medical r	20
How much information is ‘reasonable’? A qualitative interview study of the prescribing practices of palliative care professionals	20
‘How long do you think?’ Unresponsive dying patients in a specialist palliative care service: A consecutive cohort study	19
Support from healthcare professionals in empowering family carers to discuss advance care planning: A population-based survey	19
Effectiveness of and implementation requirements for telehealth in palliative care patients with advanced cancer: A systematic review and meta-analysis	19
An emergency department nurse led intervention to facilitate serious illness conversations among seriously ill older adults: A feasibility study	19
Prevalence, risk factors and management of pressure injuries and their implications for palliative care: A rapid overview of reviews	19
Barriers and facilitators influencing referral and access to palliative care for children and young people with life-limiting and life-threatening conditions: a scoping review of the evidence	19
Re: Tan et al., Subcutaneous sodium valproate in palliative care: A systematic review	19
Economic evaluations in the palliative and end-of-life care settings: A systematic review of existing evidence, methods and quality	18
Bridging cultures in palliative care: A qualitative study of the care of Indigenous Australians with advanced illness	18
Trauma-informed palliative care: A systematic scoping review of evidence sources describing concepts relevant to an emerging field of practice	18
Medical communication and decision-making about assisted hydration in the last days of life: A qualitative study of doctors experienced with end of life care	17
The 19th World Congress of the European Association for Palliative Care 29 – 31 May 2025 Helsinki, Finland	17
Factors associated with hospitalisations of patients with chronic heart failure approaching the end of life: A systematic review	17
International consensus on occupational therapy interventions for people with palliative care needs: A European Association for Palliative Care Group Concept Mapping study	17
Enhancing the wellbeing of refugees living with advanced life-limiting illness in high-income resettlement countries: A systematic review	17
A narrow view of palliative care and assisted dying	16
Deaths at home, area-based deprivation and the effect of the Covid-19 pandemic: An analysis of mortality data across four nations	16
EAPC2023 Abstract Book	16
Effectiveness of transmural team-based palliative care in prevention of hospitalizations in patients at the end of life: A systematic review and meta-analysis	16
Systematic review of conceptual and theoretical frameworks used in palliative care and end-of-life care research studies	16
Pharmacological treatment of pain, dyspnea, death rattle, fever, nausea, and vomiting in the last days of life in older people: A systematic review	16
Exploring “good days” with advanced cancer: A pilot daily diary study	16
Memory-making interventions for children with life-threatening or life-limiting conditions and their families: A systematic review of evidence and implications for practice	16
Impact of expected parental death on the health of adolescent and young adult children: A systematic review of the literature	15
A systematic review on the impact of financial insecurity on the physical and psychological well-being for people living with terminal illness	15
Models, components and outcomes of palliative and end-of-life care provided to adults living at home: A systematic umbrella review of reviews	15
Thanks to Reviewers	15
Health care professional recruitment of patients and family carers to palliative care randomised controlled trials: A qualitative multiple case study	15
‘So being here is. . . I feel like I’m being a social worker again, at the hospice’: Using interpretative phenomenological analysis to explore social workers’ experiences of hospice work	15
‘Adrift in a sea of just absolute unknowableness’: A multimethod qualitative study exploring patient, carer and healthcare professional experiences of communicating about future uncertainty in multimo	15
The perspectives of people with dementia and their supporters on advance care planning: A qualitative study with the European Working Group of People with Dementia	15
What can patient safety science do for palliative care? Bridging the gap	15
Caring toward end of life through acute hospital and community partnerships: A scoping review	15
Measurement equivalence of the paper-based and electronic version of the Integrated Palliative care Outcome Scale (IPOS): A randomised crossover trial	15
Supporting best practice in reflexive thematic analysis reporting in Palliative Medicine : A review of published research and introduction to the	15
The spiritual dimension of parenting a child with a life-limiting or life-threatening condition: A mixed-methods systematic review	15
Motor neurone disease: A point-prevalence study of patient reported symptom prevalence, severity and palliative care needs	14
Effects of advance care planning in care dependent community-dwelling older persons (STADPLAN): A cluster-randomised controlled trial	14
The value of rehabilitation specialists to team-based palliative care	14
Palliative and end-of-life care needs, experiences, and preferences of LGBTQ+ individuals with serious illness: A systematic mixed-methods review	14

Where to for core outcome sets for best care for the dying person?	14
Healthy siblings’ perspectives about paediatric palliative care: A qualitative systematic review and meta-synthesis	14
Response to letters about “Palliative care and assisted dying: Uneasy bedfellows”	14
Specialist palliative care improves patient experience, reduces bed days and saves money: An economic modelling study of home- and hospital-based care	14
Reducing unnecessary hospital admissions for end-of-life patients in lower and middle-income countries	14
When a dying patient is asked to participate in a double-blind, placebo-controlled clinical trial on symptom control: The decision-making process and experiences of relatives	14
Coming to terms with dying: Advance care planning as a conduit between clinicians, patients, and conversations about death and dying – a qualitative interview study	14
Telehealth requires improved evidence to achieve its full potential in palliative care	13
Palliative care and neuro-oncological care: Better integration is needed	13
Advance care planning and quality of life: A qualitative interview study in people with young-onset dementia and their family caregivers	13
A peripheral opioid antagonist for treating urinary retention induced by opioids: A case report	13
Strategies and checklist for designing and conducting palliative care research with family carers: EAPC international expert elicitation study	13
Definition and recommendations of advance care planning: A Delphi study in five Asian sectors	13
Perspectives of inpatients with palliative care needs, their families, clinicians and key stakeholders on measuring quality of hospital care via patient experience measures: A qualitative study	13
The ideal path to a good death: An international meta-synthesis of rural residents’ perspectives	13
Peer review and Palliative Medicine : Guiding reviewers’ contributions to ensuring high quality publications	13
Masculinity and ethnicity in intersection: Implications for men’s health and palliative care services	13
Exercise interventions for advanced cancer palliative care patients: A systematic literature review and descriptive evidence synthesis of randomized controlled trials	13
Memory making during bereavement care following the death of a child: A survey exploring parental experiences	13
Closing the health equity gap in palliative care: The time for action is now	13
A rapid review of the evidence for online interventions for bereavement support	13
The spiritual care intervention “In dialogue with your life story”: Results of a longitudinal study on palliative clients’ spiritual wellbeing	12
Loneliness, its effect on mental and physical health, and the dying	12
COVID-19 in pediatric palliative care patients: Multicenter, retrospective cohort study	12
An easier way to die?—A qualitative interview study on specialist palliative care team members’ views on dying under sedation	12
Moral distress amongst palliative care doctors working during the COVID-19 pandemic: A narrative-focussed interview study	12
An electronic pre-visit agenda-setting questionnaire in ambulatory palliative care is feasible and acceptable to patients, care partners, and clinicians: A mixed methods evaluation	12
Iatrogenic suffering at the end of life: An ethnographic study	12
Effectiveness and safety of opioids on breathlessness and exercise endurance in patients with chronic obstructive pulmonary disease: A systematic review and meta-analysis of randomised controlled tria	12
Tensions in advance care planning with dementia: Time for a good-enough laid-back approach?	12
Reducing inequity in the provision of children’s palliative care in low- and middle- income countries: A focus on education and research	12
Implementation of clinical guidelines in specialized palliative care—results from a national improvement project: A national register-based study	12
Feeling groovy? The present and future of psychedelic research in palliative care	12
How and in what circumstances does facilitation work for residential aged care staff in the implementation of palliative care interventions? A realist review	12
‘I couldn’t live without hope’: A qualitative study using reflexive thematic analysis on approaches to hope and prognostic awareness among people with advanced disease	11
Co-designing a culturally-sensitive theory-driven advance care planning game with Chinese older adults and healthcare providers	11
Sexual health at the end of life in patients with advanced cancer and their partners. Results of a Dutch prospective longitudinal study (eQuiPe)	11
What are the triggers for palliative care referral in burn intensive care units? Results from a qualitative study based on healthcare professionals’ views, clinical experiences and practices	11
‘That just doesn’t feel right at times’ – lone working practices, support and educational needs of newly employed Healthcare Assistants providing 24/7 palliative care in the community: A qualitative i	11
Long-term bereavement outcomes in family members of those who died in acute care hospitals before and during the first wave of COVID-19: A cohort study	11
‘My life is a mess but I cope’: An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition	11
Digital patient-reported outcome measures in palliative home care: A feasibility study	11
More than the sum of its parts—A constructivist grounded-theory study on specialist palliative care during crises like the COVID pandemic	11
Shared decision-making in palliative cancer care: A systematic review and metasynthesis	10
Investigating the benefits and harms of hypodermoclysis of patients in palliative care: A consecutive cohort study	10
A feasibility study of a decision aid to support family carers of people with severe dementia or those towards the end-of-life	10
Challenges of regional hospice and palliative care networks: A group discussion study with coordinators and network experts	10
“Never waste a good crisis”: A qualitative study of the impact of COVID-19 on palliative care in seven hospitals using the Dynamic Sustainability Framework	10
Developing a Theory of Change and Implementation Plan to implement a novel child- and family-centred outcome measure in paediatric palliative care	10
Understanding parent experiences of end-of-life care for children: A systematic review and qualitative evidence synthesis	10
Palliative paramedicine: An interrupted time series analysis of pre-hospital guideline efficacy	10
Practice review: Pharmacological management of severe chronic breathlessness in adults with advanced life-limiting diseases	10
Preferences of patients with palliative care needs and their families for engagement with service improvement work within the hospital setting: A qualitative study	10
Serious health-related suffering experienced by children with disability and their families living in Bangladesh: A scoping review	10
Lived experiences of family caregivers of those with advanced illnesses: A secondary qualitative data analysis	10
Patients’ dignity in palliative care: An integrative review of lived experiences and family perspectives across cultures	10
Measuring the quality of patient-provider relationships in serious illness: A scoping review	10
Exploring older people’s end-of-life care preferences over time: A scoping review	10