OOIR: Observatory of International Research

Papers

(The TQCC of Palliative Medicine is 10. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-09-01 to 2024-09-01.)

Article	Citations
A qualitative study of bereaved relatives’ end of life experiences during the COVID-19 pandemic	103
Estimating the current and future prevalence of life-limiting conditions in children in England	84
‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall)	68
Health and social care professionals’ experiences of providing end of life care during the COVID-19 pandemic: A qualitative study	64
Prevalence of burnout in healthcare professionals providing palliative care and the effect of interventions to reduce symptoms: A systematic literature review	59
Sadness, despair and anger when a patient dies alone from COVID-19: A thematic content analysis of Twitter data from bereaved family members and friends	49
Revised recommendations on standards and norms for palliative care in Europe from the European Association for Palliative Care (EAPC): A Delphi study	45
Are public health measures and individualised care compatible in the face of a pandemic? A national observational study of bereaved relatives’ experiences during the COVID-19 pandemic	44
Changes in mortality patterns and place of death during the COVID-19 pandemic: A descriptive analysis of mortality data across four nations	43
Dying in times of the coronavirus: An online survey among healthcare professionals about end-of-life care for patients dying with and without COVID-19 (the CO-LIVE study)	42
Missing the human connection: A rapid appraisal of healthcare workers’ perceptions and experiences of providing palliative care during the COVID-19 pandemic	40
Defining end of life in dementia: A systematic review	40
Nursing education on palliative care across Europe: Results and recommendations from the EAPC Taskforce on preparation for practice in palliative care nursing across the EU based on an online-survey a	39
The burden of serious health-related suffering among cancer decedents: Global projections study to 2060	38
Impact of Medical Assistance in Dying on palliative care: A qualitative study	37
The support needs of parent caregivers of children with a life-limiting illness and approaches used to meet their needs: A scoping review	37
Asian patients’ perspectives on advance care planning: A mixed-method systematic review and conceptual framework	36
Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services	36
Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement: Results of a national online survey of people bereaved during the COVID-19 pandemic	36
Lessons from the COVID-19 pandemic for improving outpatient neuropalliative care: A qualitative study of patient and caregiver perspectives	35
‘Saying goodbye’ during the COVID-19 pandemic: A document analysis of online newspapers with implications for end of life care	33
Family involvement in advance care planning for people living with advanced cancer: A systematic mixed-methods review	32
The role, impact, and support of informal caregivers in the delivery of palliative care for patients with advanced cancer: A multi-country qualitative study	32
‘My wife is my doctor at home’: A qualitative study exploring the challenges of home-based palliative care in a resource-poor setting	32
Resilience in advanced cancer caregiving. A systematic review and meta-synthesis	31

Home palliative care professionals perception of challenges during the Covid-19 outbreak: A qualitative study	31
The palliative care needs and experiences of people with advanced head and neck cancer: A scoping review	31
The utility of the surprise question: A useful tool for identifying patients nearing the last phase of life? A systematic review and meta-analysis	30
Toward a socio-spiritual approach? A mixed-methods systematic review on the social and spiritual needs of patients in the palliative phase of their illness	29
Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic	29
Are family carers part of the care team providing end-of-life care? A qualitative interview study on the collaboration between family and professional carers	29
A systematic review of classifications systems to determine complexity of patient care needs in palliative care	29
Implementing person-centred outcome measures in palliative care: An exploratory qualitative study using Normalisation Process Theory to understand processes and context	29
Patient and public involvement in palliative care research: What works, and why? A qualitative evaluation	28
Assessing the impact of COVID-19 on healthcare staff at a combined elderly care and specialist palliative care facility: A cross-sectional study	27
Impact of the COVID-19 pandemic on end of life care delivery in care homes: A mixed method systematic review	27
Mutual support between patients and family caregivers in palliative care: A systematic review and narrative synthesis	27
Legacy perceptions and interventions for adults and children receiving palliative care: A systematic review	27
Early, integrated palliative rehabilitation improves quality of life of patients with newly diagnosed advanced cancer: The Pal-Rehab randomized controlled trial	26
Paramedics delivering palliative and end-of-life care in community-based settings: A systematic integrative review with thematic synthesis	25
The importance of living well now and relationships: A qualitative study of the barriers and enablers to engaging frail elders with advance care planning	25
Invited Editorials	25
Virtual models of care for people with palliative care needs living in their own home: A systematic meta-review and narrative synthesis	25
Dexmedetomidine for hyperactive delirium at the end of life: An open-label single arm pilot study with dose escalation in adult patients admitted to an inpatient palliative care unit	25
Area-Based Compassionate Communities: A systematic integrative review of existing initiatives worldwide	24
The COVID-19 pandemic: A tipping point for advance care planning? Experiences of general practitioners	23
Web and mobile-based symptom management interventions for physical symptoms of people with advanced cancer: A systematic review and meta-analysis	22
How effective is virtual reality technology in palliative care? A systematic review and meta-analysis	22
How to measure the effects and potential adverse events of palliative sedation? An integrative review	22
Real-world ethics in palliative care: A systematic review of the ethical challenges reported by specialist palliative care practitioners in their clinical practice	21
The perspectives of children and young people affected by parental life-limiting illness: An integrative review and thematic synthesis	20
The effectiveness of hope-fostering interventions in palliative care: A systematic review and meta-analysis	20
Validation of the Distress Thermometer in patients with advanced cancer receiving specialist palliative care in a hospice setting	20
Video-based online interviews for palliative care research: A new normal in COVID-19?	20
Effectiveness and implementation of palliative care interventions for patients with chronic obstructive pulmonary disease: A systematic review	20
Efficacy of medicinal cannabis for appetite-related symptoms in people with cancer: A systematic review	19
The impact of public health palliative care interventions on health system outcomes: A systematic review	19
Disparities in access to palliative care facilities for patients with and without cancer: A retrospective review	19
Tools to help healthcare professionals recognize palliative care needs in patients with advanced heart failure: A systematic review	18
How doctors actually (do not) involve families in decisions to continue or discontinue life-sustaining treatment in neonatal, pediatric, and adult intensive care: A qualitative study	18
Preplanned participation of paramedics in end-of-life care at home: A retrospective cohort study	18
‘Living in parallel worlds’ – bereaved parents’ experience of family life when a parent with dependent children is at end of life from cancer: A qualitative study	18
Civic engagement in serious illness, death, and loss: A systematic mixed-methods review	17
Attitudes and preferences towards palliative and end of life care in patients with advanced illness and their family caregivers in Latin America: A mixed studies systematic review	17
Healthcare professionals’ experiences of inter-professional collaboration during patient’s transfers between care settings in palliative care: A focus group study	17
Understanding the palliative care needs and experiences of people with mesothelioma and their family carers: An integrative systematic review	16
Bereavement outcomes in family members of those who died in acute care hospitals before and during the first wave of COVID-19: A cohort study	16
Machine learning models to detect social distress, spiritual pain, and severe physical psychological symptoms in terminally ill patients with cancer from unstructured text data in electronic medical r	16
Acceptance and commitment therapy for patient fatigue interference and caregiver burden in advanced gastrointestinal cancer: Results of a pilot randomized trial	16
“Song of Life”: Results of a multicenter randomized trial on the effects of biographical music therapy in palliative care	16
‘It’s almost superstition: If I don’t think about it, it won’t happen’. Public knowledge and attitudes towards advance care planning: A sequential mixed methods study	16
Home or hospital as the place of end-of-life care and death: A grounded theory study of parents’ decision-making	16
Single early palliative care intervention added to usual oncology care for patients with advanced cancer: A randomized controlled trial (SENS Trial)	15
Prevalence of grief disorders in bereaved families of cancer patients: A meta-analysis	15
Inclusion of palliative care in health care policy for older people: A directed documentary analysis in 13 of the most rapidly ageing countries worldwide	15

Virtual reality for pain management in advanced heart failure: A randomized controlled study	15
Factors associated with health professionals decision to initiate paediatric advance care planning: A systematic integrative review	15
Gamification for promoting advance care planning: A mixed-method systematic review and meta-analysis	15
Caregiver-guided pain coping skills training for patients with advanced cancer: Results from a randomized clinical trial	14
A qualitative study with people with young-onset dementia and their family caregivers on advance care planning: A holistic, flexible, and relational approach is recommended	14
End of life care for people with severe mental illness: Mixed methods systematic review and thematic synthesis (the MENLOC study)	14
Practice review: Evidence-based quality use of corticosteroids in the palliative care of patients with advanced cancer	14
End-of-life communication strategies for healthcare professionals: A scoping review	14
Moral distress amongst palliative care doctors working during the COVID-19 pandemic: A narrative-focussed interview study	14
Effectiveness of two types of palliative home care in cancer and non-cancer patients: A retrospective population-based study using claims data	14
Risk factors for delirium in adult patients receiving specialist palliative care: A systematic review and meta-analysis	14
Supporting best practice in reflexive thematic analysis reporting in Palliative Medicine: A review of published research and introduction to the Reflexive Thematic Analysis Reporting Guideli	13
Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data	13
What defines the comprehensive assessment of needs in palliative care? An integrative systematic review	13
Experiences of transitioning between settings of care from the perspectives of patients with advanced illness receiving specialist palliative care and their family caregivers: A qualitative interview	13
Symptom burden and lived experiences of patients, caregivers and healthcare professionals on the management of malignant bowel obstruction: A qualitative systematic review	13
Researching minoritised communities in palliative care: An agenda for change	13
The experience of delirium in palliative care settings for patients, family, clinicians and volunteers: A qualitative systematic review and thematic synthesis	13
Service change and innovation in community end-of-life care during the COVID-19 pandemic: Qualitative analysis of a nationwide primary care survey	13
Perceptions and experiences of laws and regulations governing access to opioids in South, Southeast, East and Central Asia: A systematic review, critical interpretative synthesis and development of a	13
Identifying barriers and facilitators to palliative care integration in the management of hospitalized patients with COVID-19: A qualitative study	13
“Hanging in a balance”: A qualitative study exploring clinicians’ experiences of providing care at the end of life in the burn unit	13
What is the role of paramedics in palliative and end of life care?	13
Using the Delphi technique to achieve consensus on bereavement care in palliative care in Europe: An EAPC White Paper	13
Association between religious beliefs and discussions regarding advance care planning: A nationwide survey	13
Public health palliative care: Reframing death, dying, loss and caregiving	12
Identifying older adults with frailty approaching end-of-life: A systematic review	12
It’s like standing in front of a prison fence – Dying during the SARS-CoV2 pandemic: A qualitative study of bereaved relatives’ experiences	12
Effect of continuous deep sedation on survival in the last days of life of cancer patients: A multicenter prospective cohort study	12
Dying in times of COVID-19: Experiences in different care settings – An online questionnaire study among bereaved relatives (the CO-LIVE study)	12
Is trained communication about desire to die harmful for patients receiving palliative care? A cohort study	12
Existential suffering in the day to day lives of those living with palliative care needs arising from chronic obstructive pulmonary disease (COPD): A systematic integrative literature review	12
Adaptation and continuous learning: integrative review of coping strategies of palliative care professionals	12
Navigating the caregiving abyss: A metasynthesis of how family caregivers manage end-of-life care for older adults at home	12
Palliative and end-of-life care needs, experiences, and preferences of LGBTQ+ individuals with serious illness: A systematic mixed-methods review	12
Death doulas as supportive companions in end-of-life care: A scoping review	12
Interventions to support family caregivers of people with advanced dementia at the end of life in nursing homes: A mixed-methods systematic review	12
Palliative care for adolescents and young adults with advanced illness: A scoping review	12
Virtual home-based palliative care during COVID-19: A qualitative exploration of the patient, caregiver, and healthcare provider experience	12
Timely identification of patients in need of palliative care using the Double Surprise Question: A prospective study on outpatients with cancer	12
Do family meetings for hospitalised palliative care patients improve outcomes and reduce health care costs? A cluster randomised trial	11
The benefits and challenges of embedding specialist palliative care teams within homeless hostels to enhance support and learning: Perspectives from palliative care teams and hostel staff	11
Culture in the spotlight—cultural adaptation and content validity of the integrated palliative care outcome scale for dementia: A cognitive interview study	11
COP27 Climate Change Conference: Urgent action needed for Africa and the world	11
An examination and proposed definitions of family members’ grief prior to the death of individuals with a life-limiting illness: A systematic review	11
Smiles behind the masks: A systematic review and narrative synthesis exploring how family members of seriously ill or dying patients are supported during infectious disease outbreaks	11
Identification of palliative care needs among people with dementia and its association with acute hospital care and community service use at the end-of-life: A retrospective cohort study using linked	11
A qualitative service evaluation of patient and caregiver experiences of CAR-T therapy: Recommendations for service development and implications for palliative care teams	11
End-of-life care after the legal introduction of advance directives: A qualitative study involving healthcare professionals and family caregivers of patients with amyotrophic lateral sclerosis	11
What constitutes a palliative care need in people with serious illnesses across Africa? A mixed-methods systematic review of the concept and evidence	11
Fatigue in advanced disease associated with palliative care: A systematic review of non-pharmacological treatments	11
How can we ensure the success of specialised palliative home-care? A qualitative study (ELSAH) identifying key issues from the perspective of patients, relatives and health professionals	11
The promise of big data for palliative and end-of-life care research	10
Using advance and emergency care plans during transfer decisions: A grounded theory interview study with care home staff	10
Identifying, exploring and integrating the spiritual dimension in proactive care planning: A mixed methods evaluation of a communication training intervention for multidisciplinary palliative care tea	10
Determining massage dose-response to improve cancer-related symptom cluster of pain, fatigue, and sleep disturbance: A 7-arm randomized trial in palliative cancer care	10
LGBT+ partner bereavement and appraisal of the Acceptance-Disclosure Model of LGBT+ bereavement: A qualitative interview study	10
The use of natural language processing in palliative care research: A scoping review	10
Assessment tools for problematic opioid use in palliative care: A scoping review	10
Addressing inequity in palliative care provision for older people living with multimorbidity. Perspectives of community-dwelling older people on their palliative care needs: A scoping review	10
The impact on emotional well-being of being a palliative care volunteer: An interpretative phenomenological analysis	10
Practice review: Evidence-based and effective management of fatigue in patients with advanced cancer	10
‘It feels it’s wasting whatever time I’ve got left’: A qualitative study of living with treatable but not curable cancer during the COVID-19 pandemic	10
‘Traversing difficult terrain’. Advance care planning in residential aged care through multidisciplinary case conferences: A qualitative interview study exploring the experiences of families, staff an	10
The Me in We dyadic communication intervention is feasible and acceptable among advanced cancer patients and their family caregivers	10
Pharmacological strategies used to manage symptoms of patients dying of COVID-19: A rapid systematic review	10
Spiritual, religious, and existential concerns of children and young people with life-limiting and life-threatening conditions: A qualitative interview study	10
Patient perspectives on states worse than death: A qualitative study with implications for patient-centered outcomes and values elicitation	10