Palliative Medicine

Papers
(The TQCC of Palliative Medicine is 9. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-11-01 to 2024-11-01.)
ArticleCitations
A qualitative study of bereaved relatives’ end of life experiences during the COVID-19 pandemic105
Estimating the current and future prevalence of life-limiting conditions in children in England88
‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall)70
Health and social care professionals’ experiences of providing end of life care during the COVID-19 pandemic: A qualitative study65
Sadness, despair and anger when a patient dies alone from COVID-19: A thematic content analysis of Twitter data from bereaved family members and friends49
Revised recommendations on standards and norms for palliative care in Europe from the European Association for Palliative Care (EAPC): A Delphi study48
Are public health measures and individualised care compatible in the face of a pandemic? A national observational study of bereaved relatives’ experiences during the COVID-19 pandemic44
Changes in mortality patterns and place of death during the COVID-19 pandemic: A descriptive analysis of mortality data across four nations43
Dying in times of the coronavirus: An online survey among healthcare professionals about end-of-life care for patients dying with and without COVID-19 (the CO-LIVE study)43
Defining end of life in dementia: A systematic review41
Missing the human connection: A rapid appraisal of healthcare workers’ perceptions and experiences of providing palliative care during the COVID-19 pandemic40
Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement: Results of a national online survey of people bereaved during the COVID-19 pandemic38
Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services37
Asian patients’ perspectives on advance care planning: A mixed-method systematic review and conceptual framework36
‘Saying goodbye’ during the COVID-19 pandemic: A document analysis of online newspapers with implications for end of life care35
Lessons from the COVID-19 pandemic for improving outpatient neuropalliative care: A qualitative study of patient and caregiver perspectives35
The role, impact, and support of informal caregivers in the delivery of palliative care for patients with advanced cancer: A multi-country qualitative study34
Resilience in advanced cancer caregiving. A systematic review and meta-synthesis33
Family involvement in advance care planning for people living with advanced cancer: A systematic mixed-methods review33
Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic31
The utility of the surprise question: A useful tool for identifying patients nearing the last phase of life? A systematic review and meta-analysis31
Home palliative care professionals perception of challenges during the Covid-19 outbreak: A qualitative study31
Toward a socio-spiritual approach? A mixed-methods systematic review on the social and spiritual needs of patients in the palliative phase of their illness30
Implementing person-centred outcome measures in palliative care: An exploratory qualitative study using Normalisation Process Theory to understand processes and context30
Mutual support between patients and family caregivers in palliative care: A systematic review and narrative synthesis29
A systematic review of classifications systems to determine complexity of patient care needs in palliative care29
Legacy perceptions and interventions for adults and children receiving palliative care: A systematic review28
Impact of the COVID-19 pandemic on end of life care delivery in care homes: A mixed method systematic review28
Early, integrated palliative rehabilitation improves quality of life of patients with newly diagnosed advanced cancer: The Pal-Rehab randomized controlled trial27
Assessing the impact of COVID-19 on healthcare staff at a combined elderly care and specialist palliative care facility: A cross-sectional study27
Virtual models of care for people with palliative care needs living in their own home: A systematic meta-review and narrative synthesis26
Paramedics delivering palliative and end-of-life care in community-based settings: A systematic integrative review with thematic synthesis26
The importance of living well now and relationships: A qualitative study of the barriers and enablers to engaging frail elders with advance care planning26
Invited Editorials26
Dexmedetomidine for hyperactive delirium at the end of life: An open-label single arm pilot study with dose escalation in adult patients admitted to an inpatient palliative care unit25
Area-Based Compassionate Communities: A systematic integrative review of existing initiatives worldwide25
Web and mobile-based symptom management interventions for physical symptoms of people with advanced cancer: A systematic review and meta-analysis23
The COVID-19 pandemic: A tipping point for advance care planning? Experiences of general practitioners23
How to measure the effects and potential adverse events of palliative sedation? An integrative review23
How effective is virtual reality technology in palliative care? A systematic review and meta-analysis22
Real-world ethics in palliative care: A systematic review of the ethical challenges reported by specialist palliative care practitioners in their clinical practice21
Video-based online interviews for palliative care research: A new normal in COVID-19?21
The perspectives of children and young people affected by parental life-limiting illness: An integrative review and thematic synthesis21
The effectiveness of hope-fostering interventions in palliative care: A systematic review and meta-analysis20
Effectiveness and implementation of palliative care interventions for patients with chronic obstructive pulmonary disease: A systematic review20
Disparities in access to palliative care facilities for patients with and without cancer: A retrospective review19
Efficacy of medicinal cannabis for appetite-related symptoms in people with cancer: A systematic review19
How doctors actually (do not) involve families in decisions to continue or discontinue life-sustaining treatment in neonatal, pediatric, and adult intensive care: A qualitative study19
The impact of public health palliative care interventions on health system outcomes: A systematic review19
Preplanned participation of paramedics in end-of-life care at home: A retrospective cohort study19
“Song of Life”: Results of a multicenter randomized trial on the effects of biographical music therapy in palliative care18
‘Living in parallel worlds’ – bereaved parents’ experience of family life when a parent with dependent children is at end of life from cancer: A qualitative study18
It’s almost superstition: If I don’t think about it, it won’t happen’. Public knowledge and attitudes towards advance care planning: A sequential mixed methods study18
Understanding the palliative care needs and experiences of people with mesothelioma and their family carers: An integrative systematic review17
Machine learning models to detect social distress, spiritual pain, and severe physical psychological symptoms in terminally ill patients with cancer from unstructured text data in electronic medical r17
Civic engagement in serious illness, death, and loss: A systematic mixed-methods review17
Attitudes and preferences towards palliative and end of life care in patients with advanced illness and their family caregivers in Latin America: A mixed studies systematic review17
Bereavement outcomes in family members of those who died in acute care hospitals before and during the first wave of COVID-19: A cohort study17
End-of-life communication strategies for healthcare professionals: A scoping review16
Gamification for promoting advance care planning: A mixed-method systematic review and meta-analysis16
Acceptance and commitment therapy for patient fatigue interference and caregiver burden in advanced gastrointestinal cancer: Results of a pilot randomized trial16
Home or hospital as the place of end-of-life care and death: A grounded theory study of parents’ decision-making16
Virtual reality for pain management in advanced heart failure: A randomized controlled study16
Experiences of transitioning between settings of care from the perspectives of patients with advanced illness receiving specialist palliative care and their family caregivers: A qualitative interview 15
Single early palliative care intervention added to usual oncology care for patients with advanced cancer: A randomized controlled trial (SENS Trial)15
Risk factors for delirium in adult patients receiving specialist palliative care: A systematic review and meta-analysis15
Moral distress amongst palliative care doctors working during the COVID-19 pandemic: A narrative-focussed interview study15
Caregiver-guided pain coping skills training for patients with advanced cancer: Results from a randomized clinical trial15
A qualitative study with people with young-onset dementia and their family caregivers on advance care planning: A holistic, flexible, and relational approach is recommended15
Prevalence of grief disorders in bereaved families of cancer patients: A meta-analysis15
Factors associated with health professionals decision to initiate paediatric advance care planning: A systematic integrative review15
Inclusion of palliative care in health care policy for older people: A directed documentary analysis in 13 of the most rapidly ageing countries worldwide15
Interventions to support family caregivers of people with advanced dementia at the end of life in nursing homes: A mixed-methods systematic review14
Using the Delphi technique to achieve consensus on bereavement care in palliative care in Europe: An EAPC White Paper14
Identifying barriers and facilitators to palliative care integration in the management of hospitalized patients with COVID-19: A qualitative study14
Practice review: Evidence-based quality use of corticosteroids in the palliative care of patients with advanced cancer14
The experience of delirium in palliative care settings for patients, family, clinicians and volunteers: A qualitative systematic review and thematic synthesis14
Virtual home-based palliative care during COVID-19: A qualitative exploration of the patient, caregiver, and healthcare provider experience14
Effectiveness of two types of palliative home care in cancer and non-cancer patients: A retrospective population-based study using claims data14
What is the role of paramedics in palliative and end of life care?14
End of life care for people with severe mental illness: Mixed methods systematic review and thematic synthesis (the MENLOC study)14
Researching minoritised communities in palliative care: An agenda for change13
Service change and innovation in community end-of-life care during the COVID-19 pandemic: Qualitative analysis of a nationwide primary care survey13
Association between religious beliefs and discussions regarding advance care planning: A nationwide survey13
Identifying older adults with frailty approaching end-of-life: A systematic review13
Timely identification of patients in need of palliative care using the Double Surprise Question: A prospective study on outpatients with cancer13
“Hanging in a balance”: A qualitative study exploring clinicians’ experiences of providing care at the end of life in the burn unit13
Adaptation and continuous learning: integrative review of coping strategies of palliative care professionals13
Dying in times of COVID-19: Experiences in different care settings – An online questionnaire study among bereaved relatives (the CO-LIVE study)13
Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data13
Supporting best practice in reflexive thematic analysis reporting in Palliative Medicine: A review of published research and introduction to the Reflexive Thematic Analysis Reporting Guideli13
Death doulas as supportive companions in end-of-life care: A scoping review13
What defines the comprehensive assessment of needs in palliative care? An integrative systematic review13
Symptom burden and lived experiences of patients, caregivers and healthcare professionals on the management of malignant bowel obstruction: A qualitative systematic review13
It’s like standing in front of a prison fence – Dying during the SARS-CoV2 pandemic: A qualitative study of bereaved relatives’ experiences13
What constitutes a palliative care need in people with serious illnesses across Africa? A mixed-methods systematic review of the concept and evidence12
Identification of palliative care needs among people with dementia and its association with acute hospital care and community service use at the end-of-life: A retrospective cohort study using linked 12
A qualitative service evaluation of patient and caregiver experiences of CAR-T therapy: Recommendations for service development and implications for palliative care teams12
Existential suffering in the day to day lives of those living with palliative care needs arising from chronic obstructive pulmonary disease (COPD): A systematic integrative literature review12
Palliative care for adolescents and young adults with advanced illness: A scoping review12
Navigating the caregiving abyss: A metasynthesis of how family caregivers manage end-of-life care for older adults at home12
Palliative and end-of-life care needs, experiences, and preferences of LGBTQ+ individuals with serious illness: A systematic mixed-methods review12
Public health palliative care: Reframing death, dying, loss and caregiving12
The benefits and challenges of embedding specialist palliative care teams within homeless hostels to enhance support and learning: Perspectives from palliative care teams and hostel staff12
Culture in the spotlight—cultural adaptation and content validity of the integrated palliative care outcome scale for dementia: A cognitive interview study12
Effect of continuous deep sedation on survival in the last days of life of cancer patients: A multicenter prospective cohort study12
Is trained communication about desire to die harmful for patients receiving palliative care? A cohort study12
Addressing inequity in palliative care provision for older people living with multimorbidity. Perspectives of community-dwelling older people on their palliative care needs: A scoping review11
Smiles behind the masks: A systematic review and narrative synthesis exploring how family members of seriously ill or dying patients are supported during infectious disease outbreaks11
COP27 Climate Change Conference: Urgent action needed for Africa and the world11
‘Traversing difficult terrain’. Advance care planning in residential aged care through multidisciplinary case conferences: A qualitative interview study exploring the experiences of families, staff an11
An examination and proposed definitions of family members’ grief prior to the death of individuals with a life-limiting illness: A systematic review11
How can we ensure the success of specialised palliative home-care? A qualitative study (ELSAH) identifying key issues from the perspective of patients, relatives and health professionals11
Assessment tools for problematic opioid use in palliative care: A scoping review11
Fatigue in advanced disease associated with palliative care: A systematic review of non-pharmacological treatments11
Practice review: Evidence-based and effective management of fatigue in patients with advanced cancer11
The promise of big data for palliative and end-of-life care research10
The Me in We dyadic communication intervention is feasible and acceptable among advanced cancer patients and their family caregivers10
Spiritual, religious, and existential concerns of children and young people with life-limiting and life-threatening conditions: A qualitative interview study10
Determining massage dose-response to improve cancer-related symptom cluster of pain, fatigue, and sleep disturbance: A 7-arm randomized trial in palliative cancer care10
Patient perspectives on states worse than death: A qualitative study with implications for patient-centered outcomes and values elicitation10
Using advance and emergency care plans during transfer decisions: A grounded theory interview study with care home staff10
Pharmacological strategies used to manage symptoms of patients dying of COVID-19: A rapid systematic review10
The impact on emotional well-being of being a palliative care volunteer: An interpretative phenomenological analysis10
‘It feels it’s wasting whatever time I’ve got left’: A qualitative study of living with treatable but not curable cancer during the COVID-19 pandemic10
The use of natural language processing in palliative care research: A scoping review10
Identifying, exploring and integrating the spiritual dimension in proactive care planning: A mixed methods evaluation of a communication training intervention for multidisciplinary palliative care tea10
Organizational and individual barriers and facilitators to the integration of pediatric palliative care for children: A grounded theory study10
LGBT+ partner bereavement and appraisal of the Acceptance-Disclosure Model of LGBT+ bereavement: A qualitative interview study10
Practice review: Evidence-based and effective management of anaemia in palliative care patients9
It was like taking an inner bath’: A qualitative evaluation of a collaborative advance care planning-approach9
Development and validation of a prediction model of poor performance status and severe symptoms over time in cancer patients (PROVIEW+)9
Specialist palliative care staff’s varying experiences of talking with people with intellectual disability about their dying and death: A thematic analysis of in-depth interviews9
Perspectives of board-certified healthcare chaplains on challenges and adaptations in delivery of spiritual care in the COVID-19 era: Findings from an online survey9
Palliative care needs and experiences of people in prison: A systematic review and meta-synthesis9
Comparing the effect of a consult model versus an integrated palliative care and medical oncology co-rounding model on health care utilization in an acute hospital – an open-label stepped-wedge cluste9
Hearing the voices of children diagnosed with a life-threatening or life-limiting illness and their parents’ accounts in a palliative care setting: A qualitative study9
Pain assessment tools in paediatric palliative care: A systematic review of psychometric properties and recommendations for clinical practice9
Delirium screening tools validated in the context of palliative care: A systematic review9
Care practices of specialized outpatient pediatric palliative care teams in collaboration with parents: Results of participatory observations9
Compounded trauma: A qualitative study of the challenges for refugees living with advanced cancer9
Improved quality of care and reduced healthcare costs at the end-of-life among older people with dementia who received palliative home care: A nationwide propensity score-matched decedent cohort study9
A rapid review of end-of-life needs in the LGBTQ+ community and recommendations for clinicians9
‘You can’t feel what we feel’: Multifaceted dyspnoea invisibility in advanced chronic obstructive pulmonary disease examined through interpretative phenomenological analysis9
End-of-life cost trajectories and the trade-off between treatment costs and life-extension: Findings from the Cost and Medical Care of Patients with Advanced Serious Illness (COMPASS) cohort study9
Cannabinoids for the treatment of refractory neuropathic pruritus in amyotrophic lateral sclerosis: A case report9
What does effective end-of-life care at home for children look like? A qualitative interview study exploring the perspectives of bereaved parents9
Bereaved relatives’ quality of life before and during the COVID-19 pandemic: Results of the prospective, multicenter, observational eQuiPe study9
Health care professionals’ perceptions of factors influencing the process of identifying patients for serious illness conversations: A qualitative study9
Do learners implement what they learn? Commitment-to-change following an interprofessional palliative care course9
Trends of concerns from diagnosis in patients with advanced lung cancer and their family caregivers: A 2-year longitudinal study9
Facilitating family needs and support at the end of life in hospital: A descriptive study9
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