OOIR: Observatory of International Research

Papers

(The TQCC of Palliative Medicine is 10. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2020-04-01 to 2024-04-01.)

Article	Citations
Response and role of palliative care during the COVID-19 pandemic: A national telephone survey of hospices in Italy	98
A qualitative study of bereaved relatives’ end of life experiences during the COVID-19 pandemic	93
‘Necessity is the mother of invention’: Specialist palliative care service innovation and practice change in response to COVID-19. Results from a multinational survey (CovPall)	65
Estimating the current and future prevalence of life-limiting conditions in children in England	63
Health and social care professionals’ experiences of providing end of life care during the COVID-19 pandemic: A qualitative study	56
Prevalence of burnout in healthcare professionals providing palliative care and the effect of interventions to reduce symptoms: A systematic literature review	51
Identification of patients with potential palliative care needs: A systematic review of screening tools in primary care	51
Changing patterns of mortality during the COVID-19 pandemic: Population-based modelling to understand palliative care implications	47
Sadness, despair and anger when a patient dies alone from COVID-19: A thematic content analysis of Twitter data from bereaved family members and friends	45
Prioritising workforce wellbeing and resilience: What COVID-19 is reminding us about self-care and staff support	44
Are public health measures and individualised care compatible in the face of a pandemic? A national observational study of bereaved relatives’ experiences during the COVID-19 pandemic	43
Nursing competencies across different levels of palliative care provision: A systematic integrative review with thematic synthesis	42
COVID-19 and Hospital Palliative Care – A service evaluation exploring the symptoms and outcomes of 186 patients and the impact of the pandemic on specialist Hospital Palliative Care	41
Changes in mortality patterns and place of death during the COVID-19 pandemic: A descriptive analysis of mortality data across four nations	38
Dying in times of the coronavirus: An online survey among healthcare professionals about end-of-life care for patients dying with and without COVID-19 (the CO-LIVE study)	38
What elements of a systems’ approach to bereavement are most effective in times of mass bereavement? A narrative systematic review with lessons for COVID-19	38
The role and response of primary healthcare services in the delivery of palliative care in epidemics and pandemics: A rapid review to inform practice and service delivery during the COVID-19 pandemic	36
Nursing education on palliative care across Europe: Results and recommendations from the EAPC Taskforce on preparation for practice in palliative care nursing across the EU based on an online-survey a	34
The support needs of parent caregivers of children with a life-limiting illness and approaches used to meet their needs: A scoping review	34
Missing the human connection: A rapid appraisal of healthcare workers’ perceptions and experiences of providing palliative care during the COVID-19 pandemic	34
Lessons from the COVID-19 pandemic for improving outpatient neuropalliative care: A qualitative study of patient and caregiver perspectives	34
Asian patients’ perspectives on advance care planning: A mixed-method systematic review and conceptual framework	33
Specialist paediatric palliative care for children and young people with cancer: A mixed-methods systematic review	33
Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement: Results of a national online survey of people bereaved during the COVID-19 pandemic	32
Nurses’ self-efficacy, rather than their knowledge, is associated with their engagement in advance care planning in nursing homes: A survey study	32

The burden of serious health-related suffering among cancer decedents: Global projections study to 2060	31
‘Saying goodbye’ during the COVID-19 pandemic: A document analysis of online newspapers with implications for end of life care	31
The impacts and effectiveness of support for people bereaved through advanced illness: A systematic review and thematic synthesis	31
Revised recommendations on standards and norms for palliative care in Europe from the European Association for Palliative Care (EAPC): A Delphi study	31
Understanding and addressing challenges for advance care planning in the COVID-19 pandemic: An analysis of the UK CovPall survey data from specialist palliative care services	31
Impact of Medical Assistance in Dying on palliative care: A qualitative study	30
Home palliative care professionals perception of challenges during the Covid-19 outbreak: A qualitative study	29
Defining end of life in dementia: A systematic review	29
The palliative care needs of adults with intellectual disabilities and their access to palliative care services: A systematic review	28
Trends analysis of specialized palliative care services in 51 countries of the WHO European region in the last 14 years	28
‘My wife is my doctor at home’: A qualitative study exploring the challenges of home-based palliative care in a resource-poor setting	28
Toward a socio-spiritual approach? A mixed-methods systematic review on the social and spiritual needs of patients in the palliative phase of their illness	27
An audit of end-of-life symptom control in patients with corona virus disease 2019 (COVID-19) dying in a hospital in the United Kingdom	26
Terminal withdrawal of mechanical ventilation in adult intensive care units: A systematic review and narrative synthesis of perceptions, experiences and practices	26
Assessing the impact of COVID-19 on healthcare staff at a combined elderly care and specialist palliative care facility: A cross-sectional study	26
Implementing person-centred outcome measures in palliative care: An exploratory qualitative study using Normalisation Process Theory to understand processes and context	26
Resilience in advanced cancer caregiving. A systematic review and meta-synthesis	25
Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic	25
Are family carers part of the care team providing end-of-life care? A qualitative interview study on the collaboration between family and professional carers	25
Hospital patients’ perspectives on what is essential to enable optimal palliative care: A qualitative study	25
Managing uncertainty and references to time in prognostic conversations with family members at the end of life: A conversation analytic study	25
A systematic review of classifications systems to determine complexity of patient care needs in palliative care	24
Impact of the COVID-19 pandemic on end of life care delivery in care homes: A mixed method systematic review	24
The role, impact, and support of informal caregivers in the delivery of palliative care for patients with advanced cancer: A multi-country qualitative study	24
Digitisation and the patient–professional relationship in palliative care	24
Learning a palliative care approach during the COVID-19 pandemic: A case study in an Infectious Diseases Unit	24
The utility of the surprise question: A useful tool for identifying patients nearing the last phase of life? A systematic review and meta-analysis	24
The palliative care needs and experiences of people with advanced head and neck cancer: A scoping review	23
Family involvement in advance care planning for people living with advanced cancer: A systematic mixed-methods review	22
Paramedics delivering palliative and end-of-life care in community-based settings: A systematic integrative review with thematic synthesis	22
Patients’ preferences and factors influencing initial advance care planning discussions’ timing: A cross-cultural mixed-methods study	22
Patient and public involvement in palliative care research: What works, and why? A qualitative evaluation	21
End-of-life care in COVID-19: An audit of pharmacological management in hospital inpatients	21
How to measure the effects and potential adverse events of palliative sedation? An integrative review	21
Invited Editorials	21
The need for early referral to palliative care especially for Black, Asian and minority ethnic groups in a COVID-19 pandemic: Findings from a service evaluation	21
Legacy perceptions and interventions for adults and children receiving palliative care: A systematic review	21
Bereavement care interventions for children under the age of 18 following the death of a sibling: a systematic review	20
Caregiving at the margins: An ethnographic exploration of family caregivers experiences providing care for structurally vulnerable populations at the end-of-life	20
Dexmedetomidine for hyperactive delirium at the end of life: An open-label single arm pilot study with dose escalation in adult patients admitted to an inpatient palliative care unit	20
Video-based online interviews for palliative care research: A new normal in COVID-19?	19
Validation of the Distress Thermometer in patients with advanced cancer receiving specialist palliative care in a hospice setting	19
The importance of living well now and relationships: A qualitative study of the barriers and enablers to engaging frail elders with advance care planning	19
The perspectives of children and young people affected by parental life-limiting illness: An integrative review and thematic synthesis	19
The COVID-19 pandemic: A tipping point for advance care planning? Experiences of general practitioners	19
Early, integrated palliative rehabilitation improves quality of life of patients with newly diagnosed advanced cancer: The Pal-Rehab randomized controlled trial	19
Real-world ethics in palliative care: A systematic review of the ethical challenges reported by specialist palliative care practitioners in their clinical practice	19
Web and mobile-based symptom management interventions for physical symptoms of people with advanced cancer: A systematic review and meta-analysis	18
Mutual support between patients and family caregivers in palliative care: A systematic review and narrative synthesis	18
Virtual models of care for people with palliative care needs living in their own home: A systematic meta-review and narrative synthesis	18

Preplanned participation of paramedics in end-of-life care at home: A retrospective cohort study	17
Comparison of end-of-life care in people with chronic obstructive pulmonary disease or lung cancer: A systematic review	17
‘Living in parallel worlds’ – bereaved parents’ experience of family life when a parent with dependent children is at end of life from cancer: A qualitative study	16
Palliative care transitions from acute care to community-based care: A qualitative systematic review of the experiences and perspectives of health care providers	16
The impact of public health palliative care interventions on health system outcomes: A systematic review	16
The Palliative Performance Scale predicts mortality in hospitalized patients with COVID-19	16
‘This is your golden time. You enjoy it and you’ve plenty time for crying after’: How dysphagia impacts family caregivers of people with amyotrophic lateral sclerosis – A qualitative study	15
How effective is virtual reality technology in palliative care? A systematic review and meta-analysis	15
Effectiveness and implementation of palliative care interventions for patients with chronic obstructive pulmonary disease: A systematic review	15
Disparities in access to palliative care facilities for patients with and without cancer: A retrospective review	15
Clinical uncertainty and Covid-19: Embrace the questions and find solutions	15
Healthcare professionals’ experiences of inter-professional collaboration during patient’s transfers between care settings in palliative care: A focus group study	15
Tools to help healthcare professionals recognize palliative care needs in patients with advanced heart failure: A systematic review	15
The effectiveness of hope-fostering interventions in palliative care: A systematic review and meta-analysis	15
Home or hospital as the place of end-of-life care and death: A grounded theory study of parents’ decision-making	14
How doctors actually (do not) involve families in decisions to continue or discontinue life-sustaining treatment in neonatal, pediatric, and adult intensive care: A qualitative study	14
Machine learning models to detect social distress, spiritual pain, and severe physical psychological symptoms in terminally ill patients with cancer from unstructured text data in electronic medical r	14
‘It’s almost superstition: If I don’t think about it, it won’t happen’. Public knowledge and attitudes towards advance care planning: A sequential mixed methods study	14
The experiences of, and need for, palliative care for people with motor neurone disease and their informal caregivers: A qualitative systematic review	14
Bereavement outcomes in family members of those who died in acute care hospitals before and during the first wave of COVID-19: A cohort study	14
Caregiver-guided pain coping skills training for patients with advanced cancer: Results from a randomized clinical trial	13
Acceptance and commitment therapy for patient fatigue interference and caregiver burden in advanced gastrointestinal cancer: Results of a pilot randomized trial	13
Understanding the palliative care needs and experiences of people with mesothelioma and their family carers: An integrative systematic review	13
Association between religious beliefs and discussions regarding advance care planning: A nationwide survey	13
Factors associated with health professionals decision to initiate paediatric advance care planning: A systematic integrative review	13
Attitudes and preferences towards palliative and end of life care in patients with advanced illness and their family caregivers in Latin America: A mixed studies systematic review	13
A systematic review and meta-analysis of studies comparing burden from lung cancer and chronic obstructive pulmonary disease	13
Prevalence of grief disorders in bereaved families of cancer patients: A meta-analysis	13
“Hanging in a balance”: A qualitative study exploring clinicians’ experiences of providing care at the end of life in the burn unit	13
Does the carer support needs assessment tool cover the established support needs of carers of patients with chronic obstructive pulmonary disease? A systematic literature search and narrative review	13
The preferences of patients with chronic obstructive pulmonary disease are to discuss palliative care plans with familiar respiratory clinicians, but to delay conversations until their condition deter	13
Efficacy of medicinal cannabis for appetite-related symptoms in people with cancer: A systematic review	13
Understanding the impact of the Covid-19 pandemic on delivery of rehabilitation in specialist palliative care services: An analysis of the CovPall-Rehab survey data	12
Gamification for promoting advance care planning: A mixed-method systematic review and meta-analysis	12
Area-Based Compassionate Communities: A systematic integrative review of existing initiatives worldwide	12
Civic engagement in serious illness, death, and loss: A systematic mixed-methods review	12
Single early palliative care intervention added to usual oncology care for patients with advanced cancer: A randomized controlled trial (SENS Trial)	12
Perceptions and experiences of laws and regulations governing access to opioids in South, Southeast, East and Central Asia: A systematic review, critical interpretative synthesis and development of a	12
Practice review: Evidence-based quality use of corticosteroids in the palliative care of patients with advanced cancer	11
The roles, responsibilities and practices of healthcare assistants in out-of-hours community palliative care: A systematic scoping review	11
What defines the comprehensive assessment of needs in palliative care? An integrative systematic review	11
Identifying barriers and facilitators to palliative care integration in the management of hospitalized patients with COVID-19: A qualitative study	11
A qualitative study with people with young-onset dementia and their family caregivers on advance care planning: A holistic, flexible, and relational approach is recommended	11
What is the role of paramedics in palliative and end of life care?	11
End of life care for people with severe mental illness: Mixed methods systematic review and thematic synthesis (the MENLOC study)	11
Timely identification of patients in need of palliative care using the Double Surprise Question: A prospective study on outpatients with cancer	11
Complementary therapy in palliative care: A synthesis of qualitative and quantitative systematic reviews	11
Persistent socioeconomic inequalities in location of death and receipt of palliative care: A population-based cohort study	11
Service change and innovation in community end-of-life care during the COVID-19 pandemic: Qualitative analysis of a nationwide primary care survey	11
Dying in times of COVID-19: Experiences in different care settings – An online questionnaire study among bereaved relatives (the CO-LIVE study)	11
Death doulas as supportive companions in end-of-life care: A scoping review	10
Interventions to support family caregivers of people with advanced dementia at the end of life in nursing homes: A mixed-methods systematic review	10
Virtual reality for pain management in advanced heart failure: A randomized controlled study	10
Effect of continuous deep sedation on survival in the last days of life of cancer patients: A multicenter prospective cohort study	10
Symptom burden and lived experiences of patients, caregivers and healthcare professionals on the management of malignant bowel obstruction: A qualitative systematic review	10
The Me in We dyadic communication intervention is feasible and acceptable among advanced cancer patients and their family caregivers	10
Opioid underuse in terminal care of long-term care facility residents with pain and/or dyspnoea: A cross-sectional PACE-survey in six European countries	10
Using the Delphi technique to achieve consensus on bereavement care in palliative care in Europe: An EAPC White Paper	10
How can we ensure the success of specialised palliative home-care? A qualitative study (ELSAH) identifying key issues from the perspective of patients, relatives and health professionals	10
Experiences of transitioning between settings of care from the perspectives of patients with advanced illness receiving specialist palliative care and their family caregivers: A qualitative interview	10
‘It feels it’s wasting whatever time I’ve got left’: A qualitative study of living with treatable but not curable cancer during the COVID-19 pandemic	10
The pervasive relevance of COVID-19 within routine paediatric palliative care consultations during the pandemic: A conversation analytic study	10
End-of-life care after the legal introduction of advance directives: A qualitative study involving healthcare professionals and family caregivers of patients with amyotrophic lateral sclerosis	10
Existential suffering in the day to day lives of those living with palliative care needs arising from chronic obstructive pulmonary disease (COPD): A systematic integrative literature review	10
Smiles behind the masks: A systematic review and narrative synthesis exploring how family members of seriously ill or dying patients are supported during infectious disease outbreaks	10
Moral distress amongst palliative care doctors working during the COVID-19 pandemic: A narrative-focussed interview study	10
Culture in the spotlight—cultural adaptation and content validity of the integrated palliative care outcome scale for dementia: A cognitive interview study	10
Do family meetings for hospitalised palliative care patients improve outcomes and reduce health care costs? A cluster randomised trial	10