OOIR: Observatory of International Research

Papers

(The TQCC of Palliative Medicine is 11. The table below lists those papers that are above that threshold based on CrossRef citation counts [max. 250 papers]. The publications cover those that have been published in the past four years, i.e., from 2022-01-01 to 2026-01-01.)

Article	Citations
A tribute to Derek Doyle and Cynthia Goh	408
Assessing the suitability of the Carer Support Needs Assessment Tool (CSNAT-Paediatric) for use with parents of children with a life-limiting condition: A qualitative secondary analysis	97
Facilitators and barriers in using comics to support family caregivers of patients receiving palliative care at home: A qualitative study	62
Neuropalliative care for progressive neurological diseases: A scoping review on models of care and priorities for future research	59
Posttraumatic growth in palliative care settings: A scoping review of prevalence, characteristics and interventions	57
What are we planning, exactly? The perspectives of people with intellectual disabilities, their carers and professionals on end-of-life care planning: A focus group study	53
Complexity and function of family involvement in advance care planning: A qualitative study of perspectives from people living with advanced cancer, family members and healthcare professionals	52
Resilience in advanced cancer caregiving. A systematic review and meta-synthesis	44
Views of patients with progressive illness and carers about the role of digital advance care planning systems to record and share information: A qualitative study	41
‘Saying goodbye’. . . A systematic integrative review of palliative caregiving in intergenerational living contexts	40
Preserving the integrity of personhood in people with advanced cancer: An in-depth qualitative study among patients, relatives, and care professionals	37
The experiences, perceptions, and support needs among family caregivers of patients with advanced cancer and eating problems: An integrative review	36
Effect of continuous deep sedation on survival in the last days of life of cancer patients: A multicenter prospective cohort study	34
Palliative care volunteering: Pressing challenges in research	33
“Walk me through the final day”: A thematic analysis study on the family caregiver experience of the Medical Assistance in Dying procedure day	33
Maybe for unbearable suffering: Diverse racial, ethnic and cultural perspectives of assisted dying. A scoping review	31
Living experiences of people with advance cancer with low socioeconomic status: A systematic review of qualitative evidence	29
Mixed methods process evaluation of an advance care planning intervention among nursing home staff	28
Corrigendum to Updating international consensus on best practice in care of the dying: A Delphi study	28
Facilitating equitable access to hospice care in socially deprived areas: A mixed methods multiple case study	28
The experience of nurses when providing care across acts that may be perceived as death hastening: A qualitative evidence synthesis	27
Differences in palliative care needs between cancer patients and non-cancer patients at the start of specialized palliative care: A nationwide register-based study	27
Identifying, exploring and integrating the spiritual dimension in proactive care planning: A mixed methods evaluation of a communication training intervention for multidisciplinary palliative care tea	27
The 13th World Research Congress of the European Association for Palliative Care	27
What is the role of paramedics in palliative and end of life care?	26

A rapid review of end-of-life needs in the LGBTQ+ community and recommendations for clinicians	26
‘Sadly I think we are sort of still quite white, middle-class really’ – Inequities in access to bereavement support: Findings from a mixed methods study	25
Parents’ experiences of being involved in medical decision-making for their child with a life-limiting condition: A systematic review with narrative synthesis	24
Utilizing intricate care networks: An ethnography of patients and families navigating palliative care in a resource-limited setting	23
The utility of the surprise question: A useful tool for identifying patients nearing the last phase of life? A systematic review and meta-analysis	23
How best to capture the impact of complementary therapies in palliative care: A systematic review to identify and assess the appropriateness and validity of multi-domain tools	22
Support from healthcare professionals in empowering family carers to discuss advance care planning: A population-based survey	22
A peripherally acting μ-opioid receptor antagonist for treating opioid-associated tinnitus: A case report	21
The management of absolute iron deficiency anaemia in the palliative care population: A reply to Neoh et al.	21
What outcomes do studies use to measure the impact of prognostication on people with advanced cancer? Findings from a systematic review of quantitative and qualitative studies	21
C-reactive protein and white blood cell count are adverse prognostic markers for patients with advanced cancer on parenteral nutrition in a palliative care unit setting: A retrospective cohort study	20
Delirium prevention in hospices: Opportunities and limitations – A focused ethnography	20
An emergency department nurse led intervention to facilitate serious illness conversations among seriously ill older adults: A feasibility study	20
Education modalities for serious illness communication training: A scoping review on the impact on clinician behavior and patient outcomes	20
How much information is ‘reasonable’? A qualitative interview study of the prescribing practices of palliative care professionals	20
Medical communication and decision-making about assisted hydration in the last days of life: A qualitative study of doctors experienced with end of life care	19
Barriers and facilitators influencing referral and access to palliative care for children and young people with life-limiting and life-threatening conditions: a scoping review of the evidence	19
“ I think that she would have wanted. . .” : Qualitative interviews with bereaved caregivers reveal complexity in measuring goal-concordant care at the end of life	19
Machine learning models to detect social distress, spiritual pain, and severe physical psychological symptoms in terminally ill patients with cancer from unstructured text data in electronic medical r	19
Bridging cultures in palliative care: A qualitative study of the care of Indigenous Australians with advanced illness	19
Re: Tan et al., Subcutaneous sodium valproate in palliative care: A systematic review	18
Implementation of an acute palliative care unit for COVID-19 patients in a tertiary hospital: Qualitative data on clinician perspectives	18
Integrating lived experiences of out-of-hours health services for people with palliative and end-of-life care needs with national datasets for people dying in Scotland in 2016: A mixed methods, multi-	18
Prevalence, risk factors and management of pressure injuries and their implications for palliative care: A rapid overview of reviews	18
Factors associated with hospitalisations of patients with chronic heart failure approaching the end of life: A systematic review	17
‘How long do you think?’ Unresponsive dying patients in a specialist palliative care service: A consecutive cohort study	17
Effectiveness of and implementation requirements for telehealth in palliative care patients with advanced cancer: A systematic review and meta-analysis	16
Health care professional recruitment of patients and family carers to palliative care randomised controlled trials: A qualitative multiple case study	16
Hypertonic packs to reverse blindness caused by facial lymphoedema in the setting of head and neck cancer – A case report	16
Exploring “good days” with advanced cancer: A pilot daily diary study	16
The 19th World Congress of the European Association for Palliative Care 29 – 31 May 2025 Helsinki, Finland	16
Engagement of specialized palliative care services with the general public: A population-level survey in three European countries	16
Impact of expected parental death on the health of adolescent and young adult children: A systematic review of the literature	16
Enhancing the wellbeing of refugees living with advanced life-limiting illness in high-income resettlement countries: A systematic review	16
Systematic review of conceptual and theoretical frameworks used in palliative care and end-of-life care research studies	15
Pharmacological treatment of pain, dyspnea, death rattle, fever, nausea, and vomiting in the last days of life in older people: A systematic review	15
Memory-making interventions for children with life-threatening or life-limiting conditions and their families: A systematic review of evidence and implications for practice	15
Caring toward end of life through acute hospital and community partnerships: A scoping review	14
Deaths at home, area-based deprivation and the effect of the Covid-19 pandemic: An analysis of mortality data across four nations	14
‘Adrift in a sea of just absolute unknowableness’: A multimethod qualitative study exploring patient, carer and healthcare professional experiences of communicating about future uncertainty in multimo	14
A systematic review on the impact of financial insecurity on the physical and psychological well-being for people living with terminal illness	14
Models, components and outcomes of palliative and end-of-life care provided to adults living at home: A systematic umbrella review of reviews	14
Measurement equivalence of the paper-based and electronic version of the Integrated Palliative care Outcome Scale (IPOS): A randomised crossover trial	14
‘So being here is. . . I feel like I’m being a social worker again, at the hospice’: Using interpretative phenomenological analysis to explore social workers’ experiences of hospice work	14
Thanks to Reviewers	14
A narrow view of palliative care and assisted dying	14
Effectiveness of transmural team-based palliative care in prevention of hospitalizations in patients at the end of life: A systematic review and meta-analysis	14
International consensus on occupational therapy interventions for people with palliative care needs: A European Association for Palliative Care Group Concept Mapping study	14
The perspectives of people with dementia and their supporters on advance care planning: A qualitative study with the European Working Group of People with Dementia	14
Supporting best practice in reflexive thematic analysis reporting in Palliative Medicine: A review of published research and introduction to the Reflexive Thematic Analysis Reporting Guideli	14

EAPC2023 Abstract Book	14
Exercise interventions for advanced cancer palliative care patients: A systematic literature review and descriptive evidence synthesis of randomized controlled trials	13
What can patient safety science do for palliative care? Bridging the gap	13
Reducing unnecessary hospital admissions for end-of-life patients in lower and middle-income countries	13
The spiritual dimension of parenting a child with a life-limiting or life-threatening condition: A mixed-methods systematic review	13
Coming to terms with dying: Advance care planning as a conduit between clinicians, patients, and conversations about death and dying – a qualitative interview study	13
Effects of advance care planning in care dependent community-dwelling older persons (STADPLAN): A cluster-randomised controlled trial	13
Advance care planning and quality of life: A qualitative interview study in people with young-onset dementia and their family caregivers	13
Where to for core outcome sets for best care for the dying person?	13
Healthy siblings’ perspectives about paediatric palliative care: A qualitative systematic review and meta-synthesis	13
Iatrogenic suffering at the end of life: An ethnographic study	12
Motor neurone disease: A point-prevalence study of patient reported symptom prevalence, severity and palliative care needs	12
Response to letters about “Palliative care and assisted dying: Uneasy bedfellows”	12
Palliative and end-of-life care needs, experiences, and preferences of LGBTQ+ individuals with serious illness: A systematic mixed-methods review	12
Memory making during bereavement care following the death of a child: A survey exploring parental experiences	12
A peripheral opioid antagonist for treating urinary retention induced by opioids: A case report	12
Masculinity and ethnicity in intersection: Implications for men’s health and palliative care services	12
Practice review: Evidence-based and effective management of anaemia in palliative care patients	12
Telehealth requires improved evidence to achieve its full potential in palliative care	12
When a dying patient is asked to participate in a double-blind, placebo-controlled clinical trial on symptom control: The decision-making process and experiences of relatives	12
Palliative care and neuro-oncological care: Better integration is needed	12
Perspectives of inpatients with palliative care needs, their families, clinicians and key stakeholders on measuring quality of hospital care via patient experience measures: A qualitative study	12
Closing the health equity gap in palliative care: The time for action is now	12
A rapid review of the evidence for online interventions for bereavement support	12
The ideal path to a good death: An international meta-synthesis of rural residents’ perspectives	12
Definition and recommendations of advance care planning: A Delphi study in five Asian sectors	12
Reducing inequity in the provision of children’s palliative care in low- and middle- income countries: A focus on education and research	12
The spiritual care intervention “In dialogue with your life story”: Results of a longitudinal study on palliative clients’ spiritual wellbeing	12
Loneliness, its effect on mental and physical health, and the dying	12
Strategies and checklist for designing and conducting palliative care research with family carers: EAPC international expert elicitation study	12
The development of the ADO-SQ model to predict 1-year mortality in patients with COPD	12
What are the triggers for palliative care referral in burn intensive care units? Results from a qualitative study based on healthcare professionals’ views, clinical experiences and practices	11
Tensions in advance care planning with dementia: Time for a good-enough laid-back approach?	11
COVID-19 in pediatric palliative care patients: Multicenter, retrospective cohort study	11
Revised recommendations on standards and norms for palliative care in Europe from the European Association for Palliative Care (EAPC): A Delphi study	11
An easier way to die?—A qualitative interview study on specialist palliative care team members’ views on dying under sedation	11
Pharmacovigilance in hospice/palliative care: Net effect of amitriptyline or nortriptyline on neuropathic pain: UTS/IMPACCT Rapid programme international consecutive cohort	11
Implementation of clinical guidelines in specialized palliative care—results from a national improvement project: A national register-based study	11
Peer review and Palliative Medicine : Guiding reviewers’ contributions to ensuring high quality publications	11
‘I couldn’t live without hope’: A qualitative study using reflexive thematic analysis on approaches to hope and prognostic awareness among people with advanced disease	11
‘My life is a mess but I cope’: An analysis of the language children and young people use to describe their own life-limiting or life-threatening condition	11
Sexual health at the end of life in patients with advanced cancer and their partners. Results of a Dutch prospective longitudinal study (eQuiPe)	11
Feeling groovy? The present and future of psychedelic research in palliative care	11
An electronic pre-visit agenda-setting questionnaire in ambulatory palliative care is feasible and acceptable to patients, care partners, and clinicians: A mixed methods evaluation	11
Moral distress amongst palliative care doctors working during the COVID-19 pandemic: A narrative-focussed interview study	11
Effectiveness and safety of opioids on breathlessness and exercise endurance in patients with chronic obstructive pulmonary disease: A systematic review and meta-analysis of randomised controlled tria	11
Co-designing a culturally-sensitive theory-driven advance care planning game with Chinese older adults and healthcare providers	11