Hastings Center Report

Article	Citations
An Ecostructural Lens for Health Ethics	48
Guiding the Future: Rethinking the Role of Advance Directives in the Care of People with Dementia	38
Deciding with Others: Interdependent Decision‐Making	32
What Patient‐Experience Data Reveal about Trust	26
On the Authority of Advance Euthanasia Directives for People with Severe Dementia: Reflections on a Dutch Case	24
About the Special Report	20
Cultivating Peace and Health at Community Health Centers	19
Contributors	19
Moral Status and the Oversight of Research Involving Chimeric Animals	18
Abortion Access Persists, but So Do the Threats	16
Contributors	16
From Eugenics to Human Genome Editing: Bionationalism and Instrumentalizing Life in China within a Global Context	15
Moving toward Equity through Embedded ELSI Ethnography	14
Trust in Crises and Crises of Trust	13
Xenotransplantation Clinical Trials and the Need for Community Engagement	13
Home Care in America: The Urgent Challenge of Putting Ethical Care into Practice	13
The Pandemic of Invisible Victims in American Mental Health	12
Making the Move to a Learning System of Research Ethics	12
How Seeking Transfer Often Fails to Help Define Medically Inappropriate Treatment	11
Contributors	11
Digital Mental Health Tools and AI Therapy Chatbots: A Balanced Approach to Regulation	10
Challenging Disability Discrimination in the Clinical Use of PDMP Algorithms	10
Reevaluating the Ethical Issues in Porcine‐to‐Human Heart Xenotransplantation	10
Choice in the Context of Dementia: Emerging Issues for Health Care Practice in Aging Societies	10
Clinician Moral Distress: Toward an Ethics of Agent‐Regret	9

Errata	9
Contributors	9
Enhancing Equity in Genomics: Incorporating Measures of Structural Racism, Discrimination, and Social Determinants of Health	9
Identity Theft, Deep Brain Stimulation, and the Primacy of Post‐trial Obligations	9
Stef M. Shuster and Meredithe McNamara reply:	8
Contributors	8
Moral Humility for a Complex World	8
Why Aren't There More Whistleblowers?	8
Complex Decisions	8
Who Carries the Responsibility for Health Care Carbon Reduction?	8
Lockdowns, Bioethics, and the Public: Policy‐Making in a Liberal Democracy	8
	8
“You have to trust yourself”: The Overlooked Role of Self‐Trust in Coping with Chronic Illness	8
Defining Death Anew: Reexamining the Twentieth‐Century Brain Death Debates and the Uniform Determination of Death Act	8
What Is the Aim of Pediatric “Gender‐Affirming” Care?	7
The Case for Baptizing a Dying, Unconscious Atheist	7
Risk‐Sensitive Assessment of Decision‐Making Capacity: A Comprehensive Defense	7
Errors in Converting Principles to Protocols: Where the Bioethics of U.S. Covid‐19 Vaccine Allocation Went Wrong	7
Neither Ethical nor Prudent: Why Not to Choose Normothermic Regional Perfusion	6
Rethinking the Burden of Traditional Informed Consent Prior to Prenatal Genetic Screening	6
Is Food Medicine?	6
Rethinking Decision Quality: Measures, Meaning, and Bioethics	5
The Problem Is Not (Merely) Mass Incarceration: Incarceration as a Bioethical Crisis and Abolition as a Moral Obligation	5
In Defense of Openness—Genetic Knowledge and Gamete Donation	5
	5
Accountability for Reasonableness as a Framework for the Promotion of Fair and Equitable Research	5
Dementia and Concurrent Consent to Sexual Relations	5
The Values That Influence Psychiatric Diagnosis and Accountability	5
Issue Information and About the Cover Art	5
Global Efforts to Protect Healthy Volunteers	5
The Microethics of Communication in Health Care: A New Framework for the Fast Thinking of Everyday Clinical Encounters	4
What Do Prospective Parents Owe to Their Children?	4
Moral Nuances in Broad Policies	4
Dementia, Narrative, and Place: What Can Be Learned from the Age‐Friendly Movement?	4
Finding Disability in Everyday Life	4
Exploring the Ethics of the Parental Role in Parent‐Clinician Conflict	4
Editors and Authors	4
Principled Conscientious Provision: Referral Symmetry and Its Implications for Protecting Secular Conscience	4
Recalibrating Bioethics for the Reality of Interdependence: The Challenge of Collective‐Impact Problems	4
Justifying Clinical Deception: Some Amendments to Brummett and Salter	4
Policy, Politics, and Impact	4
Deception, Pain, and Placebo: Applying the Brummett‐Salter Deception Framework	4
Gender and Sport	4
Intersecting Narratives in the Lives of Black Women Aging with Dementia	4
Rethinking Theory in Bioethics	4
Forgotten and without Protections: Older Adults in Prison Settings	4
Editors and Authors	3
About the Special Report	3
Contributors	3
Love Your Patient as Yourself: On Reviving the Broken Heart of American Medical Ethics	3

Stories and Shame in Front‐Line Medicine	3
Editors and Authors	3
Living in the Shadow of Uncertainty: Rethinking Cancer as Chronic Illness	3
Locked In	3
Public Engagement as a Form of Moral Leadership	3
Daoist Views on Disability and Genetic Intervention	3
Experiential Training in Psychedelic‐Assisted Therapy: A Risk‐Benefit Analysis	3
Arguments and Analogies: Do Children Have a Right to Know Their Genetic Origins?	3
Science and Justice	3
Fifty Years of U.S. Mass Incarceration and What It Means for Bioethics	3
Editors’ Statement on the Responsible Use of Generative AI Technologies in Scholarly Journal Publishing	3
Xenotransplantation: Injustice, Harm, and Alternatives for Addressing the Organ Crisis	3
Issue Information and About the Cover Art	3
Participant Engagement, Epistemic Injustice, and Early‐Phase Implanted Neural Device Research	3
Opening the Door: Rethinking “Difficult Conversations” about Living and Dying with Dementia	3
A Timely Pursuit: Disability Justice in Pandemic Planning	3
Contributors	3
The Dead Unborn, Postmortem Privacy Cases, and Abortion Rights	2
The Bioethicist as Healer	2
Issue Information and About the Cover Art	2
	2
Telemedicine and Healing Relationships	2
Issue Information	2
Talking with Each Other about Science	2
Food and Drug Administration v. Alliance for Hippocratic Medicine: How Conscience Protections Preserved Mifepristone Access	2
Knowing the Mind from Brain Data: The Challenge of Prediction and the Fairness of Relying on Objective Data about the Mind	2
Parity, Poverty, and Physician Aid in Dying: Policy Recommendations for PAD in Light of Social Injustices	2
About the Special Report	2
Choosing to Die	2
When Mistakes Multiply: How Inadequate Responses to Medical Mishaps Erode Trust in American Medicine	2
Neuroscience and Society: Supporting and Unsettling Public Engagement	2
Contributors	2
Rethinking the Ethics of the Covid‐19 Pandemic Lockdowns	2
Can Caregivers Ever Say No?	2
Should Parents of the Deceased Have Standing to Initiate Posthumous Sperm Retrieval? Analyzing Developments in Israel	2
A Life Worth Sustaining? Bestowed Worth and Pediatric Care	2
Can Open Science Advance Health Justice? Genomic Research Dissemination in the Evolving Data‐Sharing Landscape	2
Dignity and the Founding Myth of Bioethics	2
	2
Genetics and Scientific Values: Aaron Panofsky, Kushan Dasgupta, Nicole Iturriaga, and Bernard Koch Reply	2
Implicit Narratives in Participatory Arts Collaborations with People with Lived Experience of Dementia	2
Gender‐Affirming Care for Cisgender People	2
The Need for Bioethics Departments in HBCU Medical Schools	2
Residency Requirements for Medical Aid in Dying	2
The Ethic of Accompaniment	2
	2
Bright‐Line Policy and the Future of the Fourteen‐Day Rule	2
What Makes a Better Life for People Facing Dementia? Toward Dementia‐Friendly Health and Social Policy, Medical Care, and Community Support in the United States	2
Dementia as a Critical Lens on the Role of Narrative in Medical Training and Practice	2
A Prescriptive Metaphysics of DEATH	2
Editors and Authors	2
Smuggled Doughnuts and Forbidden Fried Chicken: Addressing Tensions around Family and Food Restrictions in Hospitals	2
Managing Dependence: Assistive Technologies in Dementia Care	2
Leah Z. Rand, Daniel P. Carpenter, Aaron S. Kesselheim, Anushka Bhaskar, Jonathan J. Darrow, and William B. Feldman Reply	1
Holding the Guardrails on Involuntary Commitment	1
The Problem of Clinical Deception and Why We Cannot Begin in the Middle	1
The Case for Prescribing Metformin Off‐Label for a Child in Remission from Ependymoma	1
Musical Performance and Biomedical Human Enhancement: Ethnographic Perspectives on Bioethical Questions	1
Issue Information and About the Cover Art	1
Issue Information and About the Cover Art	1
Confronting the “Weaponization” of Genetics by Racists Online and Elsewhere	1
Contributors	1
Conscience, Caricatures, and Catholic Identities	1
Protecting Health after Dobbs	1
Can I Hold That Thought for You? Dementia and Shared Relational Agency	1
Issue Information (About the Cover Art)	1
Rectifying or Reinforcing? The (In)Equity Implications of Recontacting Practices in Genomic Medicine	1
Zoonoses and Animal Culling: The Need for One Health Policy	1
Inferring Mental States from Brain Data: Ethico‐legal Questions about Social Uses of Brain Data	1
Implications for All Animal Research	1
Carbon Emissions from Overuse of U.S. Health Care: Medical and Ethical Problems	1
Erratum	1
	1
Making the World Safer and Fairer in Pandemics	1
Strategic Ethics: Physician Associations and Their Roles in Pursuing Racial Equity	1
History and the Challenges of Dementia	1
Unfolding Hidden Narratives: Glimpses of an Ethos of Senses in a Dementia‐Care Facility	1
Spiritual Care Ethics	1
Banning Gender‐Affirming Treatment for Minors: The Supreme Court Speaks	1
Thinking about Moral Progress	1

Issue Information and About the Cover Art	1
Contributors	1
Contributors	1
Where the Genetic Code Meets the Zip Code: Advancing Equity in Rare Disease Genomics	1
Physician Perspectives on Building Trust with Patients	1
	1
Big Mistake: Knowing and Doing Better in Patient Engagement	1
Do Suicide Attempters Have a Right Not to Be Stabilized in an Emergency?	1
On Old Age: A Relational Account of Agency and Meaning in Later Life	1
Henri Wijsbek and Thomas Nys Respond	1
Transformed but Not Cured: The Ethics of Describing Gene‐Editing Therapy for Sickle Cell Disease	1
In Defense of Normothermic Regional Perfusion	1
Issue Information (About the Cover Art)	1
Composite Animals: Then and Now	1
Tyler Tate replies	1
How Should Clinical Ethics Evolve to Ensure Moral Use of AI?	1
Editors and Authors	1
U.S. Lawsuit Claims Federal Law Can Require Emergency Abortions	1
Care or Complicity? Medical Personnel in Prisons	1
Expanding the Agenda for a More Just Genomics	1
	1
	1
Issue Information and About the Cover Art	1
Breaking Binaries: The Critical Need for Feminist Bioethics in Pediatric Gender‐Affirming Care	1
Conscientious Provision of Care	1
Contributors	1
Contributors	1
The Ethics of Humanlikeness in AI Therapy Chatbots	1
Epistemic Humility in the Age of Assisted Dying	0
Climates of Distrust in Medicine	0
Legal Discrepancies and Expectations of Women: Abortion, Fetal Therapy, and NICU Care	0
Issue Information and About the Cover Art	0
Editors and Authors	0
Too Soon or Too Late: Rethinking the Significance of Six Months When Dementia Is a Primary Diagnosis	0
	0
Facing Progress with Pragmatism: Telemedicine and Family Medicine	0
Brain Pioneers and Moral Entanglement: An Argument for Post‐trial Responsibilities in Neural‐Device Trials	0
	0
Demonstrating Trustworthiness to Patients in Data‐Driven Health Care	0
Expanding Boundaries	0
Governance of Direct‐to‐User Digital Mental Health Tools: Emphasizing Transparency over Paternalism	0
Genome Engineering, Chemical Exposure, and the Germline: An Ethical Synthesis	0
Ethical Challenges of Advances in Vaccine Delivery Technologies	0
Contributors	0
Values and Evidence in Gender‐Affirming Care	0
Abigail Levin replies	0
Human, Nonhuman, and Chimeric Research: Considering Old Issues with New Research	0
Contributors	0
Past: Imperfect; Future: Tense	0
Euthanasia as Medical Therapy in Canada	0
The Moral Value of Telemedicine to the Physician‐Patient Relationship	0
Disability, Relational Equality, and the Expressivist Objection	0
On Normothermic Regional Perfusion	0
	0
Related Developments and Debates in Canada: Time Line and Publications	0
Synthetic Health Data: Real Ethical Promise and Peril	0
Dignity, Personhood, or Sacred Selves? Complicating Medical Literature and Caregiver Narratives in Dementia Care	0
Troubling Trends in Health Misinformation Related to Gender‐Affirming Care	0
About The Hastings Center and the Cover Art	0
Speaking Truthfully about Provider‐Assisted Death	0
Centering Home Care in Bioethics Scholarship, Education, and Practice	0
Mapping the Moral Terrain of Clinical Deception	0
The Pitfalls of Genomic Data Diversity	0
Interweaving Indigenous and Western Concepts of Dementia	0
Preventive Human Genome Editing and Enhancement: Candidate Criteria for Governance	0
Dependence	0
Reliable Narrators of Experience: Rethinking Dementia Narratives from Insider Perspectives	0
Nancy S. Jecker, Zohar Lederman, and Anita Ho reply	0
In Defense of Post Hoc Explanations in Medical AI	0
Love Is Good, but Does It Have Teeth?	0
The Third Person in the Room	0
Clarifying the Ethics and Oversight of Chimeric Research	0
	0
Hidden Ethical Challenges in Health Data Infrastructure	0
	0
Issue Information (About the Cover Art)	0
Issue Information and About the Cover Art	0
About The Hastings Center, the Center for ELSI Resources and Analysis, and the Cover Art	0
	0
Contributors	0
Raising the Dead? Limits of CPR and Harms of Defensive Practices	0
Colonial and Neocolonial Barriers to Companion Digital Humans in Africa	0
Issue Information and About the Cover Art	0
	0
The Hennepin Healthcare Forced Ketamine Studies, Excited Delirium, and Police Violence	0
Why We Can Thrive past Seventy‐Five: In Favor of Efforts to Extend the Human Lifespan	0
Genomics and Biodiversity: Applications and Ethical Considerations for Climate‐Just Conservation	0
Issue Information and About the Cover Art	0
An Ambitious Goal: A Grounded, Informed, and Compelling Theological Bioethics	0
What Does Moral Agency Mean for Nurses in the Era of Artificial Intelligence?	0
Contributors	0
Hope and Exploitation in Commercial Provision of Assisted Reproductive Technologies	0
Reproductive Embryo Editing: Attending to Justice	0
Rethinking Mandated Drug Treatment: Why Expanding Freedom Requires Structural Drug Policy Reform	0
Offering “Faux Codes”: An Ethical Option for the Patient Who Can't Tell Their Family No	0