Hastings Center Report

Article	Citations
Opening the Door: Rethinking “Difficult Conversations” about Living and Dying with Dementia	32
Guiding the Future: Rethinking the Role of Advance Directives in the Care of People with Dementia	23
Editors and Authors	19
About The Hastings Center and the Cover Art	17
Issue Information (About the Cover Art)	15
An Ecostructural Lens for Health Ethics	15
Issue Information (About the Cover Art)	13
Stories and Shame in Front‐Line Medicine	12
About the Special Report	11
History and Bioethics	11
Editors and Authors	10
	10
Pediatric Off‐Label Use of Covid‐19 Vaccines: Ethical and Legal Considerations	10
Bioethics Rooted in Justice: Community‐Expert Reflections	10
Contributors	10
What Patient‐Experience Data Reveal about Trust	10
Living Out a Life's Meaning	10
A Realpolitik for Presidential Health: A Psychiatrist's Perspective	9
Virginia A. Brown replies	9
ICU Care in a Pandemic	8
Authenticity and Clinical Decision‐Making	8
Teneille Brown, Leslie Francis, and James Tabery respond	8
Essential Reading for Bioethicists in the Anthropocene Era	8
On Ethicists and Their Diets	7
Contributors	7

Disability Affirmative Action Requirements for the U.S. HHS and Academic Medical Centers	7
What Do Genomics Studies Really Mean? A New Resource	7
Resisting Transhumanist Fantasies	7
Public Engagement and the Social Risks of Science	7
The Decision Phases Framework for Public Engagement:Engaging Stakeholders about Gene Editing in the Wild	6
Bioethics' Conceptual Tool Kit	6
Ending One's Life in Advance	6
Restructuring Deliberation Using a Cultural Theory Lens	6
About the Special Report	6
The Business of Medicine Fails Many American Patients	6
Social Equality in an Alternate World	6
Issue Information (About the Cover Art)	6
Public Attitudes toward Consent When Research Is Integrated into Care—Any “Ought” from All the “Is”?	6
Holding the Guardrails on Involuntary Commitment	5
Science and Justice	5
Understanding Organ Stewardship	5
Deciding with Others: Interdependent Decision‐Making	5
Love Your Patient as Yourself: On Reviving the Broken Heart of American Medical Ethics	5
How to Diagnose Abhorrent Science	5
Strategic Ethics: Physician Associations and Their Roles in Pursuing Racial Equity	5
A Risk Is Not a Harm: Abortion Exceptions in State Laws	5
Material Insecurity, Racial Capitalism, and Public Health	5
Deficits of Public Deliberation in U.S. Oversight for Gene Edited Organisms	5
Making the World Safer and Fairer in Pandemics	5
Fifty Years of U.S. Mass Incarceration and What It Means for Bioethics	5
It Is Time to Abandon the Dogma That Brain Death Is Biological Death	5
Experiential Training in Psychedelic‐Assisted Therapy: A Risk‐Benefit Analysis	5
Centering Home Care in Bioethics Scholarship, Education, and Practice	5
The Bioethics of Built Space: Health Care Architecture as a Medical Intervention	4
How Chimeric Animal Research Impacts Animal Welfare: A Conversation with Animal Welfare Experts	4
Contributors	4
Colonial and Neocolonial Barriers to Companion Digital Humans in Africa	4
If Not Now, Then When? Taking Disability Seriously in Bioethics	4
About The Hastings Center and the Cover Art	4
Health Justice and Rawls's Theory at Fifty: Will New Thinking about Health and Inequality Influence the Most Influential Account of Justice?	4
Facing Progress with Pragmatism: Telemedicine and Family Medicine	4
About The Hastings Center, the Department of Bioethics at Case Western Reserve University, and the Cover Art	4
Testimonies and Healing: Anti‐oppressive Research with Black Women and the Implications for Compassionate Ethical Care	4
Editors and Authors	4
Editors’ Statement on the Responsible Use of Generative AI Technologies in Scholarly Journal Publishing	4
Genomics and Health Data Governance in Africa: Democratize the Use of Big Data and Popularize Public Engagement	4
Do Health Care Organizations Have Legitimate Responsibilities beyond the Delivery of Health Care? Insights from Citizenship Theory	4
Black and Waiting: Bioethics and Care during the Covid‐19 Pandemic	4
Composite Animals: Then and Now	4
	4
Genomics and Biodiversity: Applications and Ethical Considerations for Climate‐Just Conservation	4
Erratum	4
Giving Voice to the Voiceless in Environmental Gene Editing	4
Wrestling with Public Input on an Ethical Analysis of Scientific Research	3
Too Soon or Too Late: Rethinking the Significance of Six Months When Dementia Is a Primary Diagnosis	3

Issue Information (About the Cover Art)	3
Dementia, Sex, and Consent: Beyond the Uncomplicated Cases	3
Locked In	3
Contributors	3
	3
Related Developments and Debates in Canada: Time Line and Publications	3
Why the Gene Was (Mis)Placed at the Center of American Health Policy	3
Contributors	3
About the Special Report	3
Cultivating Peace and Health at Community Health Centers	3
Can I Hold That Thought for You? Dementia and Shared Relational Agency	3
What Makes a Better Life for People Facing Dementia? Toward Dementia‐Friendly Health and Social Policy, Medical Care, and Community Support in the United States	3
	3
Contributors	3
	3
Activism and the Clinical Ethicist	3
Conscience, Caricatures, and Catholic Identities	3
Big Mistake: Knowing and Doing Better in Patient Engagement	2
Contributors	2
Another Defense of Abortion: What Transplant Ethics Tells Us about the Ethics of Abortion after Dobbs	2
	2
Care or Complicity? Medical Personnel in Prisons	2
Issue Information and About the Cover Art	2
Can Open Science Advance Health Justice? Genomic Research Dissemination in the Evolving Data‐Sharing Landscape	2
Empowering Indigenous Knowledge in Deliberations on Gene Editing in the Wild	2
About The Hastings Center, the Center for ELSI Resources and Analysis, and the Cover Art	2
The Crisis in Standards of Care	2
Contributors	2
Vulnerability, Autonomy, and the Living Organ Donor	2
The Open Donor View and Procreative Beneficence	2
Breaking Binaries: The Critical Need for Feminist Bioethics in Pediatric Gender‐Affirming Care	2
Contributors	2
Contributors	2
A Coeditors' Note	2
The Public Performativity of Trust	2
Contributors	2
Moving toward Equity through Embedded ELSI Ethnography	2
Advance Directives: The Principle of Determining Authenticity	2
Risk Trade‐Offs and Equitable Decision‐Making in the Covid‐19 Pandemic	2
Hope to the End	2
A Developing Timeline for Bioethics	2
Learning Health Systems, Informed Consent, and Respect for Persons	2
Not Just for Nurses	2
Toward Justice and Community Empowerment in Genomics Studies on Sensitive Traits	2
The UN Challenge to Guardianship and Surrogate Decision‐Making	2
Challenging Disability Discrimination in the Clinical Use of PDMP Algorithms	2
A Call for Solidarity in Bioethics: Confronting Anti‐Black Racism Together	2
From Eugenics to Human Genome Editing: Bionationalism and Instrumentalizing Life in China within a Global Context	2
Legal and Ethical Issues in the Report Heritable Human Genome Editing	2
Nothing about Us without Us in Precision Medicine: A Call to Reframe Disability Difference in Genetics and Genomics	2
Ethics of a Mandatory Waiting Period for Female Sterilization	2
Lessons from Biomedical Innovation during World War II	2
Zoonoses and Animal Culling: The Need for One Health Policy	2
Structural Inequities, Fair Opportunity, and the Allocation of Scarce ICU Resources	1
Antiracist Activism in Clinical Ethics: What's Stopping Us?	1
Hope and Exploitation in Commercial Provision of Assisted Reproductive Technologies	1
Justice through a Wide‐Angle Lens	1
On the Authority of Advance Euthanasia Directives for People with Severe Dementia: Reflections on a Dutch Case	1
Erratum	1
Issue Information (About the Cover Art)	1
Home Care in America: The Urgent Challenge of Putting Ethical Care into Practice	1
Moral Status and the Oversight of Research Involving Chimeric Animals	1
Removing a Disabled Person from Her Treasured Independent Living	1
Moral Humility for a Complex World	1
Public Trust and Medical Ethics	1
Issue Information	1
Cruzan after Dobbs: What Remains of the Constitutional Right to Refuse Treatment?	1
From a Reckoning to Racial Concordance: A Strategy to Protect Black Mothers, Children, and Infants	1
The Case for Ethical Efficiency: A System That Has Run Out of Time	1
Thinking about Moral Progress	1
Equal Access to Organ Transplantation for People with Disabilities	1
Contributors	1
	1
Contributors	1
Expanding Paid Sick Leave Laws: The Public Health Imperative	1
Community‐Based Organizations as Trusted Messengers in Health	1
New Findings on Unconsented Intimate Exams Suggest Racial Bias and Gender Parity	1
Trust in Crises and Crises of Trust	1
Justice, Bioethics, and Covid‐19	1
On Normothermic Regional Perfusion	1

Issue Information and About the Cover Art	1
Climates of Distrust in Medicine	1
Care Ethics versus the CARES Act	1
When People Facing Dementia Choose to Hasten Death: The Landscape of Current Ethical, Legal, Medical, and Social Considerations in the United States	1
Physician Perspectives on Building Trust with Patients	1
Narratives in Public Deliberation: Empowering Gene Editing Debate with Storytelling	1
The Problem of Clinical Deception and Why We Cannot Begin in the Middle	1
Securing the Trustworthiness of the FDA to Build Public Trust in Vaccines	1
Ethics Big and Small, Thinking Fast and Slow	1
Why Clinical Ethicists Are Not Activists	1
Contributors	1
Facilitating Ukrainian Refugees’ Continued Participation in Clinical Trials	1
	1
Antiracist Praxis in Public Health: A Call for Ethical Reflections	1
Divided Loyalties: Fire and ICE	1
Threats to Benefits: Assessing Knowledge Production in Nonhuman Models of Human Neuropsychiatric Disorders	1
Looking Closely at Health Inequities	1
Earning Mistrust through Fake Compromises and Broken Promises	1
Contributors	1
Disability Access and Digital Platforms	1
About the Special Report	1
How Seeking Transfer Often Fails to Help Define Medically Inappropriate Treatment	1
Past: Imperfect; Future: Tense	1
Handle with Care: The WHO Report on Human Genome Editing	1
About The Hastings, the American Board of Internal Medicine Foundation, and the Cover Art	1
Gene Editing: How Can You Ask “Whether” If You Don't Know “How”?	1
In the Name of Racial Justice: Why Bioethics Should Care about Environmental Toxins	1
Distressed Work: Chronic Imperatives and Distress in Covid‐19 Critical Care	1
Disability, Bioethics, and the Problem of Prejudice	1
Digital Humans to Combat Loneliness and Social Isolation: Ethics Concerns and Policy Recommendations	1
Contributors	1
John Rawls, Godfather of Bioethics	1
Reevaluating the Ethical Issues in Porcine‐to‐Human Heart Xenotransplantation	1
To Understand Inequity, Bioethics Needs to Sort Things Out	1
	1
Coming to Terms with the Black Box Problem: How to Justify AI Systems in Health Care	1
The Bleak Future of Reproductive Rights for Queer Indians	1
Choice in the Context of Dementia: Emerging Issues for Health Care Practice in Aging Societies	1
Adam Omelianchuk, Alexander Morgan Capron, Lainie Friedman Ross, Arthur R. Derse, James L. Bernat, and David Magnus reply:	1
	1
Clarifying the Ethics and Oversight of Chimeric Research	1
Synthetic Health Data: Real Ethical Promise and Peril	1
BeforeThe Birth of Bioethics: James M. Gustafson at Yale	1
The Pandemic of Invisible Victims in American Mental Health	1
Lockdowns, Bioethics, and the Public: Policy‐Making in a Liberal Democracy	1
Life‐Years & Rationing in the Covid‐19 Pandemic: A Critical Analysis	1
Holding Them Accountable: Organizational Commitments to Ending Systemic Anti‐Black Racism in Medicine and Public Health	1
Pediatric Authenticity: Hiding in Plain Sight	1
Xenotransplantation Clinical Trials and the Need for Community Engagement	1
Issue Information and About the Cover Art	0
Mapping the Moral Terrain of Clinical Deception	0
	0
Demonstrating Trustworthiness to Patients in Data‐Driven Health Care	0
Govind Persad replies	0
Editors and Authors	0
Parity, Poverty, and Physician Aid in Dying: Policy Recommendations for PAD in Light of Social Injustices	0
Speaking Truthfully about Provider‐Assisted Death	0
Henri Wijsbek and Thomas Nys Respond	0
Erratum	0
A “Surprise” Health Policy Legislative Victory	0
Nancy S. Jecker, Zohar Lederman, and Anita Ho reply	0
Contributors	0
Activism and Bioethics: Taking a Stand on Things That Matter	0
Leah Z. Rand, Daniel P. Carpenter, Aaron S. Kesselheim, Anushka Bhaskar, Jonathan J. Darrow, and William B. Feldman Reply	0
Expanding the Agenda for a More Just Genomics	0
Dementia and Concurrent Consent to Sexual Relations	0
Issue Information and About the Cover Art	0
The Sociotechnical Construction of Distrust during the Covid‐19 Pandemic	0
Minors Lack the Autonomy to Consent to Gender‐Affirming Care: Best Interests Must Be Primary	0
Refusal of Representation in Advance Care Planning: A Case‐Inspired Ethical Analysis	0
Choosing to Die	0
	0
Exploring the Ethics of the Parental Role in Parent‐Clinician Conflict	0
Troubling Trends in Health Misinformation Related to Gender‐Affirming Care	0
Brain Pioneers and Moral Entanglement: An Argument for Post‐trial Responsibilities in Neural‐Device Trials	0
The Center's Highest Award	0
Deliberative Public Consultation via Deliberative Polling:Criteria and Methods	0
Values across Ages	0
Confronting the “Weaponization” of Genetics by Racists Online and Elsewhere	0
The Ethic of Accompaniment	0
Genetic Control in Historical Perspective:The Legacy of India's Genetic Control of Mosquitoes Unit	0
Expanding Boundaries	0
Reproductive Embryo Editing: Attending to Justice	0
Values and Evidence in Gender‐Affirming Care	0
The Dead Unborn, Postmortem Privacy Cases, and Abortion Rights	0
Issue Information	0
	0
Contributors	0
Erratum	0
Deception and Distress	0
Regulating AI in Health Care: The Challenges of Informed User Engagement	0
The Surrogation of Surrogacy: The Perils and Pitfalls of Epistemic Authority	0
Beneath the Sword of Damocles: Moral Obligations of Physicians in a Post‐Dobbs Landscape	0
What Do Prospective Parents Owe to Their Children?	0
Rectifying or Reinforcing? The (In)Equity Implications of Recontacting Practices in Genomic Medicine	0